Swipe om te navigeren naar een ander artikel
The use of preference-based measures (PBMs) of health-related quality of life (HRQoL) is increasing in health care resource allocation decisions. Whilst there are measures widely used for this purpose in adults, research in the paediatric field is more limited. This paper reports on how the descriptive system for a new paediatric generic PBM of HRQoL was developed from dimensions identified in previous research.
Existing scales from the paediatric literature were reviewed for suitability, and scales were also developed empirically, based on qualitative interview data from children, by taking adverbial phrases and confirming the ordinality by a ranking exercise with children. The resulting scales were applied to the dimensions from the previous research.
No suitable scales were found in the paediatric literature, so the empirically derived scales were used resulting in seven different types. Children were successfully able to rank these to determine the ordinality, and these types were applied to the dimensions.
This work has empirically developed a descriptive system for the dimensions of HRQoL identified in previous research. Further research is needed to test the descriptive system on a paediatric population and reduce the number of dimensions to be amenable to health state valuation.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
NICE (National Institute for Clinical Excellence). (April 2004). Guide to the methods of technology appraisal.
McCabe, C. (May 2003). Estimating preference weights for a paediatric health state classification (HUI2) and a comparison of methods. Ph.D.Thesis. The University of Sheffield.
Stevens, K. J. (2008). Working with children to develop dimensions for a preference based generic paediatric health related quality of life measure. Health Economics and Decision Science Discussion Paper 08/04. Available from http://www.shef.ac.uk/scharr/sections/heds/discussion.html Accessed 14/08/2008.
Streiner, D. L., Norman, G. R., & Health Measurement Scales. (1995). A practical guide to their development and use (2nd ed.). Oxford: Oxford University Press.
Brazier, J. E., Ratcliffe, J., Salomon, J., & Tsuchiya, A. (2007). Measuring and valuing health benefits for economic evaluation. Oxford: Oxford University Press.
Kind, P., Brooks, R., & Rabin, R. (Eds.). (2005). EQ-5D concepts and methods, a developmental history. Chapter 3. Berlin: Springer.
Eiser, C., & Morse, R. (2001). Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment,5(4), 1–156. PubMed
Health Utilities Index. http://healthutilities.biz/ Accessed 14/07/2008.
Brazier, J. E., Deverill, M., Green, C., et al. (1999). A review of the use of health status measures in economic evaluation. Health Technology Assessment, 3(9), 1–164.
Bland, M., & Peacock, J. (2001). Methods based on rank order. In statistical questions in evidence-based medicine. Oxford: Oxford Medical Publications, Oxford University Press.
Argyrous, G. (2006). Rank-order tests for two or more samples. In statistics for research with a guide to SPSS (2nd ed.). London: Sage.
Hinton, P. R. (1995). Statistics explained. A guide for social science students. London: Routledge.
MAPI research trust. Patient-Reported Outcome and Quality of Life Instruments Database. Available from: www.proqolid.org Accessed 13/04/2006.
- Developing a descriptive system for a new preference-based measure of health-related quality of life for children
- Springer Netherlands