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Journal of Autism and Developmental Disorders

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25-08-2021 | Original Paper

“I Don’t Do Much Without Researching Things Myself”: A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children

Auteurs: Olivia J. Lindly, Jacqueline Cabral, Ruqayah Mohammed, Ivonne Garber, Kamila B. Mistry, Karen A. Kuhlthau

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2022

Abstract

Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2–5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved “doing your own research”; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use.

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Titel: “I Don’t Do Much Without Researching Things Myself”: A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children
Auteurs: Olivia J. Lindly
Jacqueline Cabral
Ruqayah Mohammed
Ivonne Garber
Kamila B. Mistry
Karen A. Kuhlthau
Publicatiedatum: 25-08-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 8/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05240-0

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