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Gepubliceerd in: Journal of Autism and Developmental Disorders 7/2006

01-10-2006 | Original paper

Health Care Utilization and Expenditures for Children with Autism: Data from U.S. National Samples

Auteurs: Gregory S. Liptak, Tami Stuart, Peggy Auinger

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2006

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 Abstract

Little is known about the use of medical services by children who have autism (ASD). Provide nationally representative data for health service utilization and expenditures of children with ASD. Cross-sectional survey using the Medical Expenditure Panel (MEPS), and National (Hospital) Ambulatory Medical Care Surveys (N(H)AMCS). A total of 80 children with ASD were identified from N(H)AMCS (weighted sample size (wss) 186,281), and 31 (wss 340,158) from MEPS. They had more outpatient visits, physician visits, and medications prescribed than children in general. They spent more time during physician visits than other children. Annual expenses for children with autism spectrum disorder ($6,132) were more than for other children ($860). Children with ASD have a substantial burden of medical illness.
Literatuur
go back to reference Chambers, J. G., Shkolnik, J., & Perez, M. (2003). Total expenditures for students with disabilities, 1999--2000: Spending variation by disability. Special education expenditure project, pp. 1--16. United States Department of Education, Office of Special Education Programs, 12--30--2003. Chambers, J. G., Shkolnik, J., & Perez, M. (2003). Total expenditures for students with disabilities, 1999--2000: Spending variation by disability. Special education expenditure project, pp. 1--16. United States Department of Education, Office of Special Education Programs, 12--30--2003.
go back to reference Cohen, S. B. (2000). Sample design of the 1997 Medical Expenditure Panel Survey household component. Rockville (MD): Agency for Healthcare Research and Quality. Cohen, S. B. (2000). Sample design of the 1997 Medical Expenditure Panel Survey household component. Rockville (MD): Agency for Healthcare Research and Quality.
go back to reference Coplan, J. (2003). Atypicality, intelligence, and age: a conceptual model of autistic spectrum disorder. Developmental Medicine and Child Neurology, 45(10), 712--716. PubMedCrossRef Coplan, J. (2003). Atypicality, intelligence, and age: a conceptual model of autistic spectrum disorder. Developmental Medicine and Child Neurology, 45(10), 712--716. PubMedCrossRef
go back to reference Curran, A. L., Sharples, P. M., White, C., & Knapp, M. (2001). Time costs of caring for children with severe disabilities compared with caring for children without disabilities. Developmental Medicine and Child Neurology, 43(8), 529--533. PubMedCrossRef Curran, A. L., Sharples, P. M., White, C., & Knapp, M. (2001). Time costs of caring for children with severe disabilities compared with caring for children without disabilities. Developmental Medicine and Child Neurology, 43(8), 529--533. PubMedCrossRef
go back to reference Filipek, P. A., Accardo, P. J., Ashwal, S., Baranek, G. T., Cook, E. H., Jr., Dawson, G., Gordon, B., Gravel, J. S., Johnson, C. P., Kallen, R. J., Levy, S. E., Minshew, N. J., Ozonoff, S., Prizant, B. M., Rapin, I., Rogers, S. J., Stone, W. L., Teplin, S. W., Tuchman, R. F., & Volkmar, F. R. (2000). Practice parameter: screening and diagnosis of autism: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society. Neurology, 55(4), 468--479. Filipek, P. A., Accardo, P. J., Ashwal, S., Baranek, G. T., Cook, E. H., Jr., Dawson, G., Gordon, B., Gravel, J. S., Johnson, C. P., Kallen, R. J., Levy, S. E., Minshew, N. J., Ozonoff, S., Prizant, B. M., Rapin, I., Rogers, S. J., Stone, W. L., Teplin, S. W., Tuchman, R. F., & Volkmar, F. R. (2000). Practice parameter: screening and diagnosis of autism: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society. Neurology, 55(4), 468--479.
go back to reference Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: an update. Journal of Autism and Developmental Disorders, 33(4), 365--382. PubMedCrossRef Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: an update. Journal of Autism and Developmental Disorders, 33(4), 365--382. PubMedCrossRef
go back to reference Gillberg, C., & Billstedt, E. (2000). Autism and Asperger syndrome: Coexistence with other clinical disorders. Acta Psychiatrica et Neurologica Scandinivica, 102(5), 321--330. CrossRef Gillberg, C., & Billstedt, E. (2000). Autism and Asperger syndrome: Coexistence with other clinical disorders. Acta Psychiatrica et Neurologica Scandinivica, 102(5), 321--330. CrossRef
go back to reference Gross, J. (2004) As Autism cases rise, parents run frenzied race to get help. New York Times, January 30, 2004, http://​www.​nytimes.​com/​2004/​01/​30/​nyregion/​30AUTI.​html.​ Retrieved 2/2/2004. Gross, J. (2004) As Autism cases rise, parents run frenzied race to get help. New York Times, January 30, 2004, http://​www.​nytimes.​com/​2004/​01/​30/​nyregion/​30AUTI.​html.​ Retrieved 2/2/2004.
go back to reference Howlin, P., & Asgharian, A. (1999). The diagnosis of autism and Asperger syndrome: findings from a survey of 770 families. Developmental Medicine and Child Neurology, 41(12), 834--839. PubMedCrossRef Howlin, P., & Asgharian, A. (1999). The diagnosis of autism and Asperger syndrome: findings from a survey of 770 families. Developmental Medicine and Child Neurology, 41(12), 834--839. PubMedCrossRef
go back to reference Ireys, H. T., Anderson, G. F., Shaffer, T. J., & Neff, J. M. (1997). Expenditures for care of children with chronic illnesses enrolled in the Washington State Medicaid program, fiscal year 1993. Pediatrics, 100, 197--204. PubMedCrossRef Ireys, H. T., Anderson, G. F., Shaffer, T. J., & Neff, J. M. (1997). Expenditures for care of children with chronic illnesses enrolled in the Washington State Medicaid program, fiscal year 1993. Pediatrics, 100, 197--204. PubMedCrossRef
go back to reference Jacobson, J. W., & Mulick, J. A. (2000). System and cost research issues in treatments for people with autistic disorders. Journal of Autism and Development Disorders, 30(6), 585--593. CrossRef Jacobson, J. W., & Mulick, J. A. (2000). System and cost research issues in treatments for people with autistic disorders. Journal of Autism and Development Disorders, 30(6), 585--593. CrossRef
go back to reference Jarbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study. Journal of Autism Developmental Disorders, 33(4), 395--402. CrossRef Jarbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study. Journal of Autism Developmental Disorders, 33(4), 395--402. CrossRef
go back to reference Johnson, E., & Hastings, R. P. (2002). Facilitating factors and barriers to the implementation of intensive home-based behavioural intervention for young children with autism. Child Care Health and Development, 28(2), 123--129. CrossRef Johnson, E., & Hastings, R. P. (2002). Facilitating factors and barriers to the implementation of intensive home-based behavioural intervention for young children with autism. Child Care Health and Development, 28(2), 123--129. CrossRef
go back to reference Koppelman, J. (2004). Children with mental disorders: Making sense of their needs and the systems that help them. NHPF Issue Brief, 4, 1--24. Koppelman, J. (2004). Children with mental disorders: Making sense of their needs and the systems that help them. NHPF Issue Brief, 4, 1--24.
go back to reference Krauss, M. W., Gulley, S., Sciegaj, M., & Wells, N. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329--339. PubMedCrossRef Krauss, M. W., Gulley, S., Sciegaj, M., & Wells, N. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329--339. PubMedCrossRef
go back to reference Kuhlthau, K. A., Beal, A. C., Ferris, T. G., & Perrin, J. M. (2002). Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center. Ambulatory Pediatrics, 2(1), 58--62. PubMedCrossRef Kuhlthau, K. A., Beal, A. C., Ferris, T. G., & Perrin, J. M. (2002). Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center. Ambulatory Pediatrics, 2(1), 58--62. PubMedCrossRef
go back to reference Landrigan, P. J., Schechter, C. B., Lipton, J. M., Fahs, M. C. & Schwartz, J. (2002). Environmental Pollutants and Disease in American Children: Estimates of Morbidity, Mortality, and Costs for Lead Poisoning, Asthma, Cancer, and Developmental Disabilities. Environmental Health Perspectives, 110(7), 721--728. PubMedCrossRef Landrigan, P. J., Schechter, C. B., Lipton, J. M., Fahs, M. C. & Schwartz, J. (2002). Environmental Pollutants and Disease in American Children: Estimates of Morbidity, Mortality, and Costs for Lead Poisoning, Asthma, Cancer, and Developmental Disabilities. Environmental Health Perspectives, 110(7), 721--728. PubMedCrossRef
go back to reference Leonard, H., & Wen, X. (2002). The epidemiology of mental retardation: challenges and opportunities in the new millennium. Mental Retardation and Developmental Disabilities Research Reviews, 8(3), 117--134. PubMedCrossRef Leonard, H., & Wen, X. (2002). The epidemiology of mental retardation: challenges and opportunities in the new millennium. Mental Retardation and Developmental Disabilities Research Reviews, 8(3), 117--134. PubMedCrossRef
go back to reference Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (1999). Autism diagnostic observation schedule-WPS (WPS ed.). LosAngeles, CA: Western Psychological Services. Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (1999). Autism diagnostic observation schedule-WPS (WPS ed.). LosAngeles, CA: Western Psychological Services.
go back to reference McCall, C. J. (2003) Improving outcomes and reducing cost: the role of predictive modeling. Managed Care, 12(10 Suppl), 12--16. PubMed McCall, C. J. (2003) Improving outcomes and reducing cost: the role of predictive modeling. Managed Care, 12(10 Suppl), 12--16. PubMed
go back to reference McCracken, J. T., McGough, J., Shah, B., Cronin, P., Hong, D., Aman, M. G., Arnold, L. E., Lindsay, R., Nash, P., Hollway, J., McDougle, C. J., Posey, D., Swiezy, N., Kohn, A., Scahill, L., Martin, A., Koenig, K., Volkmar, F., Carroll, D., Lancor, A., Tierney, E., Ghuman, J., Gonzalez, N. M., Grados, M., Vitiello, B., Ritz, L., Davies, M., Robinson, J., & McMahon, D. (2002). Risperidone in children with autism and serious behavioral problems. The New England Journal of Medicine, 347(5), 314--321. McCracken, J. T., McGough, J., Shah, B., Cronin, P., Hong, D., Aman, M. G., Arnold, L. E., Lindsay, R., Nash, P., Hollway, J., McDougle, C. J., Posey, D., Swiezy, N., Kohn, A., Scahill, L., Martin, A., Koenig, K., Volkmar, F., Carroll, D., Lancor, A., Tierney, E., Ghuman, J., Gonzalez, N. M., Grados, M., Vitiello, B., Ritz, L., Davies, M., Robinson, J., & McMahon, D. (2002). Risperidone in children with autism and serious behavioral problems. The New England Journal of Medicine, 347(5), 314--321.
go back to reference Murphy, C. C., Yeargin-Allsopp, M., Decoufle, P., & Drews, C. D. (1995). The administrative prevalence of mental retardation in 10-year-old children in metropolitan Atlanta, 1985 through 1987. American Journal of Public Health, 85(3), 319--23. PubMedCrossRef Murphy, C. C., Yeargin-Allsopp, M., Decoufle, P., & Drews, C. D. (1995). The administrative prevalence of mental retardation in 10-year-old children in metropolitan Atlanta, 1985 through 1987. American Journal of Public Health, 85(3), 319--23. PubMedCrossRef
go back to reference National Center for Health Statistics (2004a). Ambulatory health care data. Ambulatory Care statistics branch. http://​www.​cdc.​gov/​namcs/​ Retrieved 2-1-2004. National Center for Health Statistics (2004a). Ambulatory health care data. Ambulatory Care statistics branch. http://​www.​cdc.​gov/​namcs/​ Retrieved 2-1-2004.
go back to reference National Center for Health Statistics (2004b). Welcome NHAMCS participants! Ambulatory care statistics branch. 2004b. http://​www.​cdc.​gov/​nhamcs/​ Retrieved 2-1-2004. National Center for Health Statistics (2004b). Welcome NHAMCS participants! Ambulatory care statistics branch. 2004b. http://​www.​cdc.​gov/​nhamcs/​ Retrieved 2-1-2004.
go back to reference Ryan, S. A., Auinger, P., Liptak, G. S., Dick, A. W., Shone, L., Klein, J. D., & Szilagyi, P. G. (2006). Trends in health care expenditures and utilization for children with special health care needs: Analysis of the 1996 and 1999 Medical Expenditure Panel Survey. Public Health Reports, Submitted for publication. Ryan, S. A., Auinger, P., Liptak, G. S., Dick, A. W., Shone, L., Klein, J. D., & Szilagyi, P. G. (2006). Trends in health care expenditures and utilization for children with special health care needs: Analysis of the 1996 and 1999 Medical Expenditure Panel Survey. Public Health Reports, Submitted for publication.
go back to reference Shah, B. V., Barnwell, R. C., & Bieler, G. S. (1997). SUDAAN User’s Manual (release 7.5). Research Triangle Park, NC: Research Triangle Institute. Shah, B. V., Barnwell, R. C., & Bieler, G. S. (1997). SUDAAN User’s Manual (release 7.5). Research Triangle Park, NC: Research Triangle Institute.
go back to reference Sturm, H., Fernell, E., & Gillberg, C. (2004). Autism spectrum disorders in children with normal intellectual levels: associated impairments and subgroups. Developmental Medicine and Child Neurology, 46(7), 444--447. PubMedCrossRef Sturm, H., Fernell, E., & Gillberg, C. (2004). Autism spectrum disorders in children with normal intellectual levels: associated impairments and subgroups. Developmental Medicine and Child Neurology, 46(7), 444--447. PubMedCrossRef
go back to reference Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49--55. PubMedCrossRef Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA, 289(1), 49--55. PubMedCrossRef
go back to reference Ziring, P. R., Brazdziunas, D., Cooley, W. C., Kastner, T. A., Kummer, M. E., Gonzalez, d. P., Quint, R. D., Ruppert, E. S., Sandler, A. D., Anderson, W. C., Arango, P., Burgan, P., Garner, C., McPherson, M., Michaud, L., Yeargin-Allsopp, M., Johnson, C. P., Wheeler, L. S., Nackashi, J., & Perrin, J. M. (1999). American academy of pediatrics. Committee on children with disabilities. Care coordination: integrating health and related systems of care for children with special health care needs. Pediatrics, 104(4 Pt 1), 978--981. PubMed Ziring, P. R., Brazdziunas, D., Cooley, W. C., Kastner, T. A., Kummer, M. E., Gonzalez, d. P., Quint, R. D., Ruppert, E. S., Sandler, A. D., Anderson, W. C., Arango, P., Burgan, P., Garner, C., McPherson, M., Michaud, L., Yeargin-Allsopp, M., Johnson, C. P., Wheeler, L. S., Nackashi, J., & Perrin, J. M. (1999). American academy of pediatrics. Committee on children with disabilities. Care coordination: integrating health and related systems of care for children with special health care needs. Pediatrics, 104(4 Pt 1), 978--981. PubMed
Metagegevens
Titel
Health Care Utilization and Expenditures for Children with Autism: Data from U.S. National Samples
Auteurs
Gregory S. Liptak
Tami Stuart
Peggy Auinger
Publicatiedatum
01-10-2006
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2006
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-006-0119-9