Skip to main content
Top
Gepubliceerd in: Journal of Child and Family Studies 6/2007

01-12-2007 | Original Paper

Disclosure of Maternal HIV Status to Children: To Tell or Not To Tell … That is the Question

Auteur: Tanya L. Tompkins

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 6/2007

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

HIV-infected mothers face the challenging decision of whether to disclose their serostatus to their children. From the perspective of both mother and child, we explored the process of disclosure, providing descriptive information and examining the relationships among disclosure, demographic variables, and child adjustment. Participants were 23 mothers and one of their noninfected children (9 to 16 years of age). Sixty-one percent of mothers disclosed. Consistent with previous research, disclosure was not related to child functioning. However, children sworn to secrecy demonstrated lower social competence and more externalizing problems. Differential disclosure, which occurred in one-third of the families, was associated with higher levels of depressive and anxiety symptoms. Finally, knowing more than mothers had themselves disclosed was related to child maladjustment across multiple domains. Clinical implications and the need for future research are considered.
Literatuur
go back to reference Achenbach, T. M. (1991a). Manual for the Child Behavior Checklist 4-18 and 1991 profile. Burlington, VT: University of Vermont Department of Psychiatry. Achenbach, T. M. (1991a). Manual for the Child Behavior Checklist 4-18 and 1991 profile. Burlington, VT: University of Vermont Department of Psychiatry.
go back to reference Achenbach, T. M. (1991b). Manual for the Youth Self-Report and 1991 profile. Burlington, VT: University of Vermont Department of Psychiatry. Achenbach, T. M. (1991b). Manual for the Youth Self-Report and 1991 profile. Burlington, VT: University of Vermont Department of Psychiatry.
go back to reference Achenbach, T. M., & Edelbrock, C. S. (1986). Manual for the Teacher Report Form of the child behavior profile. Burlington, VT: University of Vermont Department of Psychiatry. Achenbach, T. M., & Edelbrock, C. S. (1986). Manual for the Teacher Report Form of the child behavior profile. Burlington, VT: University of Vermont Department of Psychiatry.
go back to reference Antle, B. J., Wells, L. M., Goldie, R. S., DeMatteo, D., & King, S. M. (2001). Challenges of parenting for families living with HIV/AIDS. Social Work, 46, 159–169.PubMed Antle, B. J., Wells, L. M., Goldie, R. S., DeMatteo, D., & King, S. M. (2001). Challenges of parenting for families living with HIV/AIDS. Social Work, 46, 159–169.PubMed
go back to reference Armistead, L., & Forehand, R. (1995). For whom the bell tolls: Parenting decisions and challenges faced by mothers who are HIV seropositive. Clinical Psychology: Science and Practice, 2, 239–250.CrossRef Armistead, L., & Forehand, R. (1995). For whom the bell tolls: Parenting decisions and challenges faced by mothers who are HIV seropositive. Clinical Psychology: Science and Practice, 2, 239–250.CrossRef
go back to reference Armistead, L., Klein, K., Forehand, R., & Wierson, M. (1997). Disclosure of parental HIV infection to children in the families of men with hemophilia: Description, outcomes, and the role of family processes. Journal of Family Psychology, 11, 49–61.CrossRef Armistead, L., Klein, K., Forehand, R., & Wierson, M. (1997). Disclosure of parental HIV infection to children in the families of men with hemophilia: Description, outcomes, and the role of family processes. Journal of Family Psychology, 11, 49–61.CrossRef
go back to reference Armistead, L., Summers, P., Forehand, R., Morse, P. S., Morse, E., & Clark, L. (1999). Understanding of HIV/AIDS among children of HIV-infected mothers: Implications for prevention, disclosure, and bereavement. Children’s Health Care, 28, 277–295.CrossRef Armistead, L., Summers, P., Forehand, R., Morse, P. S., Morse, E., & Clark, L. (1999). Understanding of HIV/AIDS among children of HIV-infected mothers: Implications for prevention, disclosure, and bereavement. Children’s Health Care, 28, 277–295.CrossRef
go back to reference Armistead, L., Tannenbaum, L., Forehand, R., Morse, E., & Morse, P. (2001). Disclosing HIV status: Are mothers telling their children? Journal of Pediatric Psychology, 26, 11–20.PubMedCrossRef Armistead, L., Tannenbaum, L., Forehand, R., Morse, E., & Morse, P. (2001). Disclosing HIV status: Are mothers telling their children? Journal of Pediatric Psychology, 26, 11–20.PubMedCrossRef
go back to reference Bauman, L. J., Camacho, S., Silver, E. J., Hudis, J., & Draimin, B. (2002). Behavioral problems in school-aged children of mothers with HIV/AIDS. Clinical Child Psychology and Psychiatry, 7, 39–54.CrossRef Bauman, L. J., Camacho, S., Silver, E. J., Hudis, J., & Draimin, B. (2002). Behavioral problems in school-aged children of mothers with HIV/AIDS. Clinical Child Psychology and Psychiatry, 7, 39–54.CrossRef
go back to reference Centers for Disease Control and Prevention (2002). HIV /AIDS surveillance report, 14, 1–48. Atlanta, GA: Author. Centers for Disease Control and Prevention (2002). HIV /AIDS surveillance report, 14, 1–48. Atlanta, GA: Author.
go back to reference Dorsey, S., Chance, M. W., Forehand, R., Morse, E., & Morse, P. (1999). Children whose mothers are HIV infected: Who resides in the home and is there a relationship to child psychosocial adjustment? Journal of Family Psychology, 13, 103–117.CrossRef Dorsey, S., Chance, M. W., Forehand, R., Morse, E., & Morse, P. (1999). Children whose mothers are HIV infected: Who resides in the home and is there a relationship to child psychosocial adjustment? Journal of Family Psychology, 13, 103–117.CrossRef
go back to reference Edelbrock, C. S., & Achenbach, T. M. (1984). The teacher version of the child behavior profile: Boys age 6–11. Journal of Consulting and Clinical Psychology, 52, 207–217.CrossRef Edelbrock, C. S., & Achenbach, T. M. (1984). The teacher version of the child behavior profile: Boys age 6–11. Journal of Consulting and Clinical Psychology, 52, 207–217.CrossRef
go back to reference Esposito, S., Musetti, L., Musetti, M. C., Corbella, S., Massironi, E., Marchisio, P., et al. (1999). Behavioral and psychological disorders in uninfected children aged 6 to 11 years born to Human Immunodeficiency Virus-seropositive mothers. Developmental and Behavioral Pediatrics, 20, 411–417.CrossRef Esposito, S., Musetti, L., Musetti, M. C., Corbella, S., Massironi, E., Marchisio, P., et al. (1999). Behavioral and psychological disorders in uninfected children aged 6 to 11 years born to Human Immunodeficiency Virus-seropositive mothers. Developmental and Behavioral Pediatrics, 20, 411–417.CrossRef
go back to reference Faithfull, J. (1997). HIV-positive and AIDS-infected women: Challenges and difficulties of mothering. American Journal of Orthopsychiatry, 67, 144–151.PubMedCrossRef Faithfull, J. (1997). HIV-positive and AIDS-infected women: Challenges and difficulties of mothering. American Journal of Orthopsychiatry, 67, 144–151.PubMedCrossRef
go back to reference Finkenauer, C., & Rime, B. (1998a) Socially shared emotional experiences vs. emotional experiences kept secret: Differential characteristics and consequences. Journal of Social and Clinical Psychology, 17, 295–318. Finkenauer, C., & Rime, B. (1998a) Socially shared emotional experiences vs. emotional experiences kept secret: Differential characteristics and consequences. Journal of Social and Clinical Psychology, 17, 295–318.
go back to reference Finkenauer, C., & Rime, B. (1998b). Keeping emotional memories secret: Health and subjective well-being when emotions are not shared. Journal of Health Psychology, 3, 47–58.CrossRef Finkenauer, C., & Rime, B. (1998b). Keeping emotional memories secret: Health and subjective well-being when emotions are not shared. Journal of Health Psychology, 3, 47–58.CrossRef
go back to reference Forsyth, B. W. C., Damour, L., Nagler, S., & Adnopoz, J. (1996). The psychological effects of parental human immunodeficiency virus infection on uninfected children. Archives of Pediatric Adolescent Medicine, 150, 1015–1020. Forsyth, B. W. C., Damour, L., Nagler, S., & Adnopoz, J. (1996). The psychological effects of parental human immunodeficiency virus infection on uninfected children. Archives of Pediatric Adolescent Medicine, 150, 1015–1020.
go back to reference Grant, K. E., & Compas, B. E. (1995). Stress and anxious-depressed symptoms of anxiety/depression among adolescents: Searching for mechanisms of risk. Journal of Consulting and Clinical Psychology, 63, 1015–1021.PubMedCrossRef Grant, K. E., & Compas, B. E. (1995). Stress and anxious-depressed symptoms of anxiety/depression among adolescents: Searching for mechanisms of risk. Journal of Consulting and Clinical Psychology, 63, 1015–1021.PubMedCrossRef
go back to reference Harter, S. (1985). Manual for the Self-Perception Profile for Children. Denver, CO: University of Denver. Harter, S. (1985). Manual for the Self-Perception Profile for Children. Denver, CO: University of Denver.
go back to reference Jamison, R. N., & Walker, L. S. (1992). Illness behavior in children of chronic pain patients. International Journal of Psychiatry in Medicine, 22, 329–342.PubMed Jamison, R. N., & Walker, L. S. (1992). Illness behavior in children of chronic pain patients. International Journal of Psychiatry in Medicine, 22, 329–342.PubMed
go back to reference Joint United Nations Programme on HIV/AIDS. (2000). Report on the Global HIV /AIDS Epidemic. Geneva, Switzerland: Author. Joint United Nations Programme on HIV/AIDS. (2000). Report on the Global HIV /AIDS Epidemic. Geneva, Switzerland: Author.
go back to reference Lee, M. L., & Rotheram-Borus, M. J. (2002). Parents’ disclosure of HIV to their children. AIDS, 16, 2201–2207.PubMedCrossRef Lee, M. L., & Rotheram-Borus, M. J. (2002). Parents’ disclosure of HIV to their children. AIDS, 16, 2201–2207.PubMedCrossRef
go back to reference Lester, P., Chesney, M., Cooke, M., Whalley, P., Perez, B., Petru, A., et al. (2002). Diagnostic disclosure to HIV-Infected children: How parents decide when and what to tell. Clinical Child Psychology and Psychiatry, 7, 85–99.CrossRef Lester, P., Chesney, M., Cooke, M., Whalley, P., Perez, B., Petru, A., et al. (2002). Diagnostic disclosure to HIV-Infected children: How parents decide when and what to tell. Clinical Child Psychology and Psychiatry, 7, 85–99.CrossRef
go back to reference Lipson, M. (1994). Disclosure of diagnosis to children with Human Immunodeficiency Virus or Acquired Immunodeficiency Syndrome. Developmental and Behavioral Pediatrics, 15, S61–S65.CrossRef Lipson, M. (1994). Disclosure of diagnosis to children with Human Immunodeficiency Virus or Acquired Immunodeficiency Syndrome. Developmental and Behavioral Pediatrics, 15, S61–S65.CrossRef
go back to reference Melvin, D. (1996). “Don’t forget the children”: Families living with HIV infection. In L. Sherr, C. Hankins & L. Bennett (Eds.), AIDS as a gender issue: Psychosocial perspectives (pp. 215–234). London: Taylor and Francis, Ltd. Melvin, D. (1996). “Don’t forget the children”: Families living with HIV infection. In L. Sherr, C. Hankins & L. Bennett (Eds.), AIDS as a gender issue: Psychosocial perspectives (pp. 215–234). London: Taylor and Francis, Ltd.
go back to reference Moneyham, L., Seals, B., Demi, A., Sowell, R., Cohen, L., & Guillory, J. (1996). Experiences of disclosure in women infected with HIV. Health Care for Women International, 17, 209–221.PubMedCrossRef Moneyham, L., Seals, B., Demi, A., Sowell, R., Cohen, L., & Guillory, J. (1996). Experiences of disclosure in women infected with HIV. Health Care for Women International, 17, 209–221.PubMedCrossRef
go back to reference Murphy, D. A., Dello Stritto, M. E., & Steers, W. N. (2001). Maternal disclosure of mothers’ HIV serostatus to their young children. Journal of Family Psychology, 15, 441–450.PubMedCrossRef Murphy, D. A., Dello Stritto, M. E., & Steers, W. N. (2001). Maternal disclosure of mothers’ HIV serostatus to their young children. Journal of Family Psychology, 15, 441–450.PubMedCrossRef
go back to reference Murphy, D. A., Marelich, W. D., & Hoffman, D. (2002). A longitudinal study of the impact on young children of maternal HIV serostatus disclosure. Clinical Child Psychology and Psychiatry, 7, 55–70.CrossRef Murphy, D. A., Marelich, W. D., & Hoffman, D. (2002). A longitudinal study of the impact on young children of maternal HIV serostatus disclosure. Clinical Child Psychology and Psychiatry, 7, 55–70.CrossRef
go back to reference Murphy, D. A., Roberts, K. J., & Hoffman, D. (2002). Stigma and ostracism associated with HIV/AIDS: Children carrying the secret of their mothers’ HIV+ serostatus. Journal of Child and Family Studies, 11, 191–202.CrossRef Murphy, D. A., Roberts, K. J., & Hoffman, D. (2002). Stigma and ostracism associated with HIV/AIDS: Children carrying the secret of their mothers’ HIV+ serostatus. Journal of Child and Family Studies, 11, 191–202.CrossRef
go back to reference Murphy, D. A., Roberts, K. J., & Hoffman, D. (2003). Regrets and advice from mothers show have disclosed their HIV+ serostatus to their young children. Journal of Child and Family Studies, 12, 307–318.CrossRef Murphy, D. A., Roberts, K. J., & Hoffman, D. (2003). Regrets and advice from mothers show have disclosed their HIV+ serostatus to their young children. Journal of Child and Family Studies, 12, 307–318.CrossRef
go back to reference Murphy, D. A., Roberts, K. J., & Hoffman, D. (2006). Young children’s reactions to mothers’ disclosure of HIV+ serostatus. Journal of Child and Family Studies, 15, 307–318.CrossRef Murphy, D. A., Roberts, K. J., & Hoffman, D. (2006). Young children’s reactions to mothers’ disclosure of HIV+ serostatus. Journal of Child and Family Studies, 15, 307–318.CrossRef
go back to reference Nagler, S. F., Adnopoz, J., & Forsyth, B. W. C. (1995). Uncertainty, stigma, and secrecy. Psychological aspects of AIDS for children and adolescents. In S. Geballe, J. Gruendel, & W. Andiman (Eds.), Forgotten children of the AIDS epidemic (pp. 71–82). New Haven, CT: Yale University Press. Nagler, S. F., Adnopoz, J., & Forsyth, B. W. C. (1995). Uncertainty, stigma, and secrecy. Psychological aspects of AIDS for children and adolescents. In S. Geballe, J. Gruendel, & W. Andiman (Eds.), Forgotten children of the AIDS epidemic (pp. 71–82). New Haven, CT: Yale University Press.
go back to reference Niebuhr, V. N., Hughes, J. R., & Pollard, R. B. (1994). Parents with Human Immunodeficiency Virus infection: Perceptions of their children’s emotional needs. Pediatrics, 93, 421–426.PubMed Niebuhr, V. N., Hughes, J. R., & Pollard, R. B. (1994). Parents with Human Immunodeficiency Virus infection: Perceptions of their children’s emotional needs. Pediatrics, 93, 421–426.PubMed
go back to reference Nostlinger, C., Jonckheer, T., de Belder, E., van Wijngaerden, E., Wylock, C., Pelgrom, J. et al. (2004). Families affected by HIV: Parents’ and children’s characteristics and disclosure to the children. AIDS Care, 16, 641–648.PubMedCrossRef Nostlinger, C., Jonckheer, T., de Belder, E., van Wijngaerden, E., Wylock, C., Pelgrom, J. et al. (2004). Families affected by HIV: Parents’ and children’s characteristics and disclosure to the children. AIDS Care, 16, 641–648.PubMedCrossRef
go back to reference Ostrom, R. A., Serovich, J. M., Lim, J. Y., & Mason, T. L. (2006). The role of stigma in reasons for HIV disclosure and non-disclosure to children. AIDS Care, 18, 60–65.PubMedCrossRef Ostrom, R. A., Serovich, J. M., Lim, J. Y., & Mason, T. L. (2006). The role of stigma in reasons for HIV disclosure and non-disclosure to children. AIDS Care, 18, 60–65.PubMedCrossRef
go back to reference Petrie, K. J., Booth, R. J., & Pennebaker, J. W. (1998). The immunological effects of thought suppression. Journal of Personality and Social Psychology, 75, 1264–1272.PubMedCrossRef Petrie, K. J., Booth, R. J., & Pennebaker, J. W. (1998). The immunological effects of thought suppression. Journal of Personality and Social Psychology, 75, 1264–1272.PubMedCrossRef
go back to reference Pilowsky, D. J., Sohler, N., & Susser, E. (1999). The parent disclosure interview. AIDS Care, 11, 447–452.PubMedCrossRef Pilowsky, D. J., Sohler, N., & Susser, E. (1999). The parent disclosure interview. AIDS Care, 11, 447–452.PubMedCrossRef
go back to reference Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRef Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRef
go back to reference Rime, B. (1999). Expressing emotion, physical health, and emotional relief: A cognitive-social perspective. Advances in Mind-Body Medicine, 15, 161–195. Rime, B. (1999). Expressing emotion, physical health, and emotional relief: A cognitive-social perspective. Advances in Mind-Body Medicine, 15, 161–195.
go back to reference Rotheram-Borus, M. J., Dramin, B. H., Reid, H. M., & Murphy, D. A. (1997). The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS. AIDS, 11, 1159–1164.PubMedCrossRef Rotheram-Borus, M. J., Dramin, B. H., Reid, H. M., & Murphy, D. A. (1997). The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS. AIDS, 11, 1159–1164.PubMedCrossRef
go back to reference Schrimshaw, E. W., & Siegel, K. (2002). HIV-infected mothers’ disclosure to their uninfected children: Rates, reasons, and reactions. Journal of Social and Personal Relationships, 19, 19–43.CrossRef Schrimshaw, E. W., & Siegel, K. (2002). HIV-infected mothers’ disclosure to their uninfected children: Rates, reasons, and reactions. Journal of Social and Personal Relationships, 19, 19–43.CrossRef
go back to reference Shaffer, A., Jones, D. J., Kotchick, B. A., Forehand, R., & The Family Health Project Research Group. (2001). Telling the children: Disclosure of maternal HIV infection and its effects on child psychosocial adjustment. Journal of Child and Family Studies, 10, 301–313.CrossRef Shaffer, A., Jones, D. J., Kotchick, B. A., Forehand, R., & The Family Health Project Research Group. (2001). Telling the children: Disclosure of maternal HIV infection and its effects on child psychosocial adjustment. Journal of Child and Family Studies, 10, 301–313.CrossRef
go back to reference Simoni, J. M., Mason, H. R. C., Marks, G., Ruiz, M. S., Reed, D., & Richardson, J. L. (1995). Women’s self-disclosure of HIV infection: Rates, reasons, and reactions. Journal of Consulting and Clinical Psychology, 63, 474–478.PubMedCrossRef Simoni, J. M., Mason, H. R. C., Marks, G., Ruiz, M. S., Reed, D., & Richardson, J. L. (1995). Women’s self-disclosure of HIV infection: Rates, reasons, and reactions. Journal of Consulting and Clinical Psychology, 63, 474–478.PubMedCrossRef
go back to reference Sowell, R. L., Seals, B. F., Moneyham, L., Demi, A., Cohen, L., & Brake, S. (1997). Quality of life in HIV-infected women in the south-eastern United States. AIDS Care, 9, 501–512.PubMedCrossRef Sowell, R. L., Seals, B. F., Moneyham, L., Demi, A., Cohen, L., & Brake, S. (1997). Quality of life in HIV-infected women in the south-eastern United States. AIDS Care, 9, 501–512.PubMedCrossRef
go back to reference Tompkins, T. L., Henker, B., Whalen, C. K., Axelrod, J., & Comer, L. K. (1999). Motherhood in the context of HIV infection: Reading between the numbers. Cultural Diversity and Ethnic Minority Psychology, 5, 197–208.CrossRef Tompkins, T. L., Henker, B., Whalen, C. K., Axelrod, J., & Comer, L. K. (1999). Motherhood in the context of HIV infection: Reading between the numbers. Cultural Diversity and Ethnic Minority Psychology, 5, 197–208.CrossRef
go back to reference Ware, J., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). Medical Care, 30, 473–483.PubMedCrossRef Ware, J., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). Medical Care, 30, 473–483.PubMedCrossRef
go back to reference Wiener, L. S., Battles, H. B., & Heilman, N. E. (1998). Factors associated with parents’ decision to disclose their HIV diagnosis to their children. Child Welfare, 77, 115–135.PubMed Wiener, L. S., Battles, H. B., & Heilman, N. E. (1998). Factors associated with parents’ decision to disclose their HIV diagnosis to their children. Child Welfare, 77, 115–135.PubMed
go back to reference Wyatt, G. E., & Chin, D. (1999). HIV and ethnic minority women, families, and communities: An overview. Cultural Diversity and Ethnic Minority Psychology, 5, 179–182. Wyatt, G. E., & Chin, D. (1999). HIV and ethnic minority women, families, and communities: An overview. Cultural Diversity and Ethnic Minority Psychology, 5, 179–182.
Metagegevens
Titel
Disclosure of Maternal HIV Status to Children: To Tell or Not To Tell … That is the Question
Auteur
Tanya L. Tompkins
Publicatiedatum
01-12-2007
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 6/2007
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-006-9124-z

Andere artikelen Uitgave 6/2007

Journal of Child and Family Studies 6/2007 Naar de uitgave