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02-02-2018 | Original Paper | Uitgave 6/2018

From ‘Parent’ to ‘Expert’: How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 6/2018

Auteurs:: Amelia G. Edwards, Chris M. Brebner, Paul F. McCormack, Colin J. MacDougall

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Paul F. McCormack is now retired.

Abstract

Parents of children with Autism Spectrum Disorder are responsible for deciding which interventions to implement with their child. There is limited research examining parental decision-making with regards to intervention approaches. A constructivist grounded theory methodology was implemented in this study. Semi-structured interviews were undertaken with 14 participants from 12 family units. Data collection and analysis occurred concurrently, allowing a grounded theory to be constructed. Parental decision-making was influenced by many factors, arranged into seven core categories (values, experience, information, motivation, understanding, needs and logistics). Decision-making evolved over time, as parents transformed from ‘parent’ to ‘expert’. The results of this study provide an insight into parental decision-making, which has implications for the support provided to parents by health professionals.

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Titel: From ‘Parent’ to ‘Expert’: How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access
Auteurs:: Amelia G. Edwards
Chris M. Brebner
Paul F. McCormack
Colin J. MacDougall
Publicatiedatum: 02-02-2018
DOI: https://doi.org/10.1007/s10803-018-3473-5
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 6/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

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