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25-07-2017 | Original Paper

Development and Psychometric Evaluation of the Autism Stigma and Knowledge Questionnaire (ASK-Q)

Auteurs: Ashley J. Harrison, Laine P. Bradshaw, Nilofer C. Naqvi, Madison L. Paff, Jonathan M. Campbell

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 10/2017

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Abstract

ASD knowledge deficits contribute to disparities in the timing and quality of ASD services. To address the limitations with existing measures of ASD knowledge, we developed and examined the Autism Stigma and Knowledge Questionnaire (ASK-Q), which comprehensively assesses multiple subdomains of ASD knowledge while maintaining strong psychometric support and cross-cultural utility. ASK-Q items derived from the published research are organized into four subscales: (i) diagnosis, (ii) etiology, (iii) treatment, and (iv) stigma. ASK-Q items were selected based on ratings of face, construct, and cross-cultural validity by a group of 16 international researchers. Using Diagnostic Classification Modeling we confirmed the proposed factor structure and evaluated the statistical validity of each item among a lay sample of 617 participants.
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1
To calculate the subscores, items that measure two subdomains are still counted as 1 point for each subdomain. For example, the maximum score on the D/S subdomain is equal to 18 and there are 17 simple structure items (see Table 5) and 1 complex item (Item 18 in Table 6).
 
Literatuur
go back to reference Ables, E., Ashby, I., & Swiezy, N. (2011). Autism Knowledge Survey-Revised: Comparison of Knowledge across Role and Experience. Paper presented at the Applied Behavior Analysis International, Denver, CO. Ables, E., Ashby, I., & Swiezy, N. (2011). Autism Knowledge Survey-Revised: Comparison of Knowledge across Role and Experience. Paper presented at the Applied Behavior Analysis International, Denver, CO.
go back to reference Alqahtani, M. M. (2012). Understanding autism in Saudi Arabia: A qualitative analysis of the community and cultural context. Journal of Pediatric Neurology, 10(1), 15–22. doi:10.3233/JPN-2012-0527. Alqahtani, M. M. (2012). Understanding autism in Saudi Arabia: A qualitative analysis of the community and cultural context. Journal of Pediatric Neurology, 10(1), 15–22. doi:10.​3233/​JPN-2012-0527.
go back to reference Al-Sharbati, M. M., Al-Farsi, Y. M., Ouhtit, A., Waly, M. I., Al-Shafaee, M., Al-Farsi, O., … Al-Adawi, S. (2015). Awareness about autism among school teachers in Oman: A cross-sectional study. Autism: The International Journal of Research and Practice, 19(1), 6–13. doi:10.1177/1362361313508025.CrossRef Al-Sharbati, M. M., Al-Farsi, Y. M., Ouhtit, A., Waly, M. I., Al-Shafaee, M., Al-Farsi, O., … Al-Adawi, S. (2015). Awareness about autism among school teachers in Oman: A cross-sectional study. Autism: The International Journal of Research and Practice, 19(1), 6–13. doi:10.​1177/​1362361313508025​.CrossRef
go back to reference Bakare, M. O., Agomoh, A. O., Ebigbo, P. O., Eaton, J., Okonkwo, K. O., Onwukwe, J. U., & Onyeama, G. M. (2009). Etiological explanation, treat-ability and preventability of childhood autism: a survey of Nigerian healthcare workers’ opinion. Annals of General Psychiatry, 8(6), 1–8. doi:10.1186/1744-859X-8-6. Bakare, M. O., Agomoh, A. O., Ebigbo, P. O., Eaton, J., Okonkwo, K. O., Onwukwe, J. U., & Onyeama, G. M. (2009). Etiological explanation, treat-ability and preventability of childhood autism: a survey of Nigerian healthcare workers’ opinion. Annals of General Psychiatry, 8(6), 1–8. doi:10.​1186/​1744-859X-8-6.
go back to reference Bakare, M. O., Ebigbo, P. O., Ahamefule, O. A., & Nkem, C. M. (2008). Knowledge about childhood autism among health workers (KCAHW) questionnaire: Description, reliability and internal consistency. Clinical Practice and Epidemiology in Mental Health, 4, 17–24. doi:10.1186/1745-0179-4-17.CrossRefPubMedPubMedCentral Bakare, M. O., Ebigbo, P. O., Ahamefule, O. A., & Nkem, C. M. (2008). Knowledge about childhood autism among health workers (KCAHW) questionnaire: Description, reliability and internal consistency. Clinical Practice and Epidemiology in Mental Health, 4, 17–24. doi:10.​1186/​1745-0179-4-17.CrossRefPubMedPubMedCentral
go back to reference Basha, S. (2014). First National Public Opinion Survey: Palestinians Knowledge and Understanding of Autism, 2014. Italian Journal of Special Education for Inclusion, 2(1), 87–96. Basha, S. (2014). First National Public Opinion Survey: Palestinians Knowledge and Understanding of Autism, 2014. Italian Journal of Special Education for Inclusion, 2(1), 87–96.
go back to reference Bracken, B. A., & Barona, A. (1991). State of the art procedures for translating, validating and using psychoeducational tests in cross-cultural assessment. School Psychology International, 12, 119–132. doi:10.1177/0143034391121010.CrossRef Bracken, B. A., & Barona, A. (1991). State of the art procedures for translating, validating and using psychoeducational tests in cross-cultural assessment. School Psychology International, 12, 119–132. doi:10.​1177/​0143034391121010​.CrossRef
go back to reference Campbell, J. M., Stoneman, Z., Greenberg, J. S., Gallagher, P., & Simmons, C. (2014). Knowledge of Autism for Parents with Low Literacy. Paper presented at the International Meeting for Autism Research, Atlanta, GA. Campbell, J. M., Stoneman, Z., Greenberg, J. S., Gallagher, P., & Simmons, C. (2014). Knowledge of Autism for Parents with Low Literacy. Paper presented at the International Meeting for Autism Research, Atlanta, GA.
go back to reference Cheremshynski, C., Lucyshyn, J. M., & Olson, D. L. (2013). Implementation of a culturally appropriate positive behavior support plan with a Japanese mother of a child with autism an experimental and qualitative analysis. Journal of Positive Behavior Interventions, 15(4), 242–253. doi:10.1177/1098300712459904.CrossRef Cheremshynski, C., Lucyshyn, J. M., & Olson, D. L. (2013). Implementation of a culturally appropriate positive behavior support plan with a Japanese mother of a child with autism an experimental and qualitative analysis. Journal of Positive Behavior Interventions, 15(4), 242–253. doi:10.​1177/​1098300712459904​.CrossRef
go back to reference Cohen, L. L., La Greca, A. M., Blount, R. L., Kazak, A. E., Holmbeck, G. N., & Lemanek, K. L. (2008). Introduction to special issue: Evidence-based assessment in pediatric psychology. Journal of Pediatric Psychology, 33(9), 911–915. doi:10.1093/jpepsy/jsj115.CrossRefPubMed Cohen, L. L., La Greca, A. M., Blount, R. L., Kazak, A. E., Holmbeck, G. N., & Lemanek, K. L. (2008). Introduction to special issue: Evidence-based assessment in pediatric psychology. Journal of Pediatric Psychology, 33(9), 911–915. doi:10.​1093/​jpepsy/​jsj115.CrossRefPubMed
go back to reference Crocker, L., & Algina, J. (1986). Introduction to classical and modern test theory. Orlando, FL: Holt, Rinehart and Winston. Crocker, L., & Algina, J. (1986). Introduction to classical and modern test theory. Orlando, FL: Holt, Rinehart and Winston.
go back to reference Ericsson, K. A., & Simon, H. A. (1999). Protocol analysis: Verbal reports as data. Cambridge, MA: Massachusetts Institute of Technology. Ericsson, K. A., & Simon, H. A. (1999). Protocol analysis: Verbal reports as data. Cambridge, MA: Massachusetts Institute of Technology.
go back to reference Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health & Illness, 31(7), 1011–1027.CrossRef Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health & Illness, 31(7), 1011–1027.CrossRef
go back to reference Finn, J. A., Ben-Porath, Y. S., & Tellegen, A. (2015). Dichotomous versus polytomous response options in psychopathology assessment: Method or meaningful variance? Psychological Assessment, 27(1), 184. doi:10.1037/pas0000044.CrossRefPubMed Finn, J. A., Ben-Porath, Y. S., & Tellegen, A. (2015). Dichotomous versus polytomous response options in psychopathology assessment: Method or meaningful variance? Psychological Assessment, 27(1), 184. doi:10.​1037/​pas0000044.CrossRefPubMed
go back to reference Furr, M. (2011). Scale construction and psychometrics for social and personality psychology. London: SAGE Publications Ltd.CrossRef Furr, M. (2011). Scale construction and psychometrics for social and personality psychology. London: SAGE Publications Ltd.CrossRef
go back to reference Gillespie-Lynch, K., Brooks, P. J., Someki, F., Obeid, R., Shane-Simpson, C., Kapp, S. K., … Smith, & D, S. (2015). Changing college students’ conceptions of autism: an online training to increase knowledge and decrease stigma. Journal of Autism and Developmental Disorders, 45(8), 2553–2566. doi:10.1007/s10803-015-2422-9.CrossRefPubMed Gillespie-Lynch, K., Brooks, P. J., Someki, F., Obeid, R., Shane-Simpson, C., Kapp, S. K., … Smith, & D, S. (2015). Changing college students’ conceptions of autism: an online training to increase knowledge and decrease stigma. Journal of Autism and Developmental Disorders, 45(8), 2553–2566. doi:10.​1007/​s10803-015-2422-9.CrossRefPubMed
go back to reference Gilliam, J. E., & Coleman, M. (1982). A survey of knowledge about autism among experts and caregivers. Behavioral Disorders, 7(3), 189–196. Gilliam, J. E., & Coleman, M. (1982). A survey of knowledge about autism among experts and caregivers. Behavioral Disorders, 7(3), 189–196.
go back to reference Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24(6), 734–749.CrossRef Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24(6), 734–749.CrossRef
go back to reference Hartley-McAndrew, M., Doody, K. R., & Mertz, J. (2014). Knowledge of autism spectrum disorders in potential first-contact professionals. North American Journal of Medical Sciences, 7(3), 97–102. doi:10.7156/najms.2014.0703097. Hartley-McAndrew, M., Doody, K. R., & Mertz, J. (2014). Knowledge of autism spectrum disorders in potential first-contact professionals. North American Journal of Medical Sciences, 7(3), 97–102. doi:10.​7156/​najms.​2014.​0703097.
go back to reference Jegatheesan, B., Miller, P. J., & Fowler, S. A. (2010). Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families. Focus on Autism and Other Developmental Disabilities, 25, 98–109. doi:10.1177/1088357610361344.CrossRef Jegatheesan, B., Miller, P. J., & Fowler, S. A. (2010). Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families. Focus on Autism and Other Developmental Disabilities, 25, 98–109. doi:10.​1177/​1088357610361344​.CrossRef
go back to reference Khatri, G. K., Onta, S. R., Tiwari, S., & Choulagai, B. P. (2011). Knowledge and management practices of paediatricians about autism spectrum disorder in Kathmandu, Nepal. Journal of Nepal Paediatric Society, 31(2), 98–104. doi:10.3126/jnps.v31i2.4640.CrossRef Khatri, G. K., Onta, S. R., Tiwari, S., & Choulagai, B. P. (2011). Knowledge and management practices of paediatricians about autism spectrum disorder in Kathmandu, Nepal. Journal of Nepal Paediatric Society, 31(2), 98–104. doi:10.​3126/​jnps.​v31i2.​4640.CrossRef
go back to reference Mandell, D. S., Wiggins, L. D., Yeargin-Allsopp, M., Carpenter, L. A., Daniels, J., Thomas, K. C., … Kirby, R. S. (2009). Racial/Ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99(3), 493–498. doi:10.2105/AJPH.2007.131243.CrossRefPubMedPubMedCentral Mandell, D. S., Wiggins, L. D., Yeargin-Allsopp, M., Carpenter, L. A., Daniels, J., Thomas, K. C., … Kirby, R. S. (2009). Racial/Ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99(3), 493–498. doi:10.​2105/​AJPH.​2007.​131243.CrossRefPubMedPubMedCentral
go back to reference Muhammad, Z., Al-Deen, L. D., & Muhsin, H. A. (2013). Knowledge about childhood autism among care providers in Baghdad. Arab Journal of Psychiatry, 24(1), 27–31. doi:10.12816/0000095.CrossRef Muhammad, Z., Al-Deen, L. D., & Muhsin, H. A. (2013). Knowledge about childhood autism among care providers in Baghdad. Arab Journal of Psychiatry, 24(1), 27–31. doi:10.​12816/​0000095.CrossRef
go back to reference Muthén, L. K., & Muthén, B. O. (2005). Mplus: Statistical analysis with latent variables: User’s guide. Los Angeles: Muthén & Muthén. Muthén, L. K., & Muthén, B. O. (2005). Mplus: Statistical analysis with latent variables: User’s guide. Los Angeles: Muthén & Muthén.
go back to reference Naqvi, N. C., Johnson, H. L., Sophal, S., Vibol, D., Sophearin, D., & Verkuilen, J. (2014). Cambodian Caregiver’s Self-Efficacy and Knowledge Beliefs Regarding their Children with Developmental Disabilities–An Exploratory Study. International Journal of Disability, Community and Rehabilitation, 13, (published online ahead of print). Naqvi, N. C., Johnson, H. L., Sophal, S., Vibol, D., Sophearin, D., & Verkuilen, J. (2014). Cambodian Caregiver’s Self-Efficacy and Knowledge Beliefs Regarding their Children with Developmental Disabilities–An Exploratory Study. International Journal of Disability, Community and Rehabilitation, 13, (published online ahead of print).
go back to reference Obeid, R., Daou, N., DeNigris, D., Shane-Simpson, C., Brooks, P. J., & Gillespie-Lynch, K. (2015). A cross-cultural comparison of knowledge and stigma associated with autism spectrum disorder among college students in Lebanon and the United States. Journal of Autism and Developmental Disorders, 45(11), 3520–3536. doi:10.1007/s10803-015-2499-1.CrossRefPubMed Obeid, R., Daou, N., DeNigris, D., Shane-Simpson, C., Brooks, P. J., & Gillespie-Lynch, K. (2015). A cross-cultural comparison of knowledge and stigma associated with autism spectrum disorder among college students in Lebanon and the United States. Journal of Autism and Developmental Disorders, 45(11), 3520–3536. doi:10.​1007/​s10803-015-2499-1.CrossRefPubMed
go back to reference Perry, A., Condillac, R. A., & Freeman, N. L. (2002). Best practices and practical strategies in the assessment and diagnosis of autism. Journal on Developmental Disabilities, 9(2), 61–75. Perry, A., Condillac, R. A., & Freeman, N. L. (2002). Best practices and practical strategies in the assessment and diagnosis of autism. Journal on Developmental Disabilities, 9(2), 61–75.
go back to reference Rupp, A., Templin, J., & Henson, R. (2010). Diagnostic measurement: Theory, methods, and applications. New York: Guilford. Rupp, A., Templin, J., & Henson, R. (2010). Diagnostic measurement: Theory, methods, and applications. New York: Guilford.
go back to reference Segall, M. J. (2011). Exploring Student and Teacher Variables Related to Inclusion of Students with Autism Spectrum Disorder in General Education Classrooms. (Dissertation), University of Georgia. Segall, M. J. (2011). Exploring Student and Teacher Variables Related to Inclusion of Students with Autism Spectrum Disorder in General Education Classrooms. (Dissertation), University of Georgia.
go back to reference Shaukat, F., Fatima, A., Hussein, M. A. G., Ismail, O., & Zehra, N. (2014). Assessment of knowledge about childhood autism among medical students from private and public universities in Karachi. Journal of Pakistan Medican Association, 64(11), 1331–1334. Shaukat, F., Fatima, A., Hussein, M. A. G., Ismail, O., & Zehra, N. (2014). Assessment of knowledge about childhood autism among medical students from private and public universities in Karachi. Journal of Pakistan Medican Association, 64(11), 1331–1334.
go back to reference Shtayermman, O. (2009). An exploratory study of the stigma associated with a diagnosis of Asperger’s syndrome: The mental health impact on the adolescents and young adults diagnosed with a disability with a social nature. Journal of Human Behavior in the Social Environment, 19(3), 298–313. doi:10.1080/10911350902790720.CrossRef Shtayermman, O. (2009). An exploratory study of the stigma associated with a diagnosis of Asperger’s syndrome: The mental health impact on the adolescents and young adults diagnosed with a disability with a social nature. Journal of Human Behavior in the Social Environment, 19(3), 298–313. doi:10.​1080/​1091135090279072​0.CrossRef
go back to reference Shyu, Y.-I. L., Tsai, J.-L., & Tsai, W.-C. (2010). Explaining and selecting treatments for autism: Parental explanatory models in Taiwan. Journal of Autism and Developmental Disorders, 40(11), 1323–1331. doi:10.1007/s10803-010-0991-1.CrossRefPubMed Shyu, Y.-I. L., Tsai, J.-L., & Tsai, W.-C. (2010). Explaining and selecting treatments for autism: Parental explanatory models in Taiwan. Journal of Autism and Developmental Disorders, 40(11), 1323–1331. doi:10.​1007/​s10803-010-0991-1.CrossRefPubMed
go back to reference Templin, J., & Bradshaw, L. (2013). Measuring the reliability of diagnostic classification model examinee estimates. Journal of Classification, 30(2), 251–275.CrossRef Templin, J., & Bradshaw, L. (2013). Measuring the reliability of diagnostic classification model examinee estimates. Journal of Classification, 30(2), 251–275.CrossRef
go back to reference Voelkel, H., LeCroy, C. W., Williams, L. R., & Holschuh, J. (2013). The Full Spectrum: Hispanic Understanding of Autism Best Practices in Mental Health (Vol. 9, pp. 31–46). Chicago: Lyceum Books, Inc. Voelkel, H., LeCroy, C. W., Williams, L. R., & Holschuh, J. (2013). The Full Spectrum: Hispanic Understanding of Autism Best Practices in Mental Health (Vol. 9, pp. 31–46). Chicago: Lyceum Books, Inc.
go back to reference Wang, J., Zhou, X., Xia, W., Sun, C., Wu, L., & Wang, J. (2012). Autism awareness and attitudes towards treatment in caregivers of children aged 3–6 years in Harbin, China. Social Psychiatry and Psychiatric Epidemiology, 47(8), 1301–1308. doi:10.1007/s00127-011-0438-9.CrossRefPubMed Wang, J., Zhou, X., Xia, W., Sun, C., Wu, L., & Wang, J. (2012). Autism awareness and attitudes towards treatment in caregivers of children aged 3–6 years in Harbin, China. Social Psychiatry and Psychiatric Epidemiology, 47(8), 1301–1308. doi:10.​1007/​s00127-011-0438-9.CrossRefPubMed
go back to reference Zucker, S., Sassman, C., & Case, B. J. (2004). Cognitive labs. San Antonio, TX: Harcourt Assessment, 10(11), 2006. Zucker, S., Sassman, C., & Case, B. J. (2004). Cognitive labs. San Antonio, TX: Harcourt Assessment, 10(11), 2006.
Metagegevens
Titel
Development and Psychometric Evaluation of the Autism Stigma and Knowledge Questionnaire (ASK-Q)
Auteurs
Ashley J. Harrison
Laine P. Bradshaw
Nilofer C. Naqvi
Madison L. Paff
Jonathan M. Campbell
Publicatiedatum
25-07-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 10/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3242-x