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Quality of Life Research
Gepubliceerd in: Quality of Life Research 8/2009

01-10-2009

Developing a descriptive system for a new preference-based measure of health-related quality of life for children

Auteur: Katherine Stevens

Gepubliceerd in: Quality of Life Research | Uitgave 8/2009

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Abstract

Objectives

The use of preference-based measures (PBMs) of health-related quality of life (HRQoL) is increasing in health care resource allocation decisions. Whilst there are measures widely used for this purpose in adults, research in the paediatric field is more limited. This paper reports on how the descriptive system for a new paediatric generic PBM of HRQoL was developed from dimensions identified in previous research.

Methods

Existing scales from the paediatric literature were reviewed for suitability, and scales were also developed empirically, based on qualitative interview data from children, by taking adverbial phrases and confirming the ordinality by a ranking exercise with children. The resulting scales were applied to the dimensions from the previous research.

Results

No suitable scales were found in the paediatric literature, so the empirically derived scales were used resulting in seven different types. Children were successfully able to rank these to determine the ordinality, and these types were applied to the dimensions.

Conclusions

This work has empirically developed a descriptive system for the dimensions of HRQoL identified in previous research. Further research is needed to test the descriptive system on a paediatric population and reduce the number of dimensions to be amenable to health state valuation.
vorige artikel Health utility scores of colorectal cancer based on societal preference in Japan
volgende artikel Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instruments
Literatuur
1.
NICE (National Institute for Clinical Excellence). (April 2004). Guide to the methods of technology appraisal.
2.
McCabe, C. (May 2003). Estimating preference weights for a paediatric health state classification (HUI2) and a comparison of methods. Ph.D.Thesis. The University of Sheffield.
3.
4.
Streiner, D. L., Norman, G. R., & Health Measurement Scales. (1995). A practical guide to their development and use (2nd ed.). Oxford: Oxford University Press.
5.
Tennant, A., McKenna, S. P., & Hagell, P. (2004). Application of Rasch analysis in the development and application of quality of life instruments. Value in Health, 7(Supplement 1), S22–S26.PubMedCrossRef
6.
Brazier, J. E., Ratcliffe, J., Salomon, J., & Tsuchiya, A. (2007). Measuring and valuing health benefits for economic evaluation. Oxford: Oxford University Press.
7.
Kind, P., Brooks, R., & Rabin, R. (Eds.). (2005). EQ-5D concepts and methods, a developmental history. Chapter 3. Berlin: Springer.
8.
Eiser, C., & Morse, R. (2001). Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5(4), 1–156.PubMed
9.
Apajasalo, M., Sintonen, H., Holmberg, C., et al. (1996). Quality of life in early adolescence: A sixteen-dimensional health-related measure (16D). Quality of Life Research, 5, 205–211.PubMedCrossRef
10.
11.
Miller, G. A. (1956). The magical number seven, plus or minus two: Some limits on our capacity for processing information. Psychological Review, 63(2), 81–97.PubMedCrossRef
12.
Riley, A. W., Forrest, C. B., Rebok, G. W., et al. (2004). The child report form of the CHIP-child edition: reliability and validity. Medical Care, 42(3), 221–231.PubMedCrossRef
13.
Matza, L. S., Swensen, A. R., Flood, E. M., et al. (2004). Assessment of health related quality of life in children: A review of conceptual, methodological, and regulatory issues. Value in Health, 7(1), 79–92.PubMedCrossRef
14.
Brazier, J. E., Deverill, M., Green, C., et al. (1999). A review of the use of health status measures in economic evaluation. Health Technology Assessment, 3(9), 1–164.
15.
Keller, S. D., Ware, J. E., Gandek, B., et al. (1998). Testing the equivalence of translations of widely used response choice labels: Results from the IQOLA project. Journal of Clinical Epidemiology, 51(11), 933–944.PubMedCrossRef
16.
Bland, M., & Peacock, J. (2001). Methods based on rank order. In statistical questions in evidence-based medicine. Oxford: Oxford Medical Publications, Oxford University Press.
17.
Argyrous, G. (2006). Rank-order tests for two or more samples. In statistics for research with a guide to SPSS (2nd ed.). London: Sage.
18.
Hinton, P. R. (1995). Statistics explained. A guide for social science students. London: Routledge.
19.
Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159–174.PubMedCrossRef
20.
MAPI research trust. Patient-Reported Outcome and Quality of Life Instruments Database. Available from: www.​proqolid.​org Accessed 13/04/2006.
Metagegevens
Titel
Developing a descriptive system for a new preference-based measure of health-related quality of life for children
Auteur
Katherine Stevens
Publicatiedatum
01-10-2009
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 8/2009
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-009-9524-9

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