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Quality of Life Research
Gepubliceerd in: Quality of Life Research 12/2017

12-08-2017

Impact of monitoring health-related quality of life in clinical practice in children with type 1 diabetes mellitus

Auteurs: Marta Murillo, Joan Bel, Jacobo Pérez, Raquel Corripio, Gemma Carreras, Xavier Herrero, Josep-Maria Mengibar, Dolors Rodriguez-Arjona, Ulrike Ravens-Sieberer, Hein Raat, Luis Rajmil

Gepubliceerd in: Quality of Life Research | Uitgave 12/2017

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Abstract

Purpose

To test whether the systematic monitoring of health-related quality of life (HRQOL) in clinical practice in Spanish pediatric patients with T1DM helps improve their daily life in a multicenter longitudinal study.

Methods

One hundred thirty-six patients participated, recruited from five centers in Barcelona, Spain (72 girls, mean age 13.4 years). Complete data were collected for 119 patients (85%). Pediatricians were randomly assigned to the HRQOL intervention (n = 70), or control group (n = 49). The intervention group discussed the results of HRQOL face to face with the physician, quarterly over a year. The control group received care as usual. HRQOL was assessed using KIDSCREEN-27 collected online. Standardized mean differences (effect size, ES) and generalized estimating equation (GEE) were computed to compare group differences between baseline and follow-up, taking into account sociodemographic and clinical variables.

Results

Statistically significant higher scores were seen in the intervention group at follow-up for the dimensions of Psychological well-being (ES = 0.56), School environment (ES = 0.56), and the KIDSCREEN-10 index (ES = 0.63). No differences were found in the control group. GEE analysis showed an improvement in HRQOL at follow-up with statistically significant association of the intervention on Psychological well-being (B = 4.32; p 0.03 for the interaction of group by follow-up) and School environment (B = 4.64; p 0.02 for the same interaction term).

Conclusions

Routine assessment and face-to-face patient-physician discussion of HRQOL results improved HRQOL scores after a year of follow-up, especially in Psychological well-being and school environment. The results support the routinary use of HRQOL assessment in clinical practice.
vorige artikel Trajectories in quality of life of patients with a fracture of the distal radius or ankle using latent class analysis
volgende artikel Subjective evaluation of psychosocial well-being in children and youths with overweight or obesity: the impact of multidisciplinary obesity treatment
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Metagegevens
Titel
Impact of monitoring health-related quality of life in clinical practice in children with type 1 diabetes mellitus
Auteurs
Marta Murillo
Joan Bel
Jacobo Pérez
Raquel Corripio
Gemma Carreras
Xavier Herrero
Josep-Maria Mengibar
Dolors Rodriguez-Arjona
Ulrike Ravens-Sieberer
Hein Raat
Luis Rajmil
Publicatiedatum
12-08-2017
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 12/2017
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1682-6

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