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06-06-2019 | Original Paper

Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders

Auteurs: L. Kalb, L. Jacobson, C. Zisman, E. Mahone, R. Landa, G. Azad, D. Menon, V. Singh, A. Zabel, A. Pritchard

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2019

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Abstract

The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline.
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Metagegevens
Titel
Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders
Auteurs
L. Kalb
L. Jacobson
C. Zisman
E. Mahone
R. Landa
G. Azad
D. Menon
V. Singh
A. Zabel
A. Pritchard
Publicatiedatum
06-06-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2019
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-04088-9

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