Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften E-learning Web-tv Video Audio
Tips voor Mijn BSL
UITGEBREID ZOEKEN
Inloggen
Top
Journal of Child and Family Studies
Gepubliceerd in: Journal of Child and Family Studies 5/2020

02-11-2019 | Original Paper

Engaging Families of Children with Type 1 Diabetes into a Randomised Controlled Trial of a Brief Parenting Group Program

Auteurs: Alina Morawska, Amy E. Mitchell, Aditi Lohan

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 5/2020

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Objective

Parenting interventions have demonstrated some potential for effectiveness in improving psychosocial and health outcomes for children with type 1 diabetes (T1D) and their families. However, most interventions have been tested with parents of adolescents, and engagement of parents of younger children into parenting interventions remains problematic. This study aimed to assess the feasibility and acceptability of the Positive Parenting for Healthy Living program for parents of children with T1D.

Methods

We describe our experiences with engagement and recruitment of parents of 2- to 10-year-old children with T1D into a randomised controlled trial of a brief parenting intervention. Engagement, including rates of enrolment, assessment completion and session participation, as well as feasibility were assessed at multiple time points during the trial using multiple measures.

Results

We share our learnings in delivering and evaluating a parenting intervention for this population. In particular, we explore reasons for the low rate of enrolment, parents’ resistance in opening up about their problems, possible discrepancies between parent and practitioner views on the nature and extent of emotional and behavioural problems, and how better to target engagement efforts in the future.

Conclusions

We offer recommendations for engaging parents in future trials and parenting intervention initiatives.
vorige artikel Somatization, Fatigue, and Quality of Life in Children and Adolescents with Chronic Pain
volgende artikel Child Chronic Illness and Parent Work-Family Conflict: Investigating the Experiences of Working Parents
Literatuur
Asarnow, J. R., Rozenman, M., Wiblin, J., & Zeltzer, L. (2015). Integrated medical-behavioral care compared with usual primary care for child and adolescent behavioral health: a meta-analysisintegrated child/adolescent medical-behavioral primary careintegrated child/adolescent medical-behavioral primary care. JAMA Pediatrics, 169(10), 929–937.CrossRef
Barakat, L. P., Patterson, C. A., Mondestin, V., Chavez, V., Austin, T., & Robinson, M. R., et al. (2013). Initial development of a questionnaire evaluating perceived benefits and barriers to pediatric clinical trials participation. Contemporary Clinical Trials, 34(2), 218–226.CrossRef
Boogerd, E. A., Damhuis, A. M. A., van Alfen-van der Velden, J. A. E. M., Steeghs, M. C. C. H., Noordam, C., & Verhaak, C. M., et al. (2015). Assessment of psychosocial problems in children with type 1 diabetes and their families: the added value of using standardised questionnaires in addition to clinical estimations of nurses and paediatricians. Journal of Clinical Nursing, 24(15-16), 2143–2151.CrossRef
Children’s Health Queensland Hospital and Health Service. (2018). Integrated care strategy. Brisbane, Australia: State of Queensland (Queensland Health).
Chisholm, V., Gonzalez, A., & Atkinson, L. (2014). Interpersonal engagement mediates the relation between maternal affect and externalising behaviour in young children with type 1 diabetes. PLoS ONE, 9(6), e97672.CrossRef
Clarke, S. A., Calam, R., Morawska, A., & Sanders, M. (2014). Developing web-based Triple P ‘Positive Parenting Programme’ for families of children with asthma. Child, 40(4), 492–497.
Corralejo, S. M., & Domenech Rodríguez, M. M. (2018). Technology in parenting programs: a systematic review of existing interventions. Journal of Child and Family Studies, 27(9), 2717–2731.CrossRef
Feldman, M. A., Anderson, L. M., Shapiro, J. B., Jedraszko, A. M., Evans, M., & Weil, L. E. G., et al. (2018). Family-based interventions targeting improvements in health and family outcomes of children and adolescents with type 1 diabetes: a systematic review. Current Diabetes Reports, 18(3), 15.CrossRef
Fogel, N. R., & Weissberg-Benchell, J. (2010). Preventing poor psychological and health outcomes in pediatric type 1 diabetes. Current Diabetes Reports, 10(6), 436–443.CrossRef
Gonzalez, C., Morawska, A., & Haslam, D. (2018). Enhancing initial parental engagement in interventions for parents of young children: a systematic review of experimental studies. Clinical Child and Family Psychology Review, 21(3), 415–432.CrossRef
Greene, M. S., Mandleco, B., Roper, S. O., Marshall, E. S., & Dyches, T. (2010). Metabolic control, self-care behaviors, and parenting in adolescents with type 1 diabetes: a correlational study. The Diabetes Educator, 36(2), 326–336.CrossRef
Gruhn, M. A., Lord, J. H., & Jaser, S. S. (2016). Collaborative and overinvolved parenting differentially predict outcomes in adolescents with type 1 diabetes. Health Psychology, 35(7), 652–660.CrossRef
Herbert, L. J., Gillespie, C., Monaghan, M., Holmes, C., & Streisand, R. (2016). Factors associated with recruitment and retention in randomized controlled trials of behavioral interventions for patients with pediatric type 1 diabetes. Journal of Clinical Psychology in Medical Settings, 23(2), 112–125.CrossRef
Kaminski, J. W., & Claussen, A. H. (2017). Evidence base update for psychosocial treatments for disruptive behaviors in children. Journal of Clinical Child & Adolescent Psychology, 46(4), 477–499.CrossRef
Karlson, C. W., & Rapoff, M. A. (2009). Attrition in randomized controlled trials for pediatric chronic conditions. Journal of Pediatric Psychology, 34(7), 782–793.CrossRef
Lohan, A., Mitchell, A., Filus, A., Sofronoff, K., & Morawska, A. (2016). Positive parenting for healthy living (Triple P) for parents of children with type 1 diabetes: protocol of a randomised controlled trial. BMC Pediatrics, 16(1), 158.CrossRef
Lohan, A., Morawska, A., & Mitchell, A. (2015). A systematic review of parenting interventions for parents of children with type 1 diabetes. Child: Care, Health & Development, 41(6), 803–817.
Mackey, E. R., Herbert, L., Monaghan, M., Cogen, F., Wang, J., & Streisand, R. (2016). The feasibility of a pilot intervention for parents of young children newly diagnosed with type 1 diabetes. Clinical Practice in Pediatric Psychology, 4(1), 35–50.CrossRef
Mazza, Vd. A., Lima, V. Fd, Carvalho, A. Kd. S., Weissheimer, G., & Soares, L. G. (2017). Online information as support to the families of children and adolescents with chronic disease. Revista Gaúcha de Enfermagem, 38, e63475.CrossRef
McBroom, L. A., & Enriquez, M. (2009). Review of family-centered interventions to enhance the health outcomes of children with type 1 diabetes. The Diabetes Educator, 35(3), 428–438.CrossRef
Mitchell, A., Morawska, A., & Grambower, J. (2019). Parents of children with type 1 diabetes: relationships between parental shame, autonomy support, and diabetes management. Manuscript in preparation.
Monaghan, M., Horn, I. B., Alvarez, V., Cogen, F. R., & Streisand, R. (2012). Authoritative parenting, parenting stress, and self-care in pre-adolescents with type 1 diabetes. Journal of Clinical Psychology in Medical Settings, 19(3), 255–261.CrossRef
Morawska, A., Calam, R., & Fraser, J. (2015). Parenting interventions for childhood chronic illness: a review and recommendations for intervention design and delivery. Journal of Child Health Care, 19(1), 5–17.CrossRef
Morawska, A., Mitchell, A., Burgess, S., & Fraser, J. (2016). Effects of triple P parenting intervention on child health outcomes for childhood asthma and eczema: randomised controlled trial. Behaviour Research and Therapy, 83, 35–44.CrossRef
Morawska, A., Mitchell, A., Burgess, S., & Fraser, J. (2017). Fathers’ perceptions of change following parenting intervention: randomised controlled trial of triple P for parents of children with asthma or eczema. Journal of Pediatric Psychology, 42(7), 792–803.CrossRef
Morawska, A., Mitchell, A., Burgess, S., & Fraser, J. (2017). Randomised controlled trial of triple P for parents of children with asthma or eczema: effects on parenting and child behaviour. Journal of Consulting and Clinical Psychology, 85(4), 283–296.CrossRef
Morawska, A., & Sanders, M. R. (2011). Positive parenting for healthy living parent discussion group. Brisbane: Parenting and Family Support Centre, The University of Queensland.
Robinson, L., Adair, P., Coffey, M., Harris, R., & Burnside, G. (2016). Identifying the participant characteristics that predict recruitment and retention of participants to randomised controlled trials involving children: a systematic review. Trials, 17, 17.CrossRef
Rose, M., Aronow, L., Breen, S., Tully, C., Hilliard, M. E., & Butler, A. M., et al. (2018). Considering culture: a review of pediatric behavioral intervention research in type diabetes. Current Diabetes Reports, 18(4), 10.CrossRef
Sanders, M. R. (2012). Development, evaluation, and multinational dissemination of the triple P-positive parenting program. Annual Review of Clinical Psychology, 8, 345–379.CrossRef
Sanders, M. R., Prinz, R., Sanders, M. R., & Mazzucchelli, T. G. (2018). Emergence of a population approach to evidence-based parenting support. The power of positive parenting: transforming the lives of children, parents and communities using the triple P system. New York, NY: Oxford University Press.
Sassmann, H., de Hair, M., Danne, T., & Lange, K. (2012). Reducing stress and supporting positive relations in families of young children with type 1 diabetes: a randomized controlled study for evaluating the effects of the DELFIN parenting program. BMC Pediatrics, 12(1), 152.CrossRef
Westrupp, E. M., Northam, E., Lee, K. J., Scratch, S. E., & Cameron, F. (2015). Reducing and preventing internalizing and externalizing behavior problems in children with type 1 diabetes: a randomized controlled trial of the triple P-positive parenting program. Pediatric Diabetes, 16(7), 554–563.CrossRef
Whittemore, R., Jaser, S., Chao, A., Jang, M., & Grey, M. (2012). Psychological experience of parents of children with type 1 diabetes: a systematic mixed-studies review. The Diabetes Educator, 38(4), 562–579.CrossRef
Metagegevens
Titel
Engaging Families of Children with Type 1 Diabetes into a Randomised Controlled Trial of a Brief Parenting Group Program
Auteurs
Alina Morawska
Amy E. Mitchell
Aditi Lohan
Publicatiedatum
02-11-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 5/2020
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-019-01648-6

Andere artikelen Uitgave 5/2020

Journal of Child and Family Studies 5/2020 Naar de uitgave

Original Paper

Adverse Childhood Experiences and Outcomes among At-Risk Spanish-Speaking Latino Families

Original Paper

Emotion Socialization and Developmental Risk: Interactive Effects of Receptive Language and Maltreatment on Reminiscing

Review Paper

The Consequences of Type 1 Diabetes Onset On Family Life. An Integrative Review

Original Paper

Violence and Racial Discrimination in South African Youth: Profiles of a Continuum of Exposure

Original Paper

Family Factors and Obesity in Relation to Mental Health Among Korean Children and Adolescents

Original Paper

Somatization, Fatigue, and Quality of Life in Children and Adolescents with Chronic Pain