Skip to main content
Top
Gepubliceerd in: Quality of Life Research 4/2008

01-05-2008

Health-related quality of life following blind rehabilitation

Auteurs: Thomas Kuyk, Lei Liu, Jeffry L. Elliott, Hartley E. Grubbs, Cynthia Owsley, Gerald McGwin Jr., Russell L. Griffin, Patti S. Fuhr

Gepubliceerd in: Quality of Life Research | Uitgave 4/2008

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

The purpose of this study was to investigate the effect of residential blind rehabilitation on patients’ vision-targeted health-related quality of life (HRQOL) and general physical and mental function.

Method

The National Eye Institute 25-item Visual Function Questionnaire (NEI VFQ) plus appendix questions, the 12-item Short-Form Health Survey (SF-12), Hope Scale and Coopersmith self-esteem inventory were administered to 206 legally blind veterans prior to their entering a residential (in-patient) blind rehabilitation program and again to 185 and 176 of the original cohort at 2 and 6 months after completion of the rehabilitation program, respectively. Data on visual acuity, visual field extent, contrast sensitivity and scanning ability were also collected. The duration of the in-patient rehabilitation programs ranged from 11 to 109 days. Questionnaire scores were compared pre-rehabilitation and post-rehabilitation.

Results

Following rehabilitation there was a significant improvement in nine of 11 NEI VFQ subscales and in a composite score at both the 2- and 6-month post-rehabilitation intervals. Mental health (SF-12) and self esteem also improved significantly although physical health ratings declined over the course of the study (approximately 10 months).

Conclusions

Residential blind rehabilitation appears to improve patients’ self-reported vision-targeted HRQOL, self-esteem and mental health aspects of generic HRQOL.
Literatuur
1.
go back to reference Patrick, D. L., & Erickson, P. (1993). Assessing health related quality of life for clinical decision making. In S. R. Walker & R. M. Rosser (Eds.), Quality of life assessment: Key issues in the 1990’s (pp. 11–63). Norwell, MA: Kluwer Academic Publishers. Patrick, D. L., & Erickson, P. (1993). Assessing health related quality of life for clinical decision making. In S. R. Walker & R. M. Rosser (Eds.), Quality of life assessment: Key issues in the 1990’s (pp. 11–63). Norwell, MA: Kluwer Academic Publishers.
2.
go back to reference Fletcher, A., Gore, S., Jones, D., et al. (1992). Quality of life measures in health care, II: Design, analysis, and interpretation. British Medical Journal, 305, 1145–1148.PubMedCrossRef Fletcher, A., Gore, S., Jones, D., et al. (1992). Quality of life measures in health care, II: Design, analysis, and interpretation. British Medical Journal, 305, 1145–1148.PubMedCrossRef
3.
go back to reference Fowler, F. L., & Cleary, P. D. (1994). Methodological issues in measuring patient-reported outcomes: The agenda of the work group on outcomes assessment. Medical Care, 32, JS65–JS76.PubMed Fowler, F. L., & Cleary, P. D. (1994). Methodological issues in measuring patient-reported outcomes: The agenda of the work group on outcomes assessment. Medical Care, 32, JS65–JS76.PubMed
4.
go back to reference Ellwein, L. B., Fletcher, A., Negrel, A. D., & Thulasiraj, R. D. (1994). Quality of life assessment in blindness prevention interventions. International Ophthalmology, 18, 263–268.PubMedCrossRef Ellwein, L. B., Fletcher, A., Negrel, A. D., & Thulasiraj, R. D. (1994). Quality of life assessment in blindness prevention interventions. International Ophthalmology, 18, 263–268.PubMedCrossRef
5.
go back to reference Raasch, T. W., Leat, S. J., Kleinstein, R. N., Bullimore, M. A., & Cutter, G. R. (1997). Evaluating the value of low vision services. Journal of the American Optometric Association, 68, 287–295.PubMed Raasch, T. W., Leat, S. J., Kleinstein, R. N., Bullimore, M. A., & Cutter, G. R. (1997). Evaluating the value of low vision services. Journal of the American Optometric Association, 68, 287–295.PubMed
6.
go back to reference Elliott, D. B., Pesudovs, K., & Mallinson, T. (2007). Vision-related quality of life. Optometry and Vision Science, 84, 656–658.PubMedCrossRef Elliott, D. B., Pesudovs, K., & Mallinson, T. (2007). Vision-related quality of life. Optometry and Vision Science, 84, 656–658.PubMedCrossRef
7.
go back to reference Mangione, C. M., Berry, S., Spritzer, K., Janz, N. K., Klein, R., Owsley, C., & Lee, P. (1998). Identifying the content area for the 51-item National Eye Institute Visual Function Questionnaire: Results from focus groups with visually impaired persons. Archives of Ophthalmology, 116, 227–233.PubMed Mangione, C. M., Berry, S., Spritzer, K., Janz, N. K., Klein, R., Owsley, C., & Lee, P. (1998). Identifying the content area for the 51-item National Eye Institute Visual Function Questionnaire: Results from focus groups with visually impaired persons. Archives of Ophthalmology, 116, 227–233.PubMed
8.
go back to reference Scott, I. U., Schein, O. D., West, S., et al. (1994). Functional status and quality of life measurement among ophthalmic patients. Archives of Ophthalmology, 112, 329–325.PubMed Scott, I. U., Schein, O. D., West, S., et al. (1994). Functional status and quality of life measurement among ophthalmic patients. Archives of Ophthalmology, 112, 329–325.PubMed
9.
go back to reference Haymes, S. A., Johnston, A. W., & Heyes, A. D. (2002) Relationship between vision impairment and ability to perform activities of daily living. Ophthalmic and Physiological Optics, 22, 79–91.PubMedCrossRef Haymes, S. A., Johnston, A. W., & Heyes, A. D. (2002) Relationship between vision impairment and ability to perform activities of daily living. Ophthalmic and Physiological Optics, 22, 79–91.PubMedCrossRef
10.
go back to reference Knudston, M. D., Klein, B. E. K., Klein, R., Cruiickshanks, K. J., & Lee, K. E. (2005) Age-related eye disease, quality of life, and functional ability. Archives of Ophthalmology, 123, 807–814.CrossRef Knudston, M. D., Klein, B. E. K., Klein, R., Cruiickshanks, K. J., & Lee, K. E. (2005) Age-related eye disease, quality of life, and functional ability. Archives of Ophthalmology, 123, 807–814.CrossRef
11.
go back to reference Carabellese, C., Appollonio, T., Rozzini, R., et al. (1993). Sensory impairment and quality of life in a community elderly population. Journal of the American Geriatric Society, 41, 401–407. Carabellese, C., Appollonio, T., Rozzini, R., et al. (1993). Sensory impairment and quality of life in a community elderly population. Journal of the American Geriatric Society, 41, 401–407.
12.
go back to reference Scilley, K., DeCarlo, D. K., Wells, J., & Owsley, C. (2004) Vision specific health-related quality of life in age-related maculopathy patients presenting for low vision services. Ophthalmic Epidemiology, 11, 131–146.PubMedCrossRef Scilley, K., DeCarlo, D. K., Wells, J., & Owsley, C. (2004) Vision specific health-related quality of life in age-related maculopathy patients presenting for low vision services. Ophthalmic Epidemiology, 11, 131–146.PubMedCrossRef
13.
go back to reference Gutierrez, P., Wilson, M. R., Johnson, C., et al. (1997) Influence of glaucomatous visual field loss on health-related quality of life. Archives of Ophthalmology, 115, 777–784.PubMed Gutierrez, P., Wilson, M. R., Johnson, C., et al. (1997) Influence of glaucomatous visual field loss on health-related quality of life. Archives of Ophthalmology, 115, 777–784.PubMed
14.
go back to reference Deramo, V. A., Cox, T. A., Syed, A. B., Lee, P. P., & Fekrat, S. (2003). Vision-related quality of life in people with central retinal vein occlusion using the 25-item National Eye Institute Visual Function Questionnaire. Archives of Ophthalmology, 121, 1297–1302.PubMedCrossRef Deramo, V. A., Cox, T. A., Syed, A. B., Lee, P. P., & Fekrat, S. (2003). Vision-related quality of life in people with central retinal vein occlusion using the 25-item National Eye Institute Visual Function Questionnaire. Archives of Ophthalmology, 121, 1297–1302.PubMedCrossRef
15.
go back to reference Applegate, W. B., Miller, S. T., Elam, J. T., et al. (1987). Impact of cataract surgery with lens implantation on vision and physical function in elderly patients. Journal of the American Medical Association, 257, 1064–1066.PubMedCrossRef Applegate, W. B., Miller, S. T., Elam, J. T., et al. (1987). Impact of cataract surgery with lens implantation on vision and physical function in elderly patients. Journal of the American Medical Association, 257, 1064–1066.PubMedCrossRef
16.
go back to reference Brenner, M. H., Curbow, B., Javitt, J. C., Legro, M. W., & Sommer, A. (1993). Vision change and quality of life in the elderly: Response to cataract surgery and treatment of other chronic ocular conditions. Archives of Ophthalmology, 111, 680–685. Brenner, M. H., Curbow, B., Javitt, J. C., Legro, M. W., & Sommer, A. (1993). Vision change and quality of life in the elderly: Response to cataract surgery and treatment of other chronic ocular conditions. Archives of Ophthalmology, 111, 680–685.
17.
go back to reference Mangione, C. M., Phillips, R. S., Lawrence, M. G., et al. (1994). Improved visual function and attenuation of declines in health-related quality of life after cataract extraction. Archives of Ophthalmology, 112, 1419–1425.PubMed Mangione, C. M., Phillips, R. S., Lawrence, M. G., et al. (1994). Improved visual function and attenuation of declines in health-related quality of life after cataract extraction. Archives of Ophthalmology, 112, 1419–1425.PubMed
18.
go back to reference Hyman, L. G., Komaroff, E., Heijl, A., Bengtsson, B., & Leske, M. C. (2005). Treatment and vision-related quality of life in the early manifest glaucoma trial. American Academy of Ophthalmology, 112, 1505–1513.CrossRef Hyman, L. G., Komaroff, E., Heijl, A., Bengtsson, B., & Leske, M. C. (2005). Treatment and vision-related quality of life in the early manifest glaucoma trial. American Academy of Ophthalmology, 112, 1505–1513.CrossRef
19.
go back to reference Coleman, A. L., Yu, F., Keeler, E., & Mangione, C. M. (2006). Treatment of uncorrected refractive errors improves vision specific quality of life. Journal of the American Geriatrics Society, 54, 883–890.PubMedCrossRef Coleman, A. L., Yu, F., Keeler, E., & Mangione, C. M. (2006). Treatment of uncorrected refractive errors improves vision specific quality of life. Journal of the American Geriatrics Society, 54, 883–890.PubMedCrossRef
20.
go back to reference Ghazi-Nouri, S. M. S., Tranos, P. G., Rubin, G. S., Adams, Z. C., & Charteris, D. G. (2006). Visual function and quality of life following vitrectomy and epiretinal membrane peel surgery. British Journal of Ophthalmology, 90, 559–562.PubMedCrossRef Ghazi-Nouri, S. M. S., Tranos, P. G., Rubin, G. S., Adams, Z. C., & Charteris, D. G. (2006). Visual function and quality of life following vitrectomy and epiretinal membrane peel surgery. British Journal of Ophthalmology, 90, 559–562.PubMedCrossRef
21.
go back to reference Long, R. C., & Crews, J. E. (1993). Final report: Development of a Functional Independence Measure for Blind Adult (FIMBA). Project C669-RC. Washington DC: Department of Veterans Affairs Rehabilitation Research and Development Service. Long, R. C., & Crews, J. E. (1993). Final report: Development of a Functional Independence Measure for Blind Adult (FIMBA). Project C669-RC. Washington DC: Department of Veterans Affairs Rehabilitation Research and Development Service.
22.
go back to reference Del’Aune, W., Welsh, R., & Williams, M. A. (2000). National outcomes assessment of the rehabilitation of adults with visual impairment. Journal of Visual Impairment and Blindness, 94, 281–291. Del’Aune, W., Welsh, R., & Williams, M. A. (2000). National outcomes assessment of the rehabilitation of adults with visual impairment. Journal of Visual Impairment and Blindness, 94, 281–291.
23.
go back to reference Head, D. N., Babcock, J. L., Goodrich, G. L., & Boyless, J .A. (2000). A geriatric assessment of functional status in vision rehabilitation. Journal of Visual Impairment and Blindness, 94, 357–371. Head, D. N., Babcock, J. L., Goodrich, G. L., & Boyless, J .A. (2000). A geriatric assessment of functional status in vision rehabilitation. Journal of Visual Impairment and Blindness, 94, 357–371.
24.
go back to reference Elliott, J. L., & Kuyk, T. K. (1994). Self-reported functional and psychosocial outcomes of blind rehabilitation. Journal of Visual Impairment and Blindness, 88, 206–212. Elliott, J. L., & Kuyk, T. K. (1994). Self-reported functional and psychosocial outcomes of blind rehabilitation. Journal of Visual Impairment and Blindness, 88, 206–212.
25.
go back to reference Appollonio, I., Carabellese, C., Frattola, L., & Trabucchi, M. (1996). Effects of sensory aids on the quality of life and mortality of elderly people: A multivariate analysis. Age and Ageing, 25, 89–96.PubMedCrossRef Appollonio, I., Carabellese, C., Frattola, L., & Trabucchi, M. (1996). Effects of sensory aids on the quality of life and mortality of elderly people: A multivariate analysis. Age and Ageing, 25, 89–96.PubMedCrossRef
26.
go back to reference Stelmack, J., Stelmack, T. R., & Massof, R. W. (2002). Measuring low-vision rehabilitation outcomes with the NEI VFQ-25. Investigative Ophthalmology and Visual Science, 43, 2859–2868.PubMed Stelmack, J., Stelmack, T. R., & Massof, R. W. (2002). Measuring low-vision rehabilitation outcomes with the NEI VFQ-25. Investigative Ophthalmology and Visual Science, 43, 2859–2868.PubMed
27.
go back to reference Pankow, L., Luchin, D., Studebacke, J., & Chettleburgh, D. (2004). Evaluation of a vision rehabilitation program with older adults with visual impairment. Topics in Geriatric Rehabilitation, 20, 223–232. Pankow, L., Luchin, D., Studebacke, J., & Chettleburgh, D. (2004). Evaluation of a vision rehabilitation program with older adults with visual impairment. Topics in Geriatric Rehabilitation, 20, 223–232.
28.
go back to reference Hinds, A., Sinclair, A., Park, J., Suttie, A., Paterson, H., & Macdonald, M. (2003). Impact of an interdisciplinary low vision service on the quality of life of low vision patients. British Journal of Ophthalmology, 87, 1391–1396.PubMedCrossRef Hinds, A., Sinclair, A., Park, J., Suttie, A., Paterson, H., & Macdonald, M. (2003). Impact of an interdisciplinary low vision service on the quality of life of low vision patients. British Journal of Ophthalmology, 87, 1391–1396.PubMedCrossRef
29.
go back to reference La Grow, S. J. (2004). The effectiveness of comprehensive low vision services for older persons with visual impairment in New Zealand. Journal of Visual Impairment and Blindness, 98, 679–692. La Grow, S. J. (2004). The effectiveness of comprehensive low vision services for older persons with visual impairment in New Zealand. Journal of Visual Impairment and Blindness, 98, 679–692.
30.
go back to reference Stelmack, J. A., Moran, D., Dean, D., & Massof, R. W. (2007). Short- and long-term effects of an intensive inpatient vision rehabilitation program. Archives of Physical Medicine and Rehabilitation, 88, 691–695.PubMedCrossRef Stelmack, J. A., Moran, D., Dean, D., & Massof, R. W. (2007). Short- and long-term effects of an intensive inpatient vision rehabilitation program. Archives of Physical Medicine and Rehabilitation, 88, 691–695.PubMedCrossRef
32.
go back to reference Ware, J. E., Jr., Snow, K., Kosinski, M., & Gadnek, B. (1993). SF-36 Health Survey Manual and Interpretation Guide. Boston, MA: Nimrod Press. Ware, J. E., Jr., Snow, K., Kosinski, M., & Gadnek, B. (1993). SF-36 Health Survey Manual and Interpretation Guide. Boston, MA: Nimrod Press.
33.
go back to reference Coopersmith, S. (1967). The antecedents of self-esteem. San Francisco: Freeman. Coopersmith, S. (1967). The antecedents of self-esteem. San Francisco: Freeman.
34.
go back to reference Jackson, W. T., Taylor, R. E., Palmatier, A. D., Elliott, T. R., & Elliott, J. L. (1998). Negotiating the reality of visual impairment: Hope, coping, and functional ability. Journal of Clinical Psychology in Medical Settings, 2, 173–185.CrossRef Jackson, W. T., Taylor, R. E., Palmatier, A. D., Elliott, T. R., & Elliott, J. L. (1998). Negotiating the reality of visual impairment: Hope, coping, and functional ability. Journal of Clinical Psychology in Medical Settings, 2, 173–185.CrossRef
35.
go back to reference Kuyk, T. K., Elliott, J. L., & Fuhr, P. S. (1998). Visual correlates of obstacle avoidance in adults with low vision. Optometry and Vision Science, 75, 174–182.PubMedCrossRef Kuyk, T. K., Elliott, J. L., & Fuhr, P. S. (1998). Visual correlates of obstacle avoidance in adults with low vision. Optometry and Vision Science, 75, 174–182.PubMedCrossRef
36.
go back to reference Pfeiffer, E. (1975). A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. Journal of the American Geriatrics Society, 23, 433–441.PubMed Pfeiffer, E. (1975). A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. Journal of the American Geriatrics Society, 23, 433–441.PubMed
37.
go back to reference Radloff, L .S., & Teri, L. (1986). Use of the Center for Epidemiologial Studies-Depression Scale with older adults. In T. L. Brink (Ed.), Clinical gerontology: A guide to assessment and intervention (pp. 119–135). New York: Haworth Press. Radloff, L .S., & Teri, L. (1986). Use of the Center for Epidemiologial Studies-Depression Scale with older adults. In T. L. Brink (Ed.), Clinical gerontology: A guide to assessment and intervention (pp. 119–135). New York: Haworth Press.
38.
go back to reference Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRef Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRef
39.
go back to reference Owsley, C. (1996). Quality of life, vision impairment: Driving. In D. R. Anderson & S. M. Drance (Eds.), Encounters in glaucoma research 3: How to ascertain progression and outcome (pp. 37–44). New York: Kluger Publications. Owsley, C. (1996). Quality of life, vision impairment: Driving. In D. R. Anderson & S. M. Drance (Eds.), Encounters in glaucoma research 3: How to ascertain progression and outcome (pp. 37–44). New York: Kluger Publications.
40.
go back to reference Mangione, C. M., Lee, P. P., Pitts, J., Guitierrez, P., Berry, S., & Hays, R. D. (1998). Psychometric properties of the National Eye Institute Visual Function Questionnaire. Archives of Ophthalmology, 116, 1496–1504.PubMed Mangione, C. M., Lee, P. P., Pitts, J., Guitierrez, P., Berry, S., & Hays, R. D. (1998). Psychometric properties of the National Eye Institute Visual Function Questionnaire. Archives of Ophthalmology, 116, 1496–1504.PubMed
41.
go back to reference Kymes, S. M., & Lee, B. S. (2007). Preference-based quality of life measures in people with visual impairment. Optometry and Vision Science, 84, 809–816.PubMedCrossRef Kymes, S. M., & Lee, B. S. (2007). Preference-based quality of life measures in people with visual impairment. Optometry and Vision Science, 84, 809–816.PubMedCrossRef
42.
go back to reference Coleman, A. L., Ye, F., Keeler, E., & Mangione, C. M. (2006). Treatment of uncorrected refractive error improves vision specific quality of life. Journal of the American Geriatrics Society, 54, 883–890.PubMedCrossRef Coleman, A. L., Ye, F., Keeler, E., & Mangione, C. M. (2006). Treatment of uncorrected refractive error improves vision specific quality of life. Journal of the American Geriatrics Society, 54, 883–890.PubMedCrossRef
Metagegevens
Titel
Health-related quality of life following blind rehabilitation
Auteurs
Thomas Kuyk
Lei Liu
Jeffry L. Elliott
Hartley E. Grubbs
Cynthia Owsley
Gerald McGwin Jr.
Russell L. Griffin
Patti S. Fuhr
Publicatiedatum
01-05-2008
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 4/2008
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-008-9336-3

Andere artikelen Uitgave 4/2008

Quality of Life Research 4/2008 Naar de uitgave