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25-01-2016 | Original Paper | Uitgave 5/2016

Journal of Autism and Developmental Disorders 5/2016

Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders

Tijdschrift:
Journal of Autism and Developmental Disorders > Uitgave 5/2016
Auteurs:
Kaaren Haas, Debra Costley, Marita Falkmer, Amanda Richdale, Kate Sofronoff, Torbjörn Falkmer
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Electronic supplementary material

The online version of this article (doi:10.​1007/​s10803-016-2708-6) contains supplementary material, which is available to authorized users.

Abstract

Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants.

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Extra materiaal
Supplementary material 1 (DOCX 30 kb)
10803_2016_2708_MOESM1_ESM.docx
Supplementary material 2 (DOCX 66 kb)
10803_2016_2708_MOESM2_ESM.docx
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