Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

08-07-2021 | Original Paper

Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic

Auteurs: Tammy S. H. Lim, Mae Yue Tan, Ramkumar Aishworiya, Ying Qi Kang, Magdalena Yvonne Koh, Liang Shen, Shang Chee Chong

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2022

Abstract

We evaluated factors affecting psychological ill-effects and resilience of caregivers of children with developmental disabilities during the coronavirus pandemic. Depression, Anxiety, and Stress Scales (DASS-21) and Connor-Davidson Resilience Scale 25-item were administered. Logistic regression was used to identify factors associated with psychological ill-effects and resilience. DASS-21 depression, anxiety and stress scores were high; these were associated with difficulties with infection control measures, autism diagnosis, and need for early intervention services. For caregivers of children with ASD, our DASS-21 scores were significantly higher than non-pandemic scores locally and in other Asian sites. Resilience scores correlated inversely with DASS-21 scores. Targeted support to selected at-risk caregivers and improving resilience can help their coping.

vorige artikel Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum

volgende artikel Correction to: Factors Contributing to Psychological Ill#Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation#wide Lockdown During the COVID#19 Pandemic

American Psychological Association (APA) (2020). Stress in America 2020. Stress in the time of COVID-19: volume one. https://www.apa.org/news/press/releases/stress/2020/stress-in-america-covid.pdf. Accessed 21 Sept 2020.

Antony, M. M., Bieling, P. J., & Cox, B. J. (1998). Psychometric properties of the 42-item and 21-item versions of the depression anxiety stress scales in clinical groups and a community sample. Psychol Assess, 10(2), 176–181. https://doi.org/10.1037/1040-3590.10.2.176CrossRef

Barrero-Castillero, A., Morton, S. U., Nelson, C. A., & Smith, V. C. (2019). Psychosocial stress and adversity: Effects from the perinatal period to adulthood. NeoReviews, 20(12), e686–e696. https://doi.org/10.1542/neo.20-12-e686CrossRefPubMed

Bryant, D. J., Oo, M., & Damian, A. J. (2020). The rise of adverse childhood experiences during the COVID-19 pandemic. Psychological Trauma, 12(S1), S193-s194. https://doi.org/10.1037/tra0000711CrossRefPubMed

Chafouleas, S. M., & Iovino, E. A. (2020). Initial Impact of COVID-19 on the Well-being of Caregivers of Children with and without Disabilities. Storrs, CT: UConn Collaboratory on School and Child Health. https://csch.uconn.edu/wp-content/uploads/sites/2206/2020/07/CSCH-Brief-COVID-19-Impact-on-Caregivers-July-2020.pdf. Accessed 19 March 2021.

Chan, B. S. M., Deng, J., Li, Y., Li, T., Shen, Y., Wang, Y., et al. (2020). The role of self-compassion in the relationship between post-traumatic growth and psychological distress in caregivers of children with autism. Journal of Child and Family Studies, 29(6), 1692–1700. https://doi.org/10.1007/s10826-019-01694-0CrossRef

Chung, S. K. G., Chan, X. W., Lanier, P., & Wong, P. (2020). Associations between work-family balance, parenting stress, and marital conflicts during COVID-19 pandemic in Singapore. OSF Preprints. https://doi.org/10.31219/osf.io/nz9s8CrossRef

Cohrs, A. C., & Leslie, D. L. (2017). Depression in parents of children diagnosed with autism spectrum disorder: A claims-based analysis. Journal of Autism and Developmental Disorders, 47(5), 1416–1422.CrossRef

Connor, K. M., & Davidson, J. R. (2003). Development of a new resilience scale: The connor-davidson resilience scale (CD-RISC). Depression and Anxiety, 18(2), 76–82. https://doi.org/10.1002/da.10113CrossRefPubMed

Department of statistics Singapore (2019). Household - Latest Data. https://www.singstat.gov.sg/find-data/search-by-theme/households/households/latest-data. Accessed 6 Oct 2020.

Fontanesi, L., Marchetti, D., Mazza, C., Di Giandomenico, S., Roma, P., & Verrocchio, M. C. (2020). The effect of the COVID-19 lockdown on parents: A call to adopt urgent measures. Psychological Trauma: Theory, Research, Practice, and Policy, 12(S1), S79–S81. https://doi.org/10.1037/tra0000672CrossRef

Griffith, A. K. (2020). Parental burnout and child maltreatment during the COVID-19 pandemic. J Fam Violence. https://doi.org/10.1007/s10896-020-00172-2CrossRefPubMedPubMedCentral

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-yCrossRefPubMed

Hirani, S., Lasiuk, G., & Hegadoren, K. (2016). The intersection of gender and resilience. Journal of Psychiatric and Mental Health Nursing, 23(6–7), 455–467. https://doi.org/10.1111/jpm.12313CrossRefPubMed

Idele, P., Anthony, D., Mofenson, L. M., Requejo, J., You, D., Luo, C., et al. (2020). The Evolving Epidemiologic and Clinical Picture of SARS-CoV-2 and COVID-19 Disease in Children and Young People. (pp. 1–43). UNICEF Innocenti Research Brief.

Killgore, W. D. S., Taylor, E. C., Cloonan, S. A., & Dailey, N. S. (2020). Psychological resilience during the COVID-19 lockdown. Psychiatry Research, 291, 113216. https://doi.org/10.1016/j.psychres.2020.113216CrossRefPubMedPubMedCentral

King, T., Hewitt, B., Crammond, B., Sutherland, G., Maheen, H., & Kavanagh, A. (2020). Reordering gender systems: Can COVID-19 lead to improved gender equality and health? The Lancet, 396(10244), 80–81.CrossRef

Lai, W. W., Goh, T. J., Oei, T. P., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(8), 2582–2593. https://doi.org/10.1007/s10803-015-2430-9CrossRefPubMed

Lovibond, P. F., & Lovibond, S. H. (1995). The structure of negative emotional states: Comparison of the depression anxiety stress scales (DASS) with the beck depression and anxiety inventories. Behaviour Research and Therapy, 33(3), 335–343. https://doi.org/10.1016/0005-7967(94)00075-UCrossRefPubMed

Oei, T. P., Sawang, S., Goh, Y. W., & Mukhtar, F. (2013). Using the depression anxiety stress scale 21 (DASS-21) across cultures. International Journal of Psychology, 48(6), 1018–1029. https://doi.org/10.1080/00207594.2012.755535CrossRefPubMed

Ong, H. L., Vaingankar, J. A., Abdin, E., Sambasivam, R., Fauziana, R., Tan, M.-E., et al. (2018). Resilience and burden in caregivers of older adults: Moderating and mediating effects of perceived social support. BMC Psychiatry, 18(1), 1–9. https://doi.org/10.1186/s12888-018-1616-zCrossRef

Pietromonaco, P. R., & Overall, N. C. (2020). Applying relationship science to evaluate how the COVID-19 pandemic may impact couples’ relationships. The American Psychologist. https://doi.org/10.1037/amp0000714CrossRefPubMed

Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620. https://doi.org/10.1007/s10803-013-2028-zCrossRefPubMed

Russell, B., Hutchison, M., Tambling, R., Tomkunas, A., & Horton, A. (2020). Initial challenges of caregiving during COVID-19: Caregiver burden, mental health, and the parent–child relationship. Child Psychiatry & Human Development, 51(5), 671–682. https://doi.org/10.1007/s10578-020-01037-xCrossRef

Salari, N., Hosseinian-Far, A., Jalali, R., Vaisi-Raygani, A., Rasoulpoor, S., Mohammadi, M., et al. (2020). Prevalence of stress, anxiety, depression among the general population during the COVID-19 pandemic: A systematic review and meta-analysis. Globalization and Health, 16(1), 1–11. https://doi.org/10.1186/s12992-020-00589-wCrossRef

Sanders, L. M. (2020). Is COVID-19 an adverse childhood experience (ACE): Implications for screening for primary care. The Journal of Pediatrics, 222, 4–6. https://doi.org/10.1016/j.jpeds.2020.05.064CrossRefPubMedCentral

Scherer, N., Verhey, I., & Kuper, H. (2019). Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis. PloS one, 14(7), e0219888.CrossRef

Selvakumar, N., & Panicker, A. S. (2020). Stress and coping styles in mothers of children with autism spectrum disorder. Indian Journal of Psychological Medicine, 42(3), 225–232.CrossRef

United Nations Children's Fund (UNICEF) (2020). Coronavirus (COVID-19) parenting tips. https://www.unicef.org/coronavirus/covid-19-parenting-tips#13. Accessed 21 Sept 2020.

United nations educational scientific and cultural organization (UNESCO) (2020). Adverse consequences of school closures. https://en.unesco.org/covid19/educationresponse/consequences. Accessed 1 Oct 2020.

Waite, P., Patalay, P., Moltrecht, B., McElroy, E., & Creswell, C. (2020). COVID-19 worries, parent/carer stress and support needs, by child special educational needs and parent/carer work status. https://emergingminds.org.uk/wp-content/uploads/2020/05/Co-SPACE-report-02_03-05-20.pdf. Accessed 1 Oct 2020.

Wang, C., Pan, R., Wan, X., Tan, Y., Xu, L., Ho, C. S., et al. (2020). Immediate psychological responses and associated factors during the initial stage of the 2019 coronavirus disease (COVID-19) epidemic among the general population in China. International Journal of Environmental Research and Public Health, 17(5), 1729. https://doi.org/10.3390/ijerph17051729CrossRefPubMedCentral

Wang, L., Li, D., Pan, S., Zhai, J., Xia, W., Sun, C., et al. (2021). The relationship between 2019-nCoV and psychological distress among parents of children with autism spectrum disorder. Globalization and Health, 17(1), 1–14.CrossRef

Yoshikawa, H., Wuermli, A. J., Britto, P. R., Dreyer, B., Leckman, J. F., Lye, S. J., et al. (2020). Effects of the global coronavirus disease-2019 pandemic on early childhood development: short- and long-term risks and mitigating program and policy actions. The Journal of Pediatrics, 223, 188–193. https://doi.org/10.1016/j.jpeds.2020.05.020CrossRefPubMedPubMedCentral

Zhou, W., Liu, D., Xiong, X., & Xu, H. (2019). Emotional problems in mothers of autistic children and their correlation with socioeconomic status and the children’s core symptoms. Medicine, 98(32), e16794–e16794. https://doi.org/10.1097/MD.0000000000016794CrossRefPubMedPubMedCentral

Titel: Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic
Auteurs: Tammy S. H. Lim
Mae Yue Tan
Ramkumar Aishworiya
Ying Qi Kang
Magdalena Yvonne Koh
Liang Shen
Shang Chee Chong
Publicatiedatum: 08-07-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 7/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05180-9

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 7/2022

The Early Start Denver Model Intervention and Mu Rhythm Attenuation in Autism Spectrum Disorders

Brief Report: The Effectiveness of Hugging a Huggable Device Before Having a Conversation with an Unfamiliar Person for Autism Spectrum Disorders

Correction to: Assessment of Autism Spectrum Disorder in Deaf Adults with Intellectual Disability: Feasibility and Psychometric Properties of an Adapted Version of the Autism Diagnostic Observation Schedule (ADOS-2)

Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study

The Efficacy and Impact of a Special Education Legislative Advocacy Program Among Parents of Children with Disabilities

Parenting an Autistic Child: Experiences of Parents with Significant Autistic Traits