Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 4/2018

06-12-2017 | S.I. : Parenting Children with ASD

Documenting and Understanding Parent’s Intervention Choices for Their Child with Autism Spectrum Disorder

Auteurs: Daniel Shepherd, Rita Csako, Jason Landon, Sonja Goedeke, Kelly Ty

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2018

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child’s symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers.
Literatuur
go back to reference Barak-Levy, Y., & Atzaba-Poria, N. (2013). Paternal versus maternal coping styles with child diagnosis of developmental delay. Research in Developmental Disabilities, 34(6), 2040–2046.CrossRefPubMed Barak-Levy, Y., & Atzaba-Poria, N. (2013). Paternal versus maternal coping styles with child diagnosis of developmental delay. Research in Developmental Disabilities, 34(6), 2040–2046.CrossRefPubMed
go back to reference Bowker, A., D’Angelo, N. M., Hicks, R., & Wells, K. (2011). Interventions for autism: Parental choices and perceptions of change. Journal of Autism and Developmental Disorders, 41, 1373–1382.CrossRefPubMed Bowker, A., D’Angelo, N. M., Hicks, R., & Wells, K. (2011). Interventions for autism: Parental choices and perceptions of change. Journal of Autism and Developmental Disorders, 41, 1373–1382.CrossRefPubMed
go back to reference Call, N. A., Delfs, C. H., & Reavis, A. R. (2015). Factors influencing treatment decisions by parents for their children with autism spectrum disorder. Research in Autism Spectrum Disorders, 15, 10–20.CrossRef Call, N. A., Delfs, C. H., & Reavis, A. R. (2015). Factors influencing treatment decisions by parents for their children with autism spectrum disorder. Research in Autism Spectrum Disorders, 15, 10–20.CrossRef
go back to reference Carlon, S., Carter, M., & Stephenson, J. (2013). A review of declared factors identified by parents of children with autism spectrum disorders (ASD) in making intervention decisions. Research in Autism Spectrum Disorders, 7, 369–381.CrossRef Carlon, S., Carter, M., & Stephenson, J. (2013). A review of declared factors identified by parents of children with autism spectrum disorders (ASD) in making intervention decisions. Research in Autism Spectrum Disorders, 7, 369–381.CrossRef
go back to reference Carlon, S., Carter, M., & Stephenson, J. (2015). Decision-making regarding early intervention by parents of children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 27, 285–305.CrossRef Carlon, S., Carter, M., & Stephenson, J. (2015). Decision-making regarding early intervention by parents of children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 27, 285–305.CrossRef
go back to reference Carlon, S., Stephenson, J., & Carter, M. (2014). Parent reports of treatments and interventions used with children with autism spectrum disorders (ASD): A review of the literature. Australasian Journal of Special Education, 38(1), 63–90.CrossRef Carlon, S., Stephenson, J., & Carter, M. (2014). Parent reports of treatments and interventions used with children with autism spectrum disorders (ASD): A review of the literature. Australasian Journal of Special Education, 38(1), 63–90.CrossRef
go back to reference Christon, L. M., Mackintosh, V. H., & Myers, B. J. (2010). Use of complementary and alternative medicine (CAM) interventions by parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 4, 249–259.CrossRef Christon, L. M., Mackintosh, V. H., & Myers, B. J. (2010). Use of complementary and alternative medicine (CAM) interventions by parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 4, 249–259.CrossRef
go back to reference Cohen, S., Mermelstein, R., Kamarck, T., & Hoberman, H. (1984). Measuring the functional components of social support. In I. G. Sarason & B. R. Sarason (Eds.), Social support: Theory, research and applications (pp. 73–94). The Hague: Martinus Nijhoff. Cohen, S., Mermelstein, R., Kamarck, T., & Hoberman, H. (1984). Measuring the functional components of social support. In I. G. Sarason & B. R. Sarason (Eds.), Social support: Theory, research and applications (pp. 73–94). The Hague: Martinus Nijhoff.
go back to reference Deyro, M. C., Simon, E. W., & Guay, J. (2016). Parental awareness of empirically established treatments for autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 3(3), 184–195.CrossRef Deyro, M. C., Simon, E. W., & Guay, J. (2016). Parental awareness of empirically established treatments for autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 3(3), 184–195.CrossRef
go back to reference Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284.CrossRefPubMed Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284.CrossRefPubMed
go back to reference Elder, J. H. (1994). Beliefs held by parents of autistic children. Journal of Child and Adolescent Psychiatric Nursing, 7, 9–16.CrossRefPubMed Elder, J. H. (1994). Beliefs held by parents of autistic children. Journal of Child and Adolescent Psychiatric Nursing, 7, 9–16.CrossRefPubMed
go back to reference Foxx, R. M., & Mulick, J. A. (2015). Controversial therapies for autism and intellectual disabilities (2nd edn.). New York: Taylor and Francis. Foxx, R. M., & Mulick, J. A. (2015). Controversial therapies for autism and intellectual disabilities (2nd edn.). New York: Taylor and Francis.
go back to reference Goin- Kochel, R. P., Myers, B. J., & Mackintosh, V. H. (2007). Parental reports on the use of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1, 195–209.CrossRef Goin- Kochel, R. P., Myers, B. J., & Mackintosh, V. H. (2007). Parental reports on the use of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1, 195–209.CrossRef
go back to reference Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2009). Parental reports on the efficacy of interventions and therapies for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 528–537.CrossRef Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2009). Parental reports on the efficacy of interventions and therapies for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 528–537.CrossRef
go back to reference Green, V. A. (2007). Parental experience with interventions for autism. Journal of Developmental Physical Disabilities, 19, 91–101.CrossRef Green, V. A. (2007). Parental experience with interventions for autism. Journal of Developmental Physical Disabilities, 19, 91–101.CrossRef
go back to reference Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reily, M., & Sigafoos, J. (2006). Internet survey of interventions used by parents of children with autism. Research in Developmental Disabilities, 27, 70–84.CrossRefPubMed Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reily, M., & Sigafoos, J. (2006). Internet survey of interventions used by parents of children with autism. Research in Developmental Disabilities, 27, 70–84.CrossRefPubMed
go back to reference Hall, S. E., & Riccio, C. A. (2012). Complementary and alternative treatment use for autism spectrum disorders. Complementary Therapies in Clinical Practice, 18(3), 159–163.CrossRefPubMed Hall, S. E., & Riccio, C. A. (2012). Complementary and alternative treatment use for autism spectrum disorders. Complementary Therapies in Clinical Practice, 18(3), 159–163.CrossRefPubMed
go back to reference Hebert, E. B. (2014). Factors affecting parental decision-making regarding iInterventions for their child with autism. Focus on Autism and Other Developmental Disabilities, 29(2), 111–124.CrossRef Hebert, E. B. (2014). Factors affecting parental decision-making regarding iInterventions for their child with autism. Focus on Autism and Other Developmental Disabilities, 29(2), 111–124.CrossRef
go back to reference Kanne, S. M., Mazurek, M. O., Sikora, D., Bellando, J., Branum-Martin, L., Handen, B., … Warren, Z. (2014). The autism impact measure (AIM): Initial development of a new tool for treatment outcome measurement. Journal of Autism and Developmental Disorders, 44, 168–179.CrossRefPubMed Kanne, S. M., Mazurek, M. O., Sikora, D., Bellando, J., Branum-Martin, L., Handen, B., … Warren, Z. (2014). The autism impact measure (AIM): Initial development of a new tool for treatment outcome measurement. Journal of Autism and Developmental Disorders, 44, 168–179.CrossRefPubMed
go back to reference Keenan, M., Dillenburger, K., Röttgers, H. R., et al. (2015). Autism and ABA: The gulf between North America and Europe. Review Journal of Autism and Developmental Disorders, 2(2), 167–183.CrossRef Keenan, M., Dillenburger, K., Röttgers, H. R., et al. (2015). Autism and ABA: The gulf between North America and Europe. Review Journal of Autism and Developmental Disorders, 2(2), 167–183.CrossRef
go back to reference Levy, S. E., & Hyman, S. L. (2002). Alternative/complementary approaches to intervention of children with autism spectrum disorders. Infants and Young Children, 14, 33–42.CrossRef Levy, S. E., & Hyman, S. L. (2002). Alternative/complementary approaches to intervention of children with autism spectrum disorders. Infants and Young Children, 14, 33–42.CrossRef
go back to reference Ludlow, A., Skelly, C., & Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711.CrossRefPubMed Ludlow, A., Skelly, C., & Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711.CrossRefPubMed
go back to reference Lutz, H. R., Patterson, B. J., & Klein, J. (2012). Coping with autism: A journey toward adaptation. Journal of Pediatric Nursing, 27(3), 206–213.CrossRefPubMed Lutz, H. R., Patterson, B. J., & Klein, J. (2012). Coping with autism: A journey toward adaptation. Journal of Pediatric Nursing, 27(3), 206–213.CrossRefPubMed
go back to reference Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science Medicine, 70(12), 2045–2051.CrossRefPubMed Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science Medicine, 70(12), 2045–2051.CrossRefPubMed
go back to reference Matson, J. L., & Wiliams, L. W. (2015). The curious selection process of treatments for autism spectrum disorders. Research in Autism Spectrum Disorders, 9, 21–25.CrossRef Matson, J. L., & Wiliams, L. W. (2015). The curious selection process of treatments for autism spectrum disorders. Research in Autism Spectrum Disorders, 9, 21–25.CrossRef
go back to reference Miller, V. A., Schreck, K. A., Mulick, J. A., & Butter, E. (2012). Factors related to parents’ choices of treatments for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6, 87–95.CrossRef Miller, V. A., Schreck, K. A., Mulick, J. A., & Butter, E. (2012). Factors related to parents’ choices of treatments for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6, 87–95.CrossRef
go back to reference Ministries of Health and Education. (2008). New Zealand autism spectrum disorder guideline. New Zealand: Wellington. Ministries of Health and Education. (2008). New Zealand autism spectrum disorder guideline. New Zealand: Wellington.
go back to reference Montes, G., & Cianca, M. (2014). Family burden of raising a child with ASD. In V. B. Patel, V. R. Preedy & C. R. Martin (Eds.), Comprehensive guide to autism (pp. 167–184). New York: Springer.CrossRef Montes, G., & Cianca, M. (2014). Family burden of raising a child with ASD. In V. B. Patel, V. R. Preedy & C. R. Martin (Eds.), Comprehensive guide to autism (pp. 167–184). New York: Springer.CrossRef
go back to reference Murphy, N. A., Christia, B., Caplin, D. A., & Young, P. C. (2006). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187. Murphy, N. A., Christia, B., Caplin, D. A., & Young, P. C. (2006). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187.
go back to reference O’Keefe, M., & Coat, S. (2010). Increasing health-care options: The perspective of parents who use complementary and alternative medicines. Journal of Paediatrics and Child Health 46, 296–300.CrossRefPubMed O’Keefe, M., & Coat, S. (2010). Increasing health-care options: The perspective of parents who use complementary and alternative medicines. Journal of Paediatrics and Child Health 46, 296–300.CrossRefPubMed
go back to reference Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51(2), 109–124.CrossRefPubMed Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51(2), 109–124.CrossRefPubMed
go back to reference Pozo, P., & Sarriá, E. (2014). Prediction of Stress in mothers of children with autism spectrum disorders. Spanish Journal of Psychology, 17, 1–12.CrossRef Pozo, P., & Sarriá, E. (2014). Prediction of Stress in mothers of children with autism spectrum disorders. Spanish Journal of Psychology, 17, 1–12.CrossRef
go back to reference Romanczyk, R. G., & Gillis, J. M. (2005). Intervention approaches for autism: Evaluating options and making informed choices. In D. Zager (Ed.), Autism spectrum disorders: Identification, education, and intervention (3rd edn., pp. 515–535). Mahwah, NJ: Lawrence Erlbaum. Romanczyk, R. G., & Gillis, J. M. (2005). Intervention approaches for autism: Evaluating options and making informed choices. In D. Zager (Ed.), Autism spectrum disorders: Identification, education, and intervention (3rd edn., pp. 515–535). Mahwah, NJ: Lawrence Erlbaum.
go back to reference Searing, B. M. J., Graham, F., & Grainger, R. (2015). Support needs of families living with children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(11), 3693–3702.CrossRefPubMed Searing, B. M. J., Graham, F., & Grainger, R. (2015). Support needs of families living with children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(11), 3693–3702.CrossRefPubMed
go back to reference Shyu, Y. I. L., Tsai, J. L., & Tsai, W. C. (2010). Explaining and selecting interventions for autism: Parental explanatory models in Taiwan. Journal of Autism and Developmental Disorders, 40, 1323–1331.CrossRefPubMed Shyu, Y. I. L., Tsai, J. L., & Tsai, W. C. (2010). Explaining and selecting interventions for autism: Parental explanatory models in Taiwan. Journal of Autism and Developmental Disorders, 40, 1323–1331.CrossRefPubMed
go back to reference Smith, T., & Antolovich, M. (2000). Parental perceptions of supplemental interventions received by young children with autism in intensive behavior analytic treatment. Behavioral Interventions, 15, 83–97.CrossRef Smith, T., & Antolovich, M. (2000). Parental perceptions of supplemental interventions received by young children with autism in intensive behavior analytic treatment. Behavioral Interventions, 15, 83–97.CrossRef
go back to reference Stephenson, J., Cater, M., & Kemp, C. (2012). Quality of the information on educational and therapy interventions provided on the web sites of national autism associations. Research in Autism Spectrum Disorders, 6, 11–18.CrossRef Stephenson, J., Cater, M., & Kemp, C. (2012). Quality of the information on educational and therapy interventions provided on the web sites of national autism associations. Research in Autism Spectrum Disorders, 6, 11–18.CrossRef
go back to reference Valentine, K. (2010). A consideration of medicalisation: Choice, engagement and other responsibilities of parents of children with autism spectrum disorder. Social Science and Medicine, 71, 950–957.CrossRefPubMed Valentine, K. (2010). A consideration of medicalisation: Choice, engagement and other responsibilities of parents of children with autism spectrum disorder. Social Science and Medicine, 71, 950–957.CrossRefPubMed
go back to reference Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. F., Glasser, A., & Veenstra-VanderWeele, J. (2011). A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics, 127, e1303–e1311.CrossRefPubMed Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. F., Glasser, A., & Veenstra-VanderWeele, J. (2011). A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics, 127, e1303–e1311.CrossRefPubMed
go back to reference Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between bullying and the psychological functioning of children with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 34(1), 1–8.CrossRefPubMed Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between bullying and the psychological functioning of children with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 34(1), 1–8.CrossRefPubMed
go back to reference Zaidman-Zait, A., Mirenda, P., Duku, E., Vaillancourt, T., Smith, I. M., Szatmari, P., Bryson, S., Fombonne, E., Volden, J., Waddell, C., Zwaigenbaum, L., Georgiades, S., Bennett, T., Elsabaggh, M., & Thompson, A. (2016). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism, 21(2), 155–166.CrossRefPubMed Zaidman-Zait, A., Mirenda, P., Duku, E., Vaillancourt, T., Smith, I. M., Szatmari, P., Bryson, S., Fombonne, E., Volden, J., Waddell, C., Zwaigenbaum, L., Georgiades, S., Bennett, T., Elsabaggh, M., & Thompson, A. (2016). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism, 21(2), 155–166.CrossRefPubMed
Metagegevens
Titel
Documenting and Understanding Parent’s Intervention Choices for Their Child with Autism Spectrum Disorder
Auteurs
Daniel Shepherd
Rita Csako
Jason Landon
Sonja Goedeke
Kelly Ty
Publicatiedatum
06-12-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 4/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3395-7

Andere artikelen Uitgave 4/2018

Journal of Autism and Developmental Disorders 4/2018 Naar de uitgave

S.I.: Local vs. Global processing in Autism Spectrum Disorders

Evidence of Reduced Global Processing in Autism Spectrum Disorder