Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

03-10-2016 | SI: The Autism Inpatient Collection - Studying the Severely Affected

Development of the Emotion Dysregulation Inventory: A PROMIS®ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder

Auteurs: Carla A. Mazefsky, Taylor N. Day, Matthew Siegel, Susan W. White, Lan Yu, Paul A. Pilkonis, For The Autism and Developmental Disabilities Inpatient Research Collaborative (ADDIRC)

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2018

Abstract

The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI’s development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS®) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability.

vorige artikel Behavioral Symptoms of Reported Abuse in Children and Adolescents with Autism Spectrum Disorder in Inpatient Settings

volgende artikel A Longitudinal Study of Children Diagnosed with Autism Spectrum Disorder Before Age Three: School Services at Three Points Time for Three Levels of Outcome Disability

Alleen toegankelijk voor geautoriseerde gebruikers

Aldao, A., Nolen-Hoeksema, S., & Schweizer, S. (2010). Emotion-regulation strategies across psychopathology: A meta-analytic review. Clinical Psychology Review, 30, 217–237.CrossRefPubMed

Alwin, D. F., & Krosknick, J. A. (1991). The reliability of survey attitude measurement: The influence of question and respondent attributes. Sociological Methods Research, 20(1), 139–181.CrossRef

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders, 5th edition: DSM-5. Washington, DC: American Psychiatric Association.CrossRef

Arnold, L. E., Vitiello, B., McDougle, C., Scahill, L., Shah, B., Gonzalez, N. M., & Cronin, P. (2003). Parent-defined target symptoms respond to risperidone in RUPP autism study: Customer approach to clinical trials. Journal of the American Academy of Child & Adolescent Psychiatry, 42, 1443–1450.CrossRef

Bearss, K., Taylor, C. A., Aman, M. G., Whittemore, R., Lecavalier, L., Miller, J., & Scahill, L. (2015). Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder. Autism. doi:10.1177/1362361315601012.CrossRefPubMed

Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., & Cook, K. (2010). The patient-reported outcomes measurement information system (PROMIS®) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63, 1179–1194.CrossRefPubMedPubMedCentral

Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., & Rose, M. (2007). The patient-reported outcomes measurement information system (PROMIS®): Progress of an NIH Roadmap cooperative group during its first two years. Medical Care ,45 (5 Suppl 1), S3–S11.CrossRefPubMedPubMedCentral

Christensen, D. L., Baio, J., Braun, K. V. N., Bilder, D., Charles, J., Constantino, J. N., et al. (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2012. MMWR Surveillance Summaries, 65(3), 1–23. doi:10.15585/mmwr.ss6503a1.CrossRefPubMedCentral

Croen, L. A., Najjar, D. V., Ray, G. T., Lotspeich, L., & Bernal, P. (2006). A comparison of health care utilization and costs of children with and without autism spectrum disorders in a large group-model health plan. Pediatrics, 118(4), e1203–e1211.CrossRefPubMed

Daniels, A. M., Rosenberg, R. E., Anderson, C., Law, J. K., Marvin, A. R., & Law, P. A. (2012). Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry. Journal of Autism and Developmental Disorders, 42, 257–265.CrossRefPubMed

DeWalt, D. A., Rothrock, N., Yount, S., & Stone, A. A. (2007). Evaluation of item candidates: The PROMIS qualitative item review. Medical Care ,45(5 Suppl 1), S12–S21.CrossRefPubMedPubMedCentral

Farchione, T. J., Fairholme, C. P., Ellard, K. K., Boisseau, C. L., Thompson-Hollands, J., Carl, J. R., & Barlow, D. H. (2012). Unified protocol for transdiagnostic treatment of emotional disorders: A randomized controlled trial. Behavior Therapy, 43, 666–678.CrossRefPubMedPubMedCentral

Hamleton, R. (1991). Fundamentals of item response theory. In F. Lord (Ed.), Applications of item response theory to practical testing problems. New Jersey: Lawrence Erlbaum.

IBM. (2015). SPSS statistics for windows: Version 23. Armonk, NY: IBM Corporation.

Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes ,7(3). doi:10.1186/1477-7525-7-3.

Kerns, C. M., Kendall, P. C., Berry, L., Souders, M. C., Franklin, M. E., Schultz, R. T., & Herrington, J. (2014). Traditional and atypical presentations of anxiety in youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 2851–2861.CrossRefPubMedPubMedCentral

Lartseva, A., Dijkstra, T., & Buitelaar, J. K. (2015). Emotional language processing in autism spectrum disorders: A systematic review. Frontiers in Human Neuroscience, 8, 1–24.CrossRef

Leyfer, O. T., Folstein, S. E., Bacalman, S., Davis, N. O., Dinh, E., Morgan, J., et al. (2006). Comorbid psychiatric disorders in children with autism: Interview development and rates of disorders. Journal of Autism and Developmental Disorders, 36, 849–861.CrossRefPubMed

Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule: ADOS-2. Torrance, CA: Western Psychological Services.

Magnuson, K. M., & Constantino, J. N. (2011). Characterization of depression in children with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 32, 332–340.CrossRefPubMedPubMedCentral

March, J. S. (1997). Manual for the multidimensional anxiety scale for children (MASC). Toronto, ON: Multi-Health Systems.

Mazefsky, C. A. (2015). Emotion regulation and emotional distress in autism spectrum disorder: Foundations and considerations for future research. Journal of Autism and Developmental Disorders, 45, 3405–3408.CrossRefPubMedPubMedCentral

McEvoy, P. M., Nathan, P., & Norton, P. J. (2009). Efficacy of transdiagnostic treatments: A review of published outcome studies and future research directions. Journal of Cognitive Psychotherapy, 23(1), 20–33.CrossRef

NIMH Research Domain Criteria (RDoC) (2013). Retrieved from http://www.nimh.nih.gov/research-funding/rdoc/index.shtml.

Pilkonis, P. A., Choi, S. W., Reise, S. P., Stover, A. M., Riley, W. T., & Cella, D. (2011). Item banks for measuring emotional distress from the patient-reported outcomes measurement information system (PROMIS®): Depression, anxiety, and anger. Assessment, 18, 263–283.CrossRefPubMedPubMedCentral

PROMIS® Validity Standards Committee on behalf of the PROMIS® Network. (2012). PROMIS® instrument development and psychometric evaluation scientific standards. 1–72. Retrieved from http://www.nihpromis.org/science/methodology?AspxAutoDetectCookieSupport=1.

Quill, K. A. (1995). Introduction. In K. A. Quill (Ed.), Teaching children with autism: Strategies to enhance communication and socialization (pp. 1–32). New York: Delmar.

Roid, G. H., Miller, L. J., Pomplun, M., & Koch, C. (2013). Leiter international performance scale, third edition: Leiter-3. Wood Dale, IL: Stoelting Co.

Rutter, M., Bailey, A., & Lord, C. (2003). The social communication questionnaire: Manual. Torrance, CA: Western Psychological Services.

Salazar, F., Baird, G., Chandler, S., Tseng, E., O’Sullivan, T., Howlin, P., & Simonoff, E. (2015). Co-occurring psychiatric disorders in preschool and elementary school-aged children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 2283–2294.CrossRefPubMed

Samson, A. C., Huber, O., & Gross, J. J. (2012). Emotion regulation in Asperger’s syndrome and high-functioning autism. Emotion, 12, 659.CrossRefPubMed

Siegel, M., & Gabriels, R. L. (2014). Psychiatric hospital treatment of children with autism and serious behavioral disturbance. Child and Adolescent Psychiatric Clinics of North America, 23(1), 125–142.CrossRefPubMed

Siegel, M., Milligan, B., Chemelski, B., Payne, D., Ellsworth, B., Harmon, J., & Smith, K. A. (2014). Specialized inpatient psychiatry for serious behavioral disturbance in autism and intellectual disability. Journal of Autism and Developmental Disorders, 44, 3026–3032.CrossRefPubMed

Siegel, M., Smith, K.A., Mazefsky, C., Gabriels, R. L., Erickson, C., Kaplan, D., & Santangelo, S. L. for the Autism and Developmental Disorders Inpatient Research Collaborative (ADDIRC). (2015). The autism inpatient collection: Methods and preliminary sample description. Molecular Autism, 6, 61–71.CrossRefPubMedPubMedCentral

Tager-Flusberg, H., & Kasari, C. (2013). Minimally verbal school—aged children with autism spectrum disorder: The neglected end of the spectrum. Autism Research, 6, 468–478.CrossRefPubMed

Watson, D., & Clark, L. A. (1992). Affects separable and inseparable: On the hierarchical arrangement of the negative affects. Journal of Personality and Social Psychology, 62, 489–505.CrossRef

White, S. W., Elias, R., Salinas, C., Capriola, N., Conner, C. M., Asselin, S., et al. (2016). Students with autism spectrum disorder in college: Results from a preliminary mixed methods needs analysis. Research in Developmental Disabilities. doi:10.1016/j.ridd.2016.05.010. .CrossRefPubMedCentralPubMed

White, S. W., Lerner, M. D., McLeod, B. D., Wood, J. J., Ginsburg, G. S., Kerns, C., & Compton, S. (2015). Anxiety in youth with and without autism spectrum disorder: Examination of factorial equivalence. Behavior Therapy, 46, 40–53.CrossRefPubMed

Titel: Development of the Emotion Dysregulation Inventory: A PROMIS®ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder
Auteurs: Carla A. Mazefsky
Taylor N. Day
Matthew Siegel
Susan W. White
Lan Yu
Paul A. Pilkonis
For The Autism and Developmental Disabilities Inpatient Research Collaborative (ADDIRC)
Publicatiedatum: 03-10-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 11/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-016-2907-1

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 11/2018

Problem Behaviors in Autism Spectrum Disorder: Association with Verbal Ability and Adapting/Coping Skills

Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders

Differences of Symptom Distribution Across Adult Age in High Functioning Individuals on the Autism Spectrum Using Subscales of the Autism Spectrum Quotient

Predictors of Inpatient Psychiatric Hospitalization for Children and Adolescents with Autism Spectrum Disorder

Training Physical Therapists in Early ASD Screening

Intrinsic and Extrinsic Predictors of Emotion Regulation in Children with Autism Spectrum Disorder