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Gepubliceerd in: Journal of Child and Family Studies 3/2023

09-01-2023 | Review

Emotion Regulation among Parents Raising a Child with Disability: A Systematic Review and Conceptual Model

Auteurs: Mor Keleynikov, Joy Benatov, Noga Cohen

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 3/2023

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Abstract

To deal with the stress involved in parenting a child with a disability, parents might benefit from using adaptive emotion regulation (ER) strategies. ER may serve as a protective factor against psychological distress among parents of children with disabilities, as well as promote the healthy development of their child. In this paper, we delineate the factors that contribute to the use of adaptive and maladaptive ER strategies among parents of children with disabilities. To this end, a systematic review using the PRISMA guideline was conducted, targeting studies that examine ER in this population. Thirty-three eligible articles were identified and discussed. We first review which ER strategies have been examined among parents of children with disabilities and the implication of using these strategies on parents’ well-being, parenting style, and child ER. Findings suggest that compared to their counterparts, parents of children with disabilities show emotion dysregulation patterns, which are associated with negative outcomes for both the parents and the child. Conversely, these parents utilize adaptive ER strategies to a lesser degree. Based on this literature review, we propose the Strained Parenting and Emotion Regulation (SPER) model, which posits that ER among parents of children with disabilities may be compromised due to three factors: intensified negative emotions, depleted cognitive resources, and challenging parent-child interactions. The SPER model emphasizes the presence of a vicious cycle, in which these three factors are presumably promoted by the use of maladaptive ER strategies, and their presence in tern limits the use of adaptive ER strategies, leading to the establishment of emotion dysregulation patterns in parents of children with disabilities.
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Literatuur
go back to reference Aguilera, M., Ahufinger, N., Esteve-Gibert, N., Ferinu, L., Andreu, L., & Sanz-Torrent, M. (2021). Vocabulary abilities and parents’ emotional regulation predict emotional regulation in school-age children but not adolescents with and without Developmental Language Disorder. Frontiers in psychology, 5693.‏ https://doi.org/10.3389/fpsyg.2021.748283. Aguilera, M., Ahufinger, N., Esteve-Gibert, N., Ferinu, L., Andreu, L., & Sanz-Torrent, M. (2021). Vocabulary abilities and parents’ emotional regulation predict emotional regulation in school-age children but not adolescents with and without Developmental Language Disorder. Frontiers in psychology, 5693.‏ https://​doi.​org/​10.​3389/​fpsyg.​2021.​748283.
go back to reference Aydin, A. (2022). Examining the mediating role of mindful parenting: a study on the relationship between parental emotion regulation difficulties and problem behaviors of children with ASD. Journal of Autism and Developmental Disorders, 1-11. https://doi.org/10.1007/s10803-022-05455-9. Aydin, A. (2022). Examining the mediating role of mindful parenting: a study on the relationship between parental emotion regulation difficulties and problem behaviors of children with ASD. Journal of Autism and Developmental Disorders, 1-11. https://​doi.​org/​10.​1007/​s10803-022-05455-9.
go back to reference Baumeister, R.F., Zell, A.L., & Tice, D.M. (2007). How emotions facilitate and impair self-regulation. In J.J. Gross (Ed.), Handbook of emotion regulation (pp. 408–426). The Guilford Press. Baumeister, R.F., Zell, A.L., & Tice, D.M. (2007). How emotions facilitate and impair self-regulation. In J.J. Gross (Ed.), Handbook of emotion regulation (pp. 408–426). The Guilford Press.
go back to reference Cantwell, J., Muldoon, O., & Gallagher, S. (2015). The influence of self‐esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities. Journal of Intellectual Disability Research, 59(10), 948–957. https://doi.org/10.1111/jir.12205.CrossRefPubMed Cantwell, J., Muldoon, O., & Gallagher, S. (2015). The influence of self‐esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities. Journal of Intellectual Disability Research, 59(10), 948–957. https://​doi.​org/​10.​1111/​jir.​12205.CrossRefPubMed
go back to reference Carpita, B., Carmassi, C., Calderoni, S., Muti, D., Muscarella, A., Massimetti, G., Cremone, I. M., Gesi, C., Conti, E., Muratori, F., & Dell’Osso, L. (2021). The broad autism phenotype in real-life: clinical and functional correlates of autism spectrum symptoms and rumination among parents of patients with autism spectrum disorder – Corrigendum. CNS Spectrums, 26(4), 435–435. https://doi.org/10.1017/S109285292000139X.CrossRefPubMed Carpita, B., Carmassi, C., Calderoni, S., Muti, D., Muscarella, A., Massimetti, G., Cremone, I. M., Gesi, C., Conti, E., Muratori, F., & Dell’Osso, L. (2021). The broad autism phenotype in real-life: clinical and functional correlates of autism spectrum symptoms and rumination among parents of patients with autism spectrum disorder – Corrigendum. CNS Spectrums, 26(4), 435–435. https://​doi.​org/​10.​1017/​S109285292000139​X.CrossRefPubMed
go back to reference Chen, H., He, T., Xu, M., Zhao, J., Li, L., & Lin, X. (2022). Children’s oppositional defiant disorder symptoms make parents difficult to be nice: Longitudinal association among parent emotion regulation, child emotion regulation and children’s oppositional defiant disorder symptoms in Chinese children with oppositional defiant disorder. Clinical Child Psychology and Psychiatry. https://doi.org/10.1177/13591045211055822. Chen, H., He, T., Xu, M., Zhao, J., Li, L., & Lin, X. (2022). Children’s oppositional defiant disorder symptoms make parents difficult to be nice: Longitudinal association among parent emotion regulation, child emotion regulation and children’s oppositional defiant disorder symptoms in Chinese children with oppositional defiant disorder. Clinical Child Psychology and Psychiatry. https://​doi.​org/​10.​1177/​1359104521105582​2.
go back to reference Deater-Deckard, K. (2008). Parenting Stress. Yale University Press. Deater-Deckard, K. (2008). Parenting Stress. Yale University Press.
go back to reference Gross, J.J., & Thompson, R. (2007). Emotion regulation: conceptual foundations. In J.J. Gross (Ed.), Handbook of emotion regulation (pp. 3–24). The Guilford Press. Gross, J.J., & Thompson, R. (2007). Emotion regulation: conceptual foundations. In J.J. Gross (Ed.), Handbook of emotion regulation (pp. 3–24). The Guilford Press.
go back to reference Hannah, M., Rea Reina, S., Factor Deanna, M., & Swain Angela, S. (2019). The Association of the Broader Autism Phenotype with Emotion-Related Behaviors in Mothers of Children With and Without Autism Spectrum Traits. Journal of Autism and Developmental Disorders, 49(3), 950–959. https://doi.org/10.1007/s10803-018-3785-5.CrossRef Hannah, M., Rea Reina, S., Factor Deanna, M., & Swain Angela, S. (2019). The Association of the Broader Autism Phenotype with Emotion-Related Behaviors in Mothers of Children With and Without Autism Spectrum Traits. Journal of Autism and Developmental Disorders, 49(3), 950–959. https://​doi.​org/​10.​1007/​s10803-018-3785-5.CrossRef
go back to reference Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Association on Mental Retardation, 107, 116–127. 10.1352/0895-8017(2002)107%3C0116:PPIFOC%3E2.0.CO;2.CrossRef Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Association on Mental Retardation, 107, 116–127. 10.1352/0895-8017(2002)107%3C0116:PPIFOC%3E2.0.CO;2.CrossRef
go back to reference Hayes, S. C., Strosahl, K., Wilson, K. G., Bissett, R. T., Pistorello, J., Toarmino, D., Polusny, M. A., Dykstra, T. A., Batten, S. V., Bergan, J., Stewart, S. H., Zvolensky, M. J., Eifert, G. H., Bond, F. W., Forsyth, J. P., Karekla, M., & McCurry, S. M. (2004). Measuring experiential avoidance: a preliminary test of a working model. The Psychological Record, 54(4), 553–578. https://doi.org/10.1007/BF03395492.CrossRef Hayes, S. C., Strosahl, K., Wilson, K. G., Bissett, R. T., Pistorello, J., Toarmino, D., Polusny, M. A., Dykstra, T. A., Batten, S. V., Bergan, J., Stewart, S. H., Zvolensky, M. J., Eifert, G. H., Bond, F. W., Forsyth, J. P., Karekla, M., & McCurry, S. M. (2004). Measuring experiential avoidance: a preliminary test of a working model. The Psychological Record, 54(4), 553–578. https://​doi.​org/​10.​1007/​BF03395492.CrossRef
go back to reference Hosenbocus, S., & Chahal, R. (2012). A review of executive function deficits and pharmacological management in children and adolescents. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 21(3), 223–229.PubMedPubMedCentral Hosenbocus, S., & Chahal, R. (2012). A review of executive function deficits and pharmacological management in children and adolescents. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 21(3), 223–229.PubMedPubMedCentral
go back to reference Jones, L., Hastings, R. P., Totsika, V., Keane, L., & Rhule, N. (2014). Child behavior problems and parental well-being in families of children with autism: the mediating role of mindfulness and acceptance. American Journal on. Intellectual and Developmental Disabilities, 119(2), 171–185. https://doi.org/10.1352/1944-7558-119.2.171.CrossRef Jones, L., Hastings, R. P., Totsika, V., Keane, L., & Rhule, N. (2014). Child behavior problems and parental well-being in families of children with autism: the mediating role of mindfulness and acceptance. American Journal on. Intellectual and Developmental Disabilities, 119(2), 171–185. https://​doi.​org/​10.​1352/​1944-7558-119.​2.​171.CrossRef
go back to reference Kambouras, M. (2018). Emotions, cognitions, and discipline in parents of children with autism spectrum disorder. St. John’s University (New York). Kambouras, M. (2018). Emotions, cognitions, and discipline in parents of children with autism spectrum disorder. St. John’s University (New York).
go back to reference Kiełb, K., Bargiel-Matusiewicz, K.M., & Pisula, E. (2019). Posttraumatic stress symptoms and posttraumatic growth in mothers of children with intellectual disability – the role of intrusive and deliberate ruminations: a preliminary report. Frontiers in Psychology, 10. https://doi.org/10.3389/fpsyg.2019.02011. Kiełb, K., Bargiel-Matusiewicz, K.M., & Pisula, E. (2019). Posttraumatic stress symptoms and posttraumatic growth in mothers of children with intellectual disability – the role of intrusive and deliberate ruminations: a preliminary report. Frontiers in Psychology, 10. https://​doi.​org/​10.​3389/​fpsyg.​2019.​02011.
go back to reference McClure, K. S., Halpern, J., Wolper, P. A., & Donahue, J. J. (2009). Emotion regulation and intellectual disability. Journal on Developmental Disabilities, 15(2), 38–44. McClure, K. S., Halpern, J., Wolper, P. A., & Donahue, J. J. (2009). Emotion regulation and intellectual disability. Journal on Developmental Disabilities, 15(2), 38–44.
go back to reference Stein, A., Craske, M. G., Lehtonen, A., Harvey, A., Savage-McGlynn, E., Davies, B., Goodwin, J., Murray, L., Cortina-Borja, M., & Counsell, N. (2012). Maternal cognitions and mother-infant interaction in postnatal depression and generalized anxiety disorder. Journal of Abnormal Psychology, 121(4), 795–809. https://doi.org/10.1037/a0026847.CrossRefPubMedPubMedCentral Stein, A., Craske, M. G., Lehtonen, A., Harvey, A., Savage-McGlynn, E., Davies, B., Goodwin, J., Murray, L., Cortina-Borja, M., & Counsell, N. (2012). Maternal cognitions and mother-infant interaction in postnatal depression and generalized anxiety disorder. Journal of Abnormal Psychology, 121(4), 795–809. https://​doi.​org/​10.​1037/​a0026847.CrossRefPubMedPubMedCentral
go back to reference Tamres, L. K., Janicki, D., & Helgeson, V. S. (2002). Sex differences in coping behavior: a meta-analytic review and an examination of relative coping. Personality and social psychology review, 6(1), 2–30. 10.1207%2FS15327957PSPR0601_1.CrossRef Tamres, L. K., Janicki, D., & Helgeson, V. S. (2002). Sex differences in coping behavior: a meta-analytic review and an examination of relative coping. Personality and social psychology review, 6(1), 2–30. 10.1207%2FS15327957PSPR0601_1.CrossRef
go back to reference Troy, A. S., & Mauss, I. B. (2011). Resilience in the face of stress: Emotion regulation as a protective factor. Resilience and mental health: Challenges across the lifespan, 1(2), 30–44.CrossRef Troy, A. S., & Mauss, I. B. (2011). Resilience in the face of stress: Emotion regulation as a protective factor. Resilience and mental health: Challenges across the lifespan, 1(2), 30–44.CrossRef
Metagegevens
Titel
Emotion Regulation among Parents Raising a Child with Disability: A Systematic Review and Conceptual Model
Auteurs
Mor Keleynikov
Joy Benatov
Noga Cohen
Publicatiedatum
09-01-2023
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 3/2023
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-022-02530-8

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