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Journal of Autism and Developmental Disorders

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Gepubliceerd in: Journal of Autism and Developmental Disorders 4/2018

06-12-2017 | S.I. : Parenting Children with ASD

Documenting and Understanding Parent’s Intervention Choices for Their Child with Autism Spectrum Disorder

Auteurs: Daniel Shepherd, Rita Csako, Jason Landon, Sonja Goedeke, Kelly Ty

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2018

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Abstract

Understanding why parents choose some interventions but not others for their child with autism is important for a number of reasons. Estimating the proportion of evidence-based interventions engaged, identifying the agencies influencing parental decisions, and elucidating the barriers or reasons leading to intervention rejection or discontinuation can result in better service provision. New Zealand parents (n = 570) of a child with autism reported what interventions were being engaged, and why some interventions were engaged but not others. Funding was a major determinant of intervention engagement, while medical professionals exerted the most influence. Sources of support were not related to intervention engagement, but parental perceptions of their child’s symptom severity were. Finally, non-engagement does not necessarily reflect parental opposition to an intervention, but rather the existence of barriers.
vorige artikel Parent Stress in a Randomized Clinical Trial of Atomoxetine and Parent Training for Children with Autism Spectrum Disorder
volgende artikel Parent-Implemented Bedtime Fading and Positive Routines for Children with Autism Spectrum Disorders
Literatuur
Barak-Levy, Y., & Atzaba-Poria, N. (2013). Paternal versus maternal coping styles with child diagnosis of developmental delay. Research in Developmental Disabilities, 34(6), 2040–2046. CrossRefPubMed
Bowker, A., D’Angelo, N. M., Hicks, R., & Wells, K. (2011). Interventions for autism: Parental choices and perceptions of change. Journal of Autism and Developmental Disorders, 41, 1373–1382. CrossRefPubMed
Call, N. A., Delfs, C. H., & Reavis, A. R. (2015). Factors influencing treatment decisions by parents for their children with autism spectrum disorder. Research in Autism Spectrum Disorders, 15, 10–20. CrossRef
Carlon, S., Carter, M., & Stephenson, J. (2013). A review of declared factors identified by parents of children with autism spectrum disorders (ASD) in making intervention decisions. Research in Autism Spectrum Disorders, 7, 369–381. CrossRef
Carlon, S., Carter, M., & Stephenson, J. (2015). Decision-making regarding early intervention by parents of children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 27, 285–305. CrossRef
Carlon, S., Stephenson, J., & Carter, M. (2014). Parent reports of treatments and interventions used with children with autism spectrum disorders (ASD): A review of the literature. Australasian Journal of Special Education, 38(1), 63–90. CrossRef
Christon, L. M., Mackintosh, V. H., & Myers, B. J. (2010). Use of complementary and alternative medicine (CAM) interventions by parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 4, 249–259. CrossRef
Cohen, S., Mermelstein, R., Kamarck, T., & Hoberman, H. (1984). Measuring the functional components of social support. In I. G. Sarason & B. R. Sarason (Eds.), Social support: Theory, research and applications (pp. 73–94). The Hague: Martinus Nijhoff.
Deyro, M. C., Simon, E. W., & Guay, J. (2016). Parental awareness of empirically established treatments for autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 3(3), 184–195. CrossRef
Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284. CrossRefPubMed
Elder, J. H. (1994). Beliefs held by parents of autistic children. Journal of Child and Adolescent Psychiatric Nursing, 7, 9–16. CrossRefPubMed
Foxx, R. M., & Mulick, J. A. (2015). Controversial therapies for autism and intellectual disabilities (2nd edn.). New York: Taylor and Francis.
Goin- Kochel, R. P., Myers, B. J., & Mackintosh, V. H. (2007). Parental reports on the use of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1, 195–209. CrossRef
Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2009). Parental reports on the efficacy of interventions and therapies for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 528–537. CrossRef
Green, V. A. (2007). Parental experience with interventions for autism. Journal of Developmental Physical Disabilities, 19, 91–101. CrossRef
Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reily, M., & Sigafoos, J. (2006). Internet survey of interventions used by parents of children with autism. Research in Developmental Disabilities, 27, 70–84. CrossRefPubMed
Hall, S. E., & Riccio, C. A. (2012). Complementary and alternative treatment use for autism spectrum disorders. Complementary Therapies in Clinical Practice, 18(3), 159–163. CrossRefPubMed
Hebert, E. B. (2014). Factors affecting parental decision-making regarding iInterventions for their child with autism. Focus on Autism and Other Developmental Disabilities, 29(2), 111–124. CrossRef
Kanne, S. M., Mazurek, M. O., Sikora, D., Bellando, J., Branum-Martin, L., Handen, B., … Warren, Z. (2014). The autism impact measure (AIM): Initial development of a new tool for treatment outcome measurement. Journal of Autism and Developmental Disorders, 44, 168–179. CrossRefPubMed
Keenan, M., Dillenburger, K., Röttgers, H. R., et al. (2015). Autism and ABA: The gulf between North America and Europe. Review Journal of Autism and Developmental Disorders, 2(2), 167–183. CrossRef
Levy, S. E., & Hyman, S. L. (2002). Alternative/complementary approaches to intervention of children with autism spectrum disorders. Infants and Young Children, 14, 33–42. CrossRef
Ludlow, A., Skelly, C., & Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711. CrossRefPubMed
Lutz, H. R., Patterson, B. J., & Klein, J. (2012). Coping with autism: A journey toward adaptation. Journal of Pediatric Nursing, 27(3), 206–213. CrossRefPubMed
Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science Medicine, 70(12), 2045–2051. CrossRefPubMed
Matson, J. L., & Wiliams, L. W. (2015). The curious selection process of treatments for autism spectrum disorders. Research in Autism Spectrum Disorders, 9, 21–25. CrossRef
Miller, V. A., Schreck, K. A., Mulick, J. A., & Butter, E. (2012). Factors related to parents’ choices of treatments for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6, 87–95. CrossRef
Ministries of Health and Education. (2008). New Zealand autism spectrum disorder guideline. New Zealand: Wellington.
Montes, G., & Cianca, M. (2014). Family burden of raising a child with ASD. In V. B. Patel, V. R. Preedy & C. R. Martin (Eds.), Comprehensive guide to autism (pp. 167–184). New York: Springer. CrossRef
Murphy, N. A., Christia, B., Caplin, D. A., & Young, P. C. (2006). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187.
O’Keefe, M., & Coat, S. (2010). Increasing health-care options: The perspective of parents who use complementary and alternative medicines. Journal of Paediatrics and Child Health 46, 296–300. CrossRefPubMed
Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51(2), 109–124. CrossRefPubMed
Pozo, P., & Sarriá, E. (2014). Prediction of Stress in mothers of children with autism spectrum disorders. Spanish Journal of Psychology, 17, 1–12. CrossRef
Romanczyk, R. G., & Gillis, J. M. (2005). Intervention approaches for autism: Evaluating options and making informed choices. In D. Zager (Ed.), Autism spectrum disorders: Identification, education, and intervention (3rd edn., pp. 515–535). Mahwah, NJ: Lawrence Erlbaum.
Searing, B. M. J., Graham, F., & Grainger, R. (2015). Support needs of families living with children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(11), 3693–3702. CrossRefPubMed
Shyu, Y. I. L., Tsai, J. L., & Tsai, W. C. (2010). Explaining and selecting interventions for autism: Parental explanatory models in Taiwan. Journal of Autism and Developmental Disorders, 40, 1323–1331. CrossRefPubMed
Smith, T., & Antolovich, M. (2000). Parental perceptions of supplemental interventions received by young children with autism in intensive behavior analytic treatment. Behavioral Interventions, 15, 83–97. CrossRef
Stephenson, J., Cater, M., & Kemp, C. (2012). Quality of the information on educational and therapy interventions provided on the web sites of national autism associations. Research in Autism Spectrum Disorders, 6, 11–18. CrossRef
Valentine, K. (2010). A consideration of medicalisation: Choice, engagement and other responsibilities of parents of children with autism spectrum disorder. Social Science and Medicine, 71, 950–957. CrossRefPubMed
Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. F., Glasser, A., & Veenstra-VanderWeele, J. (2011). A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics, 127, e1303–e1311. CrossRefPubMed
Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between bullying and the psychological functioning of children with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 34(1), 1–8. CrossRefPubMed
Zaidman-Zait, A., Mirenda, P., Duku, E., Vaillancourt, T., Smith, I. M., Szatmari, P., Bryson, S., Fombonne, E., Volden, J., Waddell, C., Zwaigenbaum, L., Georgiades, S., Bennett, T., Elsabaggh, M., & Thompson, A. (2016). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism, 21(2), 155–166. CrossRefPubMed
Metagegevens
Titel
Documenting and Understanding Parent’s Intervention Choices for Their Child with Autism Spectrum Disorder
Auteurs
Daniel Shepherd
Rita Csako
Jason Landon
Sonja Goedeke
Kelly Ty
Publicatiedatum
06-12-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 4/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3395-7

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