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Journal of Autism and Developmental Disorders

Gepubliceerd in:

19-10-2019 | Original Paper

High School Experiences and Support Recommendations of Autistic Youth

Auteurs: Kristen Bottema-Beutel, Josephine Cuda, So Yoon Kim, Shannon Crowley, David Scanlon

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2020

Abstract

We used an online survey to gather perspectives of autistic youth (n = 248) on the impacts of autism, school professionals, family members, and peers on their high school experiences; what each stakeholder group could have done better; and what future high school professionals and autistic youth should know. Two-thirds of participants viewed autism as negatively impacting their school experience, and this was more prevalent in women. The majority viewed impacts of school professionals, family, and peers as positive. Women were more likely to view school professional contributions as positive than men, and LGBT youth were more likely to view school professional and peer contributions as negative than non-LGBT youth. Suggestions for stakeholders included providing more help, care, and quality time.

vorige artikel Correction to: Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

volgende artikel Piloting the Use of a Short Observation List for ASD-Symptoms in Day-Care: Challenges and Further Possibilities

Accardo, A. L., Kuder, S. J., & Woodruff, J. (2019). Accommodations and support services preferred by college students with autism spectrum disorder. Autism, 23(3), 574–583.PubMedCrossRef

Aranmolate, R., Bogan, D. R., Hoard, T., & Mawson, A. R. (2017). Suicide risk factors among LGBTQ youth. JSM Schizophrenia, 2, 1011–1014.

Bottema-Beutel, K., Malloy, C., Cuda, J., Kim, S. Y., & MacEvoy, J. (2019). Responses to vignettes depicting friendship transgressions: Similarities and differences in children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders.

Bottema-Beutel, K., Mullins, T., Harvey, M., Gustafson, J. R., & Carter, E. (2016). Avoiding the brick wall of awkward: Perspectives of youth with autism spectrum disorder on social-focused intervention practices. Autism, 20(2), 196–206.PubMedCrossRef

Bradley, R. (2016). ‘Why single me out?’ Peer mentoring, autism and inclusion in mainstream secondary schools. British Journal of Special Education, 43(3), 272–288.CrossRef

Brede, J., Remington, A., Kenny, L., Warren, K., & Pellicano, E. (2017). Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school. Autism & Developmental Language Impairments, 2, 1–20.CrossRef

Cai, R. Y., & Richdale, A. L. (2016). Educational experiences and needs of higher education students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(1), 31–41.PubMedCrossRef

Chamberlain, B., Kasari, C., & Rotheram-Fuller, E. (2007). Involvement or isolation? The social networks of children with autism in regular classrooms. Journal of Autism and Developmental Disorders, 37, 230–242.PubMedCrossRef

Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E. (2019). ‘Something needs to change’: Mental health experiences of young autistic adults in England. Autism, 23(2), 477–493.PubMedCrossRef

Cridland, E. K., Jones, S. C., Caputi, P., & Magee, C. A. (2014). Being a girl in a boys’ world: Investigating the experiences of girls with autism spectrum disorders during adolescence. Journal of Autism and Developmental Disorders, 44(6), 1261–1274.PubMedCrossRef

Crocetti, E. (2017). Identity formation in adolescence: The dynamic of forming and consolidating identity commitments. Child Development Perspectives, 11(2), 145–150.CrossRef

Dann, R. (2011). Secondary transition experiences for pupils with Autistic Spectrum Conditions (ASCs). Educational Psychology in Practice, 27(3), 293–312.CrossRef

Estes, A., Rivera, V., Bryan, M., Cali, P., & Dawson, G. (2011). Discrepancies between academic achievement and intellectual ability in higher-functioning school-aged children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 41(8), 1044–1052.PubMedCrossRef

Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., Leekam, S. Milton, D., Parr, J. R. & Pellicano, E. (2018). Making the future together: Shaping autism research through meaningful participation. Autism.

George, R., & Stokes, M. A. (2018). Sexual orientation in autism spectrum disorder. Autism Research, 11(1), 133–141.PubMedCrossRef

Gillespie-Lynch, K., Bublitz, D., Donachie, Annemarie, Wong, V., Brooks, P. J., & D’Onofrio, J. (2017). For a long time our voices have been hushed: Using student perspectives to develop supports for neurodiverse college students. Frontiers of Psychology, 8, 544.CrossRef

Gotham, K., Marvin, A. R., Taylor, J. L., Warren, Z., Anderson, C. M., Law, P. A., et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism, 19(7), 794–804.PubMedPubMedCentralCrossRef

Hedges, S. H., Kirby, A. V., Sreckovic, M. A., Kucharczyk, S., Hume, K., & Pace, S. (2014). Falling through the cracks: Challenges for high school students with autism spectrum disorder. The High School Journal, 98(1), 64–82.CrossRef

Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016). Premature mortality in autism spectrum disorder. The British Journal of Psychiatry, 208(3), 232–238.PubMedCrossRef

Humphrey, N., & Lewis, S. (2008). ‘Make me normal’: The views and experience of pupils on the autistic spectrum in mainstream secondary schools. Autism, 12, 23–46.PubMedCrossRef

Individuals with Disabilities Education Act, 20 U.S.C. § 300.101. (2004).

Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2(3), 217–250.

Kasari, C., Locke, J., Gulsrud, A., & Rotheram-Fuller, E. (2011). Social networks and friendships at school: Comparing children with and without ASD. Journal of Autism and Developmental Disorders, 41, 533–544.PubMedCrossRef

Kim, S. Y., & Bottema-Beutel, K. (2019). The negotiation of individual and collective identities in the online discourse of autistic adults. Autism in Adulthood, 1(1), 69–78.CrossRef

Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child and Adolescent Psychiatry, 56(6), 466–474.PubMedCrossRef

Mandell, D. S., Listerud, J., Levy, S. E., & Pinto-Martin, J. A. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41(12), 1447–1453.PubMedCrossRef

Marx, R. A., & Kettrey, H. H. (2016). Gay-straight alliances are associated with lower levels of school-based victimization of LGBTQ + youth: A systematic review and meta-analysis. Journal of Youth and Adolescence, 45(7), 1269–1282.PubMedCrossRef

Mazefsky, C. A., Herrington, J., Siegel, M., Scarpa, A., Maddox, B. B., Scahill, L., et al. (2013). The role of emotion regulation in autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52(7), 679–688.PubMedPubMedCentralCrossRef

Meyer, I. H. (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychological Bulletin, 129, 674–697.PubMedPubMedCentralCrossRef

Milton, D. E. (2012). On the ontological status of autism: The ‘double empathy problem’. Disability & Society, 27(6), 883–887.CrossRef

Morrier, M. J., Hess, K. L., & Heflin, L. J. (2011). Teacher training for implementation of teaching strategies for students with autism spectrum disorders. Teacher Education and Special Education, 34(2), 119–132.CrossRef

Muller, C. (2001). The role of caring in the teacher-student relationship for at-risk students. Sociological Inquiry, 71(2), 241–255.CrossRef

National Center for Education Statistics. (2018). Children and youth with disabilities. Retrieved from https://nces.ed.gov/programs/coe/indicator_cgg.asp#info.

Network, Autistic Self Advocacy. (2013). Navigating college: A handbook on self advocacy written for autistic students from autistic adults. Washington, DC: Autistic Self Advocacy Network.

Neuendorf, K. A. (2016). The content analysis guidebook. Thousand Oaks: Sage.

Newman, L. (2007). Secondary school experiences of students with Autism. Menlo Park, CA: SRI International.

Ochs, E., Kremer-Sadlik, T., Solomon, O., & Sirota, K. G. (2001). Inclusion as social practice: Views of children with autism. Social Development, 10(3), 399–419.CrossRef

Pellicano, L., Bölte, S., & Stahmer, A. (2018). The current illusion of educational inclusion. Autism, 22(4), 386–387.PubMedCrossRef

Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770.PubMedPubMedCentralCrossRef

Poon, K. K., Soon, S., Wong, M. E., Kaur, S., Khaw, J., Ng, Z., et al. (2014). What is school like? Perspectives of Singaporean youth with high-functioning autism spectrum disorders. International Journal of Inclusive Education, 18(10), 1069–1081.CrossRef

Rowley, E., Chandler, S., Baird, G., Simonoff, E., Pickles, A., Loucas, T., et al. (2012). The experiences of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement. Research in Autism Spectrum Disorders, 6, 1126–1134.CrossRef

Saggers, B. (2015). Student perceptions: Improving the educational experiences of high school students on the autism spectrum. Improving Schools, 18(1), 35–45.CrossRef

Saggers, B., Hwang, Y. S., & Mercer, K. L. (2011). Your voice counts: Listening to the voice of high school students with autism spectrum disorder. Australasian Journal of Special Education, 35(2), 173–190.CrossRef

Sciutto, M., Richwine, S., Mentrikoski, J., & Niedzwiecki, K. (2012). A qualitative analysis of the school experiences of students with Asperger syndrome. Focus on Autism and Other Developmental Disabilities, 27(3), 177–188.CrossRef

StataCorp. (2017). Stata statistical software: Release 15. College Station, TX: StataCorp LLC.

Strang, J. F., Powers, M. D., Knauss, M., Sibarium, E., Leibowitz, S. F., Kenworthy, L., et al. (2018). They thought it was an obsession: Trajectories and perspectives of autistic transgender and gender-diverse adolescents. Journal of Autism and Developmental Disorders, 48(12), 4039–4055.PubMedCrossRef

Taylor, J. L., & Seltzer, M. M. (2011). Employment and postsecondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574.PubMedPubMedCentralCrossRef

Toomey, R. B., Ryan, C., Diaz, R. M., Card, N. A., & Russell, S. T. (2013). Gender-nonconforming lesbian, gay, bisexual, and transgender youth: School victimization and young adult psychosocial adjustment. Developmental Psychology, 46(6), 1580–1589.CrossRef

van der Miesen, A. I., Hurley, H., Bal, A. M., & de Vries, A. L. (2018). Prevalence of the wish to be of the opposite gender in adolescents and adults with autism spectrum disorder. Archives of Sexual Behavior, 47(8), 2307–2317.PubMedPubMedCentralCrossRef

Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., et al. (2015). Evidence-based practices for children, youth, and young adults with autism spectrum disorder: A comprehensive review. Journal of Autism and Developmental Disorders, 45(7), 1951–1966.PubMedCrossRef

Zeedyk, S. M., Bolourian, Y., & Blacher, J. (2018). University life with ASD: Faculty knowledge and student needs. Autism, 23(3), 726–736.PubMedCrossRef

Zuckerman, K., Sinche, B., Mejia, A., Cobian, M., Becker, T., & Nicolaidis, C. (2014). Latino parents’ perspectives of barriers to autism diagnosis. Academic Pediatrics, 14(3), 301–308.PubMedPubMedCentralCrossRef

Titel: High School Experiences and Support Recommendations of Autistic Youth
Auteurs: Kristen Bottema-Beutel
Josephine Cuda
So Yoon Kim
Shannon Crowley
David Scanlon
Publicatiedatum: 19-10-2019
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 9/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-019-04261-0

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