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Quality of Life Research

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01-12-2012

Growing up with cystic fibrosis: achievement, life satisfaction, and mental health

Auteurs: Tanja Besier, Lutz Goldbeck

Gepubliceerd in: Quality of Life Research | Uitgave 10/2012

Abstract

Purpose

Significant improvements in survival of patients with cystic fibrosis lead clinicians and researchers to focus on how patients can be enabled to lead as normal a life as possible throughout their entire life span. The study aimed at analyzing the vocational and social achievement, life satisfaction, and psychological well-being of adolescents and adults with cystic fibrosis.

Methods

During a routine clinic visit, 670 German patients with cystic fibrosis (12–64 years, M = 23.1) completed questionnaires on their vocational and social achievement, life satisfaction, and symptoms of anxiety and depression. Cross-sectional analyses were applied across four age-groups (12–20 years, 21–30 years, 31–40 years, and 41 years and older).

Results

Most patients with cystic fibrosis reached employment and independence from their parents during adulthood. Life satisfaction was negatively associated with age, with the largest difference between the second and third life decade. A strong negative association of anxious and depressive symptoms with life satisfaction was found. Lung function was significantly positively related to life satisfaction, even though this association was less pronounced.

Conclusions

Most patients with cystic fibrosis achieve ordinary social and vocational development into adulthood. A favorable mental health status seems more important than pulmonary function to maintain a good satisfaction with life.

vorige artikel Adaptation and cognitive testing of physical activity measures for use with young, school-aged children and their parents

volgende artikel Health-related quality of life of Spanish children with cystic fibrosis

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Titel: Growing up with cystic fibrosis: achievement, life satisfaction, and mental health
Auteurs: Tanja Besier
Lutz Goldbeck
Publicatiedatum: 01-12-2012
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 10/2012
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-011-0096-0

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Abstract

Purpose

Methods

Results

Conclusions

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