Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

12-01-2022 | Original Paper

Improving Efficiency and Equity in Early Autism Evaluations: The (S)TAAR Model

Auteurs: Meredith I. Brinster, Briana H. Brukilacchio, Autumn Fikki-Urbanovsky, Jeffrey D. Shahidullah, Sheri Ravenscroft

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2023

Abstract

This paper describes the (Sin Exclusión) Transdisciplinary Autism Assessment and Resources ([S]TAAR) model and presents early metrics tracking efficiency and equity in access to high-quality comprehensive autism evaluations for young children. Retrospective chart reviews over one year (08/2018–08/2019) with n = 173 children were reviewed. Through care coordination with community providers, the model was developed to meet local needs by increasing throughput of children (< 4 years old) evaluated by a transdisciplinary team. Team-based processes included pre-visit triage, synchronous evaluation procedures, case conferencing, huddles, and care coordination. The model led to increased patient throughput, reductions in waitlist and time to diagnosis, and improved provider satisfaction. Improvements in access to care were equitable across patient race, ethnicity, language, and insurance type.

vorige artikel Parent-Led Cognitive Behavioural Therapy for Children with Autism Spectrum Conditions. A Pilot Study

volgende artikel Dimensions of Self-Reported Driving Difficulty in Autistic and Non-Autistic Adults and their Relationship with Autistic Traits

Austin, J., Manning-Courtney, P., Johnson, M., Weber, R., Johnson, H., Murray, D., Ratliff-Schaub, K., Tadlock, A. M., & Murray, M. (2016). Improving access to care at autism treatment centers: A systems analysis approach. Pediatrics, 137, S149–S157. https://doi.org/10.1542/peds.2015-2851MCrossRef

Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Rosenberg, C. R., White, T., Durkin, M. S., Imm, P., Nikolaou, L., Yeargin-Allsopp, M., Lee, L., Harrington, R., Lopez, M., Fitzgerald, R. T., Hewitt, A., … Dowling, N. F. (2018). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveillance Summaries, 67, 1–23. https://doi.org/10.15585/mmwr.ss6706a1CrossRef

Bayley, N. (2005). Bayley Scales of Infant and Toddler Development (3rd ed.). Pearson. Retrieved June 14, 2021 from https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Bayley-Scales-of-Infant-and-Toddler-Development-%7C-Third-Edition/p/100000123.html

Bishop-Fitzpatrick, L., & Kind, A. J. H. (2017). A scoping review of health disparities in autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 3380–3391. https://doi.org/10.1007/s10803-017-3251-9CrossRef

Bridgemohan, C., Bauer, N. S., Nielsen, B. A., DeBattista, A., Ruch-Ross, H., Paul, L., & Roizen, N. (2018). A workforce survey on developmental-behavioral pediatrics. Pediatrics, 141, e20172164. https://doi.org/10.1542/peds.2017-2164CrossRef

Crossman, M., Lindly, O., Chan, J., Eaves, M., Kuhlthau, K. A., Parker, R. A., Coury, D. L., Zand, D. H., Nowinski, L. A., Smith, K., Tomkinson, M., & Murray, D. S. (2020). Families’ experiences with family navigation services in the autism treatment network. Pediatrics, 145, S60–S71. https://doi.org/10.1542/peds/2019-1895ICrossRef

Dababnah, S., Shaia, W. E., Campion, K., & Nichols, H. M. (2018). “We had to keep pushing”: Caregivers’ perspectives on autism screening and referral practices of Black children in primary care. Intellectual and Developmental Disabilities, 56, 321–336. https://doi.org/10.1352/1934-9556-56.5.321CrossRef

Dreyer, B. (2016). AAP statement on US Preventive Services Task Force final recommendation statement on autism screening. Retrieved June 14, 2021 from https://www.org/en-us/about-the-aap/aap-press-room/Pages/AAP-Statement-on-US-Preventive-Services-Task-Force-Final-Recommendation-Statement-on-Autism-Screening

Durkin, M. S., Maenner, M. J., Meaney, J., Levy, S. E., DiGuiseppi, C., Nicholas, J. S., Kirby, R. S., Pinto-Martin, A., & Shieve, L. A. (2010). Socioeconomic inequity in the prevalence of autism spectrum disorder: Evidence from a U.S. cross-sectional study. PLoS One, 5, 11551. https://doi.org/10.1371/journal.pone.0011551CrossRef

Georgetown University Health Policy Institute, Center for Children and Families. (2021). Getting back on track: A detailed look at health coverage trends for Latino children appendix. Retrieved January 8, 2022 from https://ccf.georgetown.edu/2021/06/08/getting-back-on-track-a-detailed-look-at-health-coverage-trends-for-latinochildren-appendix/

Gerdts, J. A., Mancini, J., Fox, E., Rhoads, C., Ward, T., Easley, E., & Bernier, R. A. (2018). Interdisciplinary team evaluation: An effective method for the diagnostic assessment of autism spectrum disorder. Journal of Developmental and Behavioral Pediatrics, 39, 271–281. https://doi.org/10.1097/DBP.0000000000000549CrossRef

Gordon-Lipkin, E., Foster, J., & Peacock, G. (2016). Whittling down the wait time: Exploring models to minimize the delay from initial concern to diagnosis and treatment of autism spectrum disorder. Pediatric Clinics of North America, 63, 851–859. https://doi.org/10.1016/j.pcl.2016.06.007CrossRef

Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research electronic data capture (REDCap)—a metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics, 42, 377–381. https://doi.org/10.1016/j.jbi.2008.08.010CrossRef

Hine, J. F., Herrington, C. G., Rothman, A. M., Mace, R. L., Patterson, B. L., Carlson, K. L., & Warren, Z. E. (2018). Embedding autism spectrum disorder diagnosis within the medical home: Decreasing wait times through streamlined assessment. Journal of Autism and Developmental Disorders, 48, 2846–2853. https://doi.org/10.1007/s10803-018-3548-3CrossRef

Holley, M. I., Ravenscroft, S., Brukilacchio, B., Engelman, M., & Fikki, A. (2020). Dell Children’s (S)TAAR model of early autism assessment. In M. McClain, J. Shahidullah & K. Mezher (Eds.), Interprofessional care coordination for pediatric autism spectrum disorder (pp. 65–84). https://doi.org/10.1007/978-3-030-46295-6_6

Jimenez, M. E., Alcaraz, E. M., Williams, J., & Strom, B. L. (2017). Access to developmental pediatrics evaluations for at-risk children. Journal of Developmental and Behavioral Pediatrics, 38, 228–232. https://doi.org/10.1097/DBP.0000000000000427CrossRef

Koushik, N. S., Bacon, B., & Stancin, T. (2015). An interprofessional care model for evaluating autism spectrum disorders (ASDs) among low-income children. Clinical Practice in Pediatric Psychology, 3, 108–119. https://doi.org/10.1037/cpp0000093CrossRef

Lappé, M., Lau, L., Dudovitz, R. N., Nelson, B. B., Karp, E. A., & Kuo, A. A. (2018). The diagnostic odyssey of autism spectrum disorder. Pediatrics, 141, S272–S279. https://doi.org/10.1542/peds.2016-4300cCrossRef

Lipkin, P. H., & Macias, M. M. (2020). Promoting optimal development: Identifying infants and young children with developmental disorders through developmental surveillance and screening. Pediatrics, 145, e20193449. https://doi.org/10.1542/peds.2019-3449CrossRef

Newborg, J. (2009). Battelle developmental inventory-second edition. Itasca: Riverside.

Parker, M. L., Diamond, R. M., & Del Guericio, A. D. (2019). Care coordination of autism spectrum disorder: A solution-focused approach. Issues in Mental Health Nursing, 41, 138–145. https://doi.org/10.1080/01612840.2019.1624899CrossRef

Phelps, R., & Coker, T. (2019). First, do no harm: Improving access in autism diagnostic assessments for children without exacerbating inequities in care. Journal of Developmental and Behavioral Pediatrics, 40, 217–218. https://doi.org/10.1097/DBP.0000000000000663CrossRef

Radecki, L., Sand-Loud, N., O’Connor, K. G., Sharp, S., & Olson, L. M. (2011). Trends in the use of standardized tools for developmental screening in early childhood: 2002–2009. Pediatrics, 128, 14–19. https://doi.org/10.1542/peds.2010-2180CrossRef

Robins, D. L., Fein, D., & Barton, M. (2009). Modified checklist for autism in toddlers, revised with follow-up (M-CHAT-R/F). 2009. Retrieved June 14, 2021 from https://mchatscreen.com/wp-content/uploads/2015/09/M-CHAT-R_F_Rev_Aug2018.pdf

Schopler, E., Bourgondien, M. E. V., Wellman, G. J., & Lowe, S. r. (2010). Childhood Autism Rating Scale–Second Edition (CARS-2). Retrieved June 14, 2021 from https://www.pearsonclinical.co.uk/Psychology/ChildMentalHealth/ChildAutisticSpectrumDisorders/ChildhoodAutismRatingScale-SecondEdition(CARS2)/ChildhoodAutismRatingScale-SecondEdition(CARS2).aspx

Shahidullah, J. D., Azad, G. F., Mezher, K., McClain, M. B., & McIntrye, L. (2018). Linking the medical and educational home to support children with autism spectrum disorder: Practice recommendations. Clinical Pediatrics, 57, 1496–1505. https://doi.org/10.1177/0009922818774344CrossRef

Shahidullah, J. D., McClain, M. B., Azad, G., Mezher, K. R., & McIntyre, L. (2020). Coordinating autism care across schools and medical settings: Considerations for school psychologists. Intervention in School and Clinic, 56, 107–114. https://doi.org/10.1177/1053451220914891CrossRef

Shanafelt, T. D., Boone, S., Tan, L., Dyrbye, L. N., Sotile, W., Satele, D., West, C. P., Sloan, J., & Oreskovich, M. R. (2012). Burnout and satisfaction with work-life balance among US physicians relative to the general US population. Archives of Internal Medicine, 172, 1377–1385. https://doi.org/10.1001/archinternmed.2012.3199CrossRef

Shanafelt, T., Goh, J., & Sinsky, C. (2017). The business case for investing in physician well-being. JAMA Internal Medicine, 177, 1826–1832. https://doi.org/10.1001/jamainternmed.2017.4340CrossRef

Sheldrick, R. C., Maye, M. P., & Carter, A. S. (2017). Age at first identification of autism spectrum disorder: An analysis of two US surveys. Journal of the American Academy of Child and Adolescent Psychiatry, 56, 313–320. https://doi.org/10.1016/j.jaac.2017.01.012CrossRef

Squires, J., & Bricker, D. (2019). Ages & Stages Questionnaires®, Third Edition (ASQ®-3): A parent-completed child monitoring system. Paul H. Brookes Publishing Co., Inc.

Thomas, K. C., Parish, S. L., Rose, R. A., & Kilany, R. (2012). Access to care for children with autism in the context of state Medicaid reimbursement. Maternal Child Health Journal, 16, 1638–1644. https://doi.org/10.1007/s10995-011-0862-1CrossRef

Voress, J. K., Maddox, T., & Hammill, D. D. (2012). Developmental assessment of young children, second edition. Pearson. Retrieved June 14, 2021 from https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Developmental-Early-Childhood/Developmental-Assessment-of-Young-Children-%7C-Second-Edition/p/100000730.html

Vyt, A. (2008). Interprofessional and transdisciplinary teamwork in health care. Diabetes/metabolism Research and Reviews, 24, S106–S109. https://doi.org/10.1002/dmrr.835CrossRef

West, C. P., Dyrbye, L. N., & Shanafelt, T. D. (2018). Physician burnout: Contributors, consequences and solutions. Journal of Internal Medicine, 283, 516–529. https://doi.org/10.1111/joim.12752CrossRef

Williams-Arya, P., Anixt, J., Kuan, L., Johnson, H., Kent, B., Bing, N., Ehrhardt, J., & Manning-Courtney, P. (2019). Improving access to diagnostic assessments for autism spectrum disorder using an arena model. Journal of Developmental and Behavioral Pediatrics, 40, 161–169. https://doi.org/10.1097/DBP.0000000000000648CrossRef

Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075–1083. https://doi.org/10.1177/1049732308320112CrossRef

World Health Organization. (2008). Task-shifting: global recommendations and guidelines. Retrieved June 14, 2021 from https://www.who.int/workforcealliance/knowledge/resources/taskshifting_guidelines/en/

Zablotsky, B., Black, L. I., & Blumberg, S. J. (2017). Estimated prevalence of children diagnosed with developmental disabilities in the United States, 2014–2016. U.S. Department of Health and Human Services, National Center for Health Statistics Data Brief, 291. Retrieved June 14, 2021 from https://pubmed.ncbi.nlm.nih.gov/29235982/

Zuckerman, K. E., Lindly, O. J., & Sinche, B. K. (2015). Parental concerns, provider response, and timeliness of autism spectrum disorder diagnosis. Journal of Pediatrics, 166, 1431–1439. https://doi.org/10.1016/j.jpeds.2015.03.007CrossRef

Zwaigenbaum, L., Bauman, M. L., Stone, W. L., Yirmiya, N., Estes, A., Hansen, R. L., McPartland, J. C., Natowicz, M. R., Choueiri, R., Fein, D., Kasari, C., Pierce, K., Buie, T., Carter, A., Davis, P. A., Granpeesheh, D., Mailloux, Z., Newschaffer, C., Robins, D., … Wetherby, A. (2015). Early identification of autism spectrum disorder: Recommendations for practice and research. Pediatrics, 136, S10–S40. https://doi.org/10.1542/peds.2014-3667CCrossRef

Titel: Improving Efficiency and Equity in Early Autism Evaluations: The (S)TAAR Model
Auteurs: Meredith I. Brinster
Briana H. Brukilacchio
Autumn Fikki-Urbanovsky
Jeffrey D. Shahidullah
Sheri Ravenscroft
Publicatiedatum: 12-01-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 1/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05425-1

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 1/2023

Utilization of a Best Practice Alert (BPA) at Point-of-Care for Recruitment into a US-Based Autism Research Study

Telehealth Interventions to Promote Health and Behavior-Related Outcomes in Adolescents with Autism Spectrum Disorder

Using the Question–Answer Relationship Strategy to Improve Listening Comprehension in Young Children with Autism Spectrum Disorder

Workplace Adjustments for Autistic Employees: What is ‘Reasonable’?

Dyadic Effect of Coping on the Perceived Impact of ASD of Children on Parental Quality of Life: Report from the ELENA Cohort

Weakened Bayesian Calibration for Tactile Temporal Order Judgment in Individuals with Higher Autistic Traits