Gepubliceerd in:
01-03-2016 | Special Section: PROs in Non-Standard Settings (by invitation only)
Implementation of the Kids-CAT in clinical settings: a newly developed computer-adaptive test to facilitate the assessment of patient-reported outcomes of children and adolescents in clinical practice in Germany
Gepubliceerd in: Quality of Life Research | Uitgave 3/2016
Log in om toegang te krijgenAbstract
Purpose
To describe the implementation process of a computer-adaptive test (CAT) for measuring health-related quality of life (HRQoL) of children and adolescents in two pediatric clinics in Germany. The study focuses on the feasibility and user experience with the Kids-CAT, particularly the patients’ experience with the tool and the pediatricians’ experience with the Kids-CAT Report.
Methods
The Kids-CAT was completed by 312 children and adolescents with asthma, diabetes or rheumatoid arthritis. The test was applied during four clinical visits over a 1-year period. A feedback report with the test results was made available to the pediatricians. To assess both feasibility and acceptability, a multimethod research design was used. To assess the patients’ experience with the tool, the children and adolescents completed a questionnaire. To assess the clinicians’ experience, two focus groups were conducted with eight pediatricians.
Results
The children and adolescents indicated that the Kids-CAT was easy to complete. All pediatricians reported that the Kids-CAT was straightforward and easy to understand and integrate into clinical practice; they also expressed that routine implementation of the tool would be desirable and that the report was a valuable source of information, facilitating the assessment of self-reported HRQoL of their patients.
Conclusions
The Kids-CAT was considered an efficient and valuable tool for assessing HRQoL in children and adolescents. The Kids-CAT Report promises to be a useful adjunct to standard clinical care with the potential to improve patient–physician communication, enabling pediatricians to evaluate and monitor their young patients’ self-reported HRQoL.