Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 7/2014

01-07-2014 | Original Paper

Ethnicity Reporting Practices for Empirical Research in Three Autism-Related Journals

Auteurs: Nigel P. Pierce, Mark F. O’Reilly, Audrey M. Sorrells, Christina L. Fragale, Pamela J. White, Jeannie M. Aguilar, Heather A. Cole

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2014

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

This review examines ethnicity reporting in three autism-related journals (Autism, Focus on Autism and Other Developmental Disabilities, and Journal of Autism and Developmental Disorders) over a 6-year period. A comprehensive multistep search of articles is used to identify ethnicity as a demographic variable in these three journals. Articles that identified research participants’ ethnicity were further analyzed to determine the impact of ethnicity as a demographic variable on findings of each study. The results indicate that ethnicity has not been adequately reported in these three autism related journals even though previous recommendations have been made to improve inadequacies of descriptive information of research participants in autism research (Kistner and Robbins in J Autism Dev Disord 16:77–82, 1986). Implications for the field of autism spectrum disorders are discussed in addition to further recommendations for future research.
Literatuur
go back to reference American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
go back to reference Artiles, A. J., Rueda, R., Salazar, J., & Higareda, I. (2005). Within-group diversity in minority disproportionate representation: English language learners in urban school districts. Exceptional Children, 71, 283–300. CrossRef Artiles, A. J., Rueda, R., Salazar, J., & Higareda, I. (2005). Within-group diversity in minority disproportionate representation: English language learners in urban school districts. Exceptional Children, 71, 283–300. CrossRef
go back to reference Artiles, A. J., Trent, S. C., & Kuan, L. (1997). Learning disabilities empirical research on ethnic minority students: An analysis of 22 years of studies published in selected refereed journals. Learning Disabilities Research & Practice, 12(2), 82–91. Artiles, A. J., Trent, S. C., & Kuan, L. (1997). Learning disabilities empirical research on ethnic minority students: An analysis of 22 years of studies published in selected refereed journals. Learning Disabilities Research & Practice, 12(2), 82–91.
go back to reference Bos, C., & Fletcher, T. (1997). Sociocultural considerations in learning disabilities inclusion research: Knowledge gaps and future directions. Learning Disabilities Research and Practice, 12(2), 92–99. Bos, C., & Fletcher, T. (1997). Sociocultural considerations in learning disabilities inclusion research: Knowledge gaps and future directions. Learning Disabilities Research and Practice, 12(2), 92–99.
go back to reference Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(3), 1–19. Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(3), 1–19.
go back to reference Davis, N., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291. doi: 10.​1007/​s10803-007-0512-z. PubMedCrossRef Davis, N., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291. doi: 10.​1007/​s10803-007-0512-z. PubMedCrossRef
go back to reference Dyches, T., Wilder, L., Sudweeks, R., Obiakor, F., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34, 211–222. PubMedCrossRef Dyches, T., Wilder, L., Sudweeks, R., Obiakor, F., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34, 211–222. PubMedCrossRef
go back to reference Estrem, T. L., & Zhang, S. (2010). Prevalence and disproportionality of autism spectrum disorders among English language learners in Minnesota. Multiple Voices for Ethnically Diverse Exceptional Learners, 12(2), 5–20. Estrem, T. L., & Zhang, S. (2010). Prevalence and disproportionality of autism spectrum disorders among English language learners in Minnesota. Multiple Voices for Ethnically Diverse Exceptional Learners, 12(2), 5–20.
go back to reference Fisch, G. S., Simensen, R. J., & Schroer, R. J. (2002). Longitudinal changes in cognitive and adaptive behavior scores in children and adolescents with the Fragile X mutation or autism. Journal of Autism and Developmental Disorders, 32(2), 107–114. doi: 10.​1023/​A:​1014888505185. PubMedCrossRef Fisch, G. S., Simensen, R. J., & Schroer, R. J. (2002). Longitudinal changes in cognitive and adaptive behavior scores in children and adolescents with the Fragile X mutation or autism. Journal of Autism and Developmental Disorders, 32(2), 107–114. doi: 10.​1023/​A:​1014888505185. PubMedCrossRef
go back to reference Hampton, E. O., Whitney, D., & Schwartz, I. S. (2002). Weaving assessment information into intervention ideas: Planning communication interventions for young children with disabilities. Assessment for Effective Intervention, 27(4), 49–59. doi: 10.​1177/​0737247702027004​06. CrossRef Hampton, E. O., Whitney, D., & Schwartz, I. S. (2002). Weaving assessment information into intervention ideas: Planning communication interventions for young children with disabilities. Assessment for Effective Intervention, 27(4), 49–59. doi: 10.​1177/​0737247702027004​06. CrossRef
go back to reference Hilton, C., Fitzgerald, R., Jackson, K., Maxim, R., Bosworth, C., Shattuck, P., et al. (2010). Brief report: Under-representation of African Americans in autism genetic research: A rationale for inclusion of subjects representing diverse family structures. Journal of Autism and Developmental Disorders, 40, 633–639. doi: 10.​1007/​s10803-009-0905-2. PubMedCentralPubMedCrossRef Hilton, C., Fitzgerald, R., Jackson, K., Maxim, R., Bosworth, C., Shattuck, P., et al. (2010). Brief report: Under-representation of African Americans in autism genetic research: A rationale for inclusion of subjects representing diverse family structures. Journal of Autism and Developmental Disorders, 40, 633–639. doi: 10.​1007/​s10803-009-0905-2. PubMedCentralPubMedCrossRef
go back to reference Hoffman, C. D., Sweeney, D. P., Gilliam, J. E., & Lopez-Wagner, M. C. (2006). Sleep problems in children with autism and in typically developing children. Focus on Autism and Other Developmental Disabilities, 21(3), 146–152. doi: 10.​1177/​1088357606021003​0301. CrossRef Hoffman, C. D., Sweeney, D. P., Gilliam, J. E., & Lopez-Wagner, M. C. (2006). Sleep problems in children with autism and in typically developing children. Focus on Autism and Other Developmental Disabilities, 21(3), 146–152. doi: 10.​1177/​1088357606021003​0301. CrossRef
go back to reference Hoffman, C. D., Sweeney, D. P., Lopez-Wagner, M. C., Hodge, D., Nam, C. Y., & Botts, B. H. (2008). Children with autism: Sleep problems and mothers’ stress. Focus on Autism and Other Developmental Disabilities, 23(3), 155–165. doi: 10.​1177/​1088357608316271​. CrossRef Hoffman, C. D., Sweeney, D. P., Lopez-Wagner, M. C., Hodge, D., Nam, C. Y., & Botts, B. H. (2008). Children with autism: Sleep problems and mothers’ stress. Focus on Autism and Other Developmental Disabilities, 23(3), 155–165. doi: 10.​1177/​1088357608316271​. CrossRef
go back to reference Jarquin, V. G., Wiggins, L. D., Schieve, L. A., & Van Naarden-Braun, K. (2011). Racial disparities in community identification of autism spectrum disorders over time; Metropolitan Atlanta, Georgia, 2000–2006. Journal of Developmental and Behavioral Pediatrics, 32, 179–187. doi: 10.​1097/​DBP.​0b013e31820b4260​. PubMedCrossRef Jarquin, V. G., Wiggins, L. D., Schieve, L. A., & Van Naarden-Braun, K. (2011). Racial disparities in community identification of autism spectrum disorders over time; Metropolitan Atlanta, Georgia, 2000–2006. Journal of Developmental and Behavioral Pediatrics, 32, 179–187. doi: 10.​1097/​DBP.​0b013e31820b4260​. PubMedCrossRef
go back to reference Jegatheesan, B., Miller, P. J., & Fowler, S. A. (2010). Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families. Focus on Autism and Other Developmental Disabilities, 25, 98–109. doi: 10.​1177/​1088357610361344​. CrossRef Jegatheesan, B., Miller, P. J., & Fowler, S. A. (2010). Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families. Focus on Autism and Other Developmental Disabilities, 25, 98–109. doi: 10.​1177/​1088357610361344​. CrossRef
go back to reference Klingner, J. K., Sorrells, A. M., & Barrera, M. T. (2007). Considerations when implementing response to intervention models with culturally and linguistically diverse students. In D. Haager, S. Vaughn, & J. Klingner (Eds.), Evidence-based reading practices for response to intervention (pp. 223–244). Baltimore, MD: Brookes. Klingner, J. K., Sorrells, A. M., & Barrera, M. T. (2007). Considerations when implementing response to intervention models with culturally and linguistically diverse students. In D. Haager, S. Vaughn, & J. Klingner (Eds.), Evidence-based reading practices for response to intervention (pp. 223–244). Baltimore, MD: Brookes.
go back to reference Lin, S. S., & Kelsey, J. L. (2000). Use of race and ethnicity in epidemiologic research: Concepts, methodological issues, and suggestions for research. Epidemiologic Review, 22, 187–202. CrossRef Lin, S. S., & Kelsey, J. L. (2000). Use of race and ethnicity in epidemiologic research: Concepts, methodological issues, and suggestions for research. Epidemiologic Review, 22, 187–202. CrossRef
go back to reference Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics, 29(3), 152–160. doi: 10.​1097/​DBP.​0b013e318165c7a0​. PubMedCrossRef Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics, 29(3), 152–160. doi: 10.​1097/​DBP.​0b013e318165c7a0​. PubMedCrossRef
go back to reference Machalicek, W., O’Reilly, M., Beretvas, N., Sigafoos, J., Lancioni, G., Sorrells, A., et al. (2008). A review of school-based instructional interventions for students with autism spectrum disorders. Research in Autism Spectrum Disorders, 2, 395–416. CrossRef Machalicek, W., O’Reilly, M., Beretvas, N., Sigafoos, J., Lancioni, G., Sorrells, A., et al. (2008). A review of school-based instructional interventions for students with autism spectrum disorders. Research in Autism Spectrum Disorders, 2, 395–416. CrossRef
go back to reference Mandell, D., Listerud, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 1447–1453. PubMedCrossRef Mandell, D., Listerud, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 1447–1453. PubMedCrossRef
go back to reference McCray, A., & García, S. B. (2002). The stories we must tell: Developing a research agenda for multicultural and bilingual special education. International Journal of Qualitative Studies in Education, 15, 599–612. doi: 10.​1080/​0951839022000014​330. CrossRef McCray, A., & García, S. B. (2002). The stories we must tell: Developing a research agenda for multicultural and bilingual special education. International Journal of Qualitative Studies in Education, 15, 599–612. doi: 10.​1080/​0951839022000014​330. CrossRef
go back to reference Morrier, M. J., Hess, K. L., & Heflin, L. (2008). Ethnic disproportionality in students with autism spectrum disorders. Multicultural Education, 16, 31–38. Morrier, M. J., Hess, K. L., & Heflin, L. (2008). Ethnic disproportionality in students with autism spectrum disorders. Multicultural Education, 16, 31–38.
go back to reference Morris, R., Lyon, G. R., Alexander, D., Gray, D. B., Kavanagh, J., Rourke, B. P., et al. (1994). Editorial: Proposed guidelines and criteria for describing samples of persons with learning disabilities. Learning Disability Quarterly, 17(2), 106–109. doi: 10.​2307/​1511180. Morris, R., Lyon, G. R., Alexander, D., Gray, D. B., Kavanagh, J., Rourke, B. P., et al. (1994). Editorial: Proposed guidelines and criteria for describing samples of persons with learning disabilities. Learning Disability Quarterly, 17(2), 106–109. doi: 10.​2307/​1511180.
go back to reference Murray, M. M., Ackerman-Spain, K., Williams, E. U., & Ryley, A. T. (2011). Knowledge is power: Empowering the autism community through parent–professional training. The School Community Journal, 21, 19–36. Murray, M. M., Ackerman-Spain, K., Williams, E. U., & Ryley, A. T. (2011). Knowledge is power: Empowering the autism community through parent–professional training. The School Community Journal, 21, 19–36.
go back to reference Overton, S., & Rausch, J. L. (2002). Peer relationships as support for children with disabilities: An analysis of mothers’ goals and indicators for friendship. Focus on Autism and Other Developmental Disabilities, 17, 11–29. doi: 10.​1177/​1088357602017001​02. CrossRef Overton, S., & Rausch, J. L. (2002). Peer relationships as support for children with disabilities: An analysis of mothers’ goals and indicators for friendship. Focus on Autism and Other Developmental Disabilities, 17, 11–29. doi: 10.​1177/​1088357602017001​02. CrossRef
go back to reference Parette, P., Chuang, S. L., & Huer, M. (2004). First-generation Chinese American families’ attitudes regarding disabilities and educational interventions. Focus on Autism and Other Developmental Disabilities, 19(2), 114–123. doi: 10.​1177/​1088357604019002​0701. CrossRef Parette, P., Chuang, S. L., & Huer, M. (2004). First-generation Chinese American families’ attitudes regarding disabilities and educational interventions. Focus on Autism and Other Developmental Disabilities, 19(2), 114–123. doi: 10.​1177/​1088357604019002​0701. CrossRef
go back to reference Pugach, M. C. (2001). The stories we choose to tell: Fulfilling the promise of qualitative research for special education. Exceptional Children, 67, 439–453. CrossRef Pugach, M. C. (2001). The stories we choose to tell: Fulfilling the promise of qualitative research for special education. Exceptional Children, 67, 439–453. CrossRef
go back to reference Raad, J., Bellinger, S., McCormick, E., Roberts, M., & Steele, R. (2008). Brief report: Reporting practices of methodological information in four journals of pediatric and child psychology. Journal of Pediatric Psychology, 33, 688–693. PubMedCrossRef Raad, J., Bellinger, S., McCormick, E., Roberts, M., & Steele, R. (2008). Brief report: Reporting practices of methodological information in four journals of pediatric and child psychology. Journal of Pediatric Psychology, 33, 688–693. PubMedCrossRef
go back to reference Reed, D., Sorrells, A., Cole, H., & Takawawa, N. (2013). The ecological and population validity of reading interventions for adolescents: Can effectiveness be generalized? Learning Disabilities Quarterly, 36, 131–144. CrossRef Reed, D., Sorrells, A., Cole, H., & Takawawa, N. (2013). The ecological and population validity of reading interventions for adolescents: Can effectiveness be generalized? Learning Disabilities Quarterly, 36, 131–144. CrossRef
go back to reference Rivers, J., & Stoneman, Z. (2008). Child temperaments, differential parenting, and the sibling relationships of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 38(9), 1740–1750. doi: 10.​1007/​s10803-008-0560-z. PubMedCrossRef Rivers, J., & Stoneman, Z. (2008). Child temperaments, differential parenting, and the sibling relationships of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 38(9), 1740–1750. doi: 10.​1007/​s10803-008-0560-z. PubMedCrossRef
go back to reference Rodriguez, D. (2009). Culturally and linguistically diverse students with autism. Childhood Education, 85, 313. CrossRef Rodriguez, D. (2009). Culturally and linguistically diverse students with autism. Childhood Education, 85, 313. CrossRef
go back to reference Rosenberg, R. E., Mandell, D. S., Farmer, J. E., Law, J., Marvin, A. R., & Law, P. A. (2010). Psychotropic medication use among children with autism spectrum disorders enrolled in a national registry, 2007–2008. Journal of Autism and Developmental Disorders, 40(3), 342–351. doi: 10.​1007/​s10803-009-0878-1. PubMedCrossRef Rosenberg, R. E., Mandell, D. S., Farmer, J. E., Law, J., Marvin, A. R., & Law, P. A. (2010). Psychotropic medication use among children with autism spectrum disorders enrolled in a national registry, 2007–2008. Journal of Autism and Developmental Disorders, 40(3), 342–351. doi: 10.​1007/​s10803-009-0878-1. PubMedCrossRef
go back to reference Shanawani, H. H., Dame, L. L., Schwartz, D. A., & Cook-Deegan, R. R. (2006). Non-reporting and inconsistent reporting of race and ethnicity in articles that claim associations among genotype, outcome, and race or ethnicity. Journal of Medical Ethics: Journal of the Institute of Medical Ethics, 32, 724–728. doi: 10.​1136/​jme.​2005.​014456. CrossRef Shanawani, H. H., Dame, L. L., Schwartz, D. A., & Cook-Deegan, R. R. (2006). Non-reporting and inconsistent reporting of race and ethnicity in articles that claim associations among genotype, outcome, and race or ethnicity. Journal of Medical Ethics: Journal of the Institute of Medical Ethics, 32, 724–728. doi: 10.​1136/​jme.​2005.​014456. CrossRef
go back to reference Shin, M., & Sorrells, A. M. (2012). How first-grade Korean English learners respond to scientifically-validated instruction in reading comprehension. Journal of Bilingual Education and Instruction, 14(1), 7–27. Shin, M., & Sorrells, A. M. (2012). How first-grade Korean English learners respond to scientifically-validated instruction in reading comprehension. Journal of Bilingual Education and Instruction, 14(1), 7–27.
go back to reference Sifers, S., Puddy, R., Warren, J., & Roberts, M. (2002). Reporting of demographics, methodology, and ethical procedures in journals in pediatric and child psychology. Journal of Pediatric Psychology, 27(1), 19–25. PubMedCrossRef Sifers, S., Puddy, R., Warren, J., & Roberts, M. (2002). Reporting of demographics, methodology, and ethical procedures in journals in pediatric and child psychology. Journal of Pediatric Psychology, 27(1), 19–25. PubMedCrossRef
go back to reference Simpson, R. L., & Sasso, G. M. (1992). Full inclusion of students with autism in general education settings: Values versus science. Focus on Autistic Behavior, 7(3), 1–13. Simpson, R. L., & Sasso, G. M. (1992). Full inclusion of students with autism in general education settings: Values versus science. Focus on Autistic Behavior, 7(3), 1–13.
go back to reference Smith, T., McAdam, D., & Napolitano, D. (2007). Autism and applied behavior analysis. In P. Sturmey & A. Fitzer (Eds.), Autism spectrum disorders: Applied behavior analysis, evidence, and practice (pp. 1–29). Austin, TX: Pro-ed. Smith, T., McAdam, D., & Napolitano, D. (2007). Autism and applied behavior analysis. In P. Sturmey & A. Fitzer (Eds.), Autism spectrum disorders: Applied behavior analysis, evidence, and practice (pp. 1–29). Austin, TX: Pro-ed.
go back to reference Symes, W., & Humphrey, N. (2011). School factors that facilitate or hinder the ability of teaching assistants to effectively support pupils with autism spectrum disorders (ASDs) in mainstream secondary schools. Journal of Research in Special Educational Needs, 11(3), 153–161. CrossRef Symes, W., & Humphrey, N. (2011). School factors that facilitate or hinder the ability of teaching assistants to effectively support pupils with autism spectrum disorders (ASDs) in mainstream secondary schools. Journal of Research in Special Educational Needs, 11(3), 153–161. CrossRef
go back to reference Twyman, J. S., & Sota, M. (2008). Identifying research-based practices for response to intervention: Scientifically based instruction. Journal of Evidence-Based Practices for Schools, 9(2), 86–101. Twyman, J. S., & Sota, M. (2008). Identifying research-based practices for response to intervention: Scientifically based instruction. Journal of Evidence-Based Practices for Schools, 9(2), 86–101.
go back to reference Volker, M. A., Lopata, C., Smerbeck, A. M., Knoll, V. A., Thomeer, M. L., Toomey, J. A., et al. (2010). BASC-2 PRS profiles for students with high-functioning autism spectrum disorders. Journal of Autism and Developmental Disorders, 40(2), 188–199. doi: 10.​1007/​s10803-009-0849-6. PubMedCrossRef Volker, M. A., Lopata, C., Smerbeck, A. M., Knoll, V. A., Thomeer, M. L., Toomey, J. A., et al. (2010). BASC-2 PRS profiles for students with high-functioning autism spectrum disorders. Journal of Autism and Developmental Disorders, 40(2), 188–199. doi: 10.​1007/​s10803-009-0849-6. PubMedCrossRef
go back to reference Wilder, L. K., Dyches, T., Obiakor, F. E., & Algozzine, B. (2004). Multicultural perspectives on teaching students with autism. Focus on Autism & Other Developmental Disabilities, 19(2), 105–113. CrossRef Wilder, L. K., Dyches, T., Obiakor, F. E., & Algozzine, B. (2004). Multicultural perspectives on teaching students with autism. Focus on Autism & Other Developmental Disabilities, 19(2), 105–113. CrossRef
go back to reference Wing, L. (1988). The continuum of autistic characteristics. In E. Schopler & G. Mesibov (Eds.), Diagnosis and assessment in autism (pp. 91–110). New York, NY: Plenum. CrossRef Wing, L. (1988). The continuum of autistic characteristics. In E. Schopler & G. Mesibov (Eds.), Diagnosis and assessment in autism (pp. 91–110). New York, NY: Plenum. CrossRef
Metagegevens
Titel
Ethnicity Reporting Practices for Empirical Research in Three Autism-Related Journals
Auteurs
Nigel P. Pierce
Mark F. O’Reilly
Audrey M. Sorrells
Christina L. Fragale
Pamela J. White
Jeannie M. Aguilar
Heather A. Cole
Publicatiedatum
01-07-2014
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2014
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-014-2041-x