Development of the Connectedness to Treatment Setting Scale for Children with Cancer and Their Parents

Treatment for pediatric cancer requires periodic and long hospital admissions. The intensity and frequency of the interactions taking place in the treatment setting indicate that this is a context to which children and their families can feel connected. This study’s main goal was to develop the Connectedness to Treatment Setting Scale (CTSS-Pediatric Cancer), a 10-item scale assessing children’s and parents’ connectedness to the health setting where children receive cancer treatment. Participants were 128 dyads of children receiving treatment at two Portuguese public hospitals and their parents. Two exploratory factor analyses with children’s and parents’ data separately and a dyadic confirmatory factor analysis with the whole sample supported a second-order factorial structure of the CTSS-Pediatric Cancer, where three dimensions (Sense of Belonging, Comfort and Emotional Care) loaded onto a total score of connectedness. Findings suggest that the CTSS-Pediatric Cancer is a valid and useful assessment measure.