Top

Optie A:

Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
Optie B:

Deel de link per e-mail
Link delen

vorige artikel Parenting and Children’s Internalizing Symptoms...

volgende artikel Measuring the Parenting Practices of Custodial ...

Tip

Swipe om te navigeren naar een ander artikel

01-04-2015 | Original Paper | Uitgave 12/2015

Embracing Each Other and Growing Together: Redefining the Meaning of Caregiving a Child with Disabilities

Tijdschrift:: Journal of Child and Family Studies > Uitgave 12/2015

Auteurs:: Yoon-Joo Lee, Hye Jun Park, Susan L. Recchia

» Toegang tot de volledige tekst krijgen

Abstract

The present study examined the dynamic and complex nature of raising children with disabilities focusing on the processes that mothers went through as they came to embrace their children within their family life context over time. Narratives of parenting experiences were obtained via in-depth interviews of eleven mothers whose children were at different ages, ranging from 6 to 35. Their narratives showed that the process of embracing the child’s disability is gradual. Many mothers in this study were fully aware of their children’s limitations but at the same time, looking for better ways to support them. As mothers mature in their roles as caregivers and are able to transform their perspectives through a deliberate reflective process, their children can also become partners with their mothers and self-advocates who seek to take charge of their own lives in the midst of life challenges. The findings in this study pointed to the importance of a process-oriented approach with a strength-based focus while considering contextually rich family dynamics and how they change over time.

Log in om toegang te krijgen

Hier inloggen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijft u als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen uw vak. Met het online abonnement heeft u toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kunt u op uw gemak en wanneer het u het beste uitkomt verdiepen in uw vakgebied.

Meer informatie

Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behavior problems and parenting stress over time. Journal of Intellectual Disability Research, 47(4/5), 217–230. CrossRefPubMed

Blacher, J. (1984). Sequential stages of parental adjustment to the birth of a child with handicaps: Fact or artifact? Mental Retardation, 22, 55–68. PubMed

Breitkreuz, R., Wunderli, L., Savage, A., & McConnell, D. (2014). Rethinking resilience in families of children with disabilities: A socioecological approach. Community, Work, and Family, 17(3), 1–20. CrossRef

Bristol, M. M., Gallagher, J. J., & Schopler, E. (1988). Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support. Developmental Psychology, 24, 441–451. CrossRef

Bristor, M. W. (1984). The birth of a handicapped child—A wholistic model for grieving. Family Relations, 33, 25–32. CrossRef

Carter, B., & McGoldrick, M. (1989). The changing family life cycle: A framework for family therapy (2nd ed.). Boston, MA: Allyn and Bacon.

De Mol, J., & Buysse, A. (2008). The phenomenology of children’s influence on parents. Journal of Family Therapy, 30, 163–193. CrossRef

Dyson, L. L. (1993). Response to the presence of a child with disabilities: Parental stress and family functioning over time. American Journal of Mental Retardation, 98, 207–218. PubMed

Ferrell, B. R., Grant, M. M., Funk, B., Otis-Green, S., & Garcia, N. (1997). Quality of life in breast cancer survivors as identified by focus groups. Psycho-Oncology, 6, 13–23. CrossRefPubMed

Folkman, S., & Moskowitz, J. T. (2000). Positive affect and the other side of coping. American Psychologist, 55(6), 647–654. CrossRefPubMed

Gallagher, P. A., Fialka, J., Rhodes, C., & Arceneaux, C. (2002). Working with families: Rethinking denial. Young Exceptional Children, 5(2), 11–17. CrossRef

Gerstein, E. D., Crnic, K. A., Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53(12), 981–997. PubMedCentralCrossRefPubMed

Grant, G., Ramcharan, P., & Flynn, M. (2007). Resilience in families with children and adult members with intellectual disabilities: Tracing elements of a psycho-social model. Journal of Applied Research in Intellectual Disabilities, 20, 563–575. CrossRef

Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27(3), 215–222. CrossRef

Gray, D. E. (2006). Coping over time: The parents of children with autism. Journal of Intellectual Disability Research, 50(12), 970–976. CrossRefPubMed

Green, S. E. (2005). “We’re tired, not sad”: Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64(1), 150–163. CrossRef

Grinker, R. R. (2007). Unstrange minds: Remapping the world of autism. Philadelphia, PA: Basic Books.

Gupta, A., & Singhal, N. (2004). Positive perceptions in parents of children with disabilities. Asia Pacific Rehabilitation Journal, 15(1), 22–35.

Ha, J.-H., Hong, J., Seltzer, M. M., & Greenberg, J. S. (2008). Age and gender differences in the well-being of midlife and aging parents with children with mental health or developmental problems: Report of a national study. Journal of Health and Social Behavior, 49, 301–316. PubMedCentralCrossRefPubMed

Harney, P. A. (2007). Resilience processes in context: Contributions and implications of Bronfenbrenner’s person-process-context model. Journal of Aggression, Maltreatment, and Trauma, 14(3), 73–87. CrossRef

Hastings, R. P., Beck, A., & Hill, C. (2005). Positive contributions made by children with an intellectual disability in the family: Mothers’ and fathers’ perceptions. Journal of Intellectual Disabilities, 9(2), 155–165. CrossRefPubMed

Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., & Krauss, M. W. (2001). The development of children with disabilities and the adaptation of their parents: Theoretical perspective and empirical evidence. Monographs of the Society for Research in Child Development, 66, 6–21. CrossRef

Hawk, C. K., & Holden, G. W. (2006). Meta-parenting: An initial investigation into a new parental social cognition construct. Parenting: Science and Practice, 6(4), 321–342. CrossRef

Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behavior and emotional problems in toddlers with pervasive developmental disorders and developmental delays: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882. CrossRefPubMed

Ho, K. M., & Keiley, M. K. (2003). Dealing with denial: A systems approach for family professionals working with parents of individuals with multiple disabilities. The Family Journal: Counseling and Therapy for Couples and Families, 11(3), 239–247. CrossRef

Holden, G. W. (2010). Childrearing and developmental trajectories: Positive pathways, off-ramps, and dynamic processes. Child Development Perspectives, 4(3), 197–204. CrossRef

Holden, G. W., & Hawk, C. K. (2003). Meta-parenting in the journey of child rearing: A cognitive mechanism for change. In L. Kuczynski (Ed.), Handbook of dynamics in parent–child relations (pp. 189–210). Thousand Oaks, CA: Sage. CrossRef

Holden, G. W., & Ritchie, K. L. (1988). Child rearing and the dialectics of parental intelligence. In J. Valsiner (Ed.), Child development within socio-culturally structured environments: Parental cognition and adult–child interaction (pp. 30–59). Norwood, NJ: Ablex.

Kamberelis, G., & Dimitriadis, G. (2005). Focus groups: Strategic articulations of pedagogy, politics, and inquiry. In N. K. Denzin & Y. S. Lincoln (Eds.), The Sage handbook of qualitative research (3rd ed., pp. 887–907). Thousand Oaks, CA: Sage.

Kearney, P. M., & Griffin, T. (2001). Between joy and sorrow: Being a parent of a child with developmental disability. Journal of Advanced Nursing, 34(5), 582–592. CrossRefPubMed

Kitzinger, J. (1994). The methodology of focus group: The importance of interaction between research participants. Sociology of Health & Illness, 16(1), 103–121. CrossRef

Knestrict, T., & Kuchey, D. (2009). Welcome to Holland: Characteristics of resilient families raising children with severe disabilities. Journal of Family Studies, 15, 227–244. CrossRef

Kuczynski, L. (2003). Beyond bidirectionality: Bilateral conceptual frameworks for understanding dynamics in parent–child relations. In L. Kuczynski (Ed.), Handbook of dynamics in parent–child relations (pp. 3–24). Thousand Oaks, CA: Sage. CrossRef

Kuczynski, L., & Daly, K. (2003). Qualitative methods for inductive (theory-generating) research: Psychological and sociological approaches. In L. Kuczynski (Ed.), Handbook of dynamics in parent–child relations (pp. 373–392). Thousand Oaks, CA: Sage. CrossRef

Kuczynski, L., & Parkin, M. (2009). Pursuing a dialectical perspective on transaction: A social relational theory of micro family processes. In A. Sameroff (Ed.), Transactional processes in development (pp. 247–268). Washington, DC: American Psychological Association.

Kuczynski, L., Pitman, R., & Mitchell, M. B. (2009). Dialectics and transactional models: Conceptualizing antecedents, processes, and consequences of change in parent–child relationships. In J. Mancini & K. Roberto (Eds.), Pathways of development: Explorations of change (pp. 151–170). Lanham, MD: Lexington Books.

Larson, E. (1998). Reframing the meaning of disability to families: The embrace of paradox. Social Science and Medicine, 47(7), 865–875. CrossRefPubMed

Lee, Y. J., & Bursztyn, A. (2011). Understanding childhood disabilities through culturally diverse families’ perspectives. In A. Bursztyn (Ed.), Childhood psychological disorders: Current controversies (pp. 15–35). Santa Barbara, CA: Prager.

Maccoby, E. E. (2003). Dynamic viewpoints on parent–child relations: Their implications for socialization processes. In L. Kuczynski (Ed.), Handbook of dynamics in parent–child relations (pp. 439–452). Thousand Oaks, CA: Sage.

Moses, K. (1987, Spring). The impact of childhood disability: The parent’s struggle. WAYS Magazine, pp. 6–10 (Evanston, IL).

O’Brien, M. (2007). Ambiguous loss in families of children with autism spectrum disorders. Family Relations, 56, 135–146. CrossRef

O’Connell, T., O’Halloran, M., & Doody, O. (2013). Raising a child with disability and dealing with life events: A mother’s journey. Journal of Intellectual Disabilities, 17(4), 376–386. CrossRefPubMed

Palkovitz, R. (1996). Parenting as a generator of adult development: Conceptual issues and implications. Journal of Social and Personal Relationships, 13, 571–592. CrossRef

Palkovitz, R., Marks, L. D., Appleby, D. W., & Holmes, E. K. (2003). Parenting and adult development: Contexts, processes, and products of intergenerational relationships. In L. Kuczynski (Ed.), Handbook of dynamics in parent–child relations (pp. 307–323). Thousand Oaks, CA: Sage. CrossRef

Park, H. J., & Chung, G. H. (2015). A multifaceted model of changes and adaptation among Korean mothers of children with disabilities. Journal of Child and Family Studies, 24, 915–929. CrossRef

Patrick-Ott, A., & Ladd, L. D. (2010). The blending of Boss’s concept of ambiguous loss and Olshansky’s concept of chronic sorrow: A case study of a family with a child who has significant disabilities. Journal of Creativity in Mental Health, 5, 74–86. CrossRef

Pianta, R. C., Marvin, R. D., Britner, P. A., & Borowitz, K. C. (1996). Mothers’ resolution of their children’s diagnosis: Organized patterns of caregiving representations. Infant Mental Health Journal, 17(3), 239–256. CrossRef

Raina, P., O’Donnell, M., Schwellnus, H., Rosenbaum, P., King, G., Brehaut, J., & Wood, E. (2004). Caregiving process and care giver burden: Conceptual models to guide research and practice. BMC Pediatrics, 4(1), 1–13. PubMedCentralCrossRefPubMed

Saleebey, D. (2000). Power in the people: Strengths and hope. Advances in Social Work, 1(2), 127–136.

Sameroff, A. (2009). The transactional model. In A. Sameroff (Ed.), Transactional process in development (pp. 3–22). Washington, DC: American Psychological Association.

Scorgie, K., & Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38(3), 195–206. CrossRefPubMed

Taunt, H. M., & Hastings, R. P. (2002). Positive impact of children with developmental disabilities on their families: A preliminary study. Education and Training in Mental Retardation and Developmental Disabilities, 37(4), 410–420.

Trute, B., Hiebert-Murphy, D., & Levine, K. (2007). Parental appraisal of the family impact of childhood developmental disability: Times of sadness and times of joy. Journal of Intellectual and Developmental Disability, 32(1), 1–9. CrossRefPubMed

Ulrich, M. E., & Bauer, A. M. (2003). Levels of awareness: A closer look at communication between parents and professionals. Teaching Exceptional Children, 35(6), 20–24.

Ungar, M. (2011). The social ecology of resilience: Addressing contextual and cultural ambiguity of a nascent construct. American Journal of Orthopsychiatry, 81(1), 1–17. CrossRefPubMed

Vygotsky, L. S. (1993). The collected works of L. S. Vygotsky (Vol. 2): The fundamentals of defectology (abnormal psychology and learning disabilities) (J. E. Knox & C. B. Stevens, Trans.). New York: Plenum.

Walsh, F. (2003). Family resilience: A framework for clinical practice. Family Process, 42, 1–18. CrossRefPubMed

Werner DeGrace, B. (2004). The everyday occupation of families with children with autism. American Journal of Occupational Therapy, 58, 543–550. CrossRef

Whittingham, K., Wee, D., Sanders, M. R., & Boyd, R. (2013). Sorrow, coping, and resiliency: Parents of children with cerebral palsy shared their experiences. Disability and Rehabilitation, 35(17), 1447–1452. CrossRefPubMed

Titel: Embracing Each Other and Growing Together: Redefining the Meaning of Caregiving a Child with Disabilities
Auteurs:: Yoon-Joo Lee
Hye Jun Park
Susan L. Recchia
Publicatiedatum: 01-04-2015
DOI: https://doi.org/10.1007/s10826-015-0175-x
Uitgeverij: Springer US
Tijdschrift: Journal of Child and Family Studies
Uitgave 12/2015
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Abstract

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Andere artikelen Uitgave 12/2015

A Review of Family Engagement Measures for Adolescent Substance Use Services

How Similar are Mothers and Fathers of Young Children in Their Parenting Responses and Goals?

Identifying Heightened Risk for Posttraumatic Symptoms Among Maltreated Youth

Emotion Socialization Mechanisms Linking Chinese Fathers’, Mothers’, and Children’s Emotion Regulation: A Moderated Mediation Model

Transforming Parent–Child Interaction in Family Routines: Longitudinal Analysis with Families of Children with Developmental Disabilities

Perceived Mental Health, Behavioral, and Adaptive Needs for Children in Medical Foster Care