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11-01-2022 | Original Paper

Exploring the Advocacy Experiences of Military Families with Children Who Have Disabilities

Tijdschrift:
Journal of Child and Family Studies
Auteurs:
Janeth Aleman-Tovar, Kristen Schraml-Block, Robyn DiPietro-Wells, Meghan Burke
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Publisher’s note Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Abstract

When children with disabilities receive appropriate services, they experience long-term developmental benefits. Yet, military families of children with disabilities in the United States report lacking access to needed services and having difficulty navigating service delivery systems. Unlike civilian families, military families face added stressors such as deployment and relocation. Parent advocacy may be critical for military families of children with disabilities to access needed services. However, little research has explored advocacy among military families. The purpose of this exploratory study was to examine the advocacy experiences of military families of children with disabilities. Using a snowballing sampling, we conducted individual interviews with 11 military parents of children with disabilities from five states. Participants reported unique military experiences (e.g., satisfaction with the coverage of their healthcare program but had difficulty navigating healthcare policies), barriers to advocacy (e.g., limited school resources), and facilitators to advocacy (e.g., perseverance and resilience). Based on the findings, implications for practice and research are discussed.

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