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Quality of Life Research

Gepubliceerd in:

01-09-2014

Enacted and internalized stigma and quality of life among people with HIV: the role of group identity

Auteurs: Maria J. Fuster-Ruizdeapodaca, Fernando Molero, Francisco Pablo Holgado, Sonia Mayordomo

Gepubliceerd in: Quality of Life Research | Uitgave 7/2014

Abstract

Purpose

This study analyzes the mediating role of social identity in the relationship between enacted stigma and internalized stigma and quality of life of people with HIV.

Methods

A total of 557 people with HIV participated in this study. Participants were recruited from hospitals and non-governmental organizations. Questionnaires measuring perceived stigma (Berger’s HIV Stigma Scale), social identity (Cameron’s three factor identity scale), and quality of life (Ruiz and Baca’s Quality of Life Questionnaire) were administered. The instruments were adapted for use with the Spanish population. Structural equation modeling (SEM) was used to test the mediation model, and multigroup SEM was conducted to evaluate its invariance.

Results

Both enacted stigma and internalized stigma had a negative influence on the quality of life of people with HIV, but this influence occurred in different ways. Enacted stigma had a direct negative influence on quality of life. No dimension of group identity protected people with HIV from its negative influence. However, the negative influence of internalized stigma was totally mediated by some dimensions of group identification, mainly through in-group affect.

Conclusions

Group identification not only did not protect people with HIV from the negative effects of stigmatization, but it may even be detrimental in the case of internalized stigma. This suggests that in highly stigmatized groups, the salience of identity is negative and worsens the members’ opinion of their own group. This argues for different kinds of intervention to improve the quality of life of people with HIV.

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Mahajan, A. P., Sayles, J. N., Patel, V. A., Remien, R. H., Ortiz, D., Szekeres, G., et al. (2008). Stigma in the HIV/AIDS epidemic: A review of the literature and recommendations for the way forward. AIDS, 22(2), 67–79. doi:10.1097/01.aids.0000327438.13291.62.

Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination. A conceptual framework and implications for action. Social Science and Medicine, 57, 13–24. doi:10.1016/S0277-9536(02)00304-0.

Fuster M. J, Molero, F., Gil de Montes, L., Vitoria, A., & Agirrezabal A. (2013). HIV- and AIDS-related stigma: Psychosocial aspects in a representative Spanish sample. Spanish Journal of Psychology, 16, 1–8. doi:10.1017/sjp.2013.52.

Tsutsumi, A., & Izutsu, T. (2010). Quality of life and stigma. In V. R. Preedy & R. R. Watson (Eds.), Handbook of disease burdens and quality of life measures (pp. 3490–3499). New York: Springer. doi:10.1007/978-0-387-78665-0_202.

UNAIDS. (2002). A conceptual framework and basis for action: HIV/AIDS stigma and discrimination. Retrieved from http://data.unaids.org/publications/IRC-pub02/jc891-wac_framework_en.pdf.

Bunn, J. Y., Solomon, S. E., Millar, C., & Forehand, R. (2007). Measurement of stigma in people with HIV: A re-examination of the HIV stigma scale. AIDS Education and Prevention, 19, 198–208. doi:10.1521/aeap.2007.19.3.198.PubMedCrossRef

Herek, G. (2007). Confronting sexual stigma and prejudice: Theory and practice. Journal of Social Issues, 63, 905–925. doi:10.1111/j.1540-4560.2007.00544.x.CrossRef

Herek, G., Gillis, J. R., & Cogan, J. C. (2009). Internalized stigma among sexual minority adults: Insights from a social psychological perspective. Journal of Counseling Psychology, 56, 32–43. doi:10.1037/a0014672.CrossRef

Lee, R. S., Kochman, A., & Sikkema, K. J. (2002). Internalized stigma among people living with HIV-AIDS. AIDS and Behavior, 6, 309–319. doi:10.1023/A:1021144511957.CrossRef

10.

Visser, M. J., Kershaw, T., Makin, J. D., & Forsyth, B. W. C. (2008). Development of parallel scales to measure HIV-related stigma. AIDS Behavior, 12, 759–771. doi:10.1007/s10461-008-9363-7.PubMedCrossRef

11.

Franke, M. F., Muñoz, M., Finnegan, K., Zeladita, J., Sebastian, J. L., Bayona, J. N., et al. (2010). Validation and abbreviation of an HIV stigma scale in an adult spanish-speaking population in urban Peru. AIDS and Behavior, 14(1), 189–199.PubMedCrossRef

12.

Steward, W. T., Chandy, S., Singh, G., Panicker, S. T., Osmand, T. A., Heylen, E., et al. (2011). Depression is not an inevitable outcome of disclosure avoidance: HIV stigma and mental health in a cohort of HIV-infected individuals from southern India. Psychology, Health and Medicine, 16(1), 74–85.PubMedCentralPubMedCrossRef

13.

Logie, C., & Gadalla, T. M. (2009). Meta-analysis of health and demographic correlates of stigma towards people living with HIV. AIDS Care, 21(6), 742–753.PubMedCrossRef

14.

Rao, D., Kekwaletswe, T. C., Hosek, S., Martinez, J., & Rodriguez, F. (2007). Stigma and social barriers to medication adherence with urban youth living with HIV. AIDS Care, 19(1), 28–33.PubMedCrossRef

15.

Rintamaki, L. S., Davis, T. C., Skripkauskas, S., Bennett, C. L., & Wolf, M. S. (2006). Social stigma concerns and HIV medication adherence. AIDS Patient Care & STDs, 20(5), 359–368.CrossRef

16.

Strachan, E. D., Murray, W. R., Russo, J., & Roy-Byrne, P. P. (2007). Disclosure of HIV status and sexual orientation independently predicts increased absolute CD4 cells counts over time for psychiatric patients. Psychosomatic Medicine, 69, 74–80.PubMedCrossRef

17.

Dovidio, F., Major, B., & Crocker, J. (2000). Stigma: Introduction and overview. In T. F. Heatherton, R. E. Kleck, M. R. Hebl, & J. G. Hull (Eds.), The social psychology of stigma (pp. 1–28). New York: Guilford Press.

18.

Branscombe, N. R., Schmitt, M. T., & Harvey, R. D. (1999). Perceiving pervasive discrimination among African Americans: Implications for group identification and well-being. Journal of Personality and Social Psychology, 77, 135–149. doi:10.1037/0022-3514.77.1.135.CrossRef

19.

Outten, H. R., Schmitt, M. T., Garcia, D. M., & Branscombe, N. R. (2009). Coping options: Missing links between minority group identification and psychological well-being. Applied Psychology: An International Review, 58, 146–170. doi:10.1111/j.1464-0597.2008.00386.x.CrossRef

20.

Schmitt, M. T., & Branscombe, N. R. (2002). The meaning and consequences of perceived discrimination in disadvantaged and privileged social groups. In W. Stroebe & M. Hewstone (Eds.), European Review of Social Psychology (Vol. 12, pp. 167–199). Chichester: Wiley. doi:10.1002/0470013478.ch6.

21.

Cameron, J. E. (2004). The three-factor model of identity. Self and Identity, 3, 239–262. doi:10.1080/13576500444000047.CrossRef

22.

Cameron, J., & Lalonde, R. (2001). Social identification and gender-related ideology in women and men. British Journal of Social Psychology, 40, 59–77. doi:10.1348/014466601164696.PubMedCrossRef

23.

Leach, C. W., van Zomeren, M., Zebel, S., Vliek, M. L. W., Pennekamp, S. F., Doosje, B., et al. (2008). Group-level self-definition and self-investment: A hierarchical (multicomponent) model of ingroup identification. Journal of Personality and Social Psychology, 95, 144–165. doi:10.1037/00223514.95.1.144.PubMedCrossRef

24.

Ashmore, R. D., Deaux, K., & McLaughlin-Volpe, T. (2004). An organizing framework for collective identity: Articulation and significance of multidimensionality. Psychological Bulletin, 130, 80–114. doi:10.1037/0033-2909.130.1.80.PubMedCrossRef

25.

Obst, P., & White, K. (2005). Three-dimensional strength of identification across group membership: A confirmatory factor analysis. Self and Identity, 4, 69–80. doi:10.1080/13576500444000182.CrossRef

26.

Molero, F., Fuster, M. J., Jetten, J., & Moriano, J. A. (2011). Living with HIV/AIDS: A psychosocial perspective on coping with prejudice and discrimination. Journal of Applied Psychology, 41, 609–626. doi:10.1111/j.1559-1816.2011.00729.x.

27.

Fuster, M. J. (2011). La percepción del estigma en las personas con VIH: sus efectos y formas de afrontamiento [The perception of stigma in people with HIV: Its effects and ways of coping] (Dissertation). Retrieved from http://e-spacio.uned.es/fez/eserv.php?pid=tesisuned:Psicologia-MJfuster&dsID=Documento.pdf.

28.

Berger, B. E., Ferrans, C. E., & Lashley, F. R. (2001). Measuring stigma in people with HIV: Psychometric assessment of the HIV Stigma Scale. Research in Nursing Health, 24, 518–529. doi:10.1002/nur.10011.PubMedCrossRef

29.

Ruiz, M. A., & Baca, E. (1993). Design and validation of the Quality of Life Questionnaire (Cuestionario de Calidad de Vida, CCV): A generic health-related quality-of-life instrument. European Journal of Psychological Assessment, 9, 19–32.

30.

Agirrezabal, A., Fuster, M. J., & Valencia, J. F. (Eds.). (2009). Informe FIPSE. Integración laboral de las personas con VIH. Estudio sobre la identificación de las necesidades laborales y la actitud empresarial [FIPSE report. Work integration of people with HIV. A study of workforce needs and entrepreneurial attitudes towards people with HIV]. Madrid: FIPSE. Retrieved from http://www.fipse.es/mixto/biblioteca/00000096/00000191/827/20090511172453.pdf.

31.

Oliva, J. (2010). Labour participation of people living with HIV/AIDS in Spain. Health Economics, 19, 491–500. doi:10.1002/hec.1487.PubMedCrossRef

32.

International Test Commission (2010). International Test Commission guidelines for translating and adapting tests. Retrieved from http://intestcom.org/Guidelines/Adapting+Tests.php.

33.

Baron, R. M., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51, 1173–1182.PubMedCrossRef

34.

Chan, W. Y., Lau, S., Nie, Y., Lim, S., & Hogan, D. (2008). Organizational and personal predictors of teacher commitment: The mediating role of teacher efficacy and identification with school. American Educational Research Journal, 45, 597–630.CrossRef

35.

Kalichman, S. C., Simbayi, L. C., Cloete, A., Mthembu, P. P., Mkhonta, R. N., & Ginindza, T. (2009). Measuring AIDS stigmas in people living with HIV/AIDS: The Internalized AIDS-related Stigma Scale. AIDS Care, 21, 87–93. doi:10.1080/09540120802032627.PubMedCrossRef

36.

Mak, W. W. S., Mo, P. K. H., Cheung, R. Y. M., Woo, J., Cheung, F. M., & Lee, D. (2007). Comparative stigma of HIV/AIDS, SARS, and tuberculosis in Hong-Kong. Social Science and Medicine, 63, 1912–1922. doi:10.1016/j.socscimed.2006.04.016.CrossRef

37.

Riggs, S. A., Vosvick, M., & Stallings, S. (2007). Attachment style, stigma and psychological distress among HIV+ adults. Journal of Health Psychology, 12, 922–936. doi:10.1177/1359105307082457.PubMedCrossRef

38.

Cronin, T. J., Levin, S., Branscombe, N. R., van Laar, C., & Tropp, L. R. (2012). Ethnic identification in response to perceived discrimination protects well-being and promotes activism: A longitudinal study of Latino college students. Group Processes and Intergroup Relations, 15, 393–407. doi:10.1177/1368430211427171.CrossRef

39.

Schmitt, M. T., Branscombe, N. R., Kobrynowicz, D., & Owen, S. (2002). Perceiving discrimination against one’s gender group has different implications for well-being in women and men. Personality and Social Psychology Bulletin, 28, 197–210. doi:10.1177/0146167202282006.CrossRef

40.

Garstka, T. A., Schmitt, M. T., Branscombe, N. R., & Hummert, M. L. (2004). How young and older adults differ in their responses to perceived age discrimination. Psychology and Aging, 19, 326–335. doi:10.1037/0882-7974.19.2.326.PubMedCrossRef

41.

Crabtree, J. W., Haslam, S. A., Postmes, T., & Haslam, C. (2010). Mental health support groups, stigma, and self-esteem: Positive and negative implications of group identification. Journal of Social Issues, 66, 553–569. doi:10.1111/j.1540-4560.2010.01662.x.CrossRef

Titel: Enacted and internalized stigma and quality of life among people with HIV: the role of group identity
Auteurs: Maria J. Fuster-Ruizdeapodaca
Fernando Molero
Francisco Pablo Holgado
Sonia Mayordomo
Publicatiedatum: 01-09-2014
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 7/2014
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-014-0653-4

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Abstract

Purpose

Methods

Results

Conclusions

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