Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 8/2007

01-10-2007

Issues in the design of Internet-based systems for collecting patient-reported outcomes

Auteurs: James B. Jones, Claire F. Snyder, Albert W. Wu

Gepubliceerd in: Quality of Life Research | Uitgave 8/2007

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Background and objectives

Although there is a growing interest in using patient-reported outcomes (PRO) to monitor disease progression and/or therapeutic response, to improve care, and to screen for physical or psychosocial problems in routine clinical practice, PRO instruments can be difficult to administer, score, and interpret in this setting. Internet-based approaches to PRO collection may help overcome these obstacles. This paper discusses the rationale for using the Internet for routine PRO collection, summarizes relevant literature and ongoing projects, and raises several key design and development issues that should guide further efforts in this area.

Major findings

A small number of Internet-based PRO collection applications have been or are currently being developed. The major characteristics of several of these projects are reviewed and summarized. Successful Internet-based PRO collection applications must address patient and clinician-specific needs related to workflow and to the way in which results are presented. A growing number of instruments have been adapted for and evaluated in a web-based format.

Conclusions

Collecting PROs via the Internet has the potential to overcome many of the challenges associated with efforts to routinely use PROs in the clinical encounter.
Literatuur
1.
go back to reference Ellwood, P. M. (1988). Shattuck lecture–outcomes management. A technology of patient experience. The New England Journal of Medicine, 318, 1549–1556. PubMedCrossRef Ellwood, P. M. (1988). Shattuck lecture–outcomes management. A technology of patient experience. The New England Journal of Medicine, 318, 1549–1556. PubMedCrossRef
3.
go back to reference Bielli, E., Carminati, F., La Capra, S., Lina, M., Brunelli, C., & Tamburini, M. (2004). A wireless health outcomes monitoring system (WHOMS): Development and field testing with cancer patients using mobile phones. BMC Medical Informatics and Decision Making, 4, 7. PubMedCrossRef Bielli, E., Carminati, F., La Capra, S., Lina, M., Brunelli, C., & Tamburini, M. (2004). A wireless health outcomes monitoring system (WHOMS): Development and field testing with cancer patients using mobile phones. BMC Medical Informatics and Decision Making, 4, 7. PubMedCrossRef
4.
go back to reference Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient-physician communication: A randomized controlled trial. JAMA, 288, 3027–3034. PubMedCrossRef Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D., & Aaronson, N. K. (2002). Health-related quality-of-life assessments and patient-physician communication: A randomized controlled trial. JAMA, 288, 3027–3034. PubMedCrossRef
5.
go back to reference Greenhalgh, J., Long, A. F., & Flynn, R. (2005). The use of patient reported outcome measures in routine clinical practice: Lack of impact or lack of theory? Social Science & Medicine, 60, 833–843. CrossRef Greenhalgh, J., Long, A. F., & Flynn, R. (2005). The use of patient reported outcome measures in routine clinical practice: Lack of impact or lack of theory? Social Science & Medicine, 60, 833–843. CrossRef
6.
go back to reference Donaldson, M. (2006). Using patient-reported outcomes in clinical oncology practice: Benefits, challenges and next steps. Expert Review of Pharmacoeconomics & Outcomes Research, 6, 87–95. CrossRef Donaldson, M. (2006). Using patient-reported outcomes in clinical oncology practice: Benefits, challenges and next steps. Expert Review of Pharmacoeconomics & Outcomes Research, 6, 87–95. CrossRef
7.
go back to reference Detmar, S. B., & Aaronson, N. K. (1998). Quality of life assessment in daily clinical oncology practice: A feasibility study. European Journal of Cancer, 34, 1181–1186. PubMedCrossRef Detmar, S. B., & Aaronson, N. K. (1998). Quality of life assessment in daily clinical oncology practice: A feasibility study. European Journal of Cancer, 34, 1181–1186. PubMedCrossRef
8.
go back to reference McLachlan, S. A., Allenby, A., Matthews, J., Wirth, A., Kissane, D., Bishop, M., Beresford, J., & Zalcberg, J. (2001). Randomized trial of coordinated psychosocial interventions based on patient self-assessments versus standard care to improve the psychosocial functioning of patients with cancer. Journal of Clinical Oncology, 19, 4117–4125. PubMed McLachlan, S. A., Allenby, A., Matthews, J., Wirth, A., Kissane, D., Bishop, M., Beresford, J., & Zalcberg, J. (2001). Randomized trial of coordinated psychosocial interventions based on patient self-assessments versus standard care to improve the psychosocial functioning of patients with cancer. Journal of Clinical Oncology, 19, 4117–4125. PubMed
9.
go back to reference Wu, A. W., Cagney, K. A., & St John, P. D. (1997). Health status assessment. Completing the clinical database. Journal of General Internal Medicine, 12, 254–255. PubMedCrossRef Wu, A. W., Cagney, K. A., & St John, P. D. (1997). Health status assessment. Completing the clinical database. Journal of General Internal Medicine, 12, 254–255. PubMedCrossRef
10.
go back to reference Velikova, G., Brown, J. M., Smith, A. B., & Selby, P. J. (2002). Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology. British Journal of Cancer, 86, 51–59. PubMedCrossRef Velikova, G., Brown, J. M., Smith, A. B., & Selby, P. J. (2002). Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology. British Journal of Cancer, 86, 51–59. PubMedCrossRef
11.
go back to reference Taenzer, P., Bultz, B. D., Carlson, L. E., Speca, M., DeGagne, T., Olson, K., Doll, R., & Rosberger, Z. (2000). Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients. Psychooncology, 9, 203–213. PubMedCrossRef Taenzer, P., Bultz, B. D., Carlson, L. E., Speca, M., DeGagne, T., Olson, K., Doll, R., & Rosberger, Z. (2000). Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients. Psychooncology, 9, 203–213. PubMedCrossRef
12.
go back to reference Athale, N., Sturley, A., Skoczen, S., Kavanaugh, A., & Lenert, L. (2004). A web-compatible instrument for measuring self-reported disease activity in arthritis. The Journal of Rheumatology, 31, 223–228. PubMed Athale, N., Sturley, A., Skoczen, S., Kavanaugh, A., & Lenert, L. (2004). A web-compatible instrument for measuring self-reported disease activity in arthritis. The Journal of Rheumatology, 31, 223–228. PubMed
13.
go back to reference McDaniel, A. M., Benson, P. L., Roesener, G. H., & Martindale, J. (2005). An integrated computer-based system to support nicotine dependence treatment in primary care. Nicotine & Tobacco Research, 7(Suppl 1), S57–S66. CrossRef McDaniel, A. M., Benson, P. L., Roesener, G. H., & Martindale, J. (2005). An integrated computer-based system to support nicotine dependence treatment in primary care. Nicotine & Tobacco Research, 7(Suppl 1), S57–S66. CrossRef
14.
go back to reference Saleh, K. J., Radosevich, D. M., Kassim, R. A., Moussa, M., Dykes, D., Bottolfson, H., Gioe, T. J., & Robinson, H. (2002). Comparison of commonly used orthopaedic outcome measures using palm-top computers and paper surveys. Journal of Orthopaedic Research, 20, 1146–1151. PubMedCrossRef Saleh, K. J., Radosevich, D. M., Kassim, R. A., Moussa, M., Dykes, D., Bottolfson, H., Gioe, T. J., & Robinson, H. (2002). Comparison of commonly used orthopaedic outcome measures using palm-top computers and paper surveys. Journal of Orthopaedic Research, 20, 1146–1151. PubMedCrossRef
15.
go back to reference Anhoj, J., & Moldrup, C. (2004). Feasibility of collecting diary data from asthma patients through mobile phones and SMS (short message service): Response rate analysis and focus group evaluation from a pilot study. Journal of Medical Internet Research, 6, e42. PubMedCrossRef Anhoj, J., & Moldrup, C. (2004). Feasibility of collecting diary data from asthma patients through mobile phones and SMS (short message service): Response rate analysis and focus group evaluation from a pilot study. Journal of Medical Internet Research, 6, e42. PubMedCrossRef
16.
go back to reference Crawley, J. A., Kleinman, L., & Dominitz, J. (2000). User preferences for computer administration of quality of life instruments. Drug Information Journal, 34, 137. Crawley, J. A., Kleinman, L., & Dominitz, J. (2000). User preferences for computer administration of quality of life instruments. Drug Information Journal, 34, 137.
17.
go back to reference Jacobsen, P. B., Davis, K., & Cella, D. (2002). Assessing quality of life in research and clinical practice. Oncology (Williston.Park), 16, 133–139. Jacobsen, P. B., Davis, K., & Cella, D. (2002). Assessing quality of life in research and clinical practice. Oncology (Williston.Park), 16, 133–139.
18.
go back to reference Bliven, B. D., Kaufman, S. E., & Spertus, J. A. (2001). Electronic collection of health-related quality of life data: Validity, time benefits, and patient preference. Quality of Life Research, 10, 15–22. PubMedCrossRef Bliven, B. D., Kaufman, S. E., & Spertus, J. A. (2001). Electronic collection of health-related quality of life data: Validity, time benefits, and patient preference. Quality of Life Research, 10, 15–22. PubMedCrossRef
19.
go back to reference Wright, E. P., Selby, P. J., Crawford, M., Gillibrand, A., Johnston, C., Perren, T. J., Rush, R., Smith, A., Velikova, G., Watson, K., Gould, A., & Cull, A. (2003). Feasibility and compliance of automated measurement of quality of life in oncology practice. Journal of Clinical Oncology, 21, 374–382. PubMedCrossRef Wright, E. P., Selby, P. J., Crawford, M., Gillibrand, A., Johnston, C., Perren, T. J., Rush, R., Smith, A., Velikova, G., Watson, K., Gould, A., & Cull, A. (2003). Feasibility and compliance of automated measurement of quality of life in oncology practice. Journal of Clinical Oncology, 21, 374–382. PubMedCrossRef
20.
go back to reference Bushnell, D. M., Martin, M. L., & Parasuraman, B. (2003). Electronic versus paper questionnaires: A further comparison in persons with asthma. The Journal of Asthma, 40, 751–762. PubMedCrossRef Bushnell, D. M., Martin, M. L., & Parasuraman, B. (2003). Electronic versus paper questionnaires: A further comparison in persons with asthma. The Journal of Asthma, 40, 751–762. PubMedCrossRef
21.
go back to reference Bayliss, M. S., Dewey, J. E., Dunlap, I., Batenhorst, A. S., Cady, R., Diamond, M. L., & Sheftell, F. (2003). A study of the feasibility of internet administration of a computerized health survey: The headache impact test (HIT). Quality of Life Research, 12, 953–961. PubMedCrossRef Bayliss, M. S., Dewey, J. E., Dunlap, I., Batenhorst, A. S., Cady, R., Diamond, M. L., & Sheftell, F. (2003). A study of the feasibility of internet administration of a computerized health survey: The headache impact test (HIT). Quality of Life Research, 12, 953–961. PubMedCrossRef
22.
go back to reference Pealer, L. N., Weiler, R. M., Pigg, R. M. Jr, Miller, D., & Dorman, S. M. (2001). The feasibility of a web-based surveillance system to collect health risk behavior data from college students. Health Education & Behavior, 28, 547–559. CrossRef Pealer, L. N., Weiler, R. M., Pigg, R. M. Jr, Miller, D., & Dorman, S. M. (2001). The feasibility of a web-based surveillance system to collect health risk behavior data from college students. Health Education & Behavior, 28, 547–559. CrossRef
23.
go back to reference Hanscom, B., Lurie, J. D., Homa, K., & Weinstein, J. N. (2002). Computerized questionnaires and the quality of survey data. Spine, 27, 1797–1801. PubMedCrossRef Hanscom, B., Lurie, J. D., Homa, K., & Weinstein, J. N. (2002). Computerized questionnaires and the quality of survey data. Spine, 27, 1797–1801. PubMedCrossRef
24.
go back to reference Wilson, A. S., Kitas, G. D., Carruthers, D. M., Reay, C., Skan, J., Harris, S., Treharne, G. J., Young, S. P., & Bacon, P. A. (2002). Computerized information-gathering in specialist rheumatology clinics: An initial evaluation of an electronic version of the short form 36. Rheumatology (Oxford), 41, 268–273. CrossRef Wilson, A. S., Kitas, G. D., Carruthers, D. M., Reay, C., Skan, J., Harris, S., Treharne, G. J., Young, S. P., & Bacon, P. A. (2002). Computerized information-gathering in specialist rheumatology clinics: An initial evaluation of an electronic version of the short form 36. Rheumatology (Oxford), 41, 268–273. CrossRef
25.
go back to reference Bush, N., Donaldson, G., Moinpour, C., Haberman, M., Milliken, D., Markle, V., & Lauson, J. (2005). Development, feasibility and compliance of a web-based system for very frequent QOL and symptom home self-assessment after hematopoietic stem cell transplantation. Quality of Life Research, 14, 77–93. PubMedCrossRef Bush, N., Donaldson, G., Moinpour, C., Haberman, M., Milliken, D., Markle, V., & Lauson, J. (2005). Development, feasibility and compliance of a web-based system for very frequent QOL and symptom home self-assessment after hematopoietic stem cell transplantation. Quality of Life Research, 14, 77–93. PubMedCrossRef
26.
go back to reference Boyes, A., Newell, S., & Girgis, A. (2002). Rapid assessment of psychosocial well-being: Are computers the way forward in a clinical setting? Quality of Life Research, 11, 27–35. PubMedCrossRef Boyes, A., Newell, S., & Girgis, A. (2002). Rapid assessment of psychosocial well-being: Are computers the way forward in a clinical setting? Quality of Life Research, 11, 27–35. PubMedCrossRef
27.
go back to reference Hambleton, R. K. (2005). Applications of item response theory to improve health outcomes assessment: developing item banks, linking instruments, and computer-adaptive testing. In J. Lipscomb, C. C. Gotay, & C. Snyder (Eds.), Outcomes assessment in cancer: Measures, methods and applications (pp. 445–464). Cambridge: Cambridge University Press. Hambleton, R. K. (2005). Applications of item response theory to improve health outcomes assessment: developing item banks, linking instruments, and computer-adaptive testing. In J. Lipscomb, C. C. Gotay, & C. Snyder (Eds.), Outcomes assessment in cancer: Measures, methods and applications (pp. 445–464). Cambridge: Cambridge University Press.
28.
go back to reference Litaker, D. (2003). New technology in quality of life research: Are all computer-assisted approaches created equal? Quality of Life Research, 12, 387–393. PubMedCrossRef Litaker, D. (2003). New technology in quality of life research: Are all computer-assisted approaches created equal? Quality of Life Research, 12, 387–393. PubMedCrossRef
29.
go back to reference Velikova, G., Wright, E. P., Smith, A. B., Cull, A., Gould, A., Forman, D., Perren, T., Stead, M., Brown, J., & Selby, P. J. (1999). Automated collection of quality-of-life data: A comparison of paper and computer touch-screen questionnaires. The Journal of Clinical Oncology, 17, 998–1007. Velikova, G., Wright, E. P., Smith, A. B., Cull, A., Gould, A., Forman, D., Perren, T., Stead, M., Brown, J., & Selby, P. J. (1999). Automated collection of quality-of-life data: A comparison of paper and computer touch-screen questionnaires. The Journal of Clinical Oncology, 17, 998–1007.
30.
go back to reference More Americans turning to web for health information, poll shows. The Wall Street Journal Online (2006). More Americans turning to web for health information, poll shows. The Wall Street Journal Online (2006).
31.
go back to reference Liederman, E. M., & Morefield, C. S. (2003). Web messaging: A new tool for patient-physician communication. Journal of the American Medical Informatics Association, 10, 260–270. PubMedCrossRef Liederman, E. M., & Morefield, C. S. (2003). Web messaging: A new tool for patient-physician communication. Journal of the American Medical Informatics Association, 10, 260–270. PubMedCrossRef
32.
go back to reference Casebeer, L., Bennett, N., Kristofco, R., Carillo, A., & Centor, R. (2002). Physician internet medical information seeking and on-line continuing education use patterns. The Journal of Continuing Education in the Health Professions, 22, 33–42. PubMedCrossRef Casebeer, L., Bennett, N., Kristofco, R., Carillo, A., & Centor, R. (2002). Physician internet medical information seeking and on-line continuing education use patterns. The Journal of Continuing Education in the Health Professions, 22, 33–42. PubMedCrossRef
33.
go back to reference Bennett, N. L., Casebeer, L. L., Kristofco, R. E., & Strasser, S. M. (2004). Physicians’ internet information-seeking behaviors. Journal of Continuing Education in the Health Professions, 24, 31–38. PubMedCrossRef Bennett, N. L., Casebeer, L. L., Kristofco, R. E., & Strasser, S. M. (2004). Physicians’ internet information-seeking behaviors. Journal of Continuing Education in the Health Professions, 24, 31–38. PubMedCrossRef
34.
go back to reference Howsyourhealth.org. from www.howsyourhealth.org. Howsyourhealth.org. from www.howsyourhealth.org.
36.
go back to reference Sturner, R., Morrel, T., & Howard, B. J. (2004). Mental health diagnoses among children being seen for child health supervision visits: Typical practice and DSM-PC diagnoses. Presented at Pediatric Academic Society Annual Meeting, 441. Sturner, R., Morrel, T., & Howard, B. J. (2004). Mental health diagnoses among children being seen for child health supervision visits: Typical practice and DSM-PC diagnoses. Presented at Pediatric Academic Society Annual Meeting, 441.
37.
go back to reference Sturner, R., Morrel, T., & Howard, B. (2005). Preliminary validation of the DSM-PC. Journal of Developmental and Behavioral Pediatrics, 24, 393–394. Sturner, R., Morrel, T., & Howard, B. (2005). Preliminary validation of the DSM-PC. Journal of Developmental and Behavioral Pediatrics, 24, 393–394.
38.
go back to reference Sturner, R., Howard, B. J., Morrel, T., & Rogers-Senuta, K. (2003). Validation of a computerized parent questionnaire for identifying child mental health disorders and implementing DSM-PC. Presented at Pediatric Academic Society Annual Meeting, 3801. Sturner, R., Howard, B. J., Morrel, T., & Rogers-Senuta, K. (2003). Validation of a computerized parent questionnaire for identifying child mental health disorders and implementing DSM-PC. Presented at Pediatric Academic Society Annual Meeting, 3801.
39.
go back to reference Basch, E., Artz, D., Dulko, D., Scher, K., Sabbatini, P., Hensley, M., Mitra, N., Speakman, J., McCabe, M., & Schrag, D. (2005). Patient online self-reporting of toxicity symptoms during chemotherapy. Journal of Clinical Oncology, 23, 3552–3561. PubMedCrossRef Basch, E., Artz, D., Dulko, D., Scher, K., Sabbatini, P., Hensley, M., Mitra, N., Speakman, J., McCabe, M., & Schrag, D. (2005). Patient online self-reporting of toxicity symptoms during chemotherapy. Journal of Clinical Oncology, 23, 3552–3561. PubMedCrossRef
40.
go back to reference Cohen, S. R., Boston, P., Mount, B. M., & Porterfield, P. (2001). Changes in quality of life following admission to palliative care units. Palliative Medicine, 15, 363–371. PubMedCrossRef Cohen, S. R., Boston, P., Mount, B. M., & Porterfield, P. (2001). Changes in quality of life following admission to palliative care units. Palliative Medicine, 15, 363–371. PubMedCrossRef
41.
go back to reference Cull, A., Gould, A., House, A., Smith, A., Strong, V., Velikova, G., Wright, P., & Selby, P. (2001). Validating automated screening for psychological distress by means of computer touchscreens for use in routine oncology practice. British Journal of Cancer, 85, 1842–1849. PubMedCrossRef Cull, A., Gould, A., House, A., Smith, A., Strong, V., Velikova, G., Wright, P., & Selby, P. (2001). Validating automated screening for psychological distress by means of computer touchscreens for use in routine oncology practice. British Journal of Cancer, 85, 1842–1849. PubMedCrossRef
42.
go back to reference Taenzer, P. A., Speca, M., Atkinson, M. J., Bultz, B. D., Page, S., Harasym, P., & Davis, J. L. (1997). Computerized quality-of-life screening in an oncology clinic. Cancer Practice, 5, 168–175. PubMed Taenzer, P. A., Speca, M., Atkinson, M. J., Bultz, B. D., Page, S., Harasym, P., & Davis, J. L. (1997). Computerized quality-of-life screening in an oncology clinic. Cancer Practice, 5, 168–175. PubMed
43.
go back to reference Hodge, J. G. Jr. (2003). Health information privacy and public health. The Journal of Law, Medicine & Ethics, 31, 663–671. CrossRef Hodge, J. G. Jr. (2003). Health information privacy and public health. The Journal of Law, Medicine & Ethics, 31, 663–671. CrossRef
44.
go back to reference Lumpkin, J. R. (2000). e-Health, HIPAA, and beyond. Health Affairs (Millwood) 19, 149–151. CrossRef Lumpkin, J. R. (2000). e-Health, HIPAA, and beyond. Health Affairs (Millwood) 19, 149–151. CrossRef
45.
go back to reference Garner, J. C. (2003). Final HIPAA security regulations: A review. Managed Care Quarterly, 11, 15–27. PubMed Garner, J. C. (2003). Final HIPAA security regulations: A review. Managed Care Quarterly, 11, 15–27. PubMed
46.
go back to reference Fairfield, K. M., Chen, W. Y., Colditz, G. A., Emmons, K. M., & Fletcher, S. W. (2004). Colon cancer risk counseling by health-care providers: Perceived barriers and response to an internet-based cancer risk appraisal instrument. Journal of Cancer Education, 19, 95–97. PubMedCrossRef Fairfield, K. M., Chen, W. Y., Colditz, G. A., Emmons, K. M., & Fletcher, S. W. (2004). Colon cancer risk counseling by health-care providers: Perceived barriers and response to an internet-based cancer risk appraisal instrument. Journal of Cancer Education, 19, 95–97. PubMedCrossRef
47.
go back to reference Sittig, D. F. (2003). Results of a content analysis of electronic messages (email) sent between patients and their physicians. BMC Medical Informatics and Decision Making, 3, 11–15. PubMedCrossRef Sittig, D. F. (2003). Results of a content analysis of electronic messages (email) sent between patients and their physicians. BMC Medical Informatics and Decision Making, 3, 11–15. PubMedCrossRef
48.
go back to reference Katz, S. J., Nissan, N., & Moyer, C. A. (2004). Crossing the digital divide: Evaluating online communication between patients and their providers. The American Journal of Managed Care, 10, 593–598. PubMed Katz, S. J., Nissan, N., & Moyer, C. A. (2004). Crossing the digital divide: Evaluating online communication between patients and their providers. The American Journal of Managed Care, 10, 593–598. PubMed
49.
go back to reference Cella, D., Gershon, R., Lai, J. S., & Choi, S. (2007). The future of outcomes measurement: Item banking, tailored short-forms, and computerized adaptive assessment. Quality of Life Research, 16, 133–141. PubMedCrossRef Cella, D., Gershon, R., Lai, J. S., & Choi, S. (2007). The future of outcomes measurement: Item banking, tailored short-forms, and computerized adaptive assessment. Quality of Life Research, 16, 133–141. PubMedCrossRef
50.
go back to reference Thissen, D., Reeve, B. B., Bjorner, J. B., & Chang, C. H. (2007). Methodological issues for building item banks and computerized adaptive scales. Quality of Life Research, 16, 109–119. CrossRef Thissen, D., Reeve, B. B., Bjorner, J. B., & Chang, C. H. (2007). Methodological issues for building item banks and computerized adaptive scales. Quality of Life Research, 16, 109–119. CrossRef
51.
go back to reference Berry, D. L., Trigg, L. J., Lober, W. B., Karras, B. T., Galligan, M. L., Austin-Seymour, M., & Martin, S. (2004). Computerized symptom and quality-of-life assessment for patients with cancer part I: Development and pilot testing. Oncology Nursing Forum, 31, E75–E83. PubMedCrossRef Berry, D. L., Trigg, L. J., Lober, W. B., Karras, B. T., Galligan, M. L., Austin-Seymour, M., & Martin, S. (2004). Computerized symptom and quality-of-life assessment for patients with cancer part I: Development and pilot testing. Oncology Nursing Forum, 31, E75–E83. PubMedCrossRef
52.
go back to reference Bensley, R. J., & Lewis, J. B. (2002). Analysis of internet-based health assessments. Health Promotion Practice, 3, 463–476. CrossRef Bensley, R. J., & Lewis, J. B. (2002). Analysis of internet-based health assessments. Health Promotion Practice, 3, 463–476. CrossRef
53.
go back to reference Mullen, K. H., Berry, D. L., & Zierler, B. K. (2004). Computerized symptom and quality-of-life assessment for patients with cancer part II: Acceptability and usability. Oncology Nursing Forum, 31, E84–E89. PubMedCrossRef Mullen, K. H., Berry, D. L., & Zierler, B. K. (2004). Computerized symptom and quality-of-life assessment for patients with cancer part II: Acceptability and usability. Oncology Nursing Forum, 31, E84–E89. PubMedCrossRef
55.
go back to reference Williams, P., Nicholas, D., Huntington, P., & McLean, F. (2002). Surfing for health: User evaluation of a health information website. part one: Background and literature review. Health Information and Libraries Journal, 19, 98–108. PubMedCrossRef Williams, P., Nicholas, D., Huntington, P., & McLean, F. (2002). Surfing for health: User evaluation of a health information website. part one: Background and literature review. Health Information and Libraries Journal, 19, 98–108. PubMedCrossRef
56.
go back to reference Brundage, M., Feldman-Stewart, D., Leis, A., Bezjak, A., Degner, L., Velji, K., Zetes-Zanatta, L., Tu, D., Ritvo, P., & Pater, J. (2005). Communicating quality of life information to cancer patients: A study of six presentation formats. Journal of Clinical Oncology, 23, 6949–6956. PubMedCrossRef Brundage, M., Feldman-Stewart, D., Leis, A., Bezjak, A., Degner, L., Velji, K., Zetes-Zanatta, L., Tu, D., Ritvo, P., & Pater, J. (2005). Communicating quality of life information to cancer patients: A study of six presentation formats. Journal of Clinical Oncology, 23, 6949–6956. PubMedCrossRef
57.
go back to reference Bjorner, J. B., Chang, C. H., Thissen, D., & Reeve, B. B. (2007). Developing tailored instruments: Item banking and computerized adaptive assessment. Quality of Life Research, 16, 95–108. CrossRef Bjorner, J. B., Chang, C. H., Thissen, D., & Reeve, B. B. (2007). Developing tailored instruments: Item banking and computerized adaptive assessment. Quality of Life Research, 16, 95–108. CrossRef
Metagegevens
Titel
Issues in the design of Internet-based systems for collecting patient-reported outcomes
Auteurs
James B. Jones
Claire F. Snyder
Albert W. Wu
Publicatiedatum
01-10-2007
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 8/2007
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-007-9235-z