Swipe om te navigeren naar een ander artikel
To develop a self-report version of the EQ-5D for younger respondents, named the EQ-5D-Y (Youth); to test its comprehensibility for children and adolescents and to compare results obtained using the standard adult EQ-5D and the EQ-5D-Y.
An international task force revised the content of EQ-5D and wording to ensure relevance and clarity for young respondents. Children’s and adolescents’ understanding of the EQ-5D-Y was tested in cognitive interviews after the instrument was translated into German, Italian, Spanish and Swedish. Differences between the EQ-5D and the EQ-5D-Y regarding frequencies of reported problems were investigated in Germany, Spain and South Africa.
The content of the EQ-5D dimensions proved to be appropriate for the measurement of HRQOL in young respondents. The wording of the questionnaire had to be adapted which led to small changes in the meaning of some items and answer options. The adapted EQ-5D-Y was satisfactorily understood by children and adolescents in different countries. It was better accepted and proved more feasible than the EQ-5D. The administration of the EQ-5D and of the EQ-5D-Y causes differences in frequencies of reported problems.
The newly developed EQ-5D-Y is a useful tool to measure HRQOL in young people in an age-appropriate manner.
Raat, H., Bonsel, G. J., Essink-Bot, M. L., Landgraf, J. M., & Gemke, R. J. B. J. (2002). Reliability and validity of comprehensive health status measures in children: The Child Health Questionnaire in relation to the Health Utilities Index. Journal of Clinical Epidemiology, 55, 67–76. CrossRefPubMed
Verrips, E. G. H., Vogels, T. G. C., Koopman, H. M., Theunissen, N. C. M., Kamphuis, S. R. P., Fekkes, M., et al. (1999). Measuring health-related quality of life in a child population. European Journal of Public Health, 9, 188–193. CrossRef
Bruil, J., Maes, S., le Coq, L., & Boeke, J. (1996). The development of the how are you (HAY), a quality of life questionnaire for children. Quality of Life Newsletter, 13, 9.
Starfield, B., Riley, A., Ensminger, M., Green, B., Ryan, S., Kim-Harris, S., et al. (1994). Manual for the child health and illness profile—adolescent edition (CHIP-AE). Baltimore, MD: The John Hopkins University.
Hennessy, S., & Kind, P. (2002). Measuring health status in children: Developing and testing a child-friendly version of EQ-5D. In Proceedings of the 19th plenary meeting of the EuroQol Group. York, United Kingdom.
Badia, X., Gracia-Hernandez, G., Cobos, N., López-David, C., Nocea, G., Roset, M., et al. (2001). Validity of the Spanish version of the Pediatric Quality of Life Questionnaire for evaluating quality of life in asthmatic children. Clinical Medicine, 116, 565–572.
Burström, K., Egmar, A.-C., Eriksson, M., Lugnér, A., & Svartengren, M. (2003). Development of a Swedish child- friendly version of the EQ- 5D. Paper presented at the 20th plenary meeting of the EuroQol group. Bled, Slovenia.
Burström, K., Egmar, A.-C., Eriksson, M., & Svartengren, M. (2005). EQ-5D in a Swedish representative population survey of children aged 8 and 12 years: A child-friendly version used in a clinical examination. In Proceedings of the 22nd plenary meeting of the EuroQol Group. Oslo, Norway.
Jelsma, J., Knight, F., Meyer, L., et al. (2005). The validity of the UK “child friendly” version of the EQ-5D in South African children aged 9 to 12 years. In Proceedings of the 22nd plenary meeting of the EuroQoL Group. Oslo, Norway.
Jelsma, J., Coppez, P., Jehosofat, T., et al. (2006). The validity of the child friendly version of the EQ-5D when used with high school English speaking children in South Africa—preliminary results. In Proceedings of the 23rd plenary meeting of the EuroQoL Group. Barcelona, Spain.
Ravens-Sieberer, U., Wille, N., Badia, X., Bonsel, G., Burström, K., Cavrini, G., et al. Feasibility, reliability, and validity of the EQ-5D-Y: Results from a multinational study. Quality of Life Research. doi: 10.1007/s11136-010-9649-x.
Szende, A., Oppe, M., & Devlin, N. (2007). EQ-5D valuation sets: Inventory, comparative review and user guide. Rotterdam: Springer.
Fox-Rushby, J., & Selai, C. (2003). What concepts does the EQ-5D measure? Intentions and interpretations. In R. Brooks, R. Rabin, & F. de Charro (Eds.), The measurement and valuation of health status using EQ-5D: A European Perspective (pp. 167–182). Dordrecht: Kluwer.
Herdman, M., Fox-Rushby, J., Rabin, R., Badia, X., & Selai, C. (2003). Producing other language versions of the EQ-5D. In R. Brooks, R. Rabin, & F. de Charro (Eds.), The measurement and valuation of health status using EQ-5D: A European Perspective (pp. 183–190). Dordrecht: Kluwer.
Forsyth, B. H., & Lessler, J. T. (1991). Cognitive laboratory methods: A taxonomy. In P. Biemer, R. Groves, L. Lyberg, et al. (Eds.), Measurement errors in surveys (pp. 393–418). New York: Wiley.
Conrad, F., Blair, J., & Tracy, E. (1999). Verbal reports are data! A theoretical approach to cognitive interviews. FCSM conference.
Prüfer, P., & Rexroth, M. (2000). Zwei- Phasen- Pretesting. ZUMA-Arbeitsbericht 2000/08, Mannheim.
Cull, A., Sprangers, M., Bjordal, K., Aaronson, N., West, K., & Bottomley, A. (2002). EORTC quality of life group translation procedure (2nd ed.) Brussels (on behalf of the EORTC Quality of Life Group).
Doise, W., Clemence, A., & Lorenzi-Cioldi, F. (1993). The quantitative analysis of social representations. New York: Harvester Wheatsheaf.
Scalone, L., Tomasetto, C., Matteucci, M.C., Selleri, P., Broccoli, S., Pacelli, B. et al. Development and validation of EQ-5D to assess health related quality of life in children and adolescents: The contribution of the Italian EQ-5D-Y. Quality of Life Research (submitted).
Burström, K., Egmar, A.-C., Lugnér, A., Eriksson, M., & Svartengren, M. (2010). A Swedish child-friendly pilot version of the EQ-5D instrument—the development process. European Journal of Public Health. doi: 10.1093/eurpub/ckq037.
Burström, K., Svartengren, M., & Egmar, A.-C. (2010). Testing a Swedish pilot version of the EQ-5D instrument-initial results. European Journal of Public Health. doi: 10.1093/eurpub/ckq042.
Jelsma, J. A comparison of the EQ-5D and the EQ-5D-Y health related quality of life instruments in South African children. International Journal of Rehabilitation Research (accepted for publication).
- Development of the EQ-5D-Y: a child-friendly version of the EQ-5D
- Springer Netherlands