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Journal of Autism and Developmental Disorders

Gepubliceerd in:

16-08-2023 | Original Paper

Diversity of Participants in Williams Syndrome Intervention Studies

Auteurs: Eva Shin, Caitlin Ravichandran, Danielle Renzi, Barbara R. Pober, Christopher J. McDougle, Robyn P. Thom

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 10/2024

Abstract

Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies. Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and ethnicity. Results: Eleven eligible articles were identified. Reporting rates of demographic factors varied considerably, with the highest rates for age and sex (100%) and the lowest reporting rates for race (18%) and ethnicity (9%). Combining demographic data from the two studies that reported on race and/or ethnicity (n = 33), 88% of participants were White. The combined participant mean age was 20.9 years. Conclusion: There is a low frequency of reporting on several demographic factors including socioeconomic status, race, and ethnicity in WS intervention studies. There is a need for increased representation of racial and ethnic minority groups, older participants, and more cognitively impaired patients in WS research.

vorige artikel Adaptive Skills of Individuals with Angelman Syndrome Assessed Using the Vineland Adaptive Behavior Scales, 2nd Edition

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Titel: Diversity of Participants in Williams Syndrome Intervention Studies
Auteurs: Eva Shin
Caitlin Ravichandran
Danielle Renzi
Barbara R. Pober
Christopher J. McDougle
Robyn P. Thom
Publicatiedatum: 16-08-2023
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 10/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-023-06088-2

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