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Gepubliceerd in: Quality of Life Research 1/2008

01-02-2008

Health-related quality of life (HRQoL) domains most valued by urban isiXhosa-speaking people

Auteurs: Jennifer Jelsma, Siviwe Mkoka, Seyi Ladele Amosun

Gepubliceerd in: Quality of Life Research | Uitgave 1/2008

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Abstract

Purpose

The aim of the study was to investigate and identify aspects of health-related quality of life (HRQoL) that are most valued by isiXhosa-speaking people resident in under-resourced areas of Cape Town.

Methodology

Fifty-seven domains of HRQoL were identified as important through group discussions with isiXhosa-speaking people. Participants randomly selected from the community (n = 601) and from individuals seeking medical attention at a local clinic (n = 102) graded the domains on a visual analogue scale (VAS) ranging from 0 as “not at all important” to 10 as “ very important”. The domains were then mapped to the categories of the International Classification of Functioning, Disability, and Health.

Results

The domains regarded as being most important were food availability (9.5, SD = 1.52), owning a brick house (9.4, SD = 1.57), access to medical services (9.4, SD = 1.55), and family safety (9.4, SD = 1.7). Having no bodily pain was ranked 40th. Environmental factors were valued significantly more than the other two categories and those related to body functions were valued more highly than domains in the category of activity/participation.

Discussion and conclusion

Despite being asked specifically to answer the questions in relation to their health status, the participants apparently did not differentiate between general quality of life (QoL) and specific HRQoL. It appears that members of an under-resourced community regard socioeconomic and service delivery aspects of their lives as integral to their perceived state of health. It may be that it is not possible to separate factors relating to general quality of life from those specifically related to HRQoL in an under-resourced population and such populations might not be suitable for inclusion in certain clinical trials where improvement in HRQoL is the required outcome. Alternatively, if a HRQoL instrument is to be used to monitor the impact of medical intervention, the inclusion of environmental factors should be considered.
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Literatuur
1.
go back to reference Mkoka, S., Jelsma, J., & Vaughan, J. (2003). The pitfalls of translation. South African Medical Journal, 93, 265–266.PubMed Mkoka, S., Jelsma, J., & Vaughan, J. (2003). The pitfalls of translation. South African Medical Journal, 93, 265–266.PubMed
2.
go back to reference Jelsma, J., Amosun, D., Mkoka, S., & Nieuwveld, J. (2004). The reliability and validity of the Xhosa version of the EQ-5D. Disability and Rehabilitation, 26, 103–108.PubMedCrossRef Jelsma, J., Amosun, D., Mkoka, S., & Nieuwveld, J. (2004). The reliability and validity of the Xhosa version of the EQ-5D. Disability and Rehabilitation, 26, 103–108.PubMedCrossRef
3.
go back to reference Jelsma, J., De Weerdt, W., De Cock, P., Mielke, J., & Mhundwa, K. (2002). The validity of the Shona Version of the EQ-5D quality of life measure. South African Journal of Physiotherapy, 58, 8–12. Jelsma, J., De Weerdt, W., De Cock, P., Mielke, J., & Mhundwa, K. (2002). The validity of the Shona Version of the EQ-5D quality of life measure. South African Journal of Physiotherapy, 58, 8–12.
4.
go back to reference O’Keefe, E. A., & Wood, R. (1996). The impact of human immunodeficiency virus infection on quality of life in a multiracial South African population. Quality of Life Research, 5, 275–280.PubMedCrossRef O’Keefe, E. A., & Wood, R. (1996). The impact of human immunodeficiency virus infection on quality of life in a multiracial South African population. Quality of Life Research, 5, 275–280.PubMedCrossRef
5.
go back to reference World Health Organization (2001). International Classification of Functioning, Disability and Health—short version. Geneva: World Health Organization. World Health Organization (2001). International Classification of Functioning, Disability and Health—short version. Geneva: World Health Organization.
6.
go back to reference Rosenbaum, P., & Stewart, D. (2004). The World Health Organization International Classification of Functioning, Disability, and Health: A model to guide clinical thinking, practice and research in the field of cerebral palsy. Seminars in Pediatric Neurology, 11, 5–10.PubMedCrossRef Rosenbaum, P., & Stewart, D. (2004). The World Health Organization International Classification of Functioning, Disability, and Health: A model to guide clinical thinking, practice and research in the field of cerebral palsy. Seminars in Pediatric Neurology, 11, 5–10.PubMedCrossRef
10.
go back to reference Jelsma, J., MacLean, E., Hughes, J., Tinise, X., & Darder, M. (2004). An investigation into the Health Related Quality of Life of individuals living with HIV who are receiving Highly Active Anti-retroviral Therapy (HAART). AIDS Care, 17, 579–588. Jelsma, J., MacLean, E., Hughes, J., Tinise, X., & Darder, M. (2004). An investigation into the Health Related Quality of Life of individuals living with HIV who are receiving Highly Active Anti-retroviral Therapy (HAART). AIDS Care, 17, 579–588.
11.
go back to reference Jelsma, J., Maart, S., Eide, A., Ka’toni, M., & Loeb, M. (2007). The determinants of health-related quality of life in urban and rural isi-Xhosa-speaking people with disabilities. International Journal of Rehabilitation Research, 30, 119–126.PubMedCrossRef Jelsma, J., Maart, S., Eide, A., Ka’toni, M., & Loeb, M. (2007). The determinants of health-related quality of life in urban and rural isi-Xhosa-speaking people with disabilities. International Journal of Rehabilitation Research, 30, 119–126.PubMedCrossRef
12.
go back to reference Lamers, L., McDonnell, J., Stalmeier, P., Krabbe, P., & Busschbach, J. (2006). The Dutch tariffs: Results and arguments for a cost-effective design for national EQ-5D valuation studies. Health Economics, 15, 1121–1131.PubMedCrossRef Lamers, L., McDonnell, J., Stalmeier, P., Krabbe, P., & Busschbach, J. (2006). The Dutch tariffs: Results and arguments for a cost-effective design for national EQ-5D valuation studies. Health Economics, 15, 1121–1131.PubMedCrossRef
13.
go back to reference Wilson, K. L., & Lizzio, A. (1997). The development, validation and application of the course experience questionnaire. Studies in Higher Education, 22, 33–53.CrossRef Wilson, K. L., & Lizzio, A. (1997). The development, validation and application of the course experience questionnaire. Studies in Higher Education, 22, 33–53.CrossRef
14.
go back to reference Feeny, D. H., & Torrance, G. W. (1989). Incorporating utility-based quality-of-life assessment measures in clinical trials. Two examples. Medical Care, 27, S190–S204.PubMedCrossRef Feeny, D. H., & Torrance, G. W. (1989). Incorporating utility-based quality-of-life assessment measures in clinical trials. Two examples. Medical Care, 27, S190–S204.PubMedCrossRef
15.
16.
go back to reference World Health Organization (2001). International Classification of Functioning, Disability and Health—browser version. Geneva: World Health Organization. World Health Organization (2001). International Classification of Functioning, Disability and Health—browser version. Geneva: World Health Organization.
18.
go back to reference Cohen, J. (1988). Statistical power analysis for the behavioral sciences. NJ: Lawrence Earlbaum Associates, Hillsdale. Cohen, J. (1988). Statistical power analysis for the behavioral sciences. NJ: Lawrence Earlbaum Associates, Hillsdale.
19.
go back to reference Atijosan, O., Kuper, H., Rischewski, D., Simms, V., & Lavy, C. (2007). Musculoskeletal impairment survey in Rwanda: Design of survey tool, survey methodology, and results of the pilot study (a cross sectional survey). BMC Musculoskeletal Disorders., 8, 30.PubMedCrossRef Atijosan, O., Kuper, H., Rischewski, D., Simms, V., & Lavy, C. (2007). Musculoskeletal impairment survey in Rwanda: Design of survey tool, survey methodology, and results of the pilot study (a cross sectional survey). BMC Musculoskeletal Disorders., 8, 30.PubMedCrossRef
20.
go back to reference Jelsma, J., Mielke, J., Powell, G., Fox, B., Weerdt, W. D., & Cock, P. D. (2002). Disability in an urban black community in Zimbabwe. Disability and Rehabilitation, 24, 851–859.PubMedCrossRef Jelsma, J., Mielke, J., Powell, G., Fox, B., Weerdt, W. D., & Cock, P. D. (2002). Disability in an urban black community in Zimbabwe. Disability and Rehabilitation, 24, 851–859.PubMedCrossRef
21.
go back to reference Statistics South Africa. (2005). Data census 2001: Primary tables Western Cape: Census ‘96 and 2001 compared. In Statistics South Africa, 2005, Government of South Africa, Pretoria. Statistics South Africa. (2005). Data census 2001: Primary tables Western Cape: Census ‘96 and 2001 compared. In Statistics South Africa, 2005, Government of South Africa, Pretoria.
22.
go back to reference Furlong, W. J., Feeny, D. H., Torrance, G. W., & Barr, R. D. (2001). Health utilities index (HUI) system for assessing health-related quality of life in clinical studies. Annals of Medicine, 33, 375–384.PubMed Furlong, W. J., Feeny, D. H., Torrance, G. W., & Barr, R. D. (2001). Health utilities index (HUI) system for assessing health-related quality of life in clinical studies. Annals of Medicine, 33, 375–384.PubMed
23.
go back to reference Essink-Bot, M., Krabbe, P., Bonsel, G., & Aaronson, N. (1997). An empirical comparison of four generic health status measures. Medical Care, 35, 522–537.PubMedCrossRef Essink-Bot, M., Krabbe, P., Bonsel, G., & Aaronson, N. (1997). An empirical comparison of four generic health status measures. Medical Care, 35, 522–537.PubMedCrossRef
24.
go back to reference Jelsma, J., Chivaura, V., De Cock, P., & De Weerdt, W. (2000). A bridge between cultures: A report on the process of translating the EQ-5D instrument into Shona. South African Journal of Physiotherapy, 56, 3–9. Jelsma, J., Chivaura, V., De Cock, P., & De Weerdt, W. (2000). A bridge between cultures: A report on the process of translating the EQ-5D instrument into Shona. South African Journal of Physiotherapy, 56, 3–9.
25.
go back to reference Paul, D. (1999). Biological and biopsychosocial models of health and disease in dentistry. Journal of Canadian Dental Association, 65, 496–497. Paul, D. (1999). Biological and biopsychosocial models of health and disease in dentistry. Journal of Canadian Dental Association, 65, 496–497.
Metagegevens
Titel
Health-related quality of life (HRQoL) domains most valued by urban isiXhosa-speaking people
Auteurs
Jennifer Jelsma
Siviwe Mkoka
Seyi Ladele Amosun
Publicatiedatum
01-02-2008
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 1/2008
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-007-9283-4

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