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01-08-2007 | Original Paper | bijlage 1/2007

Quality of Life Research 1/2007

Enhancing measurement in health outcomes research supported by Agencies within the US Department of Health and Human Services

Quality of Life Research > bijlage 1/2007
Bryce B. Reeve, Laurie B. Burke, Yen-pin Chiang, Steven B. Clauser, Lisa J. Colpe, Jeffrey W. Elias, John Fleishman, Ann A. Hohmann, Wendy L. Johnson-Taylor, William Lawrence, Claudia S. Moy, Louis A. Quatrano, William T. Riley, Barbara A. Smothers, Ellen M. Werner
Belangrijke opmerkingen
This paper was written by authors in their capacity as employees of the US Department of Health and Human Services (DHHS), but the views expressed in this paper do not necessarily represent those of their Institute, Agency, or Center of DHHS.


Many of the Institutes, Agencies and Centers that make up the US Department of Health and Human Services (DHHS) have recognized the need for better instrumentation in health outcomes research, and provide support, both internally and externally, for research utilizing advances in measurement theory and computer technology (informatics). In this paper, representatives from several DHHS agencies and institutes will discuss their need for better instruments within their discipline and describe current or future initiatives for exploring the benefits of these technologies. Together, the perspectives underscore the importance of developing valid, precise, and efficient measures to capture the full burden of disease and treatment on patients. Initiatives, like the Patient-Reported Outcomes Measurement Information System (PROMIS) to create health-related quality of life item banks, represent a trans-DHHS effort to develop a standard set of measures for informing decision making in clinical research, practice, and health policy.

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