Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 9/2021

28-10-2020 | Original Paper

Effectiveness of Adaptive Care Plans for Children with Developmental Disabilities During Outpatient Clinic Appointments

Auteurs: Melissa Liddle, Tammy L. Sonnentag

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2021

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Children with developmental disabilities require more medical experiences than typically-developing children and struggle to cooperate with healthcare encounters. Adaptive care plans, delivered by child life specialists, are individualized patient-centered plans created to address the challenges that children with developmental disabilities experience. The current study evaluated if adaptive care plans affect the psychosocial outcomes of children with ASD compared to those with other developmental disabilities. One-hundred and sixty children between 3 and 18 years of age (child’s Mage = 8.10, SD = 3.75) participated. Although children with developmental disabilities who had adaptive care plans did not generally experience less psychosocial distress; children with ASD who had adaptive care plans experienced fewer challenges with anxiety and coping compared to children with ASD who did not have adaptive care plans.

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijf je als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen jouw vak. Met het online abonnement heb je toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kun je op je gemak en wanneer het jou het beste uitkomt verdiepen in jouw vakgebied.

Voetnoten
1
Research involves children with developmental disabilities who may not be able to, nor will be asked to, provide assent. Because children experience the medical procedure regardless of their involvement in the study, data from the child’s medical experience was only included in the study if parents or legal guardians provided consent.
 
2
Analyses revealed that neither the type of procedure nor its level of invasiveness affected the children’s psychosocial distress scores, as measured by the PRAP after the healthcare encounter.
 
Literatuur
go back to reference Emerson, E., Moss, S., & Kiernan, C. (1999). The relationship between challenging behavior and psychiatric disorders in people with severe developmental disabilities. In N. Bouras (Ed.), Psychiatric and behavioural disorders in developmental disabilities and mental retardation (pp. 38–48). Cambridge: Cambridge University Press. Emerson, E., Moss, S., & Kiernan, C. (1999). The relationship between challenging behavior and psychiatric disorders in people with severe developmental disabilities. In N. Bouras (Ed.), Psychiatric and behavioural disorders in developmental disabilities and mental retardation (pp. 38–48). Cambridge: Cambridge University Press.
go back to reference Hicks, M., & Davitt, K. (2009). Chronic illness and rehabilitation. In R. H. Thompson (Ed.), The handbook of child life: A guide for pediatric psychosocial care (pp. 257–286). Springfield, IL: Charles C. Thomas Publisher LTD. Hicks, M., & Davitt, K. (2009). Chronic illness and rehabilitation. In R. H. Thompson (Ed.), The handbook of child life: A guide for pediatric psychosocial care (pp. 257–286). Springfield, IL: Charles C. Thomas Publisher LTD.
go back to reference Levy, S., Giarelli, E., Lee, L., Schieve, L., Kirby, R., Cunniff, C., … Rice, C. (2010). Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental and Behavioral Pediatrics, 31, 267–275. https://​doi.​org/​10.​1097/​DBP.​0b013e3181d5d03b​. Levy, S., Giarelli, E., Lee, L., Schieve, L., Kirby, R., Cunniff, C., … Rice, C. (2010). Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental and Behavioral Pediatrics, 31, 267–275. https://​doi.​org/​10.​1097/​DBP.​0b013e3181d5d03b​.
go back to reference Leyfer, O. T., Folstein, S. E., Bacalman, S., Davis, N. O., Dinh, E., Morgan, J., … Lainhart, J. E. (2006). Comorbid psychiatric disorders in children with autism: Interview developmental and rates of disorders. Journal of Autism and Developmental Disorders, 36, 849–861. https://​doi.​org/​10.​1007/​s10803-006-0123-0. Leyfer, O. T., Folstein, S. E., Bacalman, S., Davis, N. O., Dinh, E., Morgan, J., … Lainhart, J. E. (2006). Comorbid psychiatric disorders in children with autism: Interview developmental and rates of disorders. Journal of Autism and Developmental Disorders, 36, 849–861. https://​doi.​org/​10.​1007/​s10803-006-0123-0.
go back to reference Squires, V., & Allen, K. E. (2009). The emergency department and ambulatory care. In R. H. Thompson (Ed.), The handbook of child life: A guide for pediatric psychosocial care (pp. 287–309). Springfield, IL: Charles C. Thomas Publisher LTD. Squires, V., & Allen, K. E. (2009). The emergency department and ambulatory care. In R. H. Thompson (Ed.), The handbook of child life: A guide for pediatric psychosocial care (pp. 287–309). Springfield, IL: Charles C. Thomas Publisher LTD.
go back to reference Zablotsky, B., Black, L., Maenner, M., Schieve, L., & Blumberg, S. (2015). Estimated prevalence of autism and other developmental disabilities following questionnaire changes in the 2014 National Health Interview Survey. National Health Statistics Reports, 87, 1–19. https://​purl.​fdlp.​gov/​GPO/​gpo66012. Zablotsky, B., Black, L., Maenner, M., Schieve, L., & Blumberg, S. (2015). Estimated prevalence of autism and other developmental disabilities following questionnaire changes in the 2014 National Health Interview Survey. National Health Statistics Reports, 87, 1–19. https://​purl.​fdlp.​gov/​GPO/​gpo66012.
Metagegevens
Titel
Effectiveness of Adaptive Care Plans for Children with Developmental Disabilities During Outpatient Clinic Appointments
Auteurs
Melissa Liddle
Tammy L. Sonnentag
Publicatiedatum
28-10-2020
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-020-04764-1