Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

12-01-2017 | Original Paper

Health Care Transition Planning Among Adolescents with Autism Spectrum Disorder

Auteurs: Casey Walsh, Barbara Jones, Alison Schonwald

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2017

Abstract

Improving the health care transition process for youth with autism spectrum disorder (ASD) is critically important. This study was designed to examine the overall national transition core outcome among youth with ASD and each of the component measures of health care transition planning. Fewer than 10% of youth with ASD meet the national transition core outcome. Among youth with ASD, there is greater disparity in health care transition planning for non-Hispanic black youth, youth with family income <400% of the federal poverty line, and youth with more severe activity limitation. Continued advocacy, research, and training efforts are needed to reduce disparities in receipt of health care transition planning services for youth with ASD.

vorige artikel What Difference Does It Make? Implicit, Explicit and Complex Social Cognition in Autism Spectrum Disorders

volgende artikel Working Memory Impairments in Chromosome 22q11.2 Deletion Syndrome: The Roles of Anxiety and Stress Physiology

A.J. Drexel Autism Institute. (2014–2015). Health care transitions research network (HCT-RN) for youth and young adults with autism spectrum disorders. Retrieved from http://www.autismtransition.net.

American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians, Transitions Clinical Report Authoring Group. (2011). Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics, 128(1), 182–200.CrossRef

American Academy of Pediatrics. (2014). Autism prevalence now 1 in 68, varies by sex, race/ethnic group. AAP News. Retrieved from http://aapnews.aappublications.org/content/early/2014/03/27/aapnews.20140327-1.

American Academy of Pediatrics. (2015). Transition resources. Retrieved from https://www.aap.org/en-us/Documents/cocd_transition_resources_sept15.pdf.

American Academy of Pediatrics Council on Children with Disabilities. (2005). Care coordination in the medical home: integrating health and related systems of care for children with special health care needs. Pediatrics, 116(5), 1238–1244. doi:10.1542/peds.2005-2070.CrossRef

American Academy of Pediatrics, National Center for Medical Home Implementation. (2016) What is medical home? Retrieved from https://medicalhomeinfo.aap.org/overview/Pages/Whatisthemedicalhome.aspx.

American College of Physicians. (2016). Condition specific tools. Retrieved from https://www.acponline.org/clinical-information/high-value-care/resources-for-clinicians/pediatric-to-adult-care-transitions-initiative/condition-specific-tools.

American College of Physicians. (2016). Intellectual disabilities/developmental disabilities. Retrieved from https://www.acponline.org/system/files/documents/clinical_information/high_value_care/clinician_resources/pediatric_adult_care_transitions/gim_dd/idd_transitions_tools.pdf.

American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders (5th edn.). Arlington, VA: American Psychiatric Publishing.CrossRef

Andrews, C. M., Darnell, J. S., McBride, T. D., & Gehlert, S. (2013). Social work and implementation of the Affordable Care Act. Health and Social Work, 38(2), 67–71.CrossRefPubMed

Arc of the United States: Autism NOW. (2016). About us. Retrieved from: http://autismnow.org/about-us/.

Centers for Disease Control & Prevention. (2006). Mental health in the United States: parental report of diagnosed autism in children aged 4–17 years–United States, 2003–2004. MMWR Morbidity and Mortality Weekly Report, 55(17), 481–486.

Centers for Disease Control & Prevention. (2016). Facts about ASD. Retrieved from: http://www.cdc.gov/ncbddd/autism/facts.html.

Centers for Disease Control and Prevention. (2016). Autism Spectrum Disorder (ASD): Data & statistics. Retrieved from http://www.cdc.gov/ncbddd/autism/data.html.

Cheak-Zamora, N. C., Teti, M., & First, J. (2015). ‘Transitions are Scary for our Kids, and They’re Scary for us’: Family Member and Youth Perspectives on the Challenges of Transitioning to Adulthood with Autism. Journal of Applied Research in Intellectual Disabilities, 28(6), 548–560. doi:10.1111/jar.12150.CrossRefPubMed

Cheak-Zamora, N. C., Yang, X., Farmer, J. E., & Clark, M. (2013). Disparities in transition planning for youth with autism spectrum disorder. Pediatrics, 131(3), 447–454. doi:10.1542/peds.2012-1572.CrossRefPubMed

Gurney, J. G., McPheeters, M. L., & Davis, M. M. (2006). Parental report of health conditions and health care use among children with and without autism: National Survey of Children’s Health. Archives of Pediatrics and Adolescent Medicine, 160(8), 825–830. doi:10.1001/archpedi.160.8.825.CrossRefPubMed

Got Transition & The National Alliance to Advance Adolescent Health. (2014–2016). News & announcements. Retrieved from http://www.gottransition.org/news/index.cfm.

Kuhlthau, K. A., Warfield, M. E., Hurson, J., Delahaye, J., & Crossman, M. K. (2015). Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions. Autism: The International Journal of Research and Practice, 19(3), 262–271. doi:10.1177/1362361313518125.CrossRef

Lindley, L. C., & Mark, B. A. (2010). Children with special health care needs: Impact of health care expenditures on family financial burden. Journal of Child and Family Studies, 19(1), 79–89. doi:10.1007/s10826-009-9286-6.CrossRefPubMedPubMedCentral

Litt, J. S., & McCormick, M. C. (2015). Care coordination, the family-centered medical home, and functional disability among children with special health care needs. Academic Pediatrics, 15(2), 185–190. doi:10.1016/j.acap.2014.08.006.CrossRefPubMed

Lotstein, D. S., McPherson, M., Strickland, B., & Newacheck, P. W. (2005). Transition planning for youth with special health care needs: Results from the National Survey of Children with Special Health Care Needs. Pediatrics, 115(6), 1562–1568. doi:10.1542/peds.2004-1262.CrossRefPubMed

Maddux, M. H., Ricks, S., & Bass, J. (2015). Preparing patients for transfer of care: Practices of primary care pediatricians. Journal of Community Health, 40(4), 750–755. doi:10.1007/s10900-015-9994-3.CrossRefPubMed

Mandell, D. S., Wiggins, L. D., Carpenter, L. A., Daniels, J., DiGuiseppi, C., Durkin, M. S., Giarelli, E., Morrier, M. J., Nicholas, J. S., Pinto-Martin, J. A., Shattuck, P. T., Thomas, K. C., Yeargin-Allsop, M., & Kirby, R. S. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99(3), 493–498. doi:10.2105/ajph.2007.131243.CrossRefPubMedPubMedCentral

Maternal and Child Health Bureau in collaboration with the National Center for Health Statistics. (2009–2010) National Survey of Children with Special Health Care Needs. 2009/10 NS-CSHCN SPSS Indicator Data Set prepared by the Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative. http://www.childhealthdata.org.

McManus, M., White, P., Barbour, A., Downing, B., Hawkins, K., Quion, N., Tuchman, L., Cooley, W. C., & McAllister, J. W. (2015). Pediatric to adult transition: a quality improvement model for primary care. The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine, 56(1), 73–78. doi:10.1016/j.jadohealth.2014.08.006.CrossRef

McManus, M. A., Pollack, L. R., Cooley, W. C., McAllister, J. W., Lotstein, D., Strickland, B., & Mann, M. Y. (2013). Current status of transition preparation among youth with special needs in the United States. Pediatrics, 131(6), 1090–1097. doi:10.1542/peds.2012-3050.CrossRefPubMed

Office of Disease Prevention and Health Promotion. (2014). Disability and Health, Healthy People 2020. Retrieved March 23, 2015, from http://www.healthypeople.gov/2020/topics-objectives/topic/disability-and-health/objectives.

Rogers, K., & Zeni, M. B. (2015). Systematic review of medical home models to promote transitions to primary adult health care for adolescents living with autism spectrum disorder. Worldviews on Evidence-Based Nursing. doi:10.1111/wvn.12085.PubMed

Srinivasan, S., & Williams, S. D. (2014). Transitioning from health disparities to a health equity research agenda: the time is now. Public Health Reports (Washington, D. C.: 1974), 129(Suppl 2), 71–76.CrossRef

The National Alliance to Advance Adolescent Health. (2014–2015). What is health care transition? Retrieved from http://www.gottransition.org/providers/index.cfm.

U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. (2007). The National Survey of Children with Special Health Care Needs chartbook 2005–2006. Rockville, MD: US Department of Health and Human Services.

U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. (2016). National Survey of Children’s Health. Retrieved from http://mchb.hrsa.gov/data/national-surveys.

U.S. Department of Health and Human Services. Patient centered medical home resource center. Retrieved from https://pcmh.ahrq.gov.

Wood, D., Winterbauer, N., Sloyer, P., Jobli, E., Hou, T., McCaskill, Q., & Livingood, W. C. (2009). A longitudinal study of a pediatric practice-based versus an agency-based model of care coordination for children and youth with special health care needs. Maternal and Child Health Journal, 13(5), 667–676. doi:10.1007/s10995-008-0406-5.CrossRefPubMed

Titel: Health Care Transition Planning Among Adolescents with Autism Spectrum Disorder
Auteurs: Casey Walsh
Barbara Jones
Alison Schonwald
Publicatiedatum: 12-01-2017
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-016-3020-1

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 4/2017

Priming Facial Gender and Emotional Valence: The Influence of Spatial Frequency on Face Perception in ASD

Emotion Perception Mediates the Predictive Relationship Between Verbal Ability and Functional Outcome in High-Functioning Adults with Autism Spectrum Disorder

Electrodermal Variability and Symptom Severity in Children with Autism Spectrum Disorder

Quantitative Sensory Testing in adults with Autism Spectrum Disorders

Mentoring University Students with ASD: A Mentee-centered Approach

Social and Non-social Hazard Response in Drivers with Autism Spectrum Disorder