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29-01-2018 | Uitgave 5/2018

Quality of Life Research 5/2018

Do patients have a say? A narrative review of the development of patient-reported outcome measures used in elective procedures for coronary revascularisation

Tijdschrift:
Quality of Life Research > Uitgave 5/2018
Auteurs:
Geeske Peeters, Anna L. Barker, Jason Talevski, Ilana Ackerman, Darshini R. Ayton, Christopher Reid, Sue M. Evans, Johannes U. Stoelwinder, John J. McNeil
Belangrijke opmerkingen

Electronic supplementary material

The online version of this article (https://​doi.​org/​10.​1007/​s11136-018-1795-6) contains supplementary material, which is available to authorized users.

Abstract

Purpose

Patient-reported outcome measures (PROMs) capture health information from the patient’s perspective that can be used when weighing up benefits, risks and costs of treatment. This is important for elective procedures such as those for coronary revascularisation. Patients should be involved in the development of PROMs to accurately capture outcomes that are important for the patient. The aims of this review are to identify if patients were involved in the development of cardiovascular-specific PROMs used for assessing outcomes from elective coronary revascularisation, and to explore what methods were used to capture patient perspectives.

Methods

PROMs for evaluating outcomes from elective coronary revascularisation were identified from a previous review and an updated systematic search. The studies describing the development of the PROMs were reviewed for information on patient input in their conceptual and/or item development.

Results

24 PROMs were identified from a previous review and three additional PROMs were identified from the updated search. Full texts were obtained for 26 of the 27 PROMs. The 26 studies (11 multidimensional, 15 unidimensional) were reviewed. Only nine studies reported developing PROMs using patient input. For eight PROMs, the inclusion of patient input could not be judged due to insufficient information in the full text.

Conclusions

Only nine of the 26 reviewed PROMs used in elective coronary revascularisation reported involving patients in their conceptual and/or item development, while patient input was unclear for eight PROMs. These findings suggest that the patient’s perspective is often overlooked or poorly described in the development of PROMs.

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Extra materiaal
Supplementary material 1 (DOCX 19 KB)
11136_2018_1795_MOESM1_ESM.docx
Literatuur
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