Swipe om te navigeren naar een ander artikel
Children with neurodevelopmental disorders, such as attention deficit hyperactivity disorder (ADHD), autism spectrum disorder (ASD), and intellectual disability (ID), have a variety of difficulties that can place considerable strain on their families. This study investigated the nature of family burdens (i.e., financial burden, need for respite, need for counseling, work changes, and care hours) by examining the effects of child characteristics (i.e., age, gender, and severity of condition), family characteristics (i.e., parent role, education, income, and number of children), and child difficulties (i.e., behavioral, adaptive, emotional, social, learning, and communicative). With representative survey data from parents of children with ADHD (n = 8252), ASD (n = 1448), or ID (n = 949), ranging in age from 2 to 17 years old, we used Χ2, binary logistic regression, linear regression, and univariate analyses to answer our research questions. We found that parents of children with ADHD, ASD, and ID experienced different types and amounts of burdens, families of younger children experienced more burden than those of older children, and families with more income or more children experienced fewer burdens. Adaptive and behavioral difficulties had the greatest relative impact on families. Diagnosis moderated almost all of the relationships between child difficulties and family burden. Overall, these results suggest that providing services and supports that are tailored to the specific needs of each child and family will be necessary for enhancing quality of life.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Addis, M. E. (2008). Gender and depression in men. Clinical Psychology: Science and Practice, 15, 153–168. https://doi.org/10.1111/j.1468-2850.2008.00125.x.
American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5). Arlington, VA: American Psychiatric Publishing. CrossRef
Blumberg, S. J., Olson, L., Frankel, M., Osborn, L., Becker, C. J., Srinath, K. P., & Giambo, P. (2003). Design and operation of the National Survey of Children with Special Health Care Needs, 2001. Vital Health Statistics, 1(41), 1–136.
Blumberg, S. J., Welch, E. M., Chowdhury, S. R., Upchurch, H. L., Parker, E. K., & Skalland, B. J. (2008). Design and operation of the National Survey of Children with Special Health Care Needs, 2005–2006. Vital Health Statistics, 1(45), 1–188.
Braun, K. V. N., Christensen, D., Doernberg, N., Schieve, L., Rice, C., Wiggins, L., & Yeargin-Allsopp, M. (2015). Trends in the prevalence of autism spectrum disorder, cerebral palsy, hearing loss, intellectual disability, and vision impairment, Metropolitan Atlanta, 1991-2010. PLoS ONE, 10(4), e0124120 https://doi.org/10.1371/journal.pone.0124120. CrossRef
Britt, H., Valenti, L., & Miller, G. (2005). Determinants of consultation length in Australian general practice. Medical Journal of Australia, 183, 68–71. PubMed
Brown, R. I., Geider, S., Primrose, A., & Jokinen, N. S. (2011). Family life and the impact of previous and present residential and day care support for children with major cognitive and behavioural challenges: a dilemma for services and policy. Journal of Intellectual Disability Research, 55, 904–917. CrossRefPubMed
Cassidy, A., McConkey, R., Truesdale-Kennedy, M., & Slevin, E. (2008). Preschoolers with autism spectrum disorders: the impact on families and the supports available to them. Early Child Development and Care, 178, 115–128. CrossRef
Centers for Disease Control and Prevention (2011). 2009-2010 National Survey of Children with Special Health Care Needs frequently asked questions. http://www.cdc.gov/nchs/slaits/cshcn.htm#09-10.
Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Hillsdale, NJ: Erlbaum.
Esbensen, A. J., Seltzer, M. M., & Greenberg, J. S. (2006). Depressive symptoms in adults with mild to moderate intellectual disability and their relation to maternal well-being. Journal of Policy and Practice in Intellectual Disabilities, 3, 229–237. CrossRef
Fischer, M. (1990). Parenting stress and the child with attention deficit hyperactivity disorder. Journal of Clinical Child Psychology, 19, 337–346. CrossRef
Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics and Adolescent Medicine, 161, 343–349. https://doi.org/10.1001/archpedi.161.4.343. CrossRefPubMed
Green, J. L., Rinehart, N., Anderson, V., Efron, D., Nicholson, J. M., Jongeling, B., & Sciberras, E. (2016). Association between autism symptoms and family functioning in children with attention-deficit/hyperactivity disorder: a community-based study. European Child & Adolescent Psychiatry, 25, 1307–1318. https://doi.org/10.1007/s00787-016-0861-2. CrossRef
Hankin, C. S. (2001). ADHD and its impact on the family. Drug Benefit Trends, 13, 15–16.
Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47, 231–237. https://doi.org/10.1046/j.1365-2788.2003.00485.x. CrossRefPubMed
Hussein, R. A., Elsayed, H., & Elsaied, H. F. (2015). Challenging behavior and psychiatric symptoms among adults with intellectual disability: Epidemiological aspects and family burden. The Arab Journal of Psychiatry, 26, 145–154. CrossRef
Irazabal, M., Marsa, F., Garcia, M., Gutierrez-Recacha, P., Martorell, A., Salvador-Carulla, L., & Ochoa, S. (2012). Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder. Research in Developmental Disabilities, 33, 796–803. CrossRefPubMed
Johnson, J. H., & Reader, S. K. (2002). Assessing stress in families of children with ADHD: Preliminary development of the Disruptive Behavior Stress Inventory (DBSI). Journal of Clinical Psychology in Medical Settings, 9, 51–62. CrossRef
Larson, E. (2010). Ever vigilant: maternal support of participation in daily life for boys with autism. Physical & Occupational Therapy in Pediatrics, 30, 16–27. CrossRef
Lavelle, T. A., Weinstein, M. C., Newhouse, J. P., Munir, K., Kuhlthau, K. A., & Prosser, L. A. (2014). Economic burden of childhood autism spectrum disorders. Pediatrics, 133, 520–529. CrossRef
Lyons, A. M., Leon, S. C., Phelps, C. E. R., & Dunleavy, A. M. (2010). The impact of child symptom severity on stress among parents of children with ASD: The moderating role of coping styles. Journal of Child and Family Studies, 19, 516–524. CrossRef
Malhotra, S., Khan, W., & Bhatia, M. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatry Journal, 15, 171–176.
McIntyre, L., Blacher, J., & Baker, B. (2002). Behaviour/mental health problems in young adults with intellectual disability: the impact on families. Journal of Intellectual Disability Research, Special Issue: Mental Health and Intellectual Disability, 46, 239–249. CrossRef
Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: a population-based study. Pediatrics, 119, 1040–1046. CrossRef
Peasgood, T., Bhardwaj, A., Biggs, K., Brazier, J. E., Coghill, D., Cooper, C. L., & Sonuga-Barke, E. J. S. (2016). The impact of ADHD on the health and well-being of ADHD children and their siblings. European Child & Adolescent Psychiatry, 25, 1217–1231. https://doi.org/10.1007/s00787-016-0841-6. CrossRef
Pinquart, M., & Sörensen, S. (2006). Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. Journal of Gerontology, Series B, Psychological Sciences and Social Sciences, 61, 33–45. CrossRef
Salvador-Carulla, L., & Saxena, S. (2009). Intellectual disability: between disability and clinical nosology. The Lancet, 374, 1798–1799. CrossRef
Sharpe, D. (2015). Your chi-square test is statistically significant: Now what? Practical Assessment, Research, and Evaluation, 20(8). http://pareonline.net/getvn.asp?v=20&n=8.
Theule, J., Wiener, J., Tannock, R., & Jenkins, J. M. (2012). Parenting stress in families of children with ADHD: a meta-analysis. Journal of Emotional and Behavioral Disorders, 21, 3–17. CrossRef
Thorell, L. B., & Rydell, A. M. (2008). Behaviour problems and social competence deficits associated with symptoms of attention-deficit/hyperactivity disorder: Effects of age and gender. Child: Care, Health and Development, 34, 584–595.
Woodman, A. C. (2014). Trajectories of stress among parents of children with disabilities: a dyadic analysis. Journal of Applied Family Studies, 63, 39–54.
Wymbs, B. T., Pelham, W. E., Gnagy, E. M., & Molina, B. S. G. (2008). Mother and adolescent reports of interparental discord among families of adolescents with and without attention-deficit hyperactivity disorder. Journal of Emotional and Behavioral Disorders, 16, 29–41. https://doi.org/10.1177/1063426607310849. CrossRefPubMedPubMedCentral
- Differential Effects of Child Difficulties on Family Burdens across Diagnostic Groups
Kristen N. Dovgan
Micah O. Mazurek
- Springer US