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Health-related quality of life (HRQL) is increasingly recognized for its importance in health research. As there is increasing recognition of the inter-individual difference in response to therapeutic interventions, it may be helpful to apply individualized measures of HRQL. The MYMOP is a commonly used example of such measures, although several adaptations have been developed.
This review was conducted to identify adaptations of MYMOP, and evaluate the measurement properties of MYMOP and its adaptations.
Adaptations were identified using MYMOP website and personal communication, supplemented by a SCOPUS search in April 2017. Bibliographies of included studies were hand-searched. COSMIN criteria were used to evaluate the measurement properties.
Sixteen studies were included in this review. Adaptations were developed to evaluate individualized therapies in cancer, psychiatry, and acupuncture. The included measures were MYMOP, measure yourself concern and wellbeing, psychological outcome profiles (PSYCHLOPS), and MYMOP-pictorial (MYMOP-P). The quality of the measurement properties varied; none of the included measures met all currently recommended quality criteria for measurement properties.
Current literature provides evidence that MYMOP and its adaptations offer individualized assessment of patient-centered outcomes, and thereby provide a means to understand heterogeneity of treatment effects. However, current recommendations for psychometric testing suggest further validation of these measures would be beneficial.
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Engel, G. L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196, 129–136. CrossRef
Mayo, E. N., et al. ISOQOL Dictionary of Quality of Life and Health Outcomes Measurement. 2015; First Edition.
Sales, C. M. D. (2017). Seeing the person in the patient: Making the case for individualized proms in mental healthcare. Current Psychiatry Reviews, 13(3), 184–187. CrossRef
Sales, C. M. D., & Alves, P. C. G. (2016). Patient-centred assessment in psychotherapy: A Review of individualized tools. Clinical Psychology: Science and Practice, 23(3), 265–283.
Bowling, A. (1995). What things are important in people’s lives? A survey of the public’s judgements to inform scales of health related quality of life. Social Science & Medicine, 41, 1447–1462. CrossRef
Dahabreh, I. J., Hayward, R., & Kent, D. M. (2016). Using group data to treat individuals: Understanding heterogeneous treatment effects in the age of precision medicine and patient-centred evidence. International Journal of Clinical Epidemiology, 45, 2184–2193.
Terwee, C. B., Bot, S. D., de Boer, M. R., van der Windt, D. A., Knol, D. L., Dekker, J., Bouter, L. M., & de Vet, H. C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60, 34–42. CrossRef
Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & de Vet, H. C. W. (2010). The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. Journal of Clinical Epidemiology, 63, 737–745. CrossRefPubMed
Quality of life and pharmaco-economics in clinical trials (Book Review) R. Launois. Quality of Life Research, 1 January 1997, Vol. 6(1), pp. 97-98 [Peer Reviewed Journal]
Chen, A. Y., Frankowski, R., Bishop-Leone, J., Hebert, T., Leyk, S., Lewin, J., & Goepfert, H. (2001). The development and validation of a dysphagia-specific quality-of-life questionnaire for patients with head and neck cancer: The M. D. anderson dysphagia inventory. Archives of Otolaryngology–Head & Neck Surgery, 127, 870–876.
Ashworth, M., Shepherd, M., Christey, J., Matthews, V., Wright, K., Parmentier, H., Robinson, S., & Godfrey, E. (2004). A client-centred psychometric instrument: The development of “PSYCHLOPS“(“psychological outcome profile”). Counselling and Psychotherapy Research, 4, 27. CrossRef
Ashworth, M., Evans, C., & Clement, S. (2009). Measuring psychological outcomes after cognitive behaviour therapy in primary care: A comparison between a new patient-generated measure “pSYCHLOPS” psychological outcome profiles and “hADS” hospital anxiety and depression scale. Journal of Mental Health, 18, 169–177. CrossRef
Ashworth, M., Robinson, S., Evans, C., Shepherd, M., Conolly, A., & Rowlands, G. (2007). What does an idiographic measure (PSYCHLOPS) tell us about the spectrum of psychological issues and scores on a nomothetic measure (CORE-OM)? Primary Care and Community Psychiatry, 12, 7–12.
Ashworth, M., Robinson, S., Godfrey, E., Parmentier, H., Shepherd, M., Christey, J., Wright, K., & Matthews, V. (2005). The experiences of therapists using a new client-centred psychometric instrument, “PSYCHLOPS” (“psychological outcome profile”). Counselling and Psychotherapy Research, 5, 37–41. CrossRef
Ashworth, M., Robinson, S. I., Godfrey, E., Shepherd, M., Evans, C., Seed, P., Parmentier, H., & Tylee, A. (2005). Measuring mental health outcomes in primary care: The psychometric properties of a new patient-generated outcome measure, ‘PSYCHLOPS’ (‘psychological outcome profiles’). Primary Care Mental Health, 3, 261–270.
Evans, C., Ashworth, M., & Peters, M. (2010). Are problems prevalent and stable in non-clinical populations? problems and test-retest stability of a patient-generated measure, PSYCHLOPS (psychological outcome profiles), in a non-clinical student sample. British Journal of Guidance & Counselling, 38, 431–439. CrossRef
Cooke, H. J. (2000). Is the adapted “measure yourself medical outcome profile questionnaire an appropriate tool to evaluate the bristol cancer help centre’s supportive programme? Dissertation. University of Exeter
Paterson, C., Langan, C. E., McKaig, G. A., Anderson, P. M., Maclaine, G. D. H., Rose, L. B., Walker, S. J., & Campbell, M. J. (2000). Assessing patient outcomes in acute exacerbations of chronic bronchitis: The measure your medical outcome profile (MYMOP), medical outcomes study 6-item general health survey (MOS-6A) and EuroQol (EQ-5D). Quality of Life Research, 9, 521–527. CrossRefPubMed
Polley, M. J., Seers, H. E., Cooke, H. J., Hoffman, C., & Paterson, C. (2007). How to summarise and report written qualitative data from patients: A method for use in cancer support care. Supportive Care Cancer, 15, 963–971. CrossRef
MYMOP – welcome. Retrieved February 12, 2011, from http://sites.pcmd.ac.uk/mymop/index.php?c=welcome .
MYMOP—Sister. (2011). Retrieved February 12, 2011, from http://sites.pcmd.ac.uk/mymop/index.php?c=sister&s=mycaw .
Seers, H. E., Gale, N., Paterson, C., Cooke, H. J., Tuffrey, V., & Polley, M. J. (2009). Individualised and complex experiences of integrative cancer support care: Combining qualitative and quantitative data. Supportive Care Cancer, 17, 1159–1167. CrossRef
Psychlops|Home. (2011). Retrieved February 12, 2011, from http://www.psychlops.org.uk/.
Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., Bouter, L. M., & de Vet, H. C. (2010). The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: An international delphi study. Quality of Life Research, 19, 539–549. CrossRefPubMedPubMedCentral
Valderas, J. M.. Ferrer, M.. Mendivil, J.. Garin, O.. Rajmil, L., Herdman, M.. Alonso, J., Scientific Committee on “Patient-Reported Outcomes” of the IRYSS Network. (2008). Development of EMPRO: a tool for the standardized assessment of patient-reported outcome measures. Value in Health, 11(4), 700–708. CrossRefPubMed
Higgins, J. P., Altman, D. G., Gotzsche, P. C., Juni, P., Moher, D., Oxman, A. D., et al. (2011). The Cochrane Collaboration’s tool for assessing risk of bias in randomised trials. BMJ, 343, 5928. CrossRef
Jadad, A. R., Moore, R. A., Carroll, D., Jenkinson, C., Reynolds, D. J., Gavaghan, D. J., et al. (1996). Assessing the quality of reports of randomized clinical trials: Is blinding necessary? Controlled Clinical Trials, 17(1), 1–12. CrossRef
de Wit, M., Delemarre-van de Waal, H. A., Bokma, J. A., Haasnoot, K., Houdijk, M. C., Gemke, R. J., & Snoek, F. J. (2008). Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: A randomized controlled trial. Diabetes Care, 31, 1521–1526. CrossRefPubMedPubMedCentral
PROMIS. Retrieved July 19, 2012, from http://www.nihpromis.org/?AspxAutoDetectCookieSupport=1.
National Health Services. Retrieved September 4, 2017 http://www.nhs.uk/Search/Pages/Results.aspx?___JSSniffer=true&q=patient+reported+outcomes.
Strategy for Patient-Oriented Research – CIHR. Retrieved September 4, 2017, from http://www.cihr-irsc.gc.ca/e/41204.html.
Patient-Centered Outcomes Research Institute. Retrieved September 4, 2017, from https://www.pcori.org/.
International Society for Pharmacoeconomics and Outcomes Research. Retrieved September 4, 2017, from https://www.ispor.org/about-ispor.asp.
- Individualized health-related quality of life instrument Measure Yourself Medical Outcome Profile (MYMOP) and its adaptations: a critical appraisal
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- Springer International Publishing