Top

Optie A:

Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
Optie B:

Deel de link per e-mail
Link delen

vorige artikel Chinese Mothers’ Sibling Status, Perceived Supp...

volgende artikel Caregiver-reported Positive Changes in Young Su...

Tip

Swipe om te navigeren naar een ander artikel

22-11-2018 | Original Paper | Uitgave 3/2019

Enablers of Behavioral Parent Training for Families of Children with Autism Spectrum Disorder

Tijdschrift:: Journal of Child and Family Studies > Uitgave 3/2019

Auteurs:: Tracy J. Raulston, Meme Hieneman, Nell Caraway, Jordan Pennefather, Naima Bhana

» Toegang tot de volledige tekst krijgen

Abstract

Objective

Children with autism spectrum disorder (ASD) are at an increased risk to develop problem behavior, which can have deleterious effects on child and parental well-being. Because of this, parents are often provided with Behavioral Parent Training (BPT). However, attrition rates in BPT are high, and there is a relative dearth of research investigating factors that influence parental engagement in BPT.

Methods

We ran seven semi-structured online focus groups with a total of 30 parents of children with ASD and related disabilities. Parents were interviewed in order to gain a greater understanding of variables that enable or pose barriers to parental engagement in BPT. An inductive qualitative analysis was conducted by two independent authors.

Results

Our analyses revealed three themes indicating the need for (a) supportive, professional feedback; (b) accessible, flexible, and affordable training; and (c) social-emotional support and community connection in BPT for parents of children with ASD.

Conclusions

Results from this study suggest that parental engagement in BPT for children with ASD may be enhanced if it is relevant to the needs of families, facilitated by responsive professionals, flexible, and readily accessible. Additionally, parents may benefit from BPT that includes social and emotional support, such as assistance connecting with other families and evidence-based strategies to manage the stress associated with parenting a child with ASD and challenging behavior.

Log in om toegang te krijgen

Hier inloggen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijft u als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen uw vak. Met het online abonnement heeft u toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kunt u op uw gemak en wanneer het u het beste uitkomt verdiepen in uw vakgebied.

Meer informatie

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5. 5th edn. Washington, DC: Author. CrossRef

Allen, K. D., & Warzak, W. J. (2000). The problem of parental nonadherence in clinical behavior analysis: effective treatment is not enough. Journal of Applied Behavior Analysis, 33, 373–391. CrossRefPubMedPubMedCentral

Baghdadli, A., Pascal, C., Grisli, S., & Aussilloux, C. (2003). Risk factors for self-injurious behaviours among 222 young children with autistic disorders. Journal of Intellectual Disabilities Research, 47, 622–627. CrossRef

Bernheimer, L. P., Gallimore, R., & Weinser, T. S. (1990). Ecocultural theory as a context for the individual family service plan. Journal of Early Intervention, 14, 219–233. CrossRef

Blackledge, J. T., & Hayes, S. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child and Family Behavior Therapy, 28, 1–18. CrossRef

Bodfish, J. W., Symons, F. J., Parker, D. E., & Lewis, M. H. (2000). Varieties of repetitive behavior in autism: comparisons to mental retardation. Journal of Autism and Developmental Disorders, 30, 237–243. CrossRefPubMedPubMedCentral

Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215. CrossRef

Carr, T., Shih, W., Lawton, K., Lord, C., King, B., & Kasari, C. (2016). The relationship between treatment attendance, adherence, and outcome in a caregiver-mediated intervention for low-resourced families of young children with autism spectrum disorder. Autism, 20, 643–652. CrossRefPubMed

Chacko, A., Jensen, S. A., Lowry, L. S., Cornwell, M., Chimklis, A., Chan, E., Lee, D., & Pulgarin, B. (2016). Engagement in behavioral parent training: review of the literature and implications for practice. Clinical Child and Family Psychology Review, 19, 204–215. CrossRefPubMed

Cho, J. Y., & Lee, E. H. (2014). Reducing confusion about grounded theory and qualitative content analysis. Similarities and differences. The Qualitative Report, 19, 1–20.

Croen, L. A., Shankute, N., Davignon, M., Massolo, M. L., & Yoshida, C. (2017). Demographic and clinical characteristics associated with engagement in behavioral health treatment among children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 47, 3347–3357. CrossRefPubMedPubMedCentral

Dababnah, S., & Parish, S. (2016). Incredible Years Program tailored to parents of preschoolers with autism: pilot results. Research on Social Work Practice, 26, 372–385. CrossRef

Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual and Developmental Disability Research, 54, 266–280. CrossRef

Damschroder, L. J., Aron, D. C., Keith, R. E., Kirsh, S. R., Alexander, J. A., & Lowery, J. C. (2009). Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implementation Science, 4, 1–15. CrossRef

Dingfelder, H. E., & Mandell, D. S. (2011). Bridging the research-to-practice gap in autism intervention: an application of diffusion of innovation theory. Journal of Autism and Developmental Disorders, 41, 597–609. CrossRefPubMedPubMedCentral

Division for Early Childhood (2014). DEC recommended practices in early intervention/early childhood special education 2014. Retrieved from http://www.decsped.org/recommendedpractices.

Dunlap, G., Strain, P., Lee, J. K., Joseph, J., & Leech, N. (2018). A randomized controlled evaluation of Prevent-Teach-Reinforce for young children. Topics in Early Childhood Special Education, 37, 195–205. CrossRef

Durand, V. M., Hieneman, M., Clarke, S., Wang, M., & Rinaldi, M. L. (2012). Positive family intervention for severe challenging behavior: a multisite randomized clinical trial. Journal of Positive Behavior Interventions, 15, 133–143. CrossRef

Eikeseth, S. (2009). Outcome of comprehensive psycho-educational interventions for young children with autism. Research in Developmental Disabilities, 30, 158–178. CrossRefPubMed

Fettig, A., & Barton, E. E. (2014). Parent implementation of function-based intervention to reduce children’s challenging behavior: A literature review. Topics in Early Childhood Special Education, 34, 49–61. CrossRef

Fixsen, D. L., Naoom, S. F., Blasé, K. A., Friedman, R. M., & Wallace, F. (2005). Implementation research: A synthesis of the literature. Tampa, FL: University of South Florida, Louis de la Parte Florida Mental Health Institute, The National Implementation Research Network (FMHI Publication #231).

Frantz, R., Hansen, S. G., & Machalicek, W. (2017). Interventions to promote well-being in parents of children with autism: a systematic review. Review Journal of Autism and Developmental Disorders, 5, 1–20.

Gerow, S., Hagan-Burke, S., Rispoli, M., Gregori, E., Mason, R., & Ninci, J. (2017). A systematic review of parent-implemented functional communication training for children with ASD. Behavior Modification, 42, 335–363. CrossRefPubMed

Hartley, S. L., Sikora, D. M., & McCoy, R. (2008). Prevalence and risk factors of maladaptive behaviour in young children with autistic disorder. Journal of Intellectual Disability Research, 52, 1–11. CrossRef

Hieneman, M., & Fefer, S. A. (2017). Employing the principles of positive behavior support to enhance family education and intervention. Journal of Child and Family Studies, 26, 2655–2688. CrossRef

Howlin, P., Magiati, I., & Charman, T. (2009). Systematic review of early intensive behavioral interventions for children with autism. American Journal on Intellectual and Developmental Disabilities, 114, 23–41. CrossRefPubMedPubMedCentral

Ibanez, L. V., Kibak, K., Swanson, A., Wallace, L., Warren, Z., & Stone, W. L. (2018). Enhancing interactions during daily routines: a randomized controlled trial of a web-based tutorial for parents of young children with ASD. Autism Research, 11, 667–678. CrossRefPubMedPubMedCentral

Ingersoll, B., Shannon, K., Berger, N., Pickard, K., & Holtz, B. (2017). Self-directed telehealth parent-mediated intervention for children with autism spectrum disorder: examination of the potential reach and utilization in community settings. Journal of Medical Internet Research, 19, 1–11. CrossRef

Ingersoll, B., Wainer, A. L., Berger, N. I., Pickard, K. E., & Bonter, N. (2016). Comparison of a self-directed and therapist-assisted telehealth parent-mediated intervention for children with ASD: a pilot RCT. Journal of Autism and Developmental Disorders, 46, 2275–2284. CrossRefPubMed

Kanne, S. M., & Mazurek, M. O. (2011). Aggression in children and adolescents with ASD: prevalence and risk factors. Journal of Autism and Developmental Disorders, 41, 926–937. CrossRefPubMed

Klintwall, L., & Eikeseth, S. (2014). Early and intensive behavioral intervention (EIBI) in autism. In V. B. Patel, V. R. Preedy, & C. R. Martin (eds), Comprehensive guide to autism (pp. 117-137). New York, NY: Springer.

Kuhlthau, K. A., Kahn, R., Hill, K. S., Srilakshmi, G., & Ettner, S. L. (2010). The well-being of parental caregivers of children with disabilities. Maternal and Child Health Journal, 14, 155–163. CrossRefPubMed

Kumpfer, K. L., & Alvarado, R. (2003). Family-strengthening approaches for the prevention of youth problem behaviors. American Psychologist, 58, 457–465. CrossRefPubMed

Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183. CrossRefPubMed

Lindgren, S., Wacker, D., & Suess, A. (2016). Telehealth and autism: treating challenging behavior at lower cost. Pediatrics, 137, 167–175. CrossRef

Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., & Fryer, G. E. (2008). Disparities in diagnosis and access to health service for children with autism: data from the National Survey of Children’s Health. Journal of Developmental & Behavioral Pediatrics, 29, 152–160. CrossRef

Love, J. R., Carr, J. E., Almason, S. M., & Petursdottir, A. I. (2009). Early and intensive behavioral intervention for autism: a survey of clinical practices. Research in Autism Spectrum Disorders, 3, 421–428. CrossRef

Lowe, K., Allen, D., Jones, E., Brophy, S., Moore, K., & James, W. (2007). Challenging behaviours: prevalence and topographies. Journal of Intellectual Disability Research, 51, 625–636. CrossRefPubMed

Lucyshyn, J. M., Binnendyk, L., Fossett, B., Cheremshynski, C., Lohrmann, S., Elkinson, L., & Miller, L. (2009). Toward an ecological unit of analysis in behavioral assessment and intervention with families of children with developmental disabilities. In W. Sailor, G. Dunlap, G. Sugai & R. Horner (Eds.), Handbook of positive behavior support (pp. 73–106). Baltimore: Paul H. Brookes.

Lucyshyn, J. M., Fossett, B., Bakeman, R., Cheremshynski, C., Miller, L., Lohrmann, S., & Irvin, L. K. (2015). Transforming parent-child interaction in family routines: longitudinal analysis with families of children with developmental disabilities. Journal of Child and Family Studies, 24, 3526–3541. CrossRefPubMedPubMedCentral

Machalicek, W., Lequia, J., Pinkelman, S., Knowles, C., Raulston, T., Davis, T., & Alresheed, F. (2016). Behavioral telehealth consultation with families of children with autism spectrum disorder. Behavioral Interventions, 31, 223–250. CrossRef

Madsen, W. C. (2007). Collaborative therapy with multi-stressed families: Second edition. New York, NY: The Guilford Press.

McConnell, D., Parakkal, M., Savage, A., & Rempel, G. (2015). Parent-mediated intervention: adherence and adverse effects. Disability and Rehabilitation, 37, 864–872. CrossRefPubMed

McIntrye, L. L. (2008a). Adapting Webster-Stratton’s incredible years parent training for children with developmental delay: findings for a treatment group only study. Journal of Intellectual Disability Research, 52, 1176–1192. CrossRef

McIntrye, L. L. (2008b). Parent training for young children with developmental disabilities: randomized controlled trial. American Journal on Mental Retardation, 113, 356–368. CrossRef

McIntyre, L. L., & Brown, M. (2016). Examining the utilization and usefulness of social support for mothers with young children with autism spectrum disorder. Journal of Intellectual & Developmental Disability, 43, 93–101. CrossRef

Miles, M. B., & Huberman, A. M. (1994). Qualitative Data Analysis. 2nd edn. Thousand Oaks, CA: Sage Publications.

Moes, D. R., & Frea, W. D. (2002). Contextualized behavioral support in early intervention for children with autism and their families. Journal of Autism and Developmental Disorders, 32, 519–533. CrossRefPubMed

Moore, T. R., & Symons, F. J. (2011). Adherence to treatment in a behavioral intervention curriculum for parents of children with autism spectrum disorder. Behavior Modification, 35, 570–594. CrossRefPubMed

Murphy, O., Healy, O., & Leader, G. (2009). Risk factors for challenging behaviors among 157 children with autism spectrum disorder in Ireland. Research in Autism Spectrum Disorders, 3, 474–482. CrossRef

National Autism Center. (2015). Findings and conclusions: National Standards Project, Phase 2. Retrieved from http://www.nationalautismcenter.org/resources.

National Implementation Research Network. (2015). Implementation science defined. Retrieved from http://nirn.fpg.unc.edu/learn-implementation/implementation-science-defined

National Professional Development Center on Autism Spectrum Disorders. (2014). Evidence based practices for children, youth, and young adults with autism spectrum disorder. Retrieved from http://autismpdc.fpg.unc.edu.

National Research Council. (2001). Educating children with autism. Washington, DC: The National Academies Press.

Neece, C. L., Green, S. A., & Baker, B. L. (2012). Parenting stress and child behavior problems: A transactional relationship across time. American Journal on Intellectual and Developmental Disabilities, 117, 48–66. CrossRefPubMedPubMedCentral

Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum. Journal of Autism and Developmental Disorders, 38, 1092–1103. CrossRefPubMed

Palinkas, L. A. (2014). Qualitative and mixed methods in mental health services and implementation research. Journal of Clinical Child & Adolescent Psychology, 43, 851–861. CrossRef

Patterson, G. R. (1982). Coercive family process. Eugene, OR: Castalia.

Rogers, E. (2003). Diffusion of innovation. 5th edn. New York, NY: Free Press.

Rogers, S. J., & Vismara, L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical Child & Adolescent Psychology, 37, 8–38. CrossRef

Serketich, W. J., & Dumas, J. E. (1996). The effectiveness of behavioral parent training to modify antisocial behavior in children: A meta-analysis. Behavior Therapy, 27, 17–186. CrossRef

Singh, N. N., Lancioni, G. E., Winton, A. S. W., Karazsia, B. T., Myers, R. E., Latham, L. L., & Singh, J. (2014). Mindfulness-based positive behavior support (MBPBS) for mothers of adolescents with autism spectrum disorder: Effects on adolescents’ behavior and parental stress. Mindfulness, 5, 646–657. CrossRef

Substance Abuse and Mental Health Services Administration. (2011). Interventions for disruptive behavior disorders: evidence-based and promising practices. HHS Pub. No. SMA-11-4634, Rockville, MD: Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services.

Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52, 91–99. CrossRefPubMed

Turnbull, R., & Turnbull, A. (2017). Family engagement: An analysis of IDEA Part C and B requirements. Retrieved from: https://eclkc.ohs.acf.hhs.gov/sites/default/files/video/attachments/inclusion-handout.pdf.

Wacker, D. P., Lee, J. F., Padilla Dalmau, Y. C., Kopelman, T. G., Lindgren, S. D., Kuhle, J., & Waldron, D. B. (2013). Conducting functional communication training via telehealth to reduce the problem behavior of young children with autism. Journal of Developmental and Physical Disabilities, 25, 35–48. CrossRefPubMed

Wallace, K. S., & Rogers, S. J. (2010). Intervening in infancy: Implications for autism spectrum disorders. Journal of Child Psychology and Psychiatry, 51, 1300–1320. CrossRefPubMed

Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., & Schultz, T. R. (2015). Evidence-based practices for children, youth, and young adults with autism spectrum disorder: a comprehensive review. Journal of Autism and Developmental Disorders, 45, 1951–1966. CrossRefPubMedPubMedCentral

Titel: Enablers of Behavioral Parent Training for Families of Children with Autism Spectrum Disorder
Auteurs:: Tracy J. Raulston
Meme Hieneman
Nell Caraway
Jordan Pennefather
Naima Bhana
Publicatiedatum: 22-11-2018
DOI: https://doi.org/10.1007/s10826-018-1295-x
Uitgeverij: Springer US
Tijdschrift: Journal of Child and Family Studies
Uitgave 3/2019
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Abstract

Objective

Methods

Results

Conclusions

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Andere artikelen Uitgave 3/2019

Indulgent Parenting, Helicopter Parenting, and Well-being of Parents and Emerging Adults

Caregiver-reported Positive Changes in Young Survivors of a Terrorist attack

Does the Transdiagnostic EMOTION Intervention Improve Emotion Regulation Skills in Children?

The Stigma of Being a Young Parent: Development of a Measurement Tool and Predictors

An Exploratory Analysis of the Factors Associated with Fathers’ School Involvement in South Korea

Predicting Child Behavior: A Comparative Analysis between Autism Spectrum Disorder and Attention Deficit/Hyperactivity Disorder