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Quality of Life Research
Gepubliceerd in: Quality of Life Research 9/2013

01-11-2013

Development and validation of the positive affect and well-being scale for the neurology quality of life (Neuro-QOL) measurement system

Auteurs: John M. Salsman, David Victorson, Seung W. Choi, Amy H. Peterman, Allen W. Heinemann, Cindy Nowinski, David Cella

Gepubliceerd in: Quality of Life Research | Uitgave 9/2013

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Abstract

Purpose

To develop and validate an item-response theory-based patient-reported outcomes assessment tool of positive affect and well-being (PAW). This is part of a larger NINDS-funded study to develop a health-related quality of life measurement system across major neurological disorders, called Neuro-QOL.

Methods

Informed by a literature review and qualitative input from clinicians and patients, item pools were created to assess PAW concepts. Items were administered to a general population sample (N = 513) and a group of individuals with a variety of neurologic conditions (N = 581) for calibration and validation purposes, respectively.

Results

A 23-item calibrated bank and a 9-item short form of PAW was developed, reflecting components of positive affect, life satisfaction, or an overall sense of purpose and meaning. The Neuro-QOL PAW measure demonstrated sufficient unidimensionality and displayed good internal consistency, test–retest reliability, model fit, convergent and discriminant validity, and responsiveness.

Conclusion

The Neuro-QOL PAW measure was designed to aid clinicians and researchers to better evaluate and understand the potential role of positive health processes for individuals with chronic neurological conditions. Further psychometric testing within and between neurological conditions, as well as testing in non-neurologic chronic diseases, will help evaluate the generalizability of this new tool.
vorige artikel Can pain and function be distinguished in the Oxford Knee Score in a meaningful way? An exploratory and confirmatory factor analysis
volgende artikel Factorial invariance of pediatric patient self-reported fatigue across age and gender: a multigroup confirmatory factor analysis approach utilizing the PedsQL™ Multidimensional Fatigue Scale
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Metagegevens
Titel
Development and validation of the positive affect and well-being scale for the neurology quality of life (Neuro-QOL) measurement system
Auteurs
John M. Salsman
David Victorson
Seung W. Choi
Amy H. Peterman
Allen W. Heinemann
Cindy Nowinski
David Cella
Publicatiedatum
01-11-2013
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 9/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0382-0

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