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25-08-2021 | Original Paper

“I Don’t Do Much Without Researching Things Myself”: A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children

Auteurs: Olivia J. Lindly, Jacqueline Cabral, Ruqayah Mohammed, Ivonne Garber, Kamila B. Mistry, Karen A. Kuhlthau

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2022

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Abstract

Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2–5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved “doing your own research”; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use.
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Metagegevens
Titel
“I Don’t Do Much Without Researching Things Myself”: A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children
Auteurs
Olivia J. Lindly
Jacqueline Cabral
Ruqayah Mohammed
Ivonne Garber
Kamila B. Mistry
Karen A. Kuhlthau
Publicatiedatum
25-08-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 8/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05240-0