Skip to main content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 5/2019

11-12-2018

Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures

Auteurs: David S. Tulsky, Pamela A. Kisala, Aaron J. Boulton, Alan M. Jette, David Thissen, Pengsheng Ni, Darren A. DeWalt, I-Chan Huang, Yang Liu, M. J. Mulcahey, Mary Slavin, Brooke Magnus, Holly Crump, Robin Hanks, Susan Charlifue, Bryce B. Reeve

Gepubliceerd in: Quality of Life Research | Uitgave 5/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

Having independent versions of the PROMIS® scales (for Pediatric and Adults) is problematic as scores cannot be evaluated longitudinally as individuals move from childhood into adulthood. The primary aim of this research project is to use item response theory (IRT) to develop a transitional scoring link (or “crosswalk”) between the PROMIS adult and pediatric physical health measures.

Setting

Sample 1 was collected at 6 rehabilitation hospitals in the U.S., and participants in Sample 2 were recruited from public health insurance programs and an online research panel.

Methods

PROMIS pediatric and adult physical function, mobility, upper extremity, fatigue, and pain measures were administered to a sample of 874 individuals aged 14–20 years old with special health needs and a sample of 641 individuals aged 14–25 years with a disability. IRT-based scores were linked using a linear approximation to calibrated projection.

Results

Estimated latent variable correlations ranged between 0.84 and 0.95 for the PROMIS pediatric and adult scores. Root Expected Mean Square Difference values were below the 0.08 threshold in all cases except when comparing genders on the Mobility (0.097) and Pain (0.10) scales in the special health care needs sample. Sum score conversion tables for the pediatric and adult PROMIS measures are presented.

Conclusions

The linking coefficients can be used to calculate scale scores on PROMIS adult measures from pediatric measure scores and vice versa. This may lead to more accurate measurement in cross-sectional studies spanning multiple age groups or longitudinal studies that require comparable measurement across distinct developmental stages.
Voetnoten
1
The mobility item bank measures the amount of difficulty a youth has performing tasks requiring primarily leg movement (e.g., walking up stairs, playing with other children). Conversely, the Upper Extremity item bank measures the amount of difficulty a youth has performing tasks requiring arm and hand movement (e.g., opening a jar, buttoning a shirt).
 
2
Expected a Posteriori (EAP) scores are IRT-based scale score estimates obtained by computing the mean of each individual’s latent trait distribution, which is determined by each individual’s response pattern and the IRT model employed.
 
Literatuur
1.
go back to reference Donkervoort, M., Wiegerink, D. J., van Meeteren, J., Stam, H. J., Roebroeck, M. E., & Transition Research Group South West, N (2009). Transition to adulthood: validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal intelligence. Developmental Medicine & Child Neurology, 51(1), 53–62. CrossRef Donkervoort, M., Wiegerink, D. J., van Meeteren, J., Stam, H. J., Roebroeck, M. E., & Transition Research Group South West, N (2009). Transition to adulthood: validation of the Rotterdam Transition Profile for young adults with cerebral palsy and normal intelligence. Developmental Medicine & Child Neurology, 51(1), 53–62. CrossRef
2.
go back to reference Stevens, S. E., Steele, C. A., Jutai, J. W., Kalnins, I. V., Bortolussi, J. A., & Biggar, W. D. (1996). Adolescents with physical disabilities: some psychosocial aspects of health. Journal of Adolescent Health, 19(2), 157–164. CrossRef Stevens, S. E., Steele, C. A., Jutai, J. W., Kalnins, I. V., Bortolussi, J. A., & Biggar, W. D. (1996). Adolescents with physical disabilities: some psychosocial aspects of health. Journal of Adolescent Health, 19(2), 157–164. CrossRef
3.
go back to reference Ansell, B. M., & Chamberlain, M. A. (1998). Children with chronic arthritis: the management of transition to adulthood. Baillieres Clinical Rheumatology, 12(2), 363–373. CrossRefPubMed Ansell, B. M., & Chamberlain, M. A. (1998). Children with chronic arthritis: the management of transition to adulthood. Baillieres Clinical Rheumatology, 12(2), 363–373. CrossRefPubMed
4.
go back to reference Magill-Evans, J., Wiart, L., Darrah, J., & Kratochvil, M. (2005). Beginning the transition to adulthood: the experiences of six families with youths with cerebral palsy. Physical & Occupational Therapy, 25(3), 19–36. Magill-Evans, J., Wiart, L., Darrah, J., & Kratochvil, M. (2005). Beginning the transition to adulthood: the experiences of six families with youths with cerebral palsy. Physical & Occupational Therapy, 25(3), 19–36.
5.
go back to reference Matza, L. S., Swensen, A. R., Flood, E. M., Secnik, K., & Leidy, N. K. (2004). Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health, 7(1), 79–92. CrossRefPubMed Matza, L. S., Swensen, A. R., Flood, E. M., Secnik, K., & Leidy, N. K. (2004). Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health, 7(1), 79–92. CrossRefPubMed
6.
go back to reference Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812. CrossRefPubMed Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812. CrossRefPubMed
7.
go back to reference Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambulatory Pediatrics, 3(6), 329–341. CrossRefPubMed Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambulatory Pediatrics, 3(6), 329–341. CrossRefPubMed
8.
go back to reference Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., Ader, D., Fries, J. F., Bruce, B., Rose, M., & Group, P. C. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical Care, 45(5 Suppl 1), S3–S11. CrossRefPubMedPubMedCentral Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., Ader, D., Fries, J. F., Bruce, B., Rose, M., & Group, P. C. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical Care, 45(5 Suppl 1), S3–S11. CrossRefPubMedPubMedCentral
9.
go back to reference Ader, D. N. (2007). Developing the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care, 45(5 Suppl 1), S1–S2. CrossRef Ader, D. N. (2007). Developing the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care, 45(5 Suppl 1), S1–S2. CrossRef
10.
go back to reference Irwin, D. E., Stucky, B. D., Thissen, D., Dewitt, E. M., Lai, J. S., Yeatts, K., Varni, J. W., & DeWalt, D. A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Quality of Life Research, 19(4), 585–594. CrossRefPubMedPubMedCentral Irwin, D. E., Stucky, B. D., Thissen, D., Dewitt, E. M., Lai, J. S., Yeatts, K., Varni, J. W., & DeWalt, D. A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Quality of Life Research, 19(4), 585–594. CrossRefPubMedPubMedCentral
11.
go back to reference Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., Amtmann, D., Bode, R., Buysse, D., Choi, S., Cook, K., Devellis, R., DeWalt, D., Fries, J. F., Gershon, R., Hahn, E. A., Lai, J. S., Pilkonis, P., Revicki, D., Rose, M., Weinfurt, K., & Hays, R. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. CrossRefPubMedPubMedCentral Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., Amtmann, D., Bode, R., Buysse, D., Choi, S., Cook, K., Devellis, R., DeWalt, D., Fries, J. F., Gershon, R., Hahn, E. A., Lai, J. S., Pilkonis, P., Revicki, D., Rose, M., Weinfurt, K., & Hays, R. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. CrossRefPubMedPubMedCentral
12.
go back to reference Reeve, B. B., Thissen, D., DeWalt, D. A., Huang, I. C., Liu, Y., Magnus, B., Quinn, H., Gross, H. E., Kisala, P. A., Ni, P., Haley, S., Mulcahey, M. J., Charlifue, S., Hanks, R. A., Slavin, M., Jette, A., & Tulsky, D. S. (2016). Linkage between the PROMIS(R) pediatric and adult emotional distress measures. Quality of Life Research, 25(4), 823–833. CrossRefPubMed Reeve, B. B., Thissen, D., DeWalt, D. A., Huang, I. C., Liu, Y., Magnus, B., Quinn, H., Gross, H. E., Kisala, P. A., Ni, P., Haley, S., Mulcahey, M. J., Charlifue, S., Hanks, R. A., Slavin, M., Jette, A., & Tulsky, D. S. (2016). Linkage between the PROMIS(R) pediatric and adult emotional distress measures. Quality of Life Research, 25(4), 823–833. CrossRefPubMed
13.
go back to reference Gershon, R., Rothrock, N. E., Hanrahan, R. T., Jansky, L. J., Harniss, M., & Riley, W. (2010). The development of a clinical outcomes survey research application: Assessment Center. Quality of Life Research, 19(5), 677–685. CrossRefPubMedPubMedCentral Gershon, R., Rothrock, N. E., Hanrahan, R. T., Jansky, L. J., Harniss, M., & Riley, W. (2010). The development of a clinical outcomes survey research application: Assessment Center. Quality of Life Research, 19(5), 677–685. CrossRefPubMedPubMedCentral
14.
go back to reference McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., Perrin, J. M., Shonkoff, J. P., & Strickland, B. (1998). A new definition of children with special health care needs. Pediatrics, 102(1 Pt 1), 137–140. CrossRefPubMed McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., Perrin, J. M., Shonkoff, J. P., & Strickland, B. (1998). A new definition of children with special health care needs. Pediatrics, 102(1 Pt 1), 137–140. CrossRefPubMed
15.
go back to reference Neff, J. M., Sharp, V. L., Muldoon, J., Graham, J., Popalisky, J., & Gay, J. C. (2002). Identifying and classifying children with chronic conditions using administrative data with the clinical risk group classification system. Ambulatory Pediatrics, 2(1), 71–79. CrossRefPubMed Neff, J. M., Sharp, V. L., Muldoon, J., Graham, J., Popalisky, J., & Gay, J. C. (2002). Identifying and classifying children with chronic conditions using administrative data with the clinical risk group classification system. Ambulatory Pediatrics, 2(1), 71–79. CrossRefPubMed
16.
go back to reference Bethell, C. D., Read, D., Stein, R. E., Blumberg, S. J., Wells, N., & Newacheck, P. W. (2002). Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambulatory Pediatrics, 2(1), 38–48. CrossRefPubMed Bethell, C. D., Read, D., Stein, R. E., Blumberg, S. J., Wells, N., & Newacheck, P. W. (2002). Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambulatory Pediatrics, 2(1), 38–48. CrossRefPubMed
17.
go back to reference Dorans, N. J. (2004). Equating, concordance, and expectation. Applied Psychological Measurement, 28, 227–246. CrossRef Dorans, N. J. (2004). Equating, concordance, and expectation. Applied Psychological Measurement, 28, 227–246. CrossRef
18.
go back to reference Choi, S. W., Schalet, B., Cook, K. F., & Cella, D. (2014). Establishing a common metric for depressive symptoms: Linking the BDI-II, CES-D, and PHQ-9 to PROMIS Depression. Psychological Assessment, 26(2), 513. CrossRefPubMedPubMedCentral Choi, S. W., Schalet, B., Cook, K. F., & Cella, D. (2014). Establishing a common metric for depressive symptoms: Linking the BDI-II, CES-D, and PHQ-9 to PROMIS Depression. Psychological Assessment, 26(2), 513. CrossRefPubMedPubMedCentral
19.
go back to reference Dorans, N. J., & Holland, P. W. (2000). Population invariance and the equatability of tests: Basic theory and the linear case. Journal of Educational Measurement, 37(4), 281–306. CrossRef Dorans, N. J., & Holland, P. W. (2000). Population invariance and the equatability of tests: Basic theory and the linear case. Journal of Educational Measurement, 37(4), 281–306. CrossRef
20.
go back to reference Cai, L., Thissen, D., & duToit, S. H. C. (2011). IRTPRO for windows. Lincolnwood: Scientific Software International. Cai, L., Thissen, D., & duToit, S. H. C. (2011). IRTPRO for windows. Lincolnwood: Scientific Software International.
21.
go back to reference Thissen, D., Varni, J. W., Stucky, B. D., Liu, Y., Irwin, D. E., & Dewalt, D. A. (2011). Using the PedsQL 3.0 asthma module to obtain scores comparable with those of the PROMIS pediatric asthma impact scale (PAIS). Quality Life Research, 20(9), 1497–1505. CrossRef Thissen, D., Varni, J. W., Stucky, B. D., Liu, Y., Irwin, D. E., & Dewalt, D. A. (2011). Using the PedsQL 3.0 asthma module to obtain scores comparable with those of the PROMIS pediatric asthma impact scale (PAIS). Quality Life Research, 20(9), 1497–1505. CrossRef
22.
go back to reference Thissen, D., Liu, Y., Magnus, B., & Quinn, H. (2015). Extending the use of multidimensional IRT calibration as projection: many-to-one linking and linear computation of projected scores. In L. A. van der Ark, D. M. Bolt, W.-C. Wang, J. A. Doublas & S.-M. Chow (Eds.), Quantitative Psychology Research: The 79th annual meeting of the psychometric society, Madison, Wisconsin, 2014 (pp. 1–16). New York: Springer. Thissen, D., Liu, Y., Magnus, B., & Quinn, H. (2015). Extending the use of multidimensional IRT calibration as projection: many-to-one linking and linear computation of projected scores. In L. A. van der Ark, D. M. Bolt, W.-C. Wang, J. A. Doublas & S.-M. Chow (Eds.), Quantitative Psychology Research: The 79th annual meeting of the psychometric society, Madison, Wisconsin, 2014 (pp. 1–16). New York: Springer.
23.
go back to reference Center, N. S., & C. I., S. (2015). Spinal Cord Injury (SCI) Facts and Figures at a Glance. Birmingham: Spain Rehabilitation, University of Alabama. Center, N. S., & C. I., S. (2015). Spinal Cord Injury (SCI) Facts and Figures at a Glance. Birmingham: Spain Rehabilitation, University of Alabama.
24.
go back to reference Centers for Disease Control and Prevention. (1999). TBI in the United States: A Report to Congress. Atlanta: CDC. Centers for Disease Control and Prevention. (1999). TBI in the United States: A Report to Congress. Atlanta: CDC.
25.
go back to reference Hays, R. D., Spritzer, K. L., Amtmann, D., Lai, J. S., Dewitt, E. M., Rothrock, N., Dewalt, D. A., Riley, W. T., Fries, J. F., & Krishnan, E. (2013). Upper-extremity and mobility subdomains from the Patient-reported outcomes measurement information system (PROMIS) adult physical functioning item bank. Archives of Physical Medicine and Rehabilitation, 94(11), 2291–2296. CrossRefPubMed Hays, R. D., Spritzer, K. L., Amtmann, D., Lai, J. S., Dewitt, E. M., Rothrock, N., Dewalt, D. A., Riley, W. T., Fries, J. F., & Krishnan, E. (2013). Upper-extremity and mobility subdomains from the Patient-reported outcomes measurement information system (PROMIS) adult physical functioning item bank. Archives of Physical Medicine and Rehabilitation, 94(11), 2291–2296. CrossRefPubMed
Metagegevens
Titel
Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures
Auteurs
David S. Tulsky
Pamela A. Kisala
Aaron J. Boulton
Alan M. Jette
David Thissen
Pengsheng Ni
Darren A. DeWalt
I-Chan Huang
Yang Liu
M. J. Mulcahey
Mary Slavin
Brooke Magnus
Holly Crump
Robin Hanks
Susan Charlifue
Bryce B. Reeve
Publicatiedatum
11-12-2018
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 5/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-2073-3

Andere artikelen Uitgave 5/2019

Quality of Life Research 5/2019 Naar de uitgave