Top

Journal of Autism and Developmental Disorders

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in:

09-05-2017 | Original Paper

Fathers’ Orientation to their Children’s Autism Diagnosis: A Grounded Theory Study

Auteurs: Michael D. Hannon, LaChan V. Hannon

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2017

Abstract

Sixteen fathers of individuals with autism were interviewed to develop a grounded theory explaining how they learned about their children’s autism diagnosis. Results suggest the orientation process entails at least two phases: orienting oneself and orienting others. The orienting oneself phase entailed fathers having suspicion of developmental differences, engaging in research and education activities, having their children formally evaluated; inquiring about their children’s prognosis, and having curiosities about autism’s etiology. The orienting others phase entailed orientating family members and orienting members of their broader communities. Recommendations for responsive service provision, support for fathers, and future research are offered.

vorige artikel A Screening Tool to Measure Eye Contact Avoidance in Boys with Fragile X Syndrome

volgende artikel Brief Report: Examining the Association of Autism and Adverse Childhood Experiences in the National Survey of Children’s Health: The Important Role of Income and Co-occurring Mental Health Conditions

Alleen toegankelijk voor geautoriseerde gebruikers

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th edn.). Arlington, VA: American Psychiatric Publishing. CrossRef

Hannon, M. D. (2013). ‘Love him and everything else will fall into place’: an analysis of narratives of African-American fathers of children with autism spectrum disorders (Doctoral dissertation). Retrieved from ProQuest Dissertations and Theses database. (Order No. 3576535).

Hannon, M. D. (2014). Smiles from the heart: humanistic counseling considerations for fathers of sons with Asperger’s disorder. Professional Counselor, 4(4), 363–377. doi: 10.15241/mdh.4.4.363.

Hannon, M. D., White, E, & Nadrich, T. (2017). Influences of autism on fathering style among Black American fathers: A narrative inquiry. Journal of Family Therapy, 39(2), 1–23. doi: 10.1111/1467-6427.12165.

Ben Itzchak, E., Lahat, E., & Zachor, D. A. (2011). Advanced parental ages and low birth weight in autism spectrum disorders—Rates and effect on functioning. Research in Developmental Disabilities: A Multidisciplinary Journal, 32(5), 1776–1781. CrossRef

Bourdieu, P. (1986). The aristocracy of culture. Material Culture: Critical Concepts in the Social Sciences, 1(1), 164–193.

Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders: The couple’s relationship. Focus on Autism and Other Developmental Disabilities, 24(1), 38–49. CrossRef

Centers for Disease Control and Prevention. (2016). National center on birth defects and developmental disabilities. Retrieved from http://www.cdc.gov/ncbddd/autism/data.html.

Chin, R., Hall, P., & Daiches, A. (2011). Fathers’ experiences of their transition to fatherhood: A metasynthesis. Journal of Reproductive and Infant Psychology, 29(1), 4–18. CrossRef

Corbin, J. M., & Strauss, A. (1990). Grounded theory research: Procedures, canons, and evaluative criteria. Qualitative Sociology, 13(1), 3–21. CrossRef

Creswell, J. W. (2006). Qualitative research design: Choosing among five traditions (2nd edn.). Thousand Oaks: Sage.

Croen, L. A., Najjar, D. V., Fireman, B., & Grether, J. K. (2007). Maternal and paternal age and risk of autism spectrum disorders. Archives of Pediatrics & Adolescent Medicine, 161(4), 334–340. CrossRef

Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with Autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291. CrossRefPubMed

DeKanter, R. (1987). A father is a bag full of money: The person, the position, and the symbol of the father. In T. Knijn & A. C. Mulder (Eds.), Unraveling fatherhood (pp. 6–26). Dordrecht: Foris.

Dey, I. (2004). Grounded theory. In C. Seale, G. Gobo, J. Gubrium, & D. Silverman (Eds.) Qualitative research practice (pp. 80–93). Thousand Oaks, CA: Sage.

Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52. CrossRefPubMed

Finlay, L. (2002). “Outing” the researcher: The provenance, process, and practice of reflexivity. Qualitative Health Research, 12(4), 531–545. CrossRefPubMed

Freedman, B. H., Kalb, L. G., Zablotsky, B., & Stuart, E. A. (2012). Relationship status among parents of children with autism spectrum disorders: A population-based study. Journal of Autism and Developmental Disorders, 42(4), 539–548. CrossRefPubMed

García-López, C., Sarriá, E., & Pozo, P. (2016). Multilevel approach to gender differences in adaptation in father-mother dyads parenting individuals with Autism Spectrum Disorder. Research in Autism Spectrum Disorders, 28, 7–16. CrossRef

Garfield, C. F., Isacco, A., & Bartlo, W. D. (2010). Men’s health and fatherhood in the urban Midwestern United States. International Journal of Men’s Health, 9(3), 161. CrossRef

Gerdts, J. A., Bernier, R., Dawson, G., & Estes, A. (2013). The broader autism phenotype in simplex and multiplex families. Journal of Autism and Developmental Disorders, 43(7), 1597–1605. doi: 10.1007/s10803-012-1706-6. CrossRefPubMed

Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24(6), 734–749. CrossRef

Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science & Medicine, 56(3), 631–642. CrossRef

Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., & Bolt, D. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449. CrossRefPubMedPubMedCentral

Hastings, R. P., Kovshoff, H., Ward, N. J., Degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635. CrossRefPubMed

Heaman, D. J. (1995). Perceived stressors and coping strategies of parents who have children with developmental disabilities: A comparison of mothers with fathers. Journal of Pediatric Nursing, 10(5), 311–320. CrossRefPubMed

Janecka, M., Mill, J., Basson, M. A., Goriely, A., Spiers, H., Reichenberg, A., et al. (2017). Advanced paternal age effects in neurodevelopmental disorders—Review of potential underlying mechanisms. Translational Psychiatry, 7(1), 9. doi: 10.1038/tp.2016.294. CrossRef

Lamb, M. E. (2013). The father’s role: Cross cultural perspectives. London: Routledge.

Lampi, K. M., Hinkka-yli-salomäki, S., Lehti, V., Helenius, H., Gissler, M., Brown, A. S., & Sourander, A. (2013). Parental age and risk of autism spectrum disorders in a Finnish national birth cohort. Journal of Autism and Developmental Disorders, 43(11), 2526–2535. doi: 10.1007/s10803-013-1801-3. CrossRefPubMed

Lincoln, Y. S., & Guba, E. G. (1995). Naturalistic inquiry (2nd edn.). Thousand Oaks, CA: Sage.

Lundström, S., Haworth, C. M. A., Carlström, E., Gillberg, C., Mill, J., Råstam, M., et al. (2010). Trajectories leading to autism spectrum disorders are affected by paternal age: Findings from two nationally representative twin studies. Journal of Child Psychology and Psychiatry, 51(7), 850–856. doi: 10.1111/j.1469-7610.2010.02223.x. CrossRefPubMed

MacDonald, E. E., & Hastings, R. P. (2010). Mindful parenting and care involvement of fathers of children with intellectual disabilities. Journal of Child and Family Studies, 19(2), 236–240. CrossRef

Mandell, D. S., Ittenbach, R. F., Levy, S. E., & Pinto-Martin, J. (2007). Disparities in diagnoses received prior to a diagnosis of autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1795–1802. doi: 10.1007/s10803-006-0314-8. CrossRefPubMed

McAdoo, J. L. (1993). The roles of African-American fathers: An ecological perspective. Families in Society, 74(1), 28–35.

McLeod, J. (2001). Developing a research tradition consistent with the practices and values of counselling and psychotherapy: Why counselling and psychotherapy research is necessary. Counselling and Psychotherapy Research, 1(1), 3–11. CrossRef

Meltzer, D. (2008). Explorations in autism: A psycho-analytical study (No. 3). London: Karnac Books.

Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: A sourcebook. Beverly Hills: Sage Publications.

Morrow, S. L., & Smith, M. L. (2000). Qualitative research for counseling psychology. In S. D. Brown & R. W. Lent (Eds.), Handbook of Counseling Psychology (3rd edn., pp. 199–230). New York: Wiley.

Naseef, R. (2001). Special children, challenged parents: The struggles and rewards of raising child with a disability. Baltimore, MD: The Paul H. Brookes Publishing Company.

Palkovitz, R. (2002). Involved fathering and men’s adult development: Provisional balances. Mahwah, NJ: Lawrence Erlbaum Associates, Inc.

Pleck, J. H. (1987). The theory of male sex-role identity: Its rise and fall, 1936 to the present. In H. Brod (Ed.) The Making of Masculinities. Boston: Allen and Unwin.

Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 855. CrossRefPubMed

Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1992). Psychosocial adaptation of fathers of children with autism, down syndrome, and normal development. Journal of Autism and Developmental Disorders, 22(2), 249–263. CrossRefPubMed

Sandin, S., Schendel, D., Magnusson, P., Hultman, C., Surén, P., Susser, E., et al. (2016). Autism risk associated with parental age and with increasing difference in age between the parents. Molecular Psychiatry, 21(5), 693–700. doi: 10.1038/mp.2015.70. CrossRefPubMed

Seligman, M., & Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability (3rd edn.). New York: Guilford Press.

Shezifi, O. (2004). When men become fathers: A qualitative investigation of the psychodynamic aspects of the transition to fatherhood. Unpublished doctorate dissertation. Alliant International University California, United States of America.

Shyu, Y., Tsai, J., & Tsai, W. (2010). Explaining and selecting treatments for autism: Parental explanatory models in Taiwan. Journal of Autism and Developmental Disorders, 40, 1323–1331. doi: 10.1007/s10803-010-0991-1. CrossRefPubMed

Singh, A., Urbano, A., Haston, M., & McMahan, E. (2010). School counselors’ strategies for social justice change: A grounded theory of what works in the real world. Professional School Counseling, 13(3), 135–145. CrossRef

Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.

Wang, Y. W. (2008). Qualitative research. In P. P. Heppner, B. Wampold, & D. M. Kivlighan (Eds.), Research design in counseling (3rd edn., pp. 256–295). Belmont, CA: Thomson Brooks/Cole.

Titel: Fathers’ Orientation to their Children’s Autism Diagnosis: A Grounded Theory Study
Auteurs: Michael D. Hannon
LaChan V. Hannon
Publicatiedatum: 09-05-2017
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 7/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-017-3149-6

Bohn Stafleu van Loghum

Tip

Swipe om te navigeren naar een ander artikel

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 7/2017

Neural Correlates of Explicit Versus Implicit Facial Emotion Processing in ASD

Brief Report: Metformin for Antipsychotic-Induced Weight Gain in Youth with Autism Spectrum Disorder

Social Motor Synchronization: Insights for Understanding Social Behavior in Autism

Brief Report: Examining the Association of Autism and Adverse Childhood Experiences in the National Survey of Children’s Health: The Important Role of Income and Co-occurring Mental Health Conditions

Spatial Frequency Priming of Scene Perception in Adolescents With and Without ASD

Can Children with Autism Spectrum Disorders Learn New Vocabulary From Linguistic Context?