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Gepubliceerd in: Journal of Child and Family Studies 11/2018

03-07-2018 | Original Paper

Immigrant Families’ Perception of the Causes, First Manifestations, and Treatment of Autism Spectrum Disorder

Auteurs: Marie Millau, Mélina Rivard, Catherine Mello

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 11/2018

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Abstract

Compared to families from their host country, families from immigrant backgrounds who have a child with autism spectrum disorder (ASD) tend to experience greater difficulties in accessing, using, and complying with intervention services for their child. This disparity may be partially accounted for by cultural differences in how families perceive the causes and symptoms of ASD as well as their treatment priorities. The present study sought to document these perceptions in immigrant families living in a Canadian city. Forty-five parents from Latin America, Africa, Western and Eastern Europe, the Caribbean, East Asia, and the Middle East participated in a semi-structured interview. These data were examined qualitatively through thematic analysis to first document all parents’ perceptions, then to contrast mothers’ and fathers’ responses, and finally to examine common themes as a function of country of origin. The most frequently mentioned causes of ASD were environmental factors such as vaccines and diet. Moreover, some participants did not know the cause of their child’s ASD. The majority of parents cited the absence of speech as one of the first symptoms noted in their child. Priorities for intervention varied: mothers tended to prioritize speech therapy, whereas fathers favored support in school. Taken as a whole, these findings highlight the need to implement informational programs for these families.
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Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders. 5th edn Arlington, VA: American Psychiatric Publishing. CrossRef American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders. 5th edn Arlington, VA: American Psychiatric Publishing. CrossRef
go back to reference Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. https://​doi.​org/​0.​1007/​s10803-007-0512-z.​ CrossRef Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. https://​doi.​org/​0.​1007/​s10803-007-0512-z.​ CrossRef
go back to reference Grinker, R.R., Yeargin-Allsopp, M., & Boyle, C. (2011). Culture and autism spectrum disorders: the impact on prevalence and recognition. Autism Spectrum Disorders, 112–136. http://​10.​1093/​med/​9780195371826.​001.​0001 Grinker, R.R., Yeargin-Allsopp, M., & Boyle, C. (2011). Culture and autism spectrum disorders: the impact on prevalence and recognition. Autism Spectrum Disorders, 112–136. http://​10.​1093/​med/​9780195371826.​001.​0001
go back to reference IASSID Families Special Interest Research Group (FSIRG). (2012). Families supporting a child with intellectual or developmental disabilities: the current state of knowledge. Position paper. IASSID Families Special Interest Research Group (FSIRG). (2012). Families supporting a child with intellectual or developmental disabilities: the current state of knowledge. Position paper.
go back to reference Kanouté, F., Vatz Laaroussi, M., Rachédi, L., & Tchimou Doffouchi, M. (2008). Familles et réussite scolaire d’élèves immigrants du secondaire [Families and the academic success of immigrant high school students]. Revue des sciences de l'éducation, 34, 265–289. https://​doi.​org/​10.​7202/​019681ar. CrossRef Kanouté, F., Vatz Laaroussi, M., Rachédi, L., & Tchimou Doffouchi, M. (2008). Familles et réussite scolaire d’élèves immigrants du secondaire [Families and the academic success of immigrant high school students]. Revue des sciences de l'éducation, 34, 265–289. https://​doi.​org/​10.​7202/​019681ar. CrossRef
go back to reference Klingner, J. K., Blanchett, W. J., & Harry, B. (2009). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. Snell & J. Blacher (Eds), Handbook on developmental disabilities (pp. 55–75). New York: Guilford Press. Klingner, J. K., Blanchett, W. J., & Harry, B. (2009). Race, culture, and developmental disabilities. In S. L. Odom, R. H. Horner, M. Snell & J. Blacher (Eds), Handbook on developmental disabilities (pp. 55–75). New York: Guilford Press.
go back to reference L’Écuyer, R. (1990). Méthodologie de l’analyse développementale de contenu [Developmental content analysis methods]. Québec: Presses de l’Université du Québec. L’Écuyer, R. (1990). Méthodologie de l’analyse développementale de contenu [Developmental content analysis methods]. Québec: Presses de l’Université du Québec.
go back to reference Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule: ADOS-2. Los Angeles, CA: Western Psychological Services. Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule: ADOS-2. Los Angeles, CA: Western Psychological Services.
go back to reference Patton, M. Q. (2011). Qualitative research and evaluation methods. 3rd edn. Newbury Park, CA: SAGE. Patton, M. Q. (2011). Qualitative research and evaluation methods. 3rd edn. Newbury Park, CA: SAGE.
go back to reference Pleck, J. H., & Masciadrelli, B. P. (2004). Paternal involvement by US residential fathers: levels, sources, and consequences. In M. E. Lamb (Ed.), The role of the father in child development (pp. 222–271). Hoboken, NJ: John Wiley. Pleck, J. H., & Masciadrelli, B. P. (2004). Paternal involvement by US residential fathers: levels, sources, and consequences. In M. E. Lamb (Ed.), The role of the father in child development (pp. 222–271). Hoboken, NJ: John Wiley.
go back to reference Québec Ombudsman. (2009). Looking towards greater continuity in delivery of services, approaches, and human relations: Study on government services for children with pervasive developmental disorders (PDDs). Québec, QC: Assemblée Nationale. Québec Ombudsman. (2009). Looking towards greater continuity in delivery of services, approaches, and human relations: Study on government services for children with pervasive developmental disorders (PDDs). Québec, QC: Assemblée Nationale.
go back to reference Québec Ombudsman. (2012). Services for young people and adults with a pervasive developmental disorder: from government commitment to cold hard facts. Québec, QC: Assemblée Nationale. Québec Ombudsman. (2012). Services for young people and adults with a pervasive developmental disorder: from government commitment to cold hard facts. Québec, QC: Assemblée Nationale.
go back to reference Skinner, D. G.., Correa, V.., Skinner, M.., & Bailey, D. B.. (2001). Role of religion in the lives of latino families of young children with developmental delays. American Journal on Mental Retardation, 106, 297–313. https://​doi.​org/​10.​1352/​0895-8017(2001)106<0297:RORITL>2.0.CO;2. CrossRef Skinner, D. G.., Correa, V.., Skinner, M.., & Bailey, D. B.. (2001). Role of religion in the lives of latino families of young children with developmental delays. American Journal on Mental Retardation, 106, 297–313. https://​doi.​org/​10.​1352/​0895-8017(2001)106<0297:RORITL>2.0.CO;2. CrossRef
Metagegevens
Titel
Immigrant Families’ Perception of the Causes, First Manifestations, and Treatment of Autism Spectrum Disorder
Auteurs
Marie Millau
Mélina Rivard
Catherine Mello
Publicatiedatum
03-07-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 11/2018
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-018-1180-7

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