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Gepubliceerd in: Quality of Life Research 9/2017

08-05-2017

Further evidence on EQ-5D-5L preference inversion: a Brazil/U.S. collaboration

Auteurs: Benjamin M. Craig, Andréa L. Monteiro, Michael Herdman, Marisa Santos

Gepubliceerd in: Quality of Life Research | Uitgave 9/2017

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Abstract

Purpose

A preference inversion occurs when “worse” health (instead of “better” health) along a scale or score is preferred. Our aim was to confirm past findings of EQ-5D-5L preference inversions among English-speaking respondents and to explore inversions among Portuguese-speaking respondents. Anecdotal evidence suggests that inversions may be more common in the Portuguese version, where the translation of the fourth level “severely” (gravemente) means “gravely.”

Methods

Through an infusion clinic in Tampa, Florida, United States and a cardiology clinic in Rio de Janeiro, Brazil, 740 respondents completed a tablet-based survey, which included the EQ-5D-3L and -5L followed by paired comparisons designed to assess preference inversions between the fourth and fifth levels of each of the five domains: Mobility (MO), Self-Care (SC), Usual Activity (UA), Pain/Discomfort (PD), and Anxiety/Depression (AD). An example from the AD dimension would be: “Which do you prefer? Starting today, 30 days with health problems: Severely anxious or depressed or Extremely anxious or depressed” (i.e., Level 4 AD vs. Level 5 AD).

Results

In the English-speaking respondents, preference inversion was only observed to a substantial extent in the AD dimension (U.S. N = 470; 7% MO, 14% SC, 14% UA, 20% PD, and 45% AD). Inversions were more common among the Portuguese-speaking respondents (Brazil N = 270; 11% MO, 32% SC, 35% UA, 49% PD, and 65% AD). Specifically, 44 out of 68 Brazilian respondents (65%) preferred “extremamente” (Level 5 AD) over “gravemente ansioso (a) ou deprimido (a)” (Level 4 AD).

Conclusions

This evidence confirms previous findings for the U.S. English version of the EQ-5D-5L and led to a relabeling on the Portuguese version. It demonstrates the usefulness of collaboration between psychometric, econometric, and linguistic experts in developing the wording for and translating preference-based measures of health-related quality of life. Further research may explore inversions in other translations. The authors recommend that preference inversion tests should be included in the development and translation process.
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Literatuur
1.
go back to reference Herdman, M., Gudex, C., Lloyd, A., Janssen, M. F., Kind, P., Parkin, D., et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of Life Research, 20(10), 1727–1736. CrossRef Herdman, M., Gudex, C., Lloyd, A., Janssen, M. F., Kind, P., Parkin, D., et al. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of Life Research, 20(10), 1727–1736. CrossRef
2.
go back to reference Janssen, M. F., Pickard, A. S., Golicki, D., Gudex, C., Niewada, M., Scalone, L., et al. (2013). Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L across eight patient groups: a multi-country study. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(7), 1717–1727. CrossRef Janssen, M. F., Pickard, A. S., Golicki, D., Gudex, C., Niewada, M., Scalone, L., et al. (2013). Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L across eight patient groups: a multi-country study. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 22(7), 1717–1727. CrossRef
3.
go back to reference Brazier, J., Roberts, J., & Deverill, M. (2002). The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics, 21(2), 271–292. CrossRef Brazier, J., Roberts, J., & Deverill, M. (2002). The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics, 21(2), 271–292. CrossRef
4.
go back to reference Brazier, J. E., & Roberts, J. (2004). The estimation of a preference-based measure of health from the SF-12. Medical Care, 42(9), 851–859. CrossRef Brazier, J. E., & Roberts, J. (2004). The estimation of a preference-based measure of health from the SF-12. Medical Care, 42(9), 851–859. CrossRef
5.
go back to reference Feeny, D., Furlong, W., Torrance, G. W., Goldsmith, C. H., Zhu, Z., DePauw, S., et al. (2002). Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Medical Care, 40(2), 113–128. CrossRef Feeny, D., Furlong, W., Torrance, G. W., Goldsmith, C. H., Zhu, Z., DePauw, S., et al. (2002). Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Medical Care, 40(2), 113–128. CrossRef
6.
go back to reference Craig, B. M., Pickard, A. S., & Rand-Hendriksen, K. (2015). Do health preferences contradict ordering of EQ-5D labels? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 24(7), 1759–1765. CrossRef Craig, B. M., Pickard, A. S., & Rand-Hendriksen, K. (2015). Do health preferences contradict ordering of EQ-5D labels? Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 24(7), 1759–1765. CrossRef
7.
go back to reference Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., Verjee-Lorenz, A., et al. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR task force for translation and cultural adaptation. Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research., 8(2), 94–104. CrossRef Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., Verjee-Lorenz, A., et al. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR task force for translation and cultural adaptation. Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research., 8(2), 94–104. CrossRef
8.
go back to reference Rabin, R., Gudex, C., Selai, C., & Herdman, M. (2014). From translation to version management: a history and review of methods for the cultural adaptation of the EuroQol five-dimensional questionnaire. Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research, 17(1), 70–76. CrossRef Rabin, R., Gudex, C., Selai, C., & Herdman, M. (2014). From translation to version management: a history and review of methods for the cultural adaptation of the EuroQol five-dimensional questionnaire. Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research, 17(1), 70–76. CrossRef
9.
go back to reference Ferreira, L. N., Ferreira, P. L., Pereira, L. N., & Oppe, M. (2014). The valuation of the EQ-5D in Portugal. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23(2), 413–423. CrossRef Ferreira, L. N., Ferreira, P. L., Pereira, L. N., & Oppe, M. (2014). The valuation of the EQ-5D in Portugal. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23(2), 413–423. CrossRef
10.
go back to reference Andrade, M. V., Noronha, K. V., Maia, A. C., & Kind, P. (2013). What matters most? Evidence-based findings of health dimensions affecting the societal preferences for EQ-5D health states. Cadernos de saude publica, 29(Suppl 1), S59–S72. CrossRef Andrade, M. V., Noronha, K. V., Maia, A. C., & Kind, P. (2013). What matters most? Evidence-based findings of health dimensions affecting the societal preferences for EQ-5D health states. Cadernos de saude publica, 29(Suppl 1), S59–S72. CrossRef
11.
go back to reference Armaganijan, L., Saico, R., Moraes, A., Abizaid, A., Moreira, D., Amodeo, C., et al. (2013). Renal sympathetic denervation and quality of life. Revista Brasileira de Cardiologia Invasiva, 21(1), 13–17. Armaganijan, L., Saico, R., Moraes, A., Abizaid, A., Moreira, D., Amodeo, C., et al. (2013). Renal sympathetic denervation and quality of life. Revista Brasileira de Cardiologia Invasiva, 21(1), 13–17.
12.
go back to reference Martins, L. S., Outerelo, C., Malheiro, J., Fonseca, I. M., Henriques, A. C., Dias, L. S., et al. (2015). Health-related quality of life may improve after transplantation in pancreas-kidney recipients. Clinical Transplantation, 29(3), 242–251. CrossRef Martins, L. S., Outerelo, C., Malheiro, J., Fonseca, I. M., Henriques, A. C., Dias, L. S., et al. (2015). Health-related quality of life may improve after transplantation in pancreas-kidney recipients. Clinical Transplantation, 29(3), 242–251. CrossRef
Metagegevens
Titel
Further evidence on EQ-5D-5L preference inversion: a Brazil/U.S. collaboration
Auteurs
Benjamin M. Craig
Andréa L. Monteiro
Michael Herdman
Marisa Santos
Publicatiedatum
08-05-2017
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2017
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1591-8

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