Skip to main content
Top
Gepubliceerd in:

18-06-2020 | Special Section: Feedback Tools

Development and usability of a feedback tool, “My Personal Brain Health Dashboard”, to improve setting of self-management goals among people living with HIV in Canada

Auteurs: Maryam Mozafarinia, Fateme Rajabiyazdi, Marie-Josee Brouillette, Lesley K. Fellows, Nancy E. Mayo

Gepubliceerd in: Quality of Life Research | Uitgave 11/2021

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Objective

(1) To develop a personalized health outcome profile as a feedback tool to improve self-management in people living with chronic conditions such as HIV and (2) to evaluate the interpretability and usefulness of the feedback tool for setting specific goals.

Methods

The development of “My Personal Brain Health Dashboard” was inspired by the knowledge-to-action framework. A health outcome profile was computer generated in SAS from the outcome measures, at first and last recorded visits, of each person enrolled in the +BHN cohort from five sites in Canada. The Wilson–Cleary model framed the outcome measurement strategy. Single actionable items with evidence of life impact were chosen. The response option from the original item was the person’s value and the optimal level was provided to help persons compare their results to an optimal target. Cognitive interviews were conducted with members of HIV community. Appropriateness of the Dashboard for goal-setting was tested by asking participants to write specific goals according to the Dashboard they were given.

Results

Fifteen respondents were recruited from Montreal and Vancouver. Items most endorsed to be changed were cognition, pain, and body mass index. 80% found the Dashboard useful for setting health-related goals. A total of 85 goals were set, the text of which was mined to create a lexicon for scoring goal quality in future endeavours.

Conclusion

This study was the preparatory phase for a future trial on a method to stimulate setting specific goals. The future trial would provide a thorough understanding of the quality of person-defined goals.
Literatuur
4.
go back to reference World Health Organization (2017). HIV: From a devastating epidemic to a manageable chronic disease. In Ten years in public health, 2007–2017: Report by Dr Margaret Chan, Director-General, World Health Organization. Geneva: World Health Organization, Licence: CC BY-NC-SA 3.0 IGO. World Health Organization (2017). HIV: From a devastating epidemic to a manageable chronic disease. In Ten years in public health, 2007–2017: Report by Dr Margaret Chan, Director-General, World Health Organization. Geneva: World Health Organization, Licence: CC BY-NC-SA 3.0 IGO.
5.
go back to reference Hawkins, K. L., Brown, T. T., Margolick, J. B., & Erlandson, K. M. (2017). Geriatric syndromes: New Frontiers in HIV and sarcopenia. Aids, 31(Suppl 2), S137–S146.CrossRef Hawkins, K. L., Brown, T. T., Margolick, J. B., & Erlandson, K. M. (2017). Geriatric syndromes: New Frontiers in HIV and sarcopenia. Aids, 31(Suppl 2), S137–S146.CrossRef
7.
go back to reference Public Health Agency of Canada (2013). Population-specific HIV/AIDS status Report: People living with HIV/AIDS. Public Health Agency of Canada (2013). Population-specific HIV/AIDS status Report: People living with HIV/AIDS.
14.
go back to reference Lenzen, S. A., van Dongen, J. J., Daniels, R., van Bokhoven, M. A., van der Weijden, T., & Beurskens, A. (2016). What does it take to set goals for self-management in primary care? A qualitative study [Research Support, Non-U.S. Gov't]. Family Practice, 33(6), 698–703.CrossRef Lenzen, S. A., van Dongen, J. J., Daniels, R., van Bokhoven, M. A., van der Weijden, T., & Beurskens, A. (2016). What does it take to set goals for self-management in primary care? A qualitative study [Research Support, Non-U.S. Gov't]. Family Practice, 33(6), 698–703.CrossRef
15.
go back to reference Bodenheimer, T., Lorig, K., Holman, H., & Grumbach, K. (2002). Patient self-management of chronic disease in primary care. JAMA, 288(19), 2469–2475.CrossRef Bodenheimer, T., Lorig, K., Holman, H., & Grumbach, K. (2002). Patient self-management of chronic disease in primary care. JAMA, 288(19), 2469–2475.CrossRef
16.
go back to reference Blakeman, T., Macdonald, W., Bower, P., Gately, C., & Chew-Graham, C. (2006). A qualitative study of GPs' attitudes to self-management of chronic disease. The British Journal of General Practice: The journal of the Royal College of General Practitioners, 56(527), 407–414. Blakeman, T., Macdonald, W., Bower, P., Gately, C., & Chew-Graham, C. (2006). A qualitative study of GPs' attitudes to self-management of chronic disease. The British Journal of General Practice: The journal of the Royal College of General Practitioners, 56(527), 407–414.
20.
go back to reference Raia, A. P. (1965). Goal setting and self-control: An empirical study. Journal of Management Studies, 2(1), 34–53.CrossRef Raia, A. P. (1965). Goal setting and self-control: An empirical study. Journal of Management Studies, 2(1), 34–53.CrossRef
21.
go back to reference Mayo, N. E. (2015). Dictionary of quality of life and health outcome measurement (1st ed.). Milwaukee: International Society of Quality of Life Research (ISOQOL). Mayo, N. E. (2015). Dictionary of quality of life and health outcome measurement (1st ed.). Milwaukee: International Society of Quality of Life Research (ISOQOL).
23.
27.
go back to reference Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA, 273(1), 59–65.CrossRef Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA, 273(1), 59–65.CrossRef
29.
go back to reference Rosenzveig, A., Kuspinar, A., Daskalopoulou, S. S., & Mayo, N. E. (2014). Toward patient-centered care: A systematic review of how to ask questions that matter to patients. Medicine, 93(22), e120.CrossRef Rosenzveig, A., Kuspinar, A., Daskalopoulou, S. S., & Mayo, N. E. (2014). Toward patient-centered care: A systematic review of how to ask questions that matter to patients. Medicine, 93(22), e120.CrossRef
30.
go back to reference Guzman, N., & Vijayan, V. (2019). HIV-associated Lipodystrophy. StatPearls. Treasure Island: StatPearls Publishing. Guzman, N., & Vijayan, V. (2019). HIV-associated Lipodystrophy. StatPearls. Treasure Island: StatPearls Publishing.
32.
go back to reference Mozafarinia, M., Rajabiyazdi, F., Brouillette, M. J., Fellows, L. K., & NE., M. (2020). Development and usability of a feedback tool, “My Personal Brain Health Dashboard”, to improve setting of self-management goals among people living with HIV in Canada. https://osf.io/3gzcx/. Retrieved 6 June 2020. Mozafarinia, M., Rajabiyazdi, F., Brouillette, M. J., Fellows, L. K., & NE., M. (2020). Development and usability of a feedback tool, “My Personal Brain Health Dashboard”, to improve setting of self-management goals among people living with HIV in Canada. https://​osf.​io/​3gzcx/​. Retrieved 6 June 2020.
34.
go back to reference Robbins, T. W., James, M., Owen, A. M., Sahakian, B. J., Lawrence, A. D., McInnes, L., et al. (1998). A study of performance on tests from the CANTAB battery sensitive to frontal lobe dysfunction in a large sample of normal volunteers: implications for theories of executive functioning and cognitive aging. Cambridge neuropsychological test automated battery. Journal of International Neuropsychological Society, 4(5), 474–490.CrossRef Robbins, T. W., James, M., Owen, A. M., Sahakian, B. J., Lawrence, A. D., McInnes, L., et al. (1998). A study of performance on tests from the CANTAB battery sensitive to frontal lobe dysfunction in a large sample of normal volunteers: implications for theories of executive functioning and cognitive aging. Cambridge neuropsychological test automated battery. Journal of International Neuropsychological Society, 4(5), 474–490.CrossRef
39.
go back to reference Bird, S., Loper, E., & Ewan, K. (2009). Natural language processing with python. Newton: O’Reilly Media Inc. Bird, S., Loper, E., & Ewan, K. (2009). Natural language processing with python. Newton: O’Reilly Media Inc.
42.
go back to reference Coulter, A., Entwistle, V. A., Eccles, A., Ryan, S., Shepperd, S., & Perera, R. (2015). Personalised care planning for adults with chronic or long-term health conditions. [Meta-Analysis Research Support, Non-U.S. Gov't Review Systematic Review]. Cochrane Database of Systematic Reviews, 15(3), 010523. https://doi.org/10.1002/14651858.CD010523.pub2.CrossRef Coulter, A., Entwistle, V. A., Eccles, A., Ryan, S., Shepperd, S., & Perera, R. (2015). Personalised care planning for adults with chronic or long-term health conditions. [Meta-Analysis Research Support, Non-U.S. Gov't Review Systematic Review]. Cochrane Database of Systematic Reviews, 15(3), 010523. https://​doi.​org/​10.​1002/​14651858.​CD010523.​pub2.CrossRef
43.
go back to reference Raja, U., Mitchell, T., Day, T., & Hardin, J. M. (2008). Text mining in healthcare. Applications and opportunities. The Journal of Healthcare Information Management, 22(3), 52–56.PubMed Raja, U., Mitchell, T., Day, T., & Hardin, J. M. (2008). Text mining in healthcare. Applications and opportunities. The Journal of Healthcare Information Management, 22(3), 52–56.PubMed
Metagegevens
Titel
Development and usability of a feedback tool, “My Personal Brain Health Dashboard”, to improve setting of self-management goals among people living with HIV in Canada
Auteurs
Maryam Mozafarinia
Fateme Rajabiyazdi
Marie-Josee Brouillette
Lesley K. Fellows
Nancy E. Mayo
Publicatiedatum
18-06-2020
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 11/2021
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02555-w

Andere artikelen Uitgave 11/2021

Quality of Life Research 11/2021 Naar de uitgave