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Journal of Autism and Developmental Disorders

Gepubliceerd in:

25-01-2022 | Original Paper

Impact of the COVID-19 Pandemic on Daily Life: Diverse Experiences for Autistic Adults

Auteurs: Jarymke Maljaars, Eef Gijbels, Kris Evers, Debbie Spain, Freya Rumball, Francesca Happé, Ilse Noens

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2023

Abstract

Using a mixed methods design, this study aimed to examine the impact of the COVID-19 pandemic on autistic and non-autistic adults. We conducted an online survey with 196 autistic and 228 non-autistic adults from Belgium, the Netherlands and the United Kingdom focusing on their experiences during the first period of the pandemic. Our results indicate rather diverse experiences within the group of autistic participants across all domains of life. In comparison with non-autistic adults, autistic adults reported less negative impact on their social life and more negative impact on health and support services. In the autism group, stress was mainly related to changing and unclear measures. A wide range of coping strategies were described as helpful in reducing stress during the pandemic.

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Alleen toegankelijk voor geautoriseerde gebruikers

Adams, R. E., Zheng, S., Taylor, J. L., & Bishop, S. L. (2021). Ten weeks in: COVID-19 related distress in adults with autism spectrum disorder. Autism. https://doi.org/10.1177/13623613211005919

Ameis, S. H., Lai, M.-C., Mulsant, B. H., & Szatmari, P. (2020). Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond. Molecular Autism, 11(1), 61. https://doi.org/10.1186/s13229-020-00365-yCrossRef

Anderson, C., Butt, C., & Sarsony, C. (2021). Young adults on the autism spectrum and early employment-related experiences: Aspirations and obstacles. Journal of Autism and Developmental Disorders, 51, 88–105. https://doi.org/10.1007/s10803-020-04513-4CrossRef

Bal, V. H., Wilkinson, E., White, L. C., Law, J. K., Feliciano, P., & Chung, W. K. (2021). Early pandemic experiences of autistic adults: Predictors of psychological distress. Advance online publication. https://doi.org/10.1002/aur.2480CrossRef

Beck, K. B., Greco, C. M., Terhorst, L. A., Skidmore, E. R., Kulzer, J. L., & McCue, M. P. (2020). Mindfulness-based stress reduction for adults with autism spectrum disorder: Feasibility and estimated effects. Mindfulness, 11, 1286–1297. https://doi.org/10.1007/s12671-020-01345-2CrossRef

Berger, R. (2015). Now I see it, now I don’t: Researcher’s position and reflexivity in qualitative research. Qualitative Research, 15, 219–234. https://doi.org/10.1177/1468794112468475CrossRef

Beutel, M. E., Klein, E. M., Brähler, E., Reiner, I., Jünger, C., Michal, M., Wiltink, J., Wild, P. S., Münzel, T., Lackner, K. J., & Tibubos, A. N. (2017). Loneliness in the general population: Prevalence, determinants and relations to mental health. BMC Psychiatry, 17(1), 97. https://doi.org/10.1186/s12888-017-1262-xCrossRef

Bishop-Fitzpatrick, L., Mazefsky, C. A., & Eack, S. M. (2018). The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability. Autism, 22(6), 703–711. https://doi.org/10.1177/1362361317703090CrossRef

Bishop-Fitzpatrick, L., Minshew, N. J., Mazefsky, C. A., & Eack, S. M. (2017). Perception of life as stressful, not biological response to stress, is associated with greater social disability in adults with autism spectrum disorder. Journal of Autism and Developmental Disabilities, 47, 1–16. https://doi.org/10.1007/s10803-016-2910-6CrossRef

Black, M. H., Mahdi, S., Milbourn, B., Thompson, C., D’Angelo, A., Ström, E., Falkner, M., Falkmer, T., Lerner, M., Halladay, A., Gerber, A., Esposito, C., Girdler, S., & Bölte, S. (2019). Perspectives of key stakeholders on employment of autistic adults across the United States, Australia, and Sweden. Autism Research, 12(11), 1648–1662. https://doi.org/10.1002/aur.2167CrossRef

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oaCrossRef

Bundy, R., Mandy, W., Crane, L., Belcher, H., Bourne, L., Brede, J., Hull, L., & Cook, J. (2021). The Impact of COVID-19 on the Mental Health of Autistic Adults in the UK: A Mixed-Methods Study. OSF Preprints. https://doi.org/10.31219/osf.io/9v5qh

Cohen, S., & Janicki-Deverts, D. (2012). Who’s stressed? Distributions of psychological stress in the United States in probability samples from 1983, 2006, and 2009. Journal of Applied Social Psychology, 42(6), 1320–1334. https://doi.org/10.1111/j.1559-1816.2012.00900.xCrossRef

Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24(4), 385–396.CrossRef

Colizzi, M., Sironi, E., Antonini, F., Circeri, M. L., Bovo, C., & Zoccante, L. (2020). Psychosocial and behavioral impact of COVID-19 in autism spectrum disorder: An online parent survey. Brain Sciences, 10(6), 341. https://doi.org/10.3390/brainsci10060341CrossRef

Costa Dias, M., Joyce, R., Postel-Vinay, F., & Xu, X. (2020). The challenges for labour market policy during the COVID-19 pandemic. Fiscal Studies, 41(2), 371–382. https://doi.org/10.1111/1475-5890.12233CrossRef

Crane, L., & Goddard, L. (2008). Episodic and semantic autobiographical memory in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 38, 498–506. https://doi.org/10.1007/s10803-007-0420-2CrossRef

Ee, D., Hwang, Y. I., Reppermund, S., Srasuebkul, P., Trollor, J. N., Foley, K.-R., & Arnold, S. R. C. (2019). Loneliness in adults on the autism spectrum. Autism in Adulthood, 1(3), 182–193. https://doi.org/10.1089/aut.2018.0038CrossRef

Evers, K., Gijbels, E., Maljaars, J., Rumball, F., Spain, F., Happé, F., & Noens, I. (submitted). Mental health of autistic adults during the COVID-19 pandemic: The impact of perceived stress, intolerance of uncertainty and coping style.

Goldfarb, Y., Gal, E., & Golan, O. (2021). Implications of employment changes caused by COVID-19 on mental health and work-related psychological need satisfaction of autistic employees: A mixed-methods longitudinal study. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-021-04902-3CrossRef

Hedley, D., Uljareviç, M., Wilmot, M., Richdale, A., & Dissanayake, C. (2018). Understanding depression and thoughts of self-harm in autism: A potential mechanism involving loneliness. Research in Autism Spectrum Disorders, 46, 1–7. https://doi.org/10.1016/j.rasd.2017.11.003CrossRef

Lai, M.-C., Kassee, C., Besney, R., Bonato, S., Hull, L., Mandy, W., Szatmari, P., & Ameis, S. H. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: A systematic review and meta-analysis. Lancet Psychiatry, 6(10), 819–829. https://doi.org/10.1016/S2215-0366(19)30289-5CrossRef

Lee, J. (2020). Mental health effects of school closures during COVID-19. The Lancet Child & Adolescent Health, 4(6), 421. https://doi.org/10.1016/S2352-4642(20)30109-7CrossRef

Lemoult, J., & Gotlib, I. H. (2019). Depression: A cognitive perspective. Clinical Psychology Revies, 69, 51–66. https://doi.org/10.1016/j.cpr.2018.06.008CrossRef

Manning, J., Billian, J., Matson, J., Allen, C., & Soares, N. (2020). Perceptions of families of individuals with autism spectrum disorder during the COVID-19 crisis. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-020-04760-5CrossRef

Mazurek, M. O. (2014). Loneliness, friendship, and well-being in adults with autism spectrum disorders. Autism, 18(3), 223–232. https://doi.org/10.1177/1362361312474121CrossRef

Oomen, D., Nijhof, A. D., & Wiersema, J. R. (2021). The psychological impact of the COVID-19 pandemic on adults with autism: A survey study across three countries. Molecular Autism. https://doi.org/10.1186/s13229-021-00424-yCrossRef

Pahnke, J., Lundgren, T., Hursti, T., & Hirvikoski, T. (2014). Outcomes of an acceptance and commitment therapy-based skills training group for students with high-functioning autism spectrum disorder: A quasi-experimental pilot study. Autism, 18(8), 953–964. https://doi.org/10.1177/1362361313501091CrossRef

Pellicano, E., Brett, S., den Houting, J., Heyworth, M., Magiati, I., Steward, R., Urbanowicz, A., & Stears, M. (2020). “I want to see my friends”: The everyday experiences of autistic people and their families during COVID-19. Australia.

Pellicano, E., Brett, S., den Houting, J., Heyworth, M., Magiati, I., Steward, R., Urbanowicz, A., & Stears, M., (2021). COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study. Preprint: https://ssrn.com/abstract=3749228

Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Lounds Taylor, J. (2012). Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics, 192(6), 1042–1049. https://doi.org/10.1542/peds.2011-2864CrossRef

Spain, D., Mason, D., Capp, S. J., Stoppelbein, L., White, S. W., & Happé, F. (2021). This may be a really good opportunity to make the world a more autism friendly place: Professionals’ perspectives on the effects of COVID-19 on autistic individuals. Research in Autism Spectrum Disorders. https://doi.org/10.1016/j.rasd.2021.101747CrossRef

Wilson, J. M., Lee, J., Fitzgerald, H. N., Oosterhoff, B., Sevi, B., & Shook, N. J. (2020). Job insecurity and financial concern during the COVID-19 pandemic are associated with worse mental health. Journal of Occupational and Environmental Medicine, 62(9), 686–691. https://doi.org/10.1097/JOM.0000000000001962CrossRef

Wood, J. J., Drahota, A., Sze, K., Har, K., Chiu, A., & Langer, D. A. (2009). Cognitive behavioral therapy for anxiety in children with autism spectrum disorders: A randomized, controlled trial. Journal of Child Psychology and Psychiatry, 50(3), 224–234. https://doi.org/10.1111/j.1469-7610.2008.01948.xCrossRef

World Health Organisation (2020). Overview of public health and social measures in the context of COVID-19. WHO: WHO/2019-nCoV/PHSM_Overview/2020.1

Xiong, J., Lipsitz, O., Nasri, F., Lui, L. M., Gill, H., Phan, L., Chen-Li, D., Iacobucci, M., Ho, R., Majeed, A., & McIntyre, R. S. (2020). Impact of COVID-19 pandemic on mental health in the general population: A systematic review. Journal of Affective Disorders, 277, 55–64. https://doi.org/10.1016/j.jad.2020.08.001CrossRef

Yao, H., Chen, J.-H., & Xu, Y.-F. (2020). Patients with mental health disorders in the COVID-19 epidemic. The Lancet Psychiatry, 7(4), e21. https://doi.org/10.1016/S2215-0366(20)30090-0CrossRef

Titel: Impact of the COVID-19 Pandemic on Daily Life: Diverse Experiences for Autistic Adults
Auteurs: Jarymke Maljaars
Eef Gijbels
Kris Evers
Debbie Spain
Freya Rumball
Francesca Happé
Ilse Noens
Publicatiedatum: 25-01-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 1/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05437-x

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