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A key goal in asthma treatment is improvement in quality of life (QoL), but existing measures often confound QoL with symptoms and functional impairment. The current study addresses these limitations and the need for valid patient-reported outcome measures by using state-of-the-art methods to develop an item bank assessing QoL in adults with asthma. This article describes the process for developing an initial item pool for field testing.
Five focus group interviews were conducted with a total of 50 asthmatic adults. We used “pile sorting/binning” and “winnowing” methods to identify key QoL dimensions and develop a pool of items based on statements made in the focus group interviews. We then conducted a literature review and consulted with an expert panel to ensure that no key concepts were omitted. Finally, we conducted individual cognitive interviews to ensure that items were well understood and inform final item refinement.
Six hundred and sixty-one QoL statements were identified from focus group interview transcripts and subsequently used to generate a pool of 112 items in 16 different content areas.
Items covering a broad range of content were developed that can serve as a valid gauge of individuals’ perceptions of the effects of asthma and its treatment on their lives. These items do not directly measure symptoms or functional impairment, yet they include a broader range of content than most existent measures of asthma-specific QoL.
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CDC. (2010). America breathing easier 2010: CDC’s National Asthma Control Program at a Glance. (pp. 4): National Center for Environmental Health (NCEH): Division of Environmental Hazards and Health Effects, Center for Disease Control and Prevention, Atlanta, Georgia.
Moorman, J. E., Rudd, R. A., Johnson, C. A., King, M., Minor, P., Bailey, C., et al. (2007). National surveillance for asthma—United States, 1980–2004. Atlanta, GA: Department of Health and Human Services, Centers for Disease Control and Prevention.
Hyland, M. E. (1991). The living with asthma questionnaire. Respiratory medicine, 85 Suppl B, pp. 13–16; discussion 33–17.
National Heart, Lung, and Blood Institute. (2007). Expert Panel Report 3: Guidelines for the Diagnosis and Management of Asthma. National Institutes of Public Health Publication No. 97-4051. Bethesda, MD: National Heart, Lung, and Blood Institute.
Embretson, S. E., & Reise, S. (2000). Psychometric methods: Item response theory for psychologists. Mahwah, N.J.: Lawrence Erlbaum Associates, Publishers.
Wainer, H., & Mislevy, R. J. (2000). Item response theory, item calibration, and proficiency estimation. In H. Wainer, N. J. Dorans, D. Eignor, R. Flaugher, B. F. Green, R. J. Mislevy, et al. (Eds.), Computerized adaptive testing : a primer, 2nd ed. Mahwah, N.J.: Lawrence Erlbaum Associates, pp. xxiii, 335 p.
Benninger, M. S., & Senior, B. A. (1997). The development of the rhinosinusitis disability index. Archives of Otolaryngology—Head & Neck Surgery, 123(11), 1175–1179. CrossRef
Yeatts, K. B., Stucky, B., Thissen, D., Irwin, D., Varni, J. W., DeWitt, E. M., et al. (2010). Construction of the pediatric asthma impact scale (PAIS) for the patient-reported outcomes measurement information system (PROMIS). Journal of Asthma, 47(3), 295–302. doi: 10.3109/02770900903426997. PubMedCentralPubMedCrossRef
Vollmer, W. M., Markson, L. E., O’Connor, E., Sanocki, L. L., Fitterman, L., Berger, M., et al. (1999). Association of asthma control with health care utilization and quality of life. American Journal of Respiratory and Critical Care Medicine, 160(51), 6.
Lara, M., Ramos, G., Gonzales, J., Lopez, F., Morales, B., Marin, H., et al. (2013). Reducing quality of care disparities for childhood asthma: La Red de Asma Infantil Intervention in San Juan, Puerto Rico. Pediatrics, 131(Suppl1), S26–S37.
Harrington, S., & Glauber, J. (2011). Improving outcomes in asthma: Advancing quality using NCQA HEDIS measures. http://www.ncqa.org/Portals/0/Education/NCQA%20Asthma%20webinar%20Oct%202011.pdf. Accessed October 4, 2012.
- Development of a measure of asthma-specific quality of life among adults
Nicole K. Eberhart
Cathy D. Sherbourne
Maria Orlando Edelen
Brian D. Stucky
Nancy L. Sin
- Springer International Publishing