Skip to main content
Top
Gepubliceerd in: Quality of Life Research 3/2011

01-04-2011

Development and initial validation of Perceived Rehabilitation Needs Questionnaire for people with schizophrenia

Auteurs: Alvin H. H. Wong, Hector W. H. Tsang, Sally M. Y. Li, Kelvin M. T. Fung, Raymond C. K. Chung, Ada Y. Leung, Michael G. C. Yiu

Gepubliceerd in: Quality of Life Research | Uitgave 3/2011

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

The Perceived Rehabilitation Needs Questionnaires for people with schizophrenia (PRNQ-S), a culturally relevant and multi-faceted assessment tool for measuring perceived needs of people with schizophrenia, was developed and initially validated.

Methods

A total of 43 participants including people with schizophrenia, their caregivers, and mental health professionals were recruited for six rounds of focus group discussion to identify issues pertaining to rehabilitation needs of schizophrenia. Results were then used to develop PRNQ-S. An initial validation study among a convenience sample consisting of 219 people with schizophrenia was conducted to examine its psychometric properties.

Results

Exploratory Factor Analysis yielded a seventeen-factor solution accounting for 70.7% of the total variance which resulted in a 75-item PRNQ-S. The instrument had excellent internal consistencies and intra-rater reliability.

Conclusions

The PRNQ-S has been developed and psychometrically tested in Hong Kong. It can be used to assess perceived rehabilitation needs for individuals with schizophrenia in Hong Kong. Upon further validations, it may be applied in other Chinese societies such as Singapore and the mainland. Similar research methodology can also be used for assessing needs in other types of psychiatric disability groups.
Literatuur
1.
go back to reference Murray, C. J. L., & Lopez, A. D. (1996). The global burden of disease: A comprehensive assessment of mortality and disability from diseases, injuries, and risk factors in 1990 and projected to 2020. Cambridge, MA: Harvard School of Public Health. Murray, C. J. L., & Lopez, A. D. (1996). The global burden of disease: A comprehensive assessment of mortality and disability from diseases, injuries, and risk factors in 1990 and projected to 2020. Cambridge, MA: Harvard School of Public Health.
2.
go back to reference Hong Kong Government. (2001). Fact sheet—rehabilitation. Hong Kong: Information Services Department. Hong Kong Government. (2001). Fact sheet—rehabilitation. Hong Kong: Information Services Department.
3.
go back to reference Chan, S., & Yu, I. W. (2004). Quality of life of clients with schizophrenia. Journal of Advanced Nursing, 45, 72–83.PubMedCrossRef Chan, S., & Yu, I. W. (2004). Quality of life of clients with schizophrenia. Journal of Advanced Nursing, 45, 72–83.PubMedCrossRef
4.
go back to reference Chen, C. H., Shen, Y. C., Zhang, W. X., Li, S. R., Huang, Y. Q., Wang, J. R., et al. (1998). Epidemiological survey on schizophrenia in 7 areas of China (in Chinese). Chinese Journal of Psychiatry, 31, 72–74. Chen, C. H., Shen, Y. C., Zhang, W. X., Li, S. R., Huang, Y. Q., Wang, J. R., et al. (1998). Epidemiological survey on schizophrenia in 7 areas of China (in Chinese). Chinese Journal of Psychiatry, 31, 72–74.
5.
go back to reference Xiang, Y. T., Ma, X., Cai, Z. J., Li, S. R., Xiang, Y. Q., Guo, H. L., et al. (2008). Prevalence and socio-demographic correlates of schizophrenia in Beijing, China. Schizophrenia Research, 102, 270–277.PubMedCrossRef Xiang, Y. T., Ma, X., Cai, Z. J., Li, S. R., Xiang, Y. Q., Guo, H. L., et al. (2008). Prevalence and socio-demographic correlates of schizophrenia in Beijing, China. Schizophrenia Research, 102, 270–277.PubMedCrossRef
6.
go back to reference Ran, M. S., Chan, C. L. W., Chen, E. Y. H., Mao, W. J., Hu, S. H., Tang, C. P., et al. (2009). Differences in mortality and suicidal behavior between treated and never-treated people with schizophrenia in rural China. The British Journal of Psychiatry, 195, 126–131.PubMedCrossRef Ran, M. S., Chan, C. L. W., Chen, E. Y. H., Mao, W. J., Hu, S. H., Tang, C. P., et al. (2009). Differences in mortality and suicidal behavior between treated and never-treated people with schizophrenia in rural China. The British Journal of Psychiatry, 195, 126–131.PubMedCrossRef
7.
go back to reference Kendler, K. S., Gallagher, T. J., Abelson, J. M., & Kessler, R. C. (1996). Lifetime prevalence, demographic risk factors, and diagnostic validity of nonaffective psychosis as assessed in a US community sample. The National Comorbidity Survey. Archives of General Psychiatry, 53, 1022–1031.PubMed Kendler, K. S., Gallagher, T. J., Abelson, J. M., & Kessler, R. C. (1996). Lifetime prevalence, demographic risk factors, and diagnostic validity of nonaffective psychosis as assessed in a US community sample. The National Comorbidity Survey. Archives of General Psychiatry, 53, 1022–1031.PubMed
8.
go back to reference Jenkins, R. (2001). Making psychiatric epidemiology useful: The contribution of epidemiology to government policy. Acta Psychiatrica Scandinavica, 103, 2–14.PubMedCrossRef Jenkins, R. (2001). Making psychiatric epidemiology useful: The contribution of epidemiology to government policy. Acta Psychiatrica Scandinavica, 103, 2–14.PubMedCrossRef
9.
go back to reference House of Commons. (1990). The National Health Service and Community Care Act. London: HMSO. House of Commons. (1990). The National Health Service and Community Care Act. London: HMSO.
10.
go back to reference Silverstein, S. M., & Bellack, A. S. (2008). A scientific agenda for the concept of recovery as it applies to schizophrenia. Clinical Psychology Review, 2, 1108–1124.CrossRef Silverstein, S. M., & Bellack, A. S. (2008). A scientific agenda for the concept of recovery as it applies to schizophrenia. Clinical Psychology Review, 2, 1108–1124.CrossRef
11.
go back to reference Department of Health Social Services Inspectorate. (1991). Care management and assessment: Summary of practice guidance. London: HMSO. Department of Health Social Services Inspectorate. (1991). Care management and assessment: Summary of practice guidance. London: HMSO.
12.
go back to reference Bradshaw, J. (1972). The concept of social need. New Society, 30, 640–643. Bradshaw, J. (1972). The concept of social need. New Society, 30, 640–643.
13.
go back to reference Liberman, J. A., Drake, R. E., Lloyd, I. S., et al. (2008). Science and recovery in Schizophrenia. Psychiatric Services, 59, 487–496.CrossRef Liberman, J. A., Drake, R. E., Lloyd, I. S., et al. (2008). Science and recovery in Schizophrenia. Psychiatric Services, 59, 487–496.CrossRef
14.
go back to reference Harrow, M., Sands, J. R., Silverstein, M. L., et al. (1997). Course and outcome for schizophrenia versus other psychotic patients: A longitudinal study. Schizophrenia Bulletin, 23, 287–303.PubMed Harrow, M., Sands, J. R., Silverstein, M. L., et al. (1997). Course and outcome for schizophrenia versus other psychotic patients: A longitudinal study. Schizophrenia Bulletin, 23, 287–303.PubMed
15.
go back to reference Robinson, D. G., Woerner, M. G., McMeniman, M., et al. (2004). Symptomatic and functional recovery from a first episode of schizophrenia or schizoaffective disorder. American Journal of Psychiatry, 161, 473–479.PubMedCrossRef Robinson, D. G., Woerner, M. G., McMeniman, M., et al. (2004). Symptomatic and functional recovery from a first episode of schizophrenia or schizoaffective disorder. American Journal of Psychiatry, 161, 473–479.PubMedCrossRef
16.
go back to reference Lysaker, P. H., Salyers, M. P., Tsai, J., et al. (2008). Clinical and psychological correlates of two domains of hopelessness in Schizophrenia. Journal of Rehabilitation Research and Development, 45, 911–920.PubMedCrossRef Lysaker, P. H., Salyers, M. P., Tsai, J., et al. (2008). Clinical and psychological correlates of two domains of hopelessness in Schizophrenia. Journal of Rehabilitation Research and Development, 45, 911–920.PubMedCrossRef
17.
18.
go back to reference Deegan, P. E. (1996). Recovery as a journey of the heart. Psychiatric Rehabilitation Journal, 19, 91–97. Deegan, P. E. (1996). Recovery as a journey of the heart. Psychiatric Rehabilitation Journal, 19, 91–97.
19.
go back to reference Green, J., & Thorogood, N. (2004). Qualitative methods for health research. London: Sage Publications. Green, J., & Thorogood, N. (2004). Qualitative methods for health research. London: Sage Publications.
20.
go back to reference Fontana, A., & Frey, J. H. (1994). Interviewing: the art of science. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 361–376). Thousand Oaks: Sage Publications. Fontana, A., & Frey, J. H. (1994). Interviewing: the art of science. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 361–376). Thousand Oaks: Sage Publications.
21.
go back to reference Wagner, L. C., & King, M. (2005). Existential needs of people with psychotic disorders in Porto Alegre, Brazil. British Journal of Psychiatry, 186, 141–145.PubMedCrossRef Wagner, L. C., & King, M. (2005). Existential needs of people with psychotic disorders in Porto Alegre, Brazil. British Journal of Psychiatry, 186, 141–145.PubMedCrossRef
22.
go back to reference Haigh, R., & Treasure, J. (2003). Investigating the needs of carers in the area of eating disorders: Development of the carers’ needs assessment measure (CaNAM). European Eating Disorders Review, 11, 125–141.CrossRef Haigh, R., & Treasure, J. (2003). Investigating the needs of carers in the area of eating disorders: Development of the carers’ needs assessment measure (CaNAM). European Eating Disorders Review, 11, 125–141.CrossRef
23.
go back to reference Byrne, C., Pape, B., Ivask, A., Kuczynski, L., Browne, G., Whittaker, S., et al. (2001). Service needs of families where one parent has an affective illness: Implications for service, education, and policy. Canadian Journal of Community Mental Health, 20, 107–121.PubMed Byrne, C., Pape, B., Ivask, A., Kuczynski, L., Browne, G., Whittaker, S., et al. (2001). Service needs of families where one parent has an affective illness: Implications for service, education, and policy. Canadian Journal of Community Mental Health, 20, 107–121.PubMed
24.
go back to reference Slade, M., Thornicroft, G., Loftus, L., Phelan, M., & Wykes, T. (1999). The Camberwell assessment of need (CAN). London: Gaskell and Royal College of Psychiatry. Slade, M., Thornicroft, G., Loftus, L., Phelan, M., & Wykes, T. (1999). The Camberwell assessment of need (CAN). London: Gaskell and Royal College of Psychiatry.
25.
go back to reference Phelan, M., Slade, M., Thornicroft, G., Dunn, G., Holloway, F., Wykes, T., et al. (1995). The Camberwell Assessment of Need (CAN): The validity and reliability of an instrument to assess the needs of people with severe mental illness. British Journal of Psychiatry, 167, 589–595.PubMedCrossRef Phelan, M., Slade, M., Thornicroft, G., Dunn, G., Holloway, F., Wykes, T., et al. (1995). The Camberwell Assessment of Need (CAN): The validity and reliability of an instrument to assess the needs of people with severe mental illness. British Journal of Psychiatry, 167, 589–595.PubMedCrossRef
26.
go back to reference Wennstrom, E., Sorbom, D., & Wiesel, F. X. (2004). Factor structure in the Camberwell assessment of need. British Journal of Psychiatry, 185, 505–510.PubMedCrossRef Wennstrom, E., Sorbom, D., & Wiesel, F. X. (2004). Factor structure in the Camberwell assessment of need. British Journal of Psychiatry, 185, 505–510.PubMedCrossRef
27.
go back to reference McCrone, P., Leese, M., Thornicroft, G., Griffiths, G., & Padfield, S. (2000). Reliability of the Camberwell assessment of need-European Version: EPSILON study 6. British Journal of Psychiatry, 177, S34–S40.CrossRef McCrone, P., Leese, M., Thornicroft, G., Griffiths, G., & Padfield, S. (2000). Reliability of the Camberwell assessment of need-European Version: EPSILON study 6. British Journal of Psychiatry, 177, S34–S40.CrossRef
28.
go back to reference Brewin, C. R., Wing, J. K., Mangen, S. P., et al. (1987). Principles and practice of measuring needs in the long-term mentally ill: The MRC needs for care assessment. Psychological Medicine, 17, 971–981.PubMedCrossRef Brewin, C. R., Wing, J. K., Mangen, S. P., et al. (1987). Principles and practice of measuring needs in the long-term mentally ill: The MRC needs for care assessment. Psychological Medicine, 17, 971–981.PubMedCrossRef
29.
go back to reference Nielsen, L. F., Middelboe, T., Werdelin, G., Petersen, L., Mackeprang, E. L., Ramian, K., et al. (1999). Need assessment in long-term psychiatric patients: Inter-rater reliability and test-retest reliability of the Danish version of the Camberwell assessment of need. Nordic Journal of Psychiatry, 53, 371–376.CrossRef Nielsen, L. F., Middelboe, T., Werdelin, G., Petersen, L., Mackeprang, E. L., Ramian, K., et al. (1999). Need assessment in long-term psychiatric patients: Inter-rater reliability and test-retest reliability of the Danish version of the Camberwell assessment of need. Nordic Journal of Psychiatry, 53, 371–376.CrossRef
30.
go back to reference Evenson, R. C., & Boyd, M. A. (1993). The St Louis inventory of community living skills. Psychosocial Rehabilitation Journal, 17, 93–97. Evenson, R. C., & Boyd, M. A. (1993). The St Louis inventory of community living skills. Psychosocial Rehabilitation Journal, 17, 93–97.
31.
go back to reference Yeh, H. S., Luh, R. L., Liu, H. J., Lee, Y. C., & Slade, M. (2008). Reliability of the Camberwell assessment of need (Chinese version) for patients with schizophrenia at a daycare center of Taiwan. Social Psychiatry and Psychiatric Epidemiology, 41, 75–80.CrossRef Yeh, H. S., Luh, R. L., Liu, H. J., Lee, Y. C., & Slade, M. (2008). Reliability of the Camberwell assessment of need (Chinese version) for patients with schizophrenia at a daycare center of Taiwan. Social Psychiatry and Psychiatric Epidemiology, 41, 75–80.CrossRef
32.
go back to reference Au, R. W. C., Tam, P. W. C., Tam, G. W. C., & Ungavri, G. S. (2005). Cross-cultural validation of the St Louis inventory of community living skills for Chinese patients with schizophrenia in Hong Kong. Psychiatric Rehabilitation Journal, 29, 34–40.PubMedCrossRef Au, R. W. C., Tam, P. W. C., Tam, G. W. C., & Ungavri, G. S. (2005). Cross-cultural validation of the St Louis inventory of community living skills for Chinese patients with schizophrenia in Hong Kong. Psychiatric Rehabilitation Journal, 29, 34–40.PubMedCrossRef
33.
go back to reference Chien, W. T., Kam, C. W., & Lee, I. F. K. (2001). An assessment of the patients’ needs in mental health education. Journal of Advanced Nursing, 34, 304–311.PubMedCrossRef Chien, W. T., Kam, C. W., & Lee, I. F. K. (2001). An assessment of the patients’ needs in mental health education. Journal of Advanced Nursing, 34, 304–311.PubMedCrossRef
34.
go back to reference American Psychiatric Association (1994). Diagnostic and statistical manual of mental disorder (4th ed.). Washington, DC: American Psychiatric Association. American Psychiatric Association (1994). Diagnostic and statistical manual of mental disorder (4th ed.). Washington, DC: American Psychiatric Association.
35.
go back to reference Portney, L. G., & Watkins, M. P. (1993). Foundations of clinical research: Applications to practice. USA: Appleton & Lange. Portney, L. G., & Watkins, M. P. (1993). Foundations of clinical research: Applications to practice. USA: Appleton & Lange.
36.
go back to reference Stemler, S. (2001). An overview of content analysis. Practical Assessment, Research & Evaluation, 7(17). Stemler, S. (2001). An overview of content analysis. Practical Assessment, Research & Evaluation, 7(17).
37.
go back to reference Comrey, A. L., & Lee, H. B. (1992). A first course in factor analysis (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Associates Publishers. Comrey, A. L., & Lee, H. B. (1992). A first course in factor analysis (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Associates Publishers.
38.
go back to reference Sullivan, P. (1994). Recovery from schizophrenia: What we can learn from the developing nations. Innovations and Research in clinical Services, Community Support, and Rehabilitation, 3, 7–15. Sullivan, P. (1994). Recovery from schizophrenia: What we can learn from the developing nations. Innovations and Research in clinical Services, Community Support, and Rehabilitation, 3, 7–15.
39.
go back to reference Markowitz, F. E. (2001). Modeling processes in recovery from mental illness: Relationships between symptoms, life satisfaction, and self-concept. Journal of Health and Social Behavior, 42, 64–79.PubMedCrossRef Markowitz, F. E. (2001). Modeling processes in recovery from mental illness: Relationships between symptoms, life satisfaction, and self-concept. Journal of Health and Social Behavior, 42, 64–79.PubMedCrossRef
40.
go back to reference Tsang, H. W. H., & Chen, E. Y. H. (2007). Perceptions on remission and recovery in Schizophrenia. Psychopathology, 40, 469–469.PubMedCrossRef Tsang, H. W. H., & Chen, E. Y. H. (2007). Perceptions on remission and recovery in Schizophrenia. Psychopathology, 40, 469–469.PubMedCrossRef
41.
go back to reference Frese, F. J., Stanley, J., Kress, K., & Vogel-Scibilia, S. (2001). Integrating evidence-based practices and the recovery model. Psychiatric Services, 52, 1462–1468.PubMedCrossRef Frese, F. J., Stanley, J., Kress, K., & Vogel-Scibilia, S. (2001). Integrating evidence-based practices and the recovery model. Psychiatric Services, 52, 1462–1468.PubMedCrossRef
Metagegevens
Titel
Development and initial validation of Perceived Rehabilitation Needs Questionnaire for people with schizophrenia
Auteurs
Alvin H. H. Wong
Hector W. H. Tsang
Sally M. Y. Li
Kelvin M. T. Fung
Raymond C. K. Chung
Ada Y. Leung
Michael G. C. Yiu
Publicatiedatum
01-04-2011
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 3/2011
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9767-5

Andere artikelen Uitgave 3/2011

Quality of Life Research 3/2011 Naar de uitgave