Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

15-06-2020 | Original Paper

Health Care Transition Services and Adaptive and Social-Emotional Functioning of Youth with Autism Spectrum Disorder

Auteurs: Songtian Zeng, Alicia Strain, Connie Sung

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2021

Abstract

To promote health care transition services (HCTS) among youth with autism spectrum disorder (ASD), it is important to understand their access to HCTS and the association with functioning. We conducted weighted descriptive statistics and regressions. Findings suggested that HCTS were inconsistently provided to youth with ASD. Access to two or more HCTS was associated with positive social-emotional functioning. Helping youth with ASD understand health care changes and working with them to gain skills in managing health needs were found to be significant determinants of positive social-emotional functioning. The present study sheds light on HCTS that are essential for youth with ASD and highlights the necessity of health care system changes to promote service access and optimal functioning for youth with ASD.

vorige artikel Believing in Make-Believe: Efficacy of a Pretend Play Intervention for School-Aged Children with High-Functioning Autism Spectrum Disorder

volgende artikel Mind-Mindedness and Stress in Parents of Children with Developmental Disorders

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Association.CrossRef

Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: population-based 13-to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35(3), 351–360.CrossRef

Cheak-Zamora, N. C., Farmer, J. E., Mayfield, W. A., Clark, M. J., Marvin, A. R., Law, J. K., et al. (2014). Health care transition services for youth with autism spectrum disorders. Rehabilitation Psychology, 59(3), 340–348.CrossRef

Cheak-Zamora, N. C., Yang, X., Farmer, J. E., & Clark, M. (2013). Disparities in transition planning for youth with autism spectrum disorder. Pediatrics, 131(3), 447–454.CrossRef

Cheak-Zamora, N. C., & Teti, M. (2015). “You think it’s hard now… It gets much harder for our children”: Youth with autism and their caregiver’s perspectives of health care transition services. Autism, 19(8), 992–1001.CrossRef

Cheema, J. R. (2014). A review of missing data handling methods in education research. Review of Educational Research, 84, 487–508. https://doi.org/10.3102/0034654314532697.CrossRef

Connor, A., Sung, C., Strain, A., Zeng, S., & Fabrizi, S. (2019). Building skills, confidence, and wellness: Psychosocial effects of soft skills training for young adults with autism. Journal of Autism and Developmental Disorders, 1–13.

Cooley, W. C., Sagerman, P. J., & American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, & Transitions Clinical Report Authoring Group. (2011). Clinical report: Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics, 128, 182–200. https://doi.org/10.1542/peds.2011-0969.CrossRefPubMed

DaWalt, L. S., Greenberg, J. S., & Mailick, M. R. (2018). Transitioning together: A multi-family group psychoeducation program for adolescents with ASD and their parents. Journal of Autism and Developmental Disorders, 48, 251–263.CrossRef

Dew, D. W., & Alan, G. W. (2007). Rehabilitation of individuals with autism spectrum disorders: Institute on rehabilitation monograph No. 32. Washington, DC: The George Washington University, Center for Rehabilitation Counseling Research and Education.

Gabriel, P., McManus, M., Rogers, K., & White, P. (2017). Outcome evidence for structured pediatric to adult health care transition interventions: A systematic review. The Journal of Pediatrics, 188, 263.e15–269.e15. https://doi.org/10.1016/j.jpeds.2017.05.066.CrossRef

Gregory, A. W., & Veall, M. R. (1985). Formulating Wald tests of nonlinear restrictions. Econometrica: Journal of the Econometric Society, 1465–1468.

Government Accountability Office. (2017). Youth with autism: Federal agencies should take additional action to support transition-age youth (GAO-17-352). Washington, DC: U.S. Government Printing Office.

Hagner, D., & Cooney, B. (2003). Building employer capacity to support employees with severe disabilities in the workplace. Work, 21(1), 77–82.PubMed

Hilbe, J. M. (2011). Negative binomial regression. Cambridge: Cambridge University Press.CrossRef

Hochwarter, W. A., Witt, L. A., Treadway, D. C., & Ferris, G. R. (2006). The interaction of social skills and organizational support on job performance. Journal of Applied Psychology, 91(2), 482–489.CrossRef

Hong, E. R., Ganz, J. B., Ninci, J., Neely, L., Gilliland, W., & Boles, M. (2015). An evaluation of the quality of research on evidence-based practices for daily living skills for individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 2792–2815.CrossRef

Hus Bal, V., Kim, S. H., Cheong, D., & Lord, C. (2015). Daily living skills in individuals with autism spectrum disorder from 2 to 21 years of age. Autism, 19(7), 774–784.CrossRef

Kuhlthau, K. A., Delahaye, J., Erickson-Warfield, M., Shui, A., Crossman, M., & van der Weerd, E. (2016). Health care transition services for youth with autism spectrum disorders: Perspectives of caregivers. Pediatrics, 137(s2), 158–166.CrossRef

Kuo, A. A., Anderson, K. A., Crapnell, T., Lau, L., & Shattuck, P. T. (2018). Introduction to transitions in the life course of autism and other developmental disabilities. Pediatrics, 141(s4), 267–261. https://doi.org/10.1542/peds.2016-4300B.CrossRef

Laugeson, E. A., Gantman, A., Kapp, S. K., Orenski, K., & Ellingsen, R. (2015). A randomized controlled trial to improve social skills in young adults with autism spectrum disorder: The UCLA PEERS program. Journal of Autism and Developmental Disorders, 45, 3979–3989.CrossRef

Lebrun-Harris, L. A., McManus, M. A., Ilango, S. M., Cyr, M., McLellan, S. B., Mann, M. Y., et al. (2018). Transition planning among US youth with and without special health care needs. Pediatrics, 142(4), e20180194.CrossRef

Lumley, T. (2004). Analysis of complex survey samples. Journal of Statistical Software, 9(1), 1–19.

Lu, M. C., Lauver, C. B., Dykton, C., Kogan, M. D., Lawler, M. H., Raskin-Ramos, L., et al. (2015). Transformation of the title V maternal and child health services block grant. Maternal and Child Health Journal, 19(5), 927–931.CrossRef

Maddux, M. H., Ricks, S., & Bass, J. (2015). Preparing patients for transfer of care: Practices of primary care pediatricians. Journal of Community Health, 40(4), 750–755. https://doi.org/10.1007/s10900-015-9994-3.CrossRefPubMed

Matthews, N. L., Smith, C. J., Pollard, E., Ober-Reynolds, S., Kirwan, J., & Malligo, A. (2015). Adaptive functioning in autism spectrum disorder during the transition to adulthood. Journal of Autism and Developmental Disorders, 45(8), 2349–2360.CrossRef

McDonagh, J. E., Southwood, T. R., & Shaw, K. L. (2007). The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology, 46(1), 161–168.CrossRef

Meyer, A. T., Powell, P. S., Butera, N., Klinger, M. R., & Klinger, L. G. (2018). Brief report: Developmental trajectories of adaptive behavior in children and adolescents with ASD. Journal of Autism and Developmental Disorders, 48, 2870–2878.CrossRef

Müller, E., Schuler, A., Burton, B. A., & Yates, G. B. (2003). Meeting the vocational support needs of individuals with asperger syndrome and other autism spectrum disabilities. Journal of Vocational Rehabilitation, 18(3), 163–175.

R Core Team. (2013). R: A language and environment for statistical computing.

Refaeli, T., Mangold, K., Zeira, A., & Köngeter, S. (2017). Continuity and discontinuity in the transition from care to adulthood. British Journal of Social Work, 47(2), 325–342.

Rast, J. E., Shattuck, P. T., Roux, A. M., Anderson, K. A., & Kuo, A. (2018). The medical home and health care transition for youth with autism. Pediatrics, 141(s4), 328–334. https://doi.org/10.1542/peds.2016-4300J.CrossRef

Robles, M. M. (2012). Executive perceptions of the top 10 soft skills needed in today’s workplace. Business Communication Quarterly, 75, 453–465.CrossRef

Szatmari, P., Georgiades, S., Duku, E., Bennett, T. A., Bryson, S., Fombonne, E., et al. (2015). Developmental trajectories of symptom severity and adaptive functioning in an inception cohort of preschool children with autism spectrum disorder. JAMA Psychiatry, 72(3), 276–283.CrossRef

Shattuck, P. T., Steinberg, J., Yu, J., Wei, X., Cooper, B. P., Newman, L., & Roux, A. M. (2014). Disability identification and self-efficacy among college students on the autism spectrum. Autism Research and Treatment.

Sperry, L. A., & Mesibov, G. B. (2005). Perceptions of social challenges of adults with autism spectrum disorder. Autism, 9(4), 362–376.CrossRef

The United States Census Bureau. (2017). National survey of children’s health [Data file]. Retrieved from https://www.childhealthdata.org/learn-about-the-nsch/NSCH

Tincani, M., & Bondy, A. (Eds.). (2014). Autism spectrum disorders in adolescents and adults: Evidence-based and promising interventions. New York: The Guilford Press.

U.S. Department of Health and Human Services (2010). Healthy people 2020. Washington, DC: Office of Disease Prevention and Promotion, Publication No. B0132.

U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. (2008). The national survey of children with special health care needs chartbook 2005–2006. Rockville, MD: U.S. Department of Health and Human Services.

Ventola, P., Friedman, H. E., Anderson, L. C., Wolf, J. M., Oosting, D., Foss-Feig, J., et al. (2014). Improvements in social and adaptive functioning following short-duration PRT program: A clinical replication. Journal of Autism and Developmental Disorders, 44(11), 2862–2870.CrossRef

Walsh, C., Jones, B., & Schonwald, A. (2017). Health care transition planning among adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 980–991. https://doi.org/10.1007/s10803-016-3020-1.CrossRefPubMed

White, P. H., Cooley, W. C., American Academy of Pediatrics, & American Academy of Family Physicians. (2018). Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics, 142(5), e20182587.CrossRef

Young, W., Weckman, G., & Holland, W. (2011). A survey of methodologies for the treatment of missing values within datasets: Limitations and benefits. Theoretical Issues of Ergonomics Science, 12, 15–43.CrossRef

Titel: Health Care Transition Services and Adaptive and Social-Emotional Functioning of Youth with Autism Spectrum Disorder
Auteurs: Songtian Zeng
Alicia Strain
Connie Sung
Publicatiedatum: 15-06-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 2/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04564-7

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 2/2021

DSM-5 and Challenges to Female Autism Identification

Teacher-Reported Prevalence of FASD in Kindergarten in Canada: Association with Child Development and Problems at Home

Dimensional or Categorical Approaches to Autism? Both are Needed. A Reply to Nick Chown and Julia Leatherland

Hierarchical Processing in ASD is Driven by Exaggerated Salience Effects, not Local Bias

Perceived Stigma Among Serbian Parents of Children with Autism Spectrum Disorder and Children with Physical Disabilities: Validation of a New Instrument

Autistic Disorder: A 20 Year Chronicle