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Quality of Life Research
Gepubliceerd in: Quality of Life Research 8/2007

01-10-2007

Issues in the design of Internet-based systems for collecting patient-reported outcomes

Auteurs: James B. Jones, Claire F. Snyder, Albert W. Wu

Gepubliceerd in: Quality of Life Research | Uitgave 8/2007

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Abstract

Background and objectives

Although there is a growing interest in using patient-reported outcomes (PRO) to monitor disease progression and/or therapeutic response, to improve care, and to screen for physical or psychosocial problems in routine clinical practice, PRO instruments can be difficult to administer, score, and interpret in this setting. Internet-based approaches to PRO collection may help overcome these obstacles. This paper discusses the rationale for using the Internet for routine PRO collection, summarizes relevant literature and ongoing projects, and raises several key design and development issues that should guide further efforts in this area.

Major findings

A small number of Internet-based PRO collection applications have been or are currently being developed. The major characteristics of several of these projects are reviewed and summarized. Successful Internet-based PRO collection applications must address patient and clinician-specific needs related to workflow and to the way in which results are presented. A growing number of instruments have been adapted for and evaluated in a web-based format.

Conclusions

Collecting PROs via the Internet has the potential to overcome many of the challenges associated with efforts to routinely use PROs in the clinical encounter.
vorige artikel Controlling for occasion-specific effects when assessing the test–retest reliability of self-report health questionnaires
volgende artikel Feasibility, validity and reliability of the Welsh version of the EQ-5D health status questionnaire
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Metagegevens
Titel
Issues in the design of Internet-based systems for collecting patient-reported outcomes
Auteurs
James B. Jones
Claire F. Snyder
Albert W. Wu
Publicatiedatum
01-10-2007
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 8/2007
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-007-9235-z

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