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04-05-2023 | Original Paper

Examining Cultural and Linguistic Sensitivity of Pathways Early Autism Intervention with Hispanic Families

Auteurs: Pamela Rosenthal Rollins, Cristina Rangel-Uribe, Raúl Rojas, Sara Brantley

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2024

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Abstract

Purpose: This research aimed to evaluate evidence of Pathways parent-mediated early autism intervention as a culturally and linguistically sensitive intervention (CLSI) for Hispanic families with autistic children. Methods: We used Bernal et al.’s ecologically valid (EV) framework to evaluate current practice and Hispanic parents’ perceptions of Pathways 1 ½ years after completing the intervention. Both quantitative and qualitative methods were used. Nineteen parents were contacted, of which 11 completed a semi-structured interview about their experience with Pathways. Results: On average, the group that completed the interview was less educated, had more monolingual Spanish speakers, and rated their general experience with the intervention slightly more positively than those who did not agree to complete the interview. A review of Pathways’s current practices through the lens of the EV framework suggested that Pathways was a CLSI for Hispanic participants in the domains of context, methods, language, and persons. Parental interviews echoed these strengths. However, Pathways did less well balancing evidence-based intervention strategies for autistic children with the heritage value of respeto. Conclusion: Pathways demonstrated strengths regarding cultural and linguistic sensitivity for Hispanic families with young autistic children. Future work with our community stakeholder group will integrate heritage and majority culture perspectives to strengthen Pathways as a CLSI.
Voetnoten
1
The Autism and Developmental Disabilities Monitoring (ADDM) network obtains the Centers for Disease Control and Prevention prevalence and child characteristics estimates by analyzing developmental evaluations and records from community medical and educational services of eight-year-old autistic children in 11 states. The 1 in 44 estimate was obtained in 2018 and included children at all levels of functioning.
 
2
Identity-first language is used for autistic children because it has been found to be generally preferred by autistic individuals (Bottema-Beutel et al., 2021).
 
3
We use the term parent to refer to any primary caregiver participating in the study.
 
Literatuur
go back to reference Abidin, R. R. (2012). Parenting stress index, Fourth Edition (PSI-4.). Psychological Assessment Resources (PAR, Inc.). Abidin, R. R. (2012). Parenting stress index, Fourth Edition (PSI-4.). Psychological Assessment Resources (PAR, Inc.).
go back to reference Aishworiya, R., Goh, T. J., Sung, M., & Tay, S. K. H. (2021). Correlates of adaptive skills in children with autism spectrum disorder. Autism, 25(6), 1592–1600.CrossRefPubMed Aishworiya, R., Goh, T. J., Sung, M., & Tay, S. K. H. (2021). Correlates of adaptive skills in children with autism spectrum disorder. Autism, 25(6), 1592–1600.CrossRefPubMed
go back to reference Bruner, J. S. (1981). The social context of language acquisition. Language & Communication, 1(2–3), 155–178.CrossRef Bruner, J. S. (1981). The social context of language acquisition. Language & Communication, 1(2–3), 155–178.CrossRef
go back to reference Gray, L. M., Wong-Wylie, G., Rempel, G. R., & Cook, K. (2020). Expanding qualitative research interviewing strategies: Zoom video communications. The qualitative report, 25(5), 1292–1301. Gray, L. M., Wong-Wylie, G., Rempel, G. R., & Cook, K. (2020). Expanding qualitative research interviewing strategies: Zoom video communications. The qualitative report, 25(5), 1292–1301.
go back to reference Lim, N., O’Reilly, M. F., Sigafoos, J., & Lancioni, G. E. (2018). Understanding the linguistic needs of diverse individuals with autism spectrum disorder: Some comments on the research literature and suggestions for clinicians. Journal of Autism and Developmental Disorders, 48(8), 2890–2895. https://doi.org/10.1007/s10803-018-3532-yCrossRefPubMed Lim, N., O’Reilly, M. F., Sigafoos, J., & Lancioni, G. E. (2018). Understanding the linguistic needs of diverse individuals with autism spectrum disorder: Some comments on the research literature and suggestions for clinicians. Journal of Autism and Developmental Disorders, 48(8), 2890–2895. https://​doi.​org/​10.​1007/​s10803-018-3532-yCrossRefPubMed
go back to reference Lord, C., Luyster, R., Gotham, K., & Guthrie, W. (2012). Autism Diagnostic Observation Schedule (2nd ed.; ADOS-2). Western Psychological Services. Lord, C., Luyster, R., Gotham, K., & Guthrie, W. (2012). Autism Diagnostic Observation Schedule (2nd ed.; ADOS-2). Western Psychological Services.
go back to reference Maenner, M. J., Shaw, K. A., Bakian, A. V., Bilder, D. A., Durkin, M. S., Esler, A., Furnier, S. M., Hallas, L., Hall-Lande, J., Hudson, A., Hughes, M. M., Patrick, M., Pierce, K., Poynter, J. N., Salinas, A., Shenouda, J., Vehorn, A., Warren, Z., Constantino, J. N., … Cogswell, M. E. (2021). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2018. MMWR Surveillance Summaries, 70(11), 1–16. https://doi.org/10.15585/mmwr.ss7011a1CrossRefPubMedCentral Maenner, M. J., Shaw, K. A., Bakian, A. V., Bilder, D. A., Durkin, M. S., Esler, A., Furnier, S. M., Hallas, L., Hall-Lande, J., Hudson, A., Hughes, M. M., Patrick, M., Pierce, K., Poynter, J. N., Salinas, A., Shenouda, J., Vehorn, A., Warren, Z., Constantino, J. N., … Cogswell, M. E. (2021). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2018. MMWR Surveillance Summaries, 70(11), 1–16. https://​doi.​org/​10.​15585/​mmwr.​ss7011a1CrossRefPubMedCentral
go back to reference Magaña, S., Dababnah, S., Xu, Y., Torres, M. G., Rieth, S. R., Corsello, C., Rangel, E., Brookman-Frazee, L., & Vanegas, S. B. (2021). Cultural adaptations of a parent training program for families of children with ASD/IDD: Parents taking action. In N. R. Riggs & B. Rigles (Eds.), International review of research in developmental disabilities (Vol. 61, pp. 263–300). Academic Press. https://doi.org/10.1016/bs.irrdd.2021.07.005 Magaña, S., Dababnah, S., Xu, Y., Torres, M. G., Rieth, S. R., Corsello, C., Rangel, E., Brookman-Frazee, L., & Vanegas, S. B. (2021). Cultural adaptations of a parent training program for families of children with ASD/IDD: Parents taking action. In N. R. Riggs & B. Rigles (Eds.), International review of research in developmental disabilities (Vol. 61, pp. 263–300). Academic Press. https://​doi.​org/​10.​1016/​bs.​irrdd.​2021.​07.​005
go back to reference Martinez-Torres, K., Boorom, O., Peredo, T. N., Camarata, S., & Lense, M. D. (2021). Using the ecological validity model to adapt parent-involved interventions for children with Autism Spectrum Disorder in the Latinx Community: A conceptual review. Research in Developmental Disabilities, 116, https://doi.org/10.1016/j.ridd.2021.104012. Martinez-Torres, K., Boorom, O., Peredo, T. N., Camarata, S., & Lense, M. D. (2021). Using the ecological validity model to adapt parent-involved interventions for children with Autism Spectrum Disorder in the Latinx Community: A conceptual review. Research in Developmental Disabilities, 116, https://​doi.​org/​10.​1016/​j.​ridd.​2021.​104012.
go back to reference Ohashi, J. K., Mirenda, P., Marinova-Todd, S., Hambly, C., Fombonne, E., Szatmari, P., Bryson, S., Roberts, W., Smith, I., Vaillancourt, T., Volden, J., Waddell, C., Zwaigenbaum, L., Georgiades, S., Duku, E., Thompson, A., & Pathways in ASD Study Team. (2012). Comparing early language development in monolingual-and bilingual-exposed young children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6(2), 890–897. https://doi.org/10.1016/j.rasd.2011.12.002CrossRef Ohashi, J. K., Mirenda, P., Marinova-Todd, S., Hambly, C., Fombonne, E., Szatmari, P., Bryson, S., Roberts, W., Smith, I., Vaillancourt, T., Volden, J., Waddell, C., Zwaigenbaum, L., Georgiades, S., Duku, E., Thompson, A., & Pathways in ASD Study Team. (2012). Comparing early language development in monolingual-and bilingual-exposed young children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6(2), 890–897. https://​doi.​org/​10.​1016/​j.​rasd.​2011.​12.​002CrossRef
go back to reference Paradis, J., Genesee, F., & Crago, M. B. (2011). Dual language development and disorders: A handbook on bilingualism and second language learning (2nd ed.), Paul H. Brookes Publishing Co. Paradis, J., Genesee, F., & Crago, M. B. (2011). Dual language development and disorders: A handbook on bilingualism and second language learning (2nd ed.), Paul H. Brookes Publishing Co.
go back to reference Punnett, B. J., Ford, D., Galperin, B. L., & Lituchy, T. (2017). The emic-etic-emic research cycle. AIB Insights, 17(1), 3–6.CrossRef Punnett, B. J., Ford, D., Galperin, B. L., & Lituchy, T. (2017). The emic-etic-emic research cycle. AIB Insights, 17(1), 3–6.CrossRef
go back to reference Rollins, P. R., De Froy, A., Campbell, M., & Hoffman, R. T. (2021). Mutual gaze: An active ingredient for social development in toddlers with ASD: A randomized control trial. Journal of Autism and Developmental Disorders, 51(6), 1921–1938. https://doi.org/10.1007/s10803-020-04672-4 Rollins, P. R., De Froy, A., Campbell, M., & Hoffman, R. T. (2021). Mutual gaze: An active ingredient for social development in toddlers with ASD: A randomized control trial. Journal of Autism and Developmental Disorders, 51(6), 1921–1938. https://​doi.​org/​10.​1007/​s10803-020-04672-4
go back to reference Rollins, P. R., John, S., Jones, A., & De Froy, A. (2019). Pathways Early ASD Intervention as a moderator of parenting stress on parenting behaviors: A randomized control trial. Journal of Autism and Developmental Disorders, 49(10), 4280–4293. https://doi.org/10.1007/s10803-019-04144-4 Rollins, P. R., John, S., Jones, A., & De Froy, A. (2019). Pathways Early ASD Intervention as a moderator of parenting stress on parenting behaviors: A randomized control trial. Journal of Autism and Developmental Disorders, 49(10), 4280–4293. https://​doi.​org/​10.​1007/​s10803-019-04144-4
go back to reference Rush, D. D., & Shelden, M. L. L. (2011). The early childhood coaching handbook. Brookes. Rush, D. D., & Shelden, M. L. L. (2011). The early childhood coaching handbook. Brookes.
go back to reference Saldaña, J. (2016). The coding manual for qualitative researchers (3rd ed.). SAGE Publications Ltd. Saldaña, J. (2016). The coding manual for qualitative researchers (3rd ed.). SAGE Publications Ltd.
go back to reference Sameroff, A. (2009). The transactional model of development: How children shape each other. American Psychological Association. Sameroff, A. (2009). The transactional model of development: How children shape each other. American Psychological Association.
go back to reference Schreibman, L., Dawson, G., Stahmer, A. C., Landa, R., Rogers, S. J., McGee, G. G., Kasari, C., Ingersoll, B., Kaiser, A. P., Bruinsma, Y., McNerney, E., Wetherby, A., & Halladay, A. (2015). Naturalistic developmental behavioral interventions: Empirically validated treatments for autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(8), 2411–2428. https://doi.org/10.1007/s10803-015-2407-8CrossRefPubMedPubMedCentral Schreibman, L., Dawson, G., Stahmer, A. C., Landa, R., Rogers, S. J., McGee, G. G., Kasari, C., Ingersoll, B., Kaiser, A. P., Bruinsma, Y., McNerney, E., Wetherby, A., & Halladay, A. (2015). Naturalistic developmental behavioral interventions: Empirically validated treatments for autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(8), 2411–2428. https://​doi.​org/​10.​1007/​s10803-015-2407-8CrossRefPubMedPubMedCentral
go back to reference Shrider, E. A., Kollar, M., Chen, F., Semega, J. (2021). U.S. Census Bureau, current Population reports, P60-273, Income and poverty in the United States: 2020. U.S. Government Publishing Office, Washington, DC. Shrider, E. A., Kollar, M., Chen, F., Semega, J. (2021). U.S. Census Bureau, current Population reports, P60-273, Income and poverty in the United States: 2020. U.S. Government Publishing Office, Washington, DC.
go back to reference Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland Adaptive Behavior Scales (2nd ed.). NCS Pearson. Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland Adaptive Behavior Scales (2nd ed.). NCS Pearson.
go back to reference United States Census Bureau. (n.d.) Quick facts. BLINDED COUNTY, Dallas County, Texas. United States Census Bureau. (n.d.) Quick facts. BLINDED COUNTY, Dallas County, Texas.
go back to reference Wetherby, A., & Prizant, B. (2002). Communication and Symbolic Behavior Scales– Developmental Profile (1st normed ed.). Paul H. Brookes. Wetherby, A., & Prizant, B. (2002). Communication and Symbolic Behavior Scales– Developmental Profile (1st normed ed.). Paul H. Brookes.
go back to reference Winsler, A., Burchinal, M. R., Tien, H. C., Peisner-Feinberg, E., Espinosa, L., Castro, D. C., LaForett, D., Kim, Y. K., & De Feyter, J. (2014). Early development among dual language learners: The roles of language use at home, maternal immigration, country of origin, and socio-demographic variables. Early Childhood Research Quarterly, 29(4), 750–764. https://doi.org/10.1016/j.ecresq.2014.02.008CrossRef Winsler, A., Burchinal, M. R., Tien, H. C., Peisner-Feinberg, E., Espinosa, L., Castro, D. C., LaForett, D., Kim, Y. K., & De Feyter, J. (2014). Early development among dual language learners: The roles of language use at home, maternal immigration, country of origin, and socio-demographic variables. Early Childhood Research Quarterly, 29(4), 750–764. https://​doi.​org/​10.​1016/​j.​ecresq.​2014.​02.​008CrossRef
Metagegevens
Titel
Examining Cultural and Linguistic Sensitivity of Pathways Early Autism Intervention with Hispanic Families
Auteurs
Pamela Rosenthal Rollins
Cristina Rangel-Uribe
Raúl Rojas
Sara Brantley
Publicatiedatum
04-05-2023
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-023-06003-9