Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

21-04-2021 | Original Paper

Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People’s Experiences

Auteurs: Sandra C. Jones, Chloe S. Gordon, Muhammad Akram, Nicole Murphy, Fiona Sharkie

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2022

Abstract

There is limited research examining the inclusion of autistic people in their local communities. This paper reports on two Australian studies which explored this gap, focusing on both autistic people’s experiences and non-autistic people’s attitudes towards autistic individuals. Study One was conducted with primarily non-autistic people (n = 2,383), and Study Two with primarily parents and carers of autistic people (n = 1,297 people). The majority of non-autistic adults perceived discrimination against autistic people in the community; consistent with the experiences of autistic people and their carers. Of particular concern was more negative attitudes towards, and experiences of, autistic adults. There is an urgent need to improve society’s acceptance and inclusion of autistic people of all ages.

vorige artikel Clinical Profiles of Black and White Children Referred for Autism Diagnosis

volgende artikel “It's Not Just in My Head, and It's Not Just Irrelevant”: Autistic Negotiations of Menopausal Transitions

Alleen toegankelijk voor geautoriseerde gebruikers

As there were only 18 respondents from the Northern Territory, these were excluded from the analyses by state of residence.

Percentages are reported to one decimal place; where the cell size is less than 100, they are reported as whole numbers.

ABS. (2015). Autism in Australia Retrieved from https://www.abs.gov.au/ausstats/abs@.nsf/Lookup/4430.0Main%20Features752015

ABS. (2012). Autism in Australia 2012, Autism and Education. Retrieved from https://www.abs.gov.au/ausstats/abs@.nsf/Latestproducts/4428.0Main%20Features52012

ABS. (2018). 2018 Survey of Disabiltiy. Ageing and Carers.

Allely, C. S. (2019). Understanding and recognising the female phenotype of autism spectrum disorder and the “camouflage” hypothesis: a systematic PRISMA review. Advances in Autism, 5(1), 14–37. https://doi.org/10.1108/AIA-09-2018-0036.CrossRef

Amado, A. N., Stancliffe, R. J., Mccarron, M., & Mccallion, P. (2013). Social inclusion and community participation of individuals with intellectual/developmental disabilities. Intellectual and Developmental Disabilities, 51(5), 360–375. https://doi.org/10.1352/1934-9556-51.5.360.CrossRefPubMed

Anderson, A. H., Stephenson, J., & Carter, M. (2017). A systematic literature review of the experiences and supports of students with autism spectrum disorder in post-secondary education. Research in Autism Spectrum Disorders, 39, 33–53. https://doi.org/10.1016/j.rasd.2017.04.002.CrossRef

Bigby, C., & Wisel, I. (2019). Using the concept of encounter to further the social inclusion of people with intellectual disabilities: what has been learned? Research and Practice in Intellectual and Developmental Disabilities, 6(1), 39–51. https://doi.org/10.1080/23297018.2018.1528174.CrossRef

Bredewold, F., Tonkens, E., & Trappenburg, M. (2016). Urban encounters limited: The importance of built-in boundaries in contacts between people with intellectual or psychiatric disabilities and their neighbours. Urban Studies, 53(16), 3371–3387. https://doi.org/10.1177/0042098015616895.CrossRef

Cassidy, S. S., Gould, K., Townsend, E., Pelton, M., Robertson, A. E., & Rodgers, J. (2020). Is camouflaging autistic traits associated with suicidal thoughts and behaviours? Expanding the interpersonal psychological theory of suicide in an undergraduate student sample. Journal of Autism and Developmental Disorders, 50(10), 3638–3648. https://doi.org/10.1007/s10803-019-04323-3.CrossRefPubMed

Gelbar, N., Smith, I., & Reichow, B. (2014). Systematic Review of Articles Describing Experience and Supports of Individuals with Autism Enrolled in College and University Programs. Journal of Autism and Developmental Disorders, 44(10), 2593–2601. https://doi.org/10.1007/s10803-014-2135-5.CrossRefPubMed

Goodall, C., & Mackenzie, A. (2019). Title: what about my voice? Autistic young girls’ experiences of mainstream school. European Journal of Special Needs Education, 34(4), 499–513. https://doi.org/10.1080/08856257.2018.1553138.CrossRef

Gray, K. M., Piccinin, A., Keating, C. M., Taffe, J., Paramenter, T. R., Hofer, S., Einfeld, S. L., & Tonge, B. J. (2014). Outcomes in young adulthood: are we achieving community participation and inclusion? Journal of Intellectual Disability Research, 58(8), 734–745.CrossRef

Haelle, T. (2018). The consequences of compensation in autism. Retrieved from https://www.neurologyadvisor.com/topics/autism-spectrum-disorder/the-consequences-of-compensation-in-autism/

Hategan, A., Bourgeois, J. A., & Goldberg, J. (2017). Aging with autism spectrum disorder: an emerging public health problem. International Psychogeriatrics, 29(4), 695–697. https://doi.org/10.1017/S1041610216001599.CrossRefPubMed

Hedley, D., Uljarević, M., Foley, K. R., Richdale, A., & Trollor, J. (2018). Risk and protective factors underlying depression and suicidal ideation in autism spectrum disorder. Depression and Anxiety, 35(7), 648–657. https://doi.org/10.1002/da.22759.CrossRefPubMed

Henninger, N. A., & Taylor, J. L. (2013). Outcomes in adults with autism spectrum disorders: a historical perspective. Autism, 17(1), 103–116. https://doi.org/10.1177/1362361312441266.CrossRefPubMed

Hodges, J. M., & Gore, J. S. (2019). Social connections and well-being: With whom do you identify and why? Psychological Studies, 64(1), 436–446. https://doi.org/10.1007/s12646-019-00506-1.CrossRef

Hull, L., Petrides, K., Allison, C., Smith, P., Baron-Cohen, S., Lai, M.-C., & Mandy, W. (2017). “Putting on my best normal”: Social camouflaging in adults with autism spectrum conditions. Journal of Autism and Developmental Disorders, 47(8), 2519–2534. https://doi.org/10.1007/s10803-017-3166-5.CrossRefPubMedPubMedCentral

Jacoby, E. C., Walton, K., & Guada, J. (2019). Community perspectives on adults with autism spectrum disorder. Occupational Therapy in Mental Health, 35(1), 72–91. https://doi.org/10.1080/0164212X.2018.1507774.CrossRef

John, R. P. S., Knott, F. J., & Harvey, K. N. (2018). Myths about autism: An exploratory study using focus groups. Autism, 22(7), 845–854. https://doi.org/10.1177/1362361317714990.CrossRefPubMed

Johnson, T. D., & Joshi, A. (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430–449. https://doi.org/10.1037/apl0000058.CrossRef

Jones, S. (2019). We need to stop perpetuating the myth that children grow out of autism https://theconversation.com/we-need-to-stop-perpetuating-the-myth-that-children-grow-out-of-autism-119540

Jones, S.C., Akram, M., Gordon, C.S., Murphy, N., & Sharkie, F. (2021). Autism in Australia: Community knowledge and autistic people's experiences. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-020-04819-3.

Koller, D., & Stoddart, K. (2020). Approaches that address social inclusion for children with disabilities: A critical review. Child & Youth Care Forum. https://doi.org/10.1007/s10566-020-09589-8.CrossRef

Lilley, R. (2013). It’s an absolute nightmare: maternal experiences of enrolling children diagnosed with autism in primary school in Sydney, Australia. Disability & Society, 28(4), 514–526. https://doi.org/10.1080/09687599.2012.717882.CrossRef

Makin, C., Hill, V., & Pellicano, E. (2017). The primary-to-secondary school transition for children on the autism spectrum: A multi-informant mixed-methods study. Autism & Developmental Language Impairments, 2, 1–18. https://doi.org/10.1177/2396941516684834.CrossRef

Marsack, C., & Samuel, P. (2017). Mediating effects of social support on quality of life for parents of adults with autism. Journal of Autism and Developmental Disorders, 47(8), 2378–2389. https://doi.org/10.1007/s10803-017-3157-6.CrossRefPubMed

Morrison, K. E., Debrabander, K. M., Jones, D. R., Faso, D. J., Ackerman, R. A., & Sasson, N. J. (2020). Outcomes of real-world social interaction for autistic adults paired with autistic compared to typically developing partners. Autism, 24(5), 1067–1080. https://doi.org/10.1177/1362361319892701.CrossRefPubMed

Peters, R., & Brooks, R. (2016). Parental perspectives on the transition to secondary school for students with Asperger syndrome and high-functioning autism: A pilot survey study. British Journal of Special Education. https://doi.org/10.1111/1467-8578.12125.CrossRef

Sarrett, J. (2017). Interviews, disclosures, and misperceptions: Autistic adults’ perspectives on employment related challenges. Disability Studies Quarterly. https://doi.org/10.18061/dsq.v37i2.5524.CrossRef

Sasson, N. J., Faso, D. J., Nugent, J., Lovell, S., Kennedy, D. P., & Grossman, R. B. (2017). Neurotypical peers are less willing to interact with those with autism based on thin slice judgments. Scientific Reports, 7(1), 1–10. https://doi.org/10.1038/srep40700.CrossRef

Sasson, N. J., & Morrison, K. E. (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers. Autism, 23(1), 50–59. https://doi.org/10.1177/1362361317729526.CrossRefPubMed

Taylor, J. L., Adams, R. E., & Bishop, S. L. (2017). Social participation and its relation to internalizing symptoms among youth with autism spectrum disorder as they transition from high school. Autism Research, 10(4), 663–672. https://doi.org/10.1002/aur.1709.CrossRef

Temple, J. B., & Kelaher, M. (2018). Is disbility exclusion associated with psychological distress? Australian evidence from a national cross-sectional survey. British Medical Journal Open, 8(5), e020829. https://doi.org/10.1136/bmjopen-2017-020829.CrossRef

Tong, H. M., Lai, D. W. K., Zeng, Q., & Xu, W. Y. (2011). Effects of social exclusion on depressive symptoms: elderly Chinese living alone in Shangahi, China. Journal of Cross-cultural Gerontology, 26(4), 349–364. https://doi.org/10.1007/s10823-011-9150-1.CrossRefPubMed

Underhill, J. C., Ledford, V., & Adams, H. (2019). Autism stigma in communication classrooms: exploring peer attitudes and motivations toward interacting with atypical students. Communication Education, 68(2), 175–192. https://doi.org/10.1080/03634523.2019.1569247.CrossRef

United Nations. (2016). Convention on the Rights of Persons with Disabilities, General comment No. 4 (2016), Article 24: Right to inclusive education Retrieved from https://www.ohchr.org/Documents/HRBodies/CRPD/GC/RighttoEducation/CRPD-C-GC-4.doc

Wallace, G. L., Budgett, J., & Charlton, R. A. (2016). Aging and autism spectrum disorder: Evidence from the broad autism phenotype. Autism Research, 9(12), 1294–1303. https://doi.org/10.1002/aur.1620.CrossRefPubMed

Yur’yev, A., Varnik, P., Sisask, M., Leppik, L., Lumiste, K., & Varnik, A. (2011). Some aspects of social exclusion: Do they influence suicide mortality. International Journal of Social Psychiatry, 59(3), 232–238. https://doi.org/10.1177/0020764011431792.CrossRef

Titel: Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People’s Experiences
Auteurs: Sandra C. Jones
Chloe S. Gordon
Muhammad Akram
Nicole Murphy
Fiona Sharkie
Publicatiedatum: 21-04-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-04998-7

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 3/2022

Visual Detection and Decoding Skills of Aerial Photography by Adults with Autism Spectrum Disorder (ASD)

Correction to: Implications of Applying “Clinically Significant Impairment” to Autism Assessment: Commentary on Six Problems Encountered in Clinical Practice

Co-occurring Down Syndrome and Autism Spectrum Disorder: Cognitive, Adaptive, and Behavioral Characteristics

The Combination of Food Approach and Food Avoidant Behaviors in Children with Autism Spectrum Disorder: “Selective Overeating”

Community-based Parent Education for Caregivers of Children Newly Diagnosed with Autism Spectrum Disorder

Clinical Profiles of Black and White Children Referred for Autism Diagnosis