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11-12-2018 | Uitgave 5/2019

Quality of Life Research 5/2019

Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures

Tijdschrift:
Quality of Life Research > Uitgave 5/2019
Auteurs:
David S. Tulsky, Pamela A. Kisala, Aaron J. Boulton, Alan M. Jette, David Thissen, Pengsheng Ni, Darren A. DeWalt, I-Chan Huang, Yang Liu, M. J. Mulcahey, Mary Slavin, Brooke Magnus, Holly Crump, Robin Hanks, Susan Charlifue, Bryce B. Reeve
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Abstract

Purpose

Having independent versions of the PROMIS® scales (for Pediatric and Adults) is problematic as scores cannot be evaluated longitudinally as individuals move from childhood into adulthood. The primary aim of this research project is to use item response theory (IRT) to develop a transitional scoring link (or “crosswalk”) between the PROMIS adult and pediatric physical health measures.

Setting

Sample 1 was collected at 6 rehabilitation hospitals in the U.S., and participants in Sample 2 were recruited from public health insurance programs and an online research panel.

Methods

PROMIS pediatric and adult physical function, mobility, upper extremity, fatigue, and pain measures were administered to a sample of 874 individuals aged 14–20 years old with special health needs and a sample of 641 individuals aged 14–25 years with a disability. IRT-based scores were linked using a linear approximation to calibrated projection.

Results

Estimated latent variable correlations ranged between 0.84 and 0.95 for the PROMIS pediatric and adult scores. Root Expected Mean Square Difference values were below the 0.08 threshold in all cases except when comparing genders on the Mobility (0.097) and Pain (0.10) scales in the special health care needs sample. Sum score conversion tables for the pediatric and adult PROMIS measures are presented.

Conclusions

The linking coefficients can be used to calculate scale scores on PROMIS adult measures from pediatric measure scores and vice versa. This may lead to more accurate measurement in cross-sectional studies spanning multiple age groups or longitudinal studies that require comparable measurement across distinct developmental stages.

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