Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 4/2019

13-11-2018 | Review

Individualized health-related quality of life instrument Measure Yourself Medical Outcome Profile (MYMOP) and its adaptations: a critical appraisal

Auteurs: Sana Ishaque, Jeffrey A. Johnson, Sunita Vohra

Gepubliceerd in: Quality of Life Research | Uitgave 4/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Background

Health-related quality of life (HRQL) is increasingly recognized for its importance in health research. As there is increasing recognition of the inter-individual difference in response to therapeutic interventions, it may be helpful to apply individualized measures of HRQL. The MYMOP is a commonly used example of such measures, although several adaptations have been developed.

Objective

This review was conducted to identify adaptations of MYMOP, and evaluate the measurement properties of MYMOP and its adaptations.

Methods

Adaptations were identified using MYMOP website and personal communication, supplemented by a SCOPUS search in April 2017. Bibliographies of included studies were hand-searched. COSMIN criteria were used to evaluate the measurement properties.

Results

Sixteen studies were included in this review. Adaptations were developed to evaluate individualized therapies in cancer, psychiatry, and acupuncture. The included measures were MYMOP, measure yourself concern and wellbeing, psychological outcome profiles (PSYCHLOPS), and MYMOP-pictorial (MYMOP-P). The quality of the measurement properties varied; none of the included measures met all currently recommended quality criteria for measurement properties.

Conclusion

Current literature provides evidence that MYMOP and its adaptations offer individualized assessment of patient-centered outcomes, and thereby provide a means to understand heterogeneity of treatment effects. However, current recommendations for psychometric testing suggest further validation of these measures would be beneficial.

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Podotherapeut Totaal

Binnen de bundel kunt u gebruik maken van boeken, tijdschriften, e-learnings, web-tv's en uitlegvideo's. BSL Podotherapeut Totaal is overal toegankelijk; via uw PC, tablet of smartphone.

Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
go back to reference Engel, G. L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196, 129–136. CrossRef Engel, G. L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196, 129–136. CrossRef
2.
go back to reference Mayo, E. N., et al. ISOQOL Dictionary of Quality of Life and Health Outcomes Measurement. 2015; First Edition. Mayo, E. N., et al. ISOQOL Dictionary of Quality of Life and Health Outcomes Measurement. 2015; First Edition.
3.
go back to reference Sales, C. M. D. (2017). Seeing the person in the patient: Making the case for individualized proms in mental healthcare. Current Psychiatry Reviews, 13(3), 184–187. CrossRef Sales, C. M. D. (2017). Seeing the person in the patient: Making the case for individualized proms in mental healthcare. Current Psychiatry Reviews, 13(3), 184–187. CrossRef
4.
go back to reference Sales, C. M. D., & Alves, P. C. G. (2016). Patient-centred assessment in psychotherapy: A Review of individualized tools. Clinical Psychology: Science and Practice, 23(3), 265–283. Sales, C. M. D., & Alves, P. C. G. (2016). Patient-centred assessment in psychotherapy: A Review of individualized tools. Clinical Psychology: Science and Practice, 23(3), 265–283.
5.
go back to reference Wiering, B., de Boer, D., & Delnoij, D. (2017). Patient involvement in the development of patient-reported outcome measures: a scoping review. Health Expectations, 20(1), 11–23. CrossRefPubMed Wiering, B., de Boer, D., & Delnoij, D. (2017). Patient involvement in the development of patient-reported outcome measures: a scoping review. Health Expectations, 20(1), 11–23. CrossRefPubMed
6.
go back to reference Bowling, A. (1995). What things are important in people’s lives? A survey of the public’s judgements to inform scales of health related quality of life. Social Science & Medicine, 41, 1447–1462. CrossRef Bowling, A. (1995). What things are important in people’s lives? A survey of the public’s judgements to inform scales of health related quality of life. Social Science & Medicine, 41, 1447–1462. CrossRef
7.
go back to reference Carr, A. J., Gibson, B., & Robinson, P. G. (2001). Measuring quality of life is quality of life determined by expectations or experience? British Medical Journal, 322, 1240–1243. CrossRefPubMed Carr, A. J., Gibson, B., & Robinson, P. G. (2001). Measuring quality of life is quality of life determined by expectations or experience? British Medical Journal, 322, 1240–1243. CrossRefPubMed
8.
go back to reference Ostenfeld-Rosenthal, A., & Johannessen, H. (2014). How to capture patients’ concerns and related changes: Comparing the MYCaW questionnaire, semi-structured interview and a priority list of outcome areas. Complementary Therapies in Medicine, 22, 690–700. CrossRefPubMed Ostenfeld-Rosenthal, A., & Johannessen, H. (2014). How to capture patients’ concerns and related changes: Comparing the MYCaW questionnaire, semi-structured interview and a priority list of outcome areas. Complementary Therapies in Medicine, 22, 690–700. CrossRefPubMed
9.
go back to reference Ernst, E., & Hung, S. K. (2011). Great expectations: What do patients using complementary and alternative medicine hope for? Patient, 4, 89–101. CrossRefPubMed Ernst, E., & Hung, S. K. (2011). Great expectations: What do patients using complementary and alternative medicine hope for? Patient, 4, 89–101. CrossRefPubMed
10.
go back to reference Varadhan, R., Segal, J. B., Boyd, C. M., Wu, A. W., & Weiss, C. O. (2013). A framework for the analysis of heterogeneity of treatment effect in patient-centered outcomes research. Journal of Clinical Epidemiology, 66, 818–825. CrossRefPubMedPubMedCentral Varadhan, R., Segal, J. B., Boyd, C. M., Wu, A. W., & Weiss, C. O. (2013). A framework for the analysis of heterogeneity of treatment effect in patient-centered outcomes research. Journal of Clinical Epidemiology, 66, 818–825. CrossRefPubMedPubMedCentral
11.
go back to reference Dahabreh, I. J., Hayward, R., & Kent, D. M. (2016). Using group data to treat individuals: Understanding heterogeneous treatment effects in the age of precision medicine and patient-centred evidence. International Journal of Clinical Epidemiology, 45, 2184–2193. Dahabreh, I. J., Hayward, R., & Kent, D. M. (2016). Using group data to treat individuals: Understanding heterogeneous treatment effects in the age of precision medicine and patient-centred evidence. International Journal of Clinical Epidemiology, 45, 2184–2193.
12.
go back to reference Aburub, A. S., & Mayo, N. E. (2017). A review of the application, feasibiliyt, and the psychometric properties of the individualized measures in cancer. Quality of Life Research, 26, 1091–1104. CrossRefPubMed Aburub, A. S., & Mayo, N. E. (2017). A review of the application, feasibiliyt, and the psychometric properties of the individualized measures in cancer. Quality of Life Research, 26, 1091–1104. CrossRefPubMed
13.
go back to reference Wettergren, L., Kettis-Lindblad, Å, Sprangers, M., et al. (2009). The use, feasibility and psychometric properties of an individualized quality-of-life instrument: a systematic review of the SEIQoL-DW. Quality of Life Research, 18, 737–746. CrossRefPubMed Wettergren, L., Kettis-Lindblad, Å, Sprangers, M., et al. (2009). The use, feasibility and psychometric properties of an individualized quality-of-life instrument: a systematic review of the SEIQoL-DW. Quality of Life Research, 18, 737–746. CrossRefPubMed
14.
go back to reference Hickey, A. M., Bury, G., O’Boyle, C. A., Bradley, F., O’Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. BMJ, 313, 29–33. CrossRefPubMedPubMedCentral Hickey, A. M., Bury, G., O’Boyle, C. A., Bradley, F., O’Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. BMJ, 313, 29–33. CrossRefPubMedPubMedCentral
15.
go back to reference Moons, P., Marquet, K., Budts, W., & De Geest, S. (2004). Validity, reliability and responsiveness of the “schedule for the evaluation of individual quality of life-direct weighting” (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes, 2, 27. CrossRefPubMedPubMedCentral Moons, P., Marquet, K., Budts, W., & De Geest, S. (2004). Validity, reliability and responsiveness of the “schedule for the evaluation of individual quality of life-direct weighting” (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes, 2, 27. CrossRefPubMedPubMedCentral
16.
go back to reference Lhussier, M., Watson, B., Reed, J., & Clarke, C. L. (2005). The SEIQoL and functional status: How do they relate? Scandinavian Journal of Caring Sciences, 19, 403–409. CrossRefPubMed Lhussier, M., Watson, B., Reed, J., & Clarke, C. L. (2005). The SEIQoL and functional status: How do they relate? Scandinavian Journal of Caring Sciences, 19, 403–409. CrossRefPubMed
17.
go back to reference Martin, F., Camfield, L., Rodham, K., et al. (2007). Twelve uears-experience with the Patient Generated Index (PGI) of quality of life: A graded structured review. Quality of Life Research, 16, 705–715. CrossRefPubMed Martin, F., Camfield, L., Rodham, K., et al. (2007). Twelve uears-experience with the Patient Generated Index (PGI) of quality of life: A graded structured review. Quality of Life Research, 16, 705–715. CrossRefPubMed
18.
go back to reference Mayo, N. E., Aburub, A., Brouillette, M. J., et al. (2017). In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health conditions. Quality of Life Research, 26, 601–609. CrossRefPubMed Mayo, N. E., Aburub, A., Brouillette, M. J., et al. (2017). In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health conditions. Quality of Life Research, 26, 601–609. CrossRefPubMed
19.
go back to reference Ruta, D. A., Garratt, A. M., Leng, M., Russell, I. T., & MacDonald, L. M. (1994). A new approach to the measurement of quality of life. The patient-generated index. Medical Care, 32, 1109–1126. CrossRefPubMed Ruta, D. A., Garratt, A. M., Leng, M., Russell, I. T., & MacDonald, L. M. (1994). A new approach to the measurement of quality of life. The patient-generated index. Medical Care, 32, 1109–1126. CrossRefPubMed
20.
go back to reference Paterson, C. (1996). Measuring outcomes in primary care: A patient generated measure, MYMOP, compared with the SF-36 health survey. BMJ, 312, 1016–1020. CrossRefPubMedPubMedCentral Paterson, C. (1996). Measuring outcomes in primary care: A patient generated measure, MYMOP, compared with the SF-36 health survey. BMJ, 312, 1016–1020. CrossRefPubMedPubMedCentral
21.
go back to reference Prinsen, C. A. C., Mokkink, L. B., Bouter, L. M., et al. (2018). COSMIN guideline for systematic reviews of patient reported outcome measures. Quality of Life Research., 27, 1147. CrossRefPubMedPubMedCentral Prinsen, C. A. C., Mokkink, L. B., Bouter, L. M., et al. (2018). COSMIN guideline for systematic reviews of patient reported outcome measures. Quality of Life Research., 27, 1147. CrossRefPubMedPubMedCentral
22.
go back to reference Terwee, C. B., Bot, S. D., de Boer, M. R., van der Windt, D. A., Knol, D. L., Dekker, J., Bouter, L. M., & de Vet, H. C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60, 34–42. CrossRef Terwee, C. B., Bot, S. D., de Boer, M. R., van der Windt, D. A., Knol, D. L., Dekker, J., Bouter, L. M., & de Vet, H. C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60, 34–42. CrossRef
24.
go back to reference Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & de Vet, H. C. W. (2010). The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. Journal of Clinical Epidemiology, 63, 737–745. CrossRefPubMed Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & de Vet, H. C. W. (2010). The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. Journal of Clinical Epidemiology, 63, 737–745. CrossRefPubMed
25.
go back to reference Quality of life and pharmaco-economics in clinical trials (Book Review) R. Launois. Quality of Life Research, 1 January 1997, Vol. 6(1), pp. 97-98 [Peer Reviewed Journal] Quality of life and pharmaco-economics in clinical trials (Book Review) R. Launois. Quality of Life Research, 1 January 1997, Vol. 6(1), pp. 97-98 [Peer Reviewed Journal]
26.
go back to reference Chen, A. Y., Frankowski, R., Bishop-Leone, J., Hebert, T., Leyk, S., Lewin, J., & Goepfert, H. (2001). The development and validation of a dysphagia-specific quality-of-life questionnaire for patients with head and neck cancer: The M. D. anderson dysphagia inventory. Archives of Otolaryngology–Head & Neck Surgery, 127, 870–876. Chen, A. Y., Frankowski, R., Bishop-Leone, J., Hebert, T., Leyk, S., Lewin, J., & Goepfert, H. (2001). The development and validation of a dysphagia-specific quality-of-life questionnaire for patients with head and neck cancer: The M. D. anderson dysphagia inventory. Archives of Otolaryngology–Head & Neck Surgery, 127, 870–876.
27.
go back to reference Guyatt, G. H., Kirshner, B., & Jaeschke, R. (1992). Measuring health status: What are the necessary measurement properties? Journal of Clinical Epidemiology, 45, 1341–1345. CrossRefPubMed Guyatt, G. H., Kirshner, B., & Jaeschke, R. (1992). Measuring health status: What are the necessary measurement properties? Journal of Clinical Epidemiology, 45, 1341–1345. CrossRefPubMed
28.
go back to reference Ganz, P. A., Lee, J. J., & Siau, J. (1991). Quality of life assessment. an independent prognostic variable for survival in lung cancer. Cancer, 67, 3131–3135. CrossRefPubMed Ganz, P. A., Lee, J. J., & Siau, J. (1991). Quality of life assessment. an independent prognostic variable for survival in lung cancer. Cancer, 67, 3131–3135. CrossRefPubMed
29.
go back to reference Idler, E. L., & Angel, R. J. (1990). Self-rated health and mortality in the NHANES-I epidemiologic follow-up study. American Journal of Public Health, 80, 446–452. CrossRefPubMedPubMedCentral Idler, E. L., & Angel, R. J. (1990). Self-rated health and mortality in the NHANES-I epidemiologic follow-up study. American Journal of Public Health, 80, 446–452. CrossRefPubMedPubMedCentral
30.
go back to reference Ashworth, M., Shepherd, M., Christey, J., Matthews, V., Wright, K., Parmentier, H., Robinson, S., & Godfrey, E. (2004). A client-centred psychometric instrument: The development of “PSYCHLOPS“(“psychological outcome profile”). Counselling and Psychotherapy Research, 4, 27. CrossRef Ashworth, M., Shepherd, M., Christey, J., Matthews, V., Wright, K., Parmentier, H., Robinson, S., & Godfrey, E. (2004). A client-centred psychometric instrument: The development of “PSYCHLOPS“(“psychological outcome profile”). Counselling and Psychotherapy Research, 4, 27. CrossRef
31.
go back to reference Ashworth, M., Evans, C., & Clement, S. (2009). Measuring psychological outcomes after cognitive behaviour therapy in primary care: A comparison between a new patient-generated measure “pSYCHLOPS” psychological outcome profiles and “hADS” hospital anxiety and depression scale. Journal of Mental Health, 18, 169–177. CrossRef Ashworth, M., Evans, C., & Clement, S. (2009). Measuring psychological outcomes after cognitive behaviour therapy in primary care: A comparison between a new patient-generated measure “pSYCHLOPS” psychological outcome profiles and “hADS” hospital anxiety and depression scale. Journal of Mental Health, 18, 169–177. CrossRef
32.
go back to reference Ashworth, M., Robinson, S., Evans, C., Shepherd, M., Conolly, A., & Rowlands, G. (2007). What does an idiographic measure (PSYCHLOPS) tell us about the spectrum of psychological issues and scores on a nomothetic measure (CORE-OM)? Primary Care and Community Psychiatry, 12, 7–12. Ashworth, M., Robinson, S., Evans, C., Shepherd, M., Conolly, A., & Rowlands, G. (2007). What does an idiographic measure (PSYCHLOPS) tell us about the spectrum of psychological issues and scores on a nomothetic measure (CORE-OM)? Primary Care and Community Psychiatry, 12, 7–12.
33.
go back to reference Ashworth, M., Robinson, S., Godfrey, E., Parmentier, H., Shepherd, M., Christey, J., Wright, K., & Matthews, V. (2005). The experiences of therapists using a new client-centred psychometric instrument, “PSYCHLOPS” (“psychological outcome profile”). Counselling and Psychotherapy Research, 5, 37–41. CrossRef Ashworth, M., Robinson, S., Godfrey, E., Parmentier, H., Shepherd, M., Christey, J., Wright, K., & Matthews, V. (2005). The experiences of therapists using a new client-centred psychometric instrument, “PSYCHLOPS” (“psychological outcome profile”). Counselling and Psychotherapy Research, 5, 37–41. CrossRef
34.
go back to reference Ashworth, M., Robinson, S. I., Godfrey, E., Shepherd, M., Evans, C., Seed, P., Parmentier, H., & Tylee, A. (2005). Measuring mental health outcomes in primary care: The psychometric properties of a new patient-generated outcome measure, ‘PSYCHLOPS’ (‘psychological outcome profiles’). Primary Care Mental Health, 3, 261–270. Ashworth, M., Robinson, S. I., Godfrey, E., Shepherd, M., Evans, C., Seed, P., Parmentier, H., & Tylee, A. (2005). Measuring mental health outcomes in primary care: The psychometric properties of a new patient-generated outcome measure, ‘PSYCHLOPS’ (‘psychological outcome profiles’). Primary Care Mental Health, 3, 261–270.
35.
go back to reference Day, A. (2004). The development of the MYMOP pictorial version. Acupuncture in Medicine, 22, 68–71. CrossRefPubMed Day, A. (2004). The development of the MYMOP pictorial version. Acupuncture in Medicine, 22, 68–71. CrossRefPubMed
36.
go back to reference Day, A., & Kingsbury-Smith, R. (2004). An audit of acupuncture in general practice. Acupuncture in Medicine, 22, 87–92. CrossRefPubMed Day, A., & Kingsbury-Smith, R. (2004). An audit of acupuncture in general practice. Acupuncture in Medicine, 22, 87–92. CrossRefPubMed
37.
go back to reference Evans, C., Ashworth, M., & Peters, M. (2010). Are problems prevalent and stable in non-clinical populations? problems and test-retest stability of a patient-generated measure, PSYCHLOPS (psychological outcome profiles), in a non-clinical student sample. British Journal of Guidance & Counselling, 38, 431–439. CrossRef Evans, C., Ashworth, M., & Peters, M. (2010). Are problems prevalent and stable in non-clinical populations? problems and test-retest stability of a patient-generated measure, PSYCHLOPS (psychological outcome profiles), in a non-clinical student sample. British Journal of Guidance & Counselling, 38, 431–439. CrossRef
38.
go back to reference Cooke, H. J. (2000). Is the adapted “measure yourself medical outcome profile questionnaire an appropriate tool to evaluate the bristol cancer help centre’s supportive programme? Dissertation. University of Exeter Cooke, H. J. (2000). Is the adapted “measure yourself medical outcome profile questionnaire an appropriate tool to evaluate the bristol cancer help centre’s supportive programme? Dissertation. University of Exeter
39.
go back to reference Paterson, C., & Britten, N. (2000). In pursuit of patient-centred outcomes: A qualitative evaluation of the ‘measure yourself medical outcome profile’. Journal of Health Services Research and Policy, 5, 27–36. CrossRefPubMed Paterson, C., & Britten, N. (2000). In pursuit of patient-centred outcomes: A qualitative evaluation of the ‘measure yourself medical outcome profile’. Journal of Health Services Research and Policy, 5, 27–36. CrossRefPubMed
40.
go back to reference Paterson, C. (2004). Seeking the patient’s perspective: A qualitative assessment of EuroQol, COOP-WONCA charts and MYMOP. Quality of Life Research, 13, 871–881. CrossRefPubMed Paterson, C. (2004). Seeking the patient’s perspective: A qualitative assessment of EuroQol, COOP-WONCA charts and MYMOP. Quality of Life Research, 13, 871–881. CrossRefPubMed
41.
go back to reference Paterson, C., Langan, C. E., McKaig, G. A., Anderson, P. M., Maclaine, G. D. H., Rose, L. B., Walker, S. J., & Campbell, M. J. (2000). Assessing patient outcomes in acute exacerbations of chronic bronchitis: The measure your medical outcome profile (MYMOP), medical outcomes study 6-item general health survey (MOS-6A) and EuroQol (EQ-5D). Quality of Life Research, 9, 521–527. CrossRefPubMed Paterson, C., Langan, C. E., McKaig, G. A., Anderson, P. M., Maclaine, G. D. H., Rose, L. B., Walker, S. J., & Campbell, M. J. (2000). Assessing patient outcomes in acute exacerbations of chronic bronchitis: The measure your medical outcome profile (MYMOP), medical outcomes study 6-item general health survey (MOS-6A) and EuroQol (EQ-5D). Quality of Life Research, 9, 521–527. CrossRefPubMed
42.
go back to reference Paterson, C., Thomas, K., Manasse, A., Cooke, H., & Peace, G. (2007). Measure yourself concerns and wellbeing (MYCaW): An individualised questionnaire for evaluating outcome in cancer support care that includes complementary therapies. Complementary Therapies in Medicine, 15, 38–45. CrossRefPubMed Paterson, C., Thomas, K., Manasse, A., Cooke, H., & Peace, G. (2007). Measure yourself concerns and wellbeing (MYCaW): An individualised questionnaire for evaluating outcome in cancer support care that includes complementary therapies. Complementary Therapies in Medicine, 15, 38–45. CrossRefPubMed
43.
go back to reference Polley, M. J., Seers, H. E., Cooke, H. J., Hoffman, C., & Paterson, C. (2007). How to summarise and report written qualitative data from patients: A method for use in cancer support care. Supportive Care Cancer, 15, 963–971. CrossRef Polley, M. J., Seers, H. E., Cooke, H. J., Hoffman, C., & Paterson, C. (2007). How to summarise and report written qualitative data from patients: A method for use in cancer support care. Supportive Care Cancer, 15, 963–971. CrossRef
45.
go back to reference Peace, G., & Manasse, A. (2002). The cavendish centre for integrated cancer care: Assessment of patients’ needs and responses. Complementary Therapies in Medicine, 10, 33–41. CrossRefPubMed Peace, G., & Manasse, A. (2002). The cavendish centre for integrated cancer care: Assessment of patients’ needs and responses. Complementary Therapies in Medicine, 10, 33–41. CrossRefPubMed
47.
go back to reference Jolliffe, R., Seers, H., Jackson, S., Caro, E., Weeks, L., & Polley, M. J. (2015). The responsiveness, content validity, and convergent validity of the measure yourself concerns and wellbeing (MYCaW) patient-reported outcome measure. Integrative Cancer Therapies, 14, 26–34. CrossRefPubMed Jolliffe, R., Seers, H., Jackson, S., Caro, E., Weeks, L., & Polley, M. J. (2015). The responsiveness, content validity, and convergent validity of the measure yourself concerns and wellbeing (MYCaW) patient-reported outcome measure. Integrative Cancer Therapies, 14, 26–34. CrossRefPubMed
48.
go back to reference Seers, H. E., Gale, N., Paterson, C., Cooke, H. J., Tuffrey, V., & Polley, M. J. (2009). Individualised and complex experiences of integrative cancer support care: Combining qualitative and quantitative data. Supportive Care Cancer, 17, 1159–1167. CrossRef Seers, H. E., Gale, N., Paterson, C., Cooke, H. J., Tuffrey, V., & Polley, M. J. (2009). Individualised and complex experiences of integrative cancer support care: Combining qualitative and quantitative data. Supportive Care Cancer, 17, 1159–1167. CrossRef
50.
go back to reference Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & de Vet, H. C. (2010). The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: An international delphi study. Quality of Life Research, 19, 539–549. CrossRefPubMedPubMedCentral Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & de Vet, H. C. (2010). The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: An international delphi study. Quality of Life Research, 19, 539–549. CrossRefPubMedPubMedCentral
51.
go back to reference Terwee, C. B., Mokkink, L. B., Knol, D. L., Ostelo, R. W. J. G., Bouter, L. M., & De Vet, H. C. W. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: A scoring system for the COSMIN checklist. Quality of Life Research, 21, 651–657. CrossRefPubMed Terwee, C. B., Mokkink, L. B., Knol, D. L., Ostelo, R. W. J. G., Bouter, L. M., & De Vet, H. C. W. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: A scoring system for the COSMIN checklist. Quality of Life Research, 21, 651–657. CrossRefPubMed
52.
go back to reference Lohr, K.N. (2002). Assessing health status and quality-of-life instruments: attributes and review criteria. Quality of Life Research, 11(3), 193–205. CrossRefPubMed Lohr, K.N. (2002). Assessing health status and quality-of-life instruments: attributes and review criteria. Quality of Life Research, 11(3), 193–205. CrossRefPubMed
53.
go back to reference Valderas, J. M.. Ferrer, M.. Mendivil, J.. Garin, O.. Rajmil, L., Herdman, M.. Alonso, J., Scientific Committee on “Patient-Reported Outcomes” of the IRYSS Network. (2008). Development of EMPRO: a tool for the standardized assessment of patient-reported outcome measures. Value in Health, 11(4), 700–708. CrossRefPubMed Valderas, J. M.. Ferrer, M.. Mendivil, J.. Garin, O.. Rajmil, L., Herdman, M.. Alonso, J., Scientific Committee on “Patient-Reported Outcomes” of the IRYSS Network. (2008). Development of EMPRO: a tool for the standardized assessment of patient-reported outcome measures. Value in Health, 11(4), 700–708. CrossRefPubMed
54.
go back to reference Higgins, J. P., Altman, D. G., Gotzsche, P. C., Juni, P., Moher, D., Oxman, A. D., et al. (2011). The Cochrane Collaboration’s tool for assessing risk of bias in randomised trials. BMJ, 343, 5928. CrossRef Higgins, J. P., Altman, D. G., Gotzsche, P. C., Juni, P., Moher, D., Oxman, A. D., et al. (2011). The Cochrane Collaboration’s tool for assessing risk of bias in randomised trials. BMJ, 343, 5928. CrossRef
55.
go back to reference Juni, P., Witschi, A., Bloch, R., & Egger, M. (1999). The hazards of scoring the quality of clinical trials for meta-analysis. JAMA, 282(11), 1054–1060. CrossRefPubMed Juni, P., Witschi, A., Bloch, R., & Egger, M. (1999). The hazards of scoring the quality of clinical trials for meta-analysis. JAMA, 282(11), 1054–1060. CrossRefPubMed
56.
go back to reference Greenland, S., & O’Rourke, K. (2001). On the bias produced by quality scores in meta-analysis, and a hierarchical view of proposed solutions. Biostatistics, 2(4), 463–471. CrossRefPubMed Greenland, S., & O’Rourke, K. (2001). On the bias produced by quality scores in meta-analysis, and a hierarchical view of proposed solutions. Biostatistics, 2(4), 463–471. CrossRefPubMed
57.
go back to reference Jadad, A. R., Moore, R. A., Carroll, D., Jenkinson, C., Reynolds, D. J., Gavaghan, D. J., et al. (1996). Assessing the quality of reports of randomized clinical trials: Is blinding necessary? Controlled Clinical Trials, 17(1), 1–12. CrossRef Jadad, A. R., Moore, R. A., Carroll, D., Jenkinson, C., Reynolds, D. J., Gavaghan, D. J., et al. (1996). Assessing the quality of reports of randomized clinical trials: Is blinding necessary? Controlled Clinical Trials, 17(1), 1–12. CrossRef
58.
go back to reference Buscemi, N., Hartling, L., Vandermeer, B., Tjosvold, L., & Klassen, T. P. (2006). Single data extraction generated more errors than double data extraction in systematic reviews. Journal of Clinical Epidemiology, 59(7), 697–703. CrossRefPubMed Buscemi, N., Hartling, L., Vandermeer, B., Tjosvold, L., & Klassen, T. P. (2006). Single data extraction generated more errors than double data extraction in systematic reviews. Journal of Clinical Epidemiology, 59(7), 697–703. CrossRefPubMed
59.
go back to reference Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., & Selby, P. J. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22, 714–724. CrossRefPubMed Velikova, G., Booth, L., Smith, A. B., Brown, P. M., Lynch, P., Brown, J. M., & Selby, P. J. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22, 714–724. CrossRefPubMed
60.
go back to reference de Wit, M., Delemarre-van de Waal, H. A., Bokma, J. A., Haasnoot, K., Houdijk, M. C., Gemke, R. J., & Snoek, F. J. (2008). Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: A randomized controlled trial. Diabetes Care, 31, 1521–1526. CrossRefPubMedPubMedCentral de Wit, M., Delemarre-van de Waal, H. A., Bokma, J. A., Haasnoot, K., Houdijk, M. C., Gemke, R. J., & Snoek, F. J. (2008). Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: A randomized controlled trial. Diabetes Care, 31, 1521–1526. CrossRefPubMedPubMedCentral
61.
Metagegevens
Titel
Individualized health-related quality of life instrument Measure Yourself Medical Outcome Profile (MYMOP) and its adaptations: a critical appraisal
Auteurs
Sana Ishaque
Jeffrey A. Johnson
Sunita Vohra
Publicatiedatum
13-11-2018
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-2046-6