Skip to main content
Top
Gepubliceerd in: Quality of Life Research 6/2020

30-01-2020

Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic

Auteurs: Jane O’Bryan, Melissa Scribani, Kimberly Leon, Nancy Tallman, Christopher Wolf-Gould, Carolyn Wolf-Gould, Anne Gadomski

Gepubliceerd in: Quality of Life Research | Uitgave 6/2020

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

To address a critical gap in the existing Health-Related Quality of Life (HRQOL) literature by quantifying and describing HRQOL among transgender and gender expansive (TG/GE) youth at a rural gender clinic and comparing the HRQOL of these youth to age-stratified United States (U.S.) population standards.

Methods

This cross-sectional study includes results of the baseline HRQOL assessment of 141 TG/GE patients enrolled in the Gender Wellness Center (GWC) Pediatric Patient Registry. HRQOL was assessed using the Child Health Questionnaire-Child Form 87 (CHQ-CF87; ages < 18) and the Short Form-36 (SF-36v2; ages 18–21). Mean subscale scores were compared to the most current U.S. population standards available.

Results

On all but one of the CHQ-CF87 subscales, TG/GE youth scored significantly lower than 2015–2016 U.S. general population youth and youth with two chronic conditions. On the SF-36v2, TG/GE youth scored significantly higher than 2009 U.S. standards on all physical health domains but lower on all but one of the mental health domains.

Conclusions

Cross-sectional HRQOL data from a registry of TG/GE youth indicate significantly poorer mental health measures as compared with the U.S. general population. Longitudinal assessments are needed to evaluate whether HRQOL improves with gender-affirming care. Future studies should aim to identify sociocultural factors at the intersection of rurality and health that contribute to diminished HRQOL among rural TG/GE youth.
Literatuur
2.
go back to reference Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment. Quality of Life Research, 11(2), 135–144.CrossRefPubMed Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment. Quality of Life Research, 11(2), 135–144.CrossRefPubMed
3.
go back to reference Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA,273(1), 59–65.CrossRefPubMed Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA,273(1), 59–65.CrossRefPubMed
5.
11.
go back to reference Achenbach, T. M., & Rescorla, L. A. (2003). Manual for the ASEBA school-age forms and profiles. Burlington, VT: University of Vermont Research Center for Children, Youth, & Families. Achenbach, T. M., & Rescorla, L. A. (2003). Manual for the ASEBA school-age forms and profiles. Burlington, VT: University of Vermont Research Center for Children, Youth, & Families.
22.
go back to reference Ozata Yildizhan, B., Yuksel, S., Avayu, M., Noyan, H., & Yildizhan, E. (2018). Effects of gender reassignment on quality of life and mental health in people with gender dysphoria. Turk Psikiyatri Dergisi,29(1), 11–21.PubMed Ozata Yildizhan, B., Yuksel, S., Avayu, M., Noyan, H., & Yildizhan, E. (2018). Effects of gender reassignment on quality of life and mental health in people with gender dysphoria. Turk Psikiyatri Dergisi,29(1), 11–21.PubMed
23.
go back to reference Naeimi, S., Akhlaghdoust, M., Chaichian, S., Moradi, Y., Jesmi, F., Zarbati, N., et al. (2019). Quality of Life changes in Iranian patients undergoing female-to-male transsexual surgery: A prospective study. Archives of Iranian Medicine,22, 71–75.PubMed Naeimi, S., Akhlaghdoust, M., Chaichian, S., Moradi, Y., Jesmi, F., Zarbati, N., et al. (2019). Quality of Life changes in Iranian patients undergoing female-to-male transsexual surgery: A prospective study. Archives of Iranian Medicine,22, 71–75.PubMed
28.
go back to reference Agarwal, C. A., Scheefer, M. F., Wright, L. N., Walzer, N. K., & Rivera, A. (2018). Quality of life improvement after chest wall masculinization in female-to-male transgender patients: A prospective study using the BREAST-Q and Body uneasiness test. Journal of Plastic, Reconstructive & Aesthetic Surgery,71(5), 651–657. https://doi.org/10.1016/j.bjps.2018.01.003.CrossRef Agarwal, C. A., Scheefer, M. F., Wright, L. N., Walzer, N. K., & Rivera, A. (2018). Quality of life improvement after chest wall masculinization in female-to-male transgender patients: A prospective study using the BREAST-Q and Body uneasiness test. Journal of Plastic, Reconstructive & Aesthetic Surgery,71(5), 651–657. https://​doi.​org/​10.​1016/​j.​bjps.​2018.​01.​003.CrossRef
34.
go back to reference Landgraf, J., Abetz, L., & Ware, J. E. (1996). The CHQ user’s manual. Boston, MA: The Health Institute, New England Medical Center. Landgraf, J., Abetz, L., & Ware, J. E. (1996). The CHQ user’s manual. Boston, MA: The Health Institute, New England Medical Center.
36.
go back to reference Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care,30(6), 473–483.CrossRefPubMed Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care,30(6), 473–483.CrossRefPubMed
37.
go back to reference Ware, J., Kosinski, M., Bjorner, J., Turner-Bowker, D., Gandek, B., & Maruish, M. (2007). Development user's manual for the SF-36v2® Health Survey. Lincoln, RI: Quality Metric Incorporated. Ware, J., Kosinski, M., Bjorner, J., Turner-Bowker, D., Gandek, B., & Maruish, M. (2007). Development user's manual for the SF-36v2® Health Survey. Lincoln, RI: Quality Metric Incorporated.
Metagegevens
Titel
Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic
Auteurs
Jane O’Bryan
Melissa Scribani
Kimberly Leon
Nancy Tallman
Christopher Wolf-Gould
Carolyn Wolf-Gould
Anne Gadomski
Publicatiedatum
30-01-2020
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 6/2020
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02430-8

Andere artikelen Uitgave 6/2020

Quality of Life Research 6/2020 Naar de uitgave